Stefaan Verhulst
Lauren Gardner, Jeremy Ratcliff, Ensheng Dong and Aaron Katz at the Lancet: “The disjointed public health response to the COVID-19 pandemic has demonstrated one clear truth: the value of timely, publicly available data. The John Hopkins University (JHU) Center for Systems Science and Engineering’s COVID-19 dashboard exists to provide this information. What grew from a modest effort to track a novel cause of pneumonia in China quickly became a mainstay symbol of the pandemic, receiving over 1 billion hits per day within weeks of its creation, primarily driven by the general public seeking information on the emerging health crisis. Critically, the data supporting the visualisation were provided in a publicly accessible repository and eagerly adopted by policy makers and the research community for purposes of modelling and planning, as evidenced by the more than 1200 citations in the first 4 months of its publication. 6 months into the pandemic, the JHU COVID-19 dashboard still stands as the authoritative source of global COVID-19 epidemiological data.
Similar commendable efforts to facilitate public understanding of COVID-19 have since been introduced by various academic, industry, and public health entities. These costly and disparate efforts around the world were necessary to fill the gap left by the lack of an established infrastructure for real-time reporting and open data sharing during an ongoing public health crisis…
Although existing systems were in place to achieve such objectives, they were not empowered or equipped to fully meet the public’s expectation for timely open data at an actionable level of spatial resolution. Moving forward, it is imperative that a standardised reporting system for systematically collecting, visualising, and sharing high-quality data on emerging infectious and notifiable diseases in real-time is established. The data should be made available at a spatial and temporal scale that is granular enough to prove useful for planning and modelling purposes. Additionally, a critical component of the proposed system is the democratisation of data; all collected information (observing necessary privacy standards) should be made publicly available immediately upon release, in machine-readable formats, and based on open data standards..(More)”. (See also https://data4covid19.org/)
Book by Dipayan Ghosh: “Designing a new digital social contact for our technological future…High technology presents a paradox. In just a few decades, it has transformed the world, making almost limitless quantities of information instantly available to billions of people and reshaping businesses, institutions, and even entire economies. But it also has come to rule our lives, addicting many of us to the march of megapixels across electronic screens both large and small.
Despite its undeniable value, technology is exacerbating deep social and political divisions in many societies. Elections influenced by fake news and unscrupulous hidden actors, the cyber-hacking of trusted national institutions, the vacuuming of private information by Silicon Valley behemoths, ongoing threats to vital infrastructure from terrorist groups and even foreign governments—all these concerns are now part of the daily news cycle and are certain to become increasingly serious into the future.
In this new world of endless technology, how can individuals, institutions, and governments harness its positive contributions while protecting each of us, no matter who or where we are?
In this book, a former Facebook public policy adviser who went on to assist President Obama in the White House offers practical ideas for using technology to create an open and accessible world that protects all consumers and civilians. As a computer scientist turned policymaker, Dipayan Ghosh answers the biggest questions about technology facing the world today. Proving clear and understandable explanations for complex issues, Terms of Disservice will guide industry leaders, policymakers, and the general public as we think about how we ensure that the Internet works for everyone, not just Silicon Valley….(More)”.
Congressional Management Foundation: “The Future of Citizen Engagement: Coronavirus, Congress, and Constituent Communications” explores how Members of Congress and their staff engaged with citizens while navigating the constraints posed by COVID-19, and offers examples of how Congress can substantively connect with constituents using modern technology against the backdrop of a global pandemic.
The report addresses the following questions:
- How did congressional offices adapt their communications strategies to meet the immediate needs of their constituents during the onset of COVID-19?
- What techniques did Members use to diversify their constituent outreach?
- What methods of engagement is Congress using now, and likely to use in the future?
The findings are based on a survey of senior congressional staffers, comprising over 120 responses provided to CMF between May 26 and June 19, 2020. Additionally, CMF conducted 13 follow-up interviews with survey respondents who indicated they were willing to speak further about their office operations and constituent communications during COVID-19….(More)”.
Paper by Ingmar Weber et al: “The United Nations Sustainable Development Goals (SDGs) are a global consensus on the world’s most pressing challenges. They come with a set of 232 indicators against which countries should regularly monitor their progress, ensuring that everyone is represented in up-to-date data that can be used to make decisions to improve people’s lives. However, existing data sources to measure progress on the SDGs are often outdated or lacking appropriate disaggregation. We evaluate the value that anonymous, publicly accessible advertising data from Facebook can provide in mapping socio-economic development in two low and middle income countries, the Philippines and India. Concretely, we show that audience estimates of how many Facebook users in a given location use particular device types, such as Android vs. iOS devices, or particular connection types, such as 2G vs. 4G, provide strong signals for modeling regional variation in the Wealth Index (WI), derived from the Demographic and Health Survey (DHS). We further show that, surprisingly, the predictive power of these digital connectivity features is roughly equal at both the high and low ends of the WI spectrum. Finally we show how such data can be used to create gender-disaggregated predictions, but that these predictions only appear plausible in contexts with gender equal Facebook usage, such as the Philippines, but not in contexts with large gender Facebook gaps, such as India….(More)”.
