Stefaan Verhulst

Book edited by edited by Linnet Taylor, Aaron Martin, Gargi Sharma and Shazade Jameson: “In early 2020, as the COVID-19 pandemic swept the world and states of emergency were declared by one country after another, the global technology sector—already equipped with unprecedented wealth, power, and influence—mobilised to seize the opportunity. This collection is an account of what happened next and captures the emergent conflicts and responses around the world. The essays provide a global perspective on the implications of these developments for justice: they make it possible to compare how the intersection of state and corporate power—and the way that power is targeted and exercised—confronts, and invites resistance from, civil society in countries worldwide.

This edited volume captures the technological response to the pandemic in 33 countries, accompanied by nine thematic reflections, and reflects the unfolding of the first wave of the pandemic.

This book can be read as a guide to the landscape of technologies deployed during the pandemic and also be used to compare individual country strategies. It will prove useful as a tool for teaching and learning in various disciplines and as a reference point for activists and analysts interested in issues of data justice.

The essays interrogate these technologies and the political, legal, and regulatory structures that determine how they are applied. In doing so,the book exposes the workings of state technological power to critical assessment and contestation….(More)”

Kaiser Health News: “After terrorists slammed a plane into the Pentagon on 9/11, ambulances rushed scores of the injured to community hospitals, but only three of the patients were taken to specialized trauma wards. The reason: The hospitals and ambulances had no real-time information-sharing system.

Nineteen years later, there is still no national data network that enables the health system to respond effectively to disasters and disease outbreaks. Many doctors and nurses must fill out paper forms on COVID-19 cases and available beds and fax them to public health agencies, causing critical delays in care and hampering the effort to track and block the spread of the coronavirus.

There are signs the COVID-19 pandemic has created momentum to modernize the nation’s creaky, fragmented public health data system, in which nearly 3,000 local, state and federal health departments set their own reporting rules and vary greatly in their ability to send and receive data electronically.

Sutter Health and UC Davis Health, along with nearly 30 other provider organizations around the country, recently launched a collaborative effort to speed and improve the sharing of clinical data on individual COVID cases with public health departments.

But even that platform, which contains information about patients’ diagnoses and response to treatments, doesn’t yet include data on the availability of hospital beds, intensive care units or supplies needed for a seamless pandemic response.

The federal government spent nearly $40 billion over the past decade to equip hospitals and physicians’ offices with electronic health record systems for improving treatment of individual patients. But no comparable effort has emerged to build an effective system for quickly moving information on infectious disease from providers to public health agencies.

In March, Congress approved $500 million over 10 years to modernize the public health data infrastructure. But the amount falls far short of what’s needed to update data systems and train staff at local and state health departments, said Brian Dixon, director of public health informatics at the Regenstrief Institute in Indianapolis….(More)”.

Case Notes by Mitchell B. Weiss and Sarah Mehta: “By April 7, 2020, over 1.4 million people worldwide had contracted the novel coronavirus (COVID-19). Governments raced to curb the spread of COVID-19 by scaling up testing, quarantining those infected, and tracing their possible contacts. It had taken Singapore’s Government Technology Agency (GovTech) and Ministry of Health (MOH) all of eight weeks to develop the world’s first nationwide deployment of a Bluetooth-based contact tracing system, TraceTogether, and deploy it in an attempt to slow the spread of COVID-19. From late January to mid-March 2020, GovTech’s Jason Bay and his team raced to create a technology that would supplement the work of Singapore’s human contact tracers. Days after its launch, Singapore’s foreign minister announced plans to open source the technology. Now, in early April, TraceTogether was a beta for the world. Whether the system would really help in Singapore, and whether other countries should adopt it was still a wide-open question….(More)”.

OECD paper by Craig Matasick, Carlotta Alfonsi and Alessandro Bellantoni: “This paper provides a holistic policy approach to the challenge of disinformation by exploring a range of governance responses that rest on the open government principles of transparency, integrity, accountability and stakeholder participation. It offers an analysis of the significant changes that are affecting media and information ecosystems, chief among them the growth of digital platforms. Drawing on the implications of this changing landscape, the paper focuses on four policy areas of intervention: public communication for a better dialogue between government and citizens; direct responses to identify and combat disinformation; legal and regulatory policy; and media and civic responses that support better information ecosystems. The paper concludes with proposed steps the OECD can take to build evidence and support policy in this space…(More)”.

