Stefaan Verhulst

Shannon C. Lefaivre et al in Frontiers of Genetics: “The Ontario Brain Institute (OBI) has begun to catalyze scientific discovery in the field of neuroscience through its large-scale informatics platform, known as Brain-CODE. The platform supports the capture, storage, federation, sharing and analysis of different data types across several brain disorders. Underlying the platform is a robust and scalable data governance structure which allows for the flexibility to advance scientific understanding, while protecting the privacy of research participants.

Recognizing the value of an open science approach to enabling discovery, the governance structure was designed not only to support collaborative research programs, but also to support open science by making all data open and accessible in the future. OBI’s rigorous approach to data sharing maintains the accessibility of research data for big discoveries without compromising privacy and security. Taking a Privacy by Design approach to both data sharing and development of the platform has allowed OBI to establish some best practices related to large scale data sharing within Canada. The aim of this report is to highlight these best practices and develop a key open resource which may be referenced during the development of similar open science initiatives….(More)”.

Paper by Ayinde Lateef, Funmilola Olubunmi Omotayo: “This article considers information as a strategic asset in the organization just as land, labour and capital. It elaborates how information assets help organizations to meet its organizational objectives and also examine issues that led to the proliferation of information assets; because of the proliferation of data and information, it becomes difficult for organization to make effective use of these information assets to meets its objectives. This leads to management of information assets and management of information risk. These two areas are critical to organization. It was concluded that information audit is the effective tool that could be used to manage the information asset and information risk. Also that information policy should be drawn; information professional should be among those handling information-related issues….(More)”.

Chapter by Cécile Doustaly in The Rise of Progressive Cities East and West: “Cities around the world have taken the process of local politics outside the field of professional expertise and legitimate culture to allow for greater local participation. In the context of increased urban change, funding cuts and administrative reforms but also citizen’s political disaffection, methodologies to engage inhabitants with their neighbourhoods have been developed in France and Britain over the last 15 years. This chapter focuses on one of the most efficient and popular of such schemes worldwide, participatory budgeting, which chimes surprisingly well with New Public Management practices.

The untapped field of research enquiry lies in understanding developments in participatory budgeting in London and Paris, with an attention to the wider context and scale (from global to national, city, districts and neighbourhoods levels). Conclusions highlight that participatory budgeting needs clear political insight, willpower, funding and local tailoring to be successfully implemented and questions its capacity to outlive change in political parties and leaders. The chapter then identifies the conditions and variables for such programmes to encourage progressive cities characterized by more conviviality, inclusion, distributive justice and environmental sustainability.

The chapter isolates elements of progressivism in PB in London and Paris whose models grew further apart in the period until 2016. While Paris has refined its practice year on, London boroughs community budgets have become scarce, as a result of lack of public funding and democratic empowerment, confirming the view that “economic growth [is] a failing and insufficient criteria to create good governance and liveable cities, as opposed to civic involvement” (Cho and Douglass, Introduction). Participatory budgeting is therefore a flexible instrument which can wave without having left much trace or trigger more wide-ranging improvements and further democratic rights….(More)”.

Paper by Francesca De Filippi, Cristina Coscia and Roberta Guido: “Nowadays, through ICT supports and their applications, the concept of smart cities has evolved into smart communities, where the collaborative relationship between citizens and public administration generates multi-dimensional impacts: urban sites are living labs and agents of innovation and inclusion. As a first step, this article aims to critically review the state of the art of the assessment methods of these impacts through a set of synthetic indicators; the second step is to elaborate a specific framework to evaluate quality of life through a set of impact indicators for smart communities and inclusive urban processes. According to some referenced authors, cities and communities are smart if they perform well in six smart categories: smart economy; smart people; smart governance; smart mobility; smart environment; and smart living. Considering a recent experiment carried out in Turin (Italy), the authors propose a methodology, whose trial is ongoing, based on a hierarchical multiscale framework defining a set of smart community indicators….(More)”.

Paper by Malkiat Thiarai, Sarunkorn Chotvijit and Stephen Jarvis: “There is significant national interest in tackling issues surrounding the needs of vulnerable children and adults. This paper aims to argue that much value can be gained from the application of new data-analytic approaches to assist with the care provided to vulnerable children. This paper highlights the ethical and information governance issues raised in the development of a research project that sought to access and analyse children’s social care data.

The paper documents the process involved in identifying, accessing and using data held in Birmingham City Council’s social care system for collaborative research with a partner organisation. This includes identifying the data, its structure and format; understanding the Data Protection Act 1998 and 2018 (DPA) exemptions that are relevant to ensure that legal obligations are met; data security and access management; the ethical and governance approval process.

The findings will include approaches to understanding the data, its structure and accessibility tasks involved in addressing ethical and legal obligations and requirements of the ethical and governance processes….(More)”.