Essay by Michele Jolin and David Medina: “The cracks and design flaws of our nation’s public systems have been starkly exposed as governments everywhere struggle to respond to health and economic crises that disproportionately devastate Black residents and communities of color. As government leaders respond to the immediate emergencies, they also operate within a legacy of government practices, policies and systems that have played a central role in creating and maintaining racial inequity.
Philanthropy can play a unique and catalytic role in accelerating a real recovery by helping government leaders make smarter decisions, helping them develop and effectively use the data-and-evidence capacity they need to spotlight and understand root causes of community challenges, especially racial disparities, and increase the impact of government investments that could close racial gaps and accelerate economic opportunity. Philanthropy can uniquely support leaders within government who are best positioned to redesign and reimagine public systems to deliver equity and impact.
We are already seeing that the growing number of governments that have built data-driven “Moneyball” muscles are better positioned both to manage through this crisis and to dismantle racist government practices. While we recognize that data and evidence can sometimes reinforce biases, we also know that government decision-makers who have access to more and better information—and who are trained to navigate the nuance and possible bias in this information—can use data to identify disparate racial outcomes, understand the core problems and target resources to close gaps. Government decision-makers who have the skills to test, learn, and improve government programs can prioritize resource allocation toward programs that both deliver better results and address the complexity of social problems.
Philanthropy can accelerate this public sector transformation by supporting change led by internal government champions who are challenging the status quo. By doing so, philanthropic leaders can increase the impact of the trillions of dollars invested by governments each year. Philanthropies such as Ballmer Group, Bloomberg Philanthropies, Blue Meridian Partners, the Bill & Melinda Gates Foundation, and Arnold Ventures understand this and are already putting their money where their mouths are. By helping governments make smarter budget and policy decisions, they can ensure that public dollars flow toward solutions that make a meaningful, measurable difference on our biggest challenges, whether it’s increasing economic mobility, reducing racial disparities in health and other outcomes, or addressing racial bias in government systems.
We need other donors to join them in prioritizing this kind of systems change….(More)”.
Article by Susan Ariel Aaronson: “…Concerns about the national security threat from personal data held by foreigners first emerged in 2013. Several U.S. entities, including Target, J.P. Morgan, and the U.S. Office of Personnel Management were hacked. Many attributed the hacking to Chinese entities. Administration officials concluded that the Chinese government could cross-reference legally obtained and hacked-data sets to reveal information about U.S. objectives and strategy.
Personal data troves can also be cross-referenced to identify individuals, putting both personal security as well as national security at risk. Even U.S. firms pose a direct and indirect security threat to individuals and the nation because of their failure to adequately protect personal data. For example, Facebook has a disturbing history of sharing personal data without consent and allowing its clients to use that data to manipulate users. Some app designers have enabled functionality unnecessary for their software’s operation, while others, like Anomaly 6, embedded their software in mobile apps without the permission of users or firms. Other companies use personal data without user permission to create new products. Clearview AI scraped billions of images from major web services such as Facebook, Google, and YouTube, and sold these images to law enforcement agencies around the world.
Firms can also inadvertently aggregate personal data and in so doing threaten national security. Strava, an athletes’ social network, released a heat map of its global users’ activities in 2018. Savvy analysts were able to use the heat map to reveal secret military bases and patrol routes. Chinese-owned data firms could be a threat to national security if they share data with the Chinese government. But the problem lies in the U.S.’s failure to adequately protect personal data and police the misuse of data collected without the permission of users….(More)”.
Anna Artyushina at MIT Tech Review: “The European Union has long been a trendsetter in privacy regulation. Its General Data Protection Regulation (GDPR) and stringent antitrust laws have inspired new legislation around the world. For decades, the EU has codified protections on personal data and fought against what it viewed as commercial exploitation of private information, proudly positioning its regulations in contrast to the light-touch privacy policies in the United States.
The new European data governance strategy (pdf) takes a fundamentally different approach. With it, the EU will become an active player in facilitating the use and monetization of its citizens’ personal data. Unveiled by the European Commission in February 2020, the strategy outlines policy measures and investments to be rolled out in the next five years.
This new strategy represents a radical shift in the EU’s focus, from protecting individual privacy to promoting data sharing as a civic duty. Specifically, it will create a pan-European market for personal data through a mechanism called a data trust. A data trust is a steward that manages people’s data on their behalf and has fiduciary duties toward its clients.
The EU’s new plan considers personal data to be a key asset for Europe. However, this approach raises some questions. First, the EU’s intent to profit from the personal data it collects puts European governments in a weak position to regulate the industry. Second, the improper use of data trusts can actually deprive citizens of their rights to their own data.
The Trusts Project, the first initiative put forth by the new EU policies, will be implemented by 2022. With a €7 million budget, it will set up a pan-European pool of personal and nonpersonal information that should become a one-stop shop for businesses and governments looking to access citizens’ information.