Lauren Gardner, Jeremy Ratcliff, Ensheng Dong and Aaron Katz at the Lancet: “The disjointed public health response to the COVID-19 pandemic has demonstrated one clear truth: the value of timely, publicly available data. The John Hopkins University (JHU) Center for Systems Science and Engineering’s COVID-19 dashboard exists to provide this information. What grew from a modest effort to track a novel cause of pneumonia in China quickly became a mainstay symbol of the pandemic, receiving over 1 billion hits per day within weeks of its creation, primarily driven by the general public seeking information on the emerging health crisis. Critically, the data supporting the visualisation were provided in a publicly accessible repository and eagerly adopted by policy makers and the research community for purposes of modelling and planning, as evidenced by the more than 1200 citations in the first 4 months of its publication. 6 months into the pandemic, the JHU COVID-19 dashboard still stands as the authoritative source of global COVID-19 epidemiological data.

Similar commendable efforts to facilitate public understanding of COVID-19 have since been introduced by various academic, industry, and public health entities. These costly and disparate efforts around the world were necessary to fill the gap left by the lack of an established infrastructure for real-time reporting and open data sharing during an ongoing public health crisis…

Although existing systems were in place to achieve such objectives, they were not empowered or equipped to fully meet the public’s expectation for timely open data at an actionable level of spatial resolution. Moving forward, it is imperative that a standardised reporting system for systematically collecting, visualising, and sharing high-quality data on emerging infectious and notifiable diseases in real-time is established. The data should be made available at a spatial and temporal scale that is granular enough to prove useful for planning and modelling purposes. Additionally, a critical component of the proposed system is the democratisation of data; all collected information (observing necessary privacy standards) should be made publicly available immediately upon release, in machine-readable formats, and based on open data standards..(More)”. (See also https://data4covid19.org/)

Book by Dipayan Ghosh: “Designing a new digital social contact for our technological future…High technology presents a paradox. In just a few decades, it has transformed the world, making almost limitless quantities of information instantly available to billions of people and reshaping businesses, institutions, and even entire economies. But it also has come to rule our lives, addicting many of us to the march of megapixels across electronic screens both large and small.

Despite its undeniable value, technology is exacerbating deep social and political divisions in many societies. Elections influenced by fake news and unscrupulous hidden actors, the cyber-hacking of trusted national institutions, the vacuuming of private information by Silicon Valley behemoths, ongoing threats to vital infrastructure from terrorist groups and even foreign governments—all these concerns are now part of the daily news cycle and are certain to become increasingly serious into the future.

In this new world of endless technology, how can individuals, institutions, and governments harness its positive contributions while protecting each of us, no matter who or where we are?

In this book, a former Facebook public policy adviser who went on to assist President Obama in the White House offers practical ideas for using technology to create an open and accessible world that protects all consumers and civilians. As a computer scientist turned policymaker, Dipayan Ghosh answers the biggest questions about technology facing the world today. Proving clear and understandable explanations for complex issues, Terms of Disservice will guide industry leaders, policymakers, and the general public as we think about how we ensure that the Internet works for everyone, not just Silicon Valley….(More)”.

Congressional Management Foundation: “The Future of Citizen Engagement: Coronavirus, Congress, and Constituent Communications” explores how Members of Congress and their staff engaged with citizens while navigating the constraints posed by COVID-19, and offers examples of how Congress can substantively connect with constituents using modern technology against the backdrop of a global pandemic.

The report addresses the following questions:

• How did congressional offices adapt their communications strategies to meet the immediate needs of their constituents during the onset of COVID-19?
• What techniques did Members use to diversify their constituent outreach?
• What methods of engagement is Congress using now, and likely to use in the future?

The findings are based on a survey of senior congressional staffers, comprising over 120 responses provided to CMF between May 26 and June 19, 2020. Additionally, CMF conducted 13 follow-up interviews with survey respondents who indicated they were willing to speak further about their office operations and constituent communications during COVID-19….(More)”.

