Opening Data for Global Health

Chapter by Matt Laessig, Bryon Jacob and Carla AbouZahr in The Palgrave Handbook of Global Health Data Methods for Policy and Practice: “…provide best practices for organizations to adopt to disseminate data openly for others to use. They describe development of the open data movement and its rapid adoption by governments, non-governmental organizations, and research groups. The authors provide examples from the health sector—an early adopter—but acknowledge concerns specific to health relating to informed consent, intellectual property, and ownership of personal data. Drawing on their considerable contributions to the open data movement, Laessig and Jacob share their Open Data Progression Model. They describe six stages to make data open: from data collection, documentation of the data, opening the data, engaging the community of users, making the data interoperable, to finally linking the data….(More)”