Report by Giulio Coppi and Larissa Fast at ODI (Overseas Development Institute): “Blockchain and the wider category of distributed ledger technologies (DLTs) promise a more transparent, accountable, efficient and secure way of exchanging decentralised stores of information that are independently updated, automatically replicated and immutable. The key components of DLTs include shared recordkeeping, multi-party consensus, independent validation, tamper evidence and tamper resistance.

Building on these claims, proponents suggest DLTs can address common problems of non-profit organisations and NGOs, such as transparency, efficiency, scale and sustainability. Current humanitarian uses of DLT, illustrated in this report, include financial inclusion, land titling, remittances, improving the transparency of donations, reducing fraud, tracking support to beneficiaries from multiple sources, transforming governance systems, micro-insurance, cross-border transfers, cash programming, grant management and organisational governance.

This report, commissioned by the Global Alliance for Humanitarian Innovation (GAHI), examines current DLT uses by the humanitarian sector to outline lessons for the project, policy and system levels. It offers recommendations to address the challenges that must be overcome before DLTs can be ethically, safely, appropriately and effectively scaled in humanitarian contexts….(More)”.

Ron S. Jarmin at the Journal of Economic Perspectives: “The system of federal economic statistics developed in the 20th century has served the country well, but the current methods for collecting and disseminating these data products are unsustainable. These statistics are heavily reliant on sample surveys. Recently, however, response rates for both household and business surveys have declined, increasing costs and threatening quality. Existing statistical measures, many developed decades ago, may also miss important aspects of our rapidly evolving economy; moreover, they may not be sufficiently accurate, timely, or granular to meet the increasingly complex needs of data users. Meanwhile, the rapid proliferation of online data and more powerful computation make privacy and confidentiality protections more challenging. There is broad agreement on the need to transform government statistical agencies from the 20th century survey-centric model to a 21st century model that blends structured survey data with administrative and unstructured alternative digital data sources. In this essay, I describe some work underway that hints at what 21st century official economic measurement will look like and offer some preliminary comments on what is needed to get there….(More)”.

Brookings: “Policymakers under President Obama implemented behaviorally-informed policies to improve college access, completion, and affordability. Given the complexity of the college application process, many of these policies aimed to simplify college and financial aid application processes and reduce informational barriers that students face when evaluating college options. Katharine Meyer and Kelly Ochs Rosinger summarize empirical evidence on these policies and conclude that behaviorally-informed policies play an important role, especially as supplements to (rather than replacements for) broader structural changes. For example, recent changes in the FAFSA filing timeline provided students with more time to complete the form. But this large shift may be more effective in changing behavior when accompanied by informational campaigns and nudges that improve students’ understanding of the new system. Governments and colleges can leverage behavioral science to increase awareness of student support services if more structural policy changes occur to provide the services in the first place….(More)”.

Adam Day at World Policy Review: “Does international peacekeeping protect civilians caught up in civil wars? Do the 16,000 United Nations peacekeepers deployed in the Democratic Republic of the Congo actually save lives, and if so how many? Did the 9,000 patrols conducted by the U.N. Mission in South Sudan in the past three months protect civilians there? 

The answer is a dissatisfying “maybe.” Without a convincing story of saving lives, the U.N. is open to attacks by the likes of White House national security adviser John Bolton, who call peacekeeping “unproductive” and push for further cuts to the organization’s already diminished budget. But peacekeeping can—and must—make a case for its own utility, using data already at its fingertips. …(More)”.

Report by Sara Bannerman and Angela Orasch: “This report presents the findings of a national survey of Canadians about smart-city privacy conducted in October and November 2018. Our research questions were: How concerned are Canadians about smart-city privacy? How do these concerns intersect with age, gender, ethnicity, and location? Moreover, what are the expectations of Canadians with regards to their ability to control, use, or opt-out of data collection in smart-city context? What rights and privileges do Canadians feel are appropriate with regard to data self-determination, and what types of data are considered more sensitive than others?

What is a smart city?
A ‘smart city’ adopts digital and data-driven technologies in the planning, management and delivery of municipal services. Information and communications technologies (ICTs), data analytics, and the internet of
things (IoT) are some of the main components of these technologies, joined by web design, online marketing campaigns and digital services. Such technologies can include smart utility and transportation infrastructure, smart cards, smart transit, camera and sensor networks, or data collection by businesses to provide customized advertisements or other services. Smart-city technologies “monitor, manage and regulate city flows and processes, often in real-time” (Kitchin 2014, 2).

In 2017, a framework agreement was established between Waterfront Toronto, the organization charged with revitalizing Toronto’s waterfront, and Sidewalk Labs, parent company of Google, to develop a smart city on Toronto’s Eastern waterfront (Sidewalk Toronto 2018). This news was met with questions and concerns from experts in data privacy and the public at large regarding what was to be included in Sidewalk Lab’s smart-city vision. How would the overall governance structure function? How were the privacy rights of residents going to be protected, and what mechanisms, if any, would ensure that protection? The Toronto waterfront is just one of numerous examples of smart-city developments….(More)”.