Global technology companies will not be allowed to store or move Europeans’ data. Instead, they will be required to access it via the trusts. Citizens will collect “data dividends,” which haven’t been clearly defined but could include monetary or nonmonetary payments from companies that use their personal data. With the EU’s roughly 500 million citizens poised to become data sources, the trusts will create the world’s largest data market.
For citizens, this means the data created by them and about them will be held in public servers and managed by data trusts. The European Commission envisions the trusts as a way to help European businesses and governments reuse and extract value from the massive amounts of data produced across the region, and to help European citizens benefit from their information. The project documentation, however, does not specify how individuals will be compensated.
Data trusts were first proposed by internet pioneer Sir Tim Berners Lee in 2018, and the concept has drawn considerable interest since then. Just like the trusts used to manage one’s property, data trusts may serve different purposes: they can be for-profit enterprises, or they can be set up for data storage and protection, or to work for a charitable cause.
IBM and Mastercard have built a data trust to manage the financial information of their European clients in Ireland; the UK and Canada have employed data trusts to stimulate the growth of the AI industries there; and recently, India announced plans to establish its own public data trust to spur the growth of technology companies.
The new EU project is modeled on Austria’s digital system, which keeps track of information produced by and about its citizens by assigning them unique identifiers and storing the data in public repositories.
Unfortunately, data trusts do not guarantee more transparency. The trust is governed by a charter created by the trust’s settlor, and its rules can be made to prioritize someone’s interests. The trust is run by a board of directors, which means a party that has more seats gains significant control.
The Trusts Project is bound to face some governance issues of its own. Public and private actors often do not see eye to eye when it comes to running critical infrastructure or managing valuable assets. Technology companies tend to favor policies that create opportunity for their own products and services. Caught in a conflict of interest, Europe may overlook the question of privacy….(More)”.
NPR Story: “As the U.S. military and its allies attacked the last Islamic State holdouts last year, it wasn’t clear how many civilians were still in the besieged desert town of Baghouz, Syria.
So Human Rights Watch asked a private satellite company, Planet, for its regular daily photos and also made a special request for video.
“That live video actually was instrumental in convincing us that there were thousands of civilians trapped in this pocket,” said Josh Lyons of Human Rights Watch. “Therefore, the coalition forces absolutely had an obligation to stop and to avoid bombardment of that pocket at that time.”
Which they did until the civilians fled.
Lyons, who’s based in Geneva, has a job title you wouldn’t expect at a human rights group: director of geospatial analysis. He says satellite imagery is increasingly a crucial component of human rights investigations, bolstering traditional eyewitness accounts, especially in areas where it’s too dangerous to send researchers.
“Then we have this magical sort of fusion of data between open-source, eyewitness testimony and data from space. And that becomes essentially a new gold standard for investigations,” he said.
‘A string of pearls’
Satellite photos used to be restricted to the U.S. government and a handful of other nations. Now such imagery is available to everyone, creating a new world of possibilities for human rights groups, environmentalists and researchers who monitor nuclear programs.
They get those images from a handful of private, commercial satellite companies, like Planet and Maxar….(More)”.
Paper by David Farrell et al: “Ireland’s Citizens’ Assembly (CA) of 2016–18 was tasked with making recommendations on abortion. This paper shows that from the outset its members were in large part in favour of the liberalisation of abortion (though a fair proportion were undecided), that over the course of its deliberations the CA as a whole moved in a more liberal direction on the issue, but that its position was largely reflected in the subsequent referendum vote by the population as a whole….(More)”
Daniel Nunan at the International Journal of Market Research: “One of the many indirect consequences of the COVID pandemic for the research sector may be the impact upon consumers’ willingness to share data. This is reflected in concerns that government mandated “apps” designed to facilitate COVID testing and tracking schemes will undermine trust in the commercial collection of personal data (WARC, 2020). For example, uncertainty over the consequences of handing over data and the ways in which it might be used could reduce consumers’ willingness to share data with organizations, and reverse a trend that has seen growing levels of consumer confidence in Data Protection Regulations (Data & Direct Marketing Association [DMA], 2020). This highlights how central the role of trust has become in contemporary research practice, and how fragile the process of building trust can be due to the ever competing demands of public and private data collectors.
For researchers, there are two sides to trust. One relates to building sufficient trust with research participants to be facilitate data collection, and the second is building trust with the users of research. Trust has long been understood as a key factor in effective research relationships, with trust between researchers and users of research the key factor in determining the extent to which research is actually used (Moorman et al., 1993). In other words, a trusted messenger is just as important as the contents of the message. In recent years, there has been growing concern over declining trust in research from research participants and the general public, manifested in declining response rates and challenges in gaining participation. Understanding how to build consumer trust is more important than ever, as the shift of communication and commercial activity to digital platforms alter the mechanisms through which trust is built. Trust is therefore essential both for ensuring that accurate data can be collected, and that insights from research have necessary legitimacy to be acted upon. The two research notes in this issue provide an insight into new areas where the issue of trust needs to be considered within research practice….(More)”.