Paper by Ingmar Weber et al: “The United Nations Sustainable Development Goals (SDGs) are a global consensus on the world’s most pressing challenges. They come with a set of 232 indicators against which countries should regularly monitor their progress, ensuring that everyone is represented in up-to-date data that can be used to make decisions to improve people’s lives. However, existing data sources to measure progress on the SDGs are often outdated or lacking appropriate disaggregation. We evaluate the value that anonymous, publicly accessible advertising data from Facebook can provide in mapping socio-economic development in two low and middle income countries, the Philippines and India. Concretely, we show that audience estimates of how many Facebook users in a given location use particular device types, such as Android vs. iOS devices, or particular connection types, such as 2G vs. 4G, provide strong signals for modeling regional variation in the Wealth Index (WI), derived from the Demographic and Health Survey (DHS). We further show that, surprisingly, the predictive power of these digital connectivity features is roughly equal at both the high and low ends of the WI spectrum. Finally we show how such data can be used to create gender-disaggregated predictions, but that these predictions only appear plausible in contexts with gender equal Facebook usage, such as the Philippines, but not in contexts with large gender Facebook gaps, such as India….(More)”.

Essay by Michele Jolin and David Medina: “The cracks and design flaws of our nation’s public systems have been starkly exposed as governments everywhere struggle to respond to health and economic crises that disproportionately devastate Black residents and communities of color. As government leaders respond to the immediate emergencies, they also operate within a legacy of government practices, policies and systems that have played a central role in creating and maintaining racial inequity. 

Philanthropy can play a unique and catalytic role in accelerating a real recovery by helping government leaders make smarter decisions, helping them develop and effectively use the data-and-evidence capacity they need to spotlight and understand root causes of community challenges, especially racial disparities, and increase the impact of government investments that could close racial gaps and accelerate economic opportunity. Philanthropy can uniquely support leaders within government who are best positioned to redesign and reimagine public systems to deliver equity and impact.

We are already seeing that the growing number of governments that have built data-driven “Moneyball” muscles are better positioned both to manage through this crisis and to dismantle racist government practices. While we recognize that data and evidence can sometimes reinforce biases, we also know that government decision-makers who have access to more and better information—and who are trained to navigate the nuance and possible bias in this information—can use data to identify disparate racial outcomes, understand the core problems and target resources to close gaps. Government decision-makers who have the skills to test, learn, and improve government programs can prioritize resource allocation toward programs that both deliver better results and address the complexity of social problems.

Philanthropy can accelerate this public sector transformation by supporting change led by internal government champions who are challenging the status quo. By doing so, philanthropic leaders can increase the impact of the trillions of dollars invested by governments each year. Philanthropies such as Ballmer Group, Bloomberg Philanthropies, Blue Meridian Partners, the Bill & Melinda Gates Foundation, and Arnold Ventures understand this and are already putting their money where their mouths are. By helping governments make smarter budget and policy decisions, they can ensure that public dollars flow toward solutions that make a meaningful, measurable difference on our biggest challenges, whether it’s increasing economic mobility, reducing racial disparities in health and other outcomes, or addressing racial bias in government systems.

We need other donors to join them in prioritizing this kind of systems change….(More)”.

Article by Susan Ariel Aaronson: “…Concerns about the national security threat from personal data held by foreigners first emerged in 2013. Several U.S. entities, including Target, J.P. Morgan, and the U.S. Office of Personnel Management were hacked. Many attributed the hacking to Chinese entities. Administration officials concluded that the Chinese government could cross-reference legally obtained and hacked-data sets to reveal information about U.S. objectives and strategy. 

Personal data troves can also be cross-referenced to identify individuals, putting both personal security as well as national security at risk. Even U.S. firms pose a direct and indirect security threat to individuals and the nation because of their failure to adequately protect personal data. For example, Facebook has a disturbing history of sharing personal data without consent and allowing its clients to use that data to manipulate users. Some app designers have enabled functionality unnecessary for their software’s operation, while others, like Anomaly 6, embedded their software in mobile apps without the permission of users or firms. Other companies use personal data without user permission to create new products. Clearview AI scraped billions of images from major web services such as Facebook, Google, and YouTube, and sold these images to law enforcement agencies around the world. 

Firms can also inadvertently aggregate personal data and in so doing threaten national security. Strava, an athletes’ social network, released a heat map of its global users’ activities in 2018. Savvy analysts were able to use the heat map to reveal secret military bases and patrol routes. Chinese-owned data firms could be a threat to national security if they share data with the Chinese government. But the problem lies in the U.S.’s failure to adequately protect personal data and police the misuse of data collected without the permission of users….(More)”.