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Stefaan Verhulst

Article by Harold DeMonaco, Pedro Oliveira, Andrew Torrance, Christiana von Hippel, and Eric von Hippel: “Patients are increasingly able to conceive and develop sophisticated medical devices and services to meet their own needs — often without any help from companies that produce or sell medical products. This “free” patient-driven innovation process enables them to benefit from important advances that are not commercially available. Patient innovation also can provide benefits to companies that produce and sell medical devices and services. For them, patient do-it-yourself efforts can be free R&D that informs and amplifies in-house development efforts.

In this article, we will look at two examples of free innovation in the medical field — one for managing type 1 diabetes and the other for managing Crohn’s disease. We will set these cases within the context of the broader free innovation movement that has been gaining momentum in an array of industries1 and apply the general lessons of free innovation to the specific circumstances of medical innovation by patients….

What is striking about both of these cases is that neither commercial medical producers nor the clinical care system offered a solution that these patients urgently needed. Motivated patients stepped forward to develop solutions for themselves, entirely without commercial support.4

Free innovation in the medical field follows the general pattern seen in many other areas, including crafts, sporting goods, home and garden equipment, pet products, and apparel.5 Enabled by technology, social media, and a keen desire to find solutions aligned with their own needs, consumers of all kinds are designing new products for themselves….(More)”


When Patients Become Innovators

Ben Paynter at Fast Company: “…It’s an idea that’s hard to visualize unless you can see it on a map. So MIT Media Lab collaborated with the location intelligence firm Cuebiqto build one. The result is called the Atlas of Inequality and harvests the anonymized location data from 150,000 people who opted in to Cuebiq’s Data For Good Initiative to track their movement for scientific research purposes. After isolating the general area (based on downtime) where each subject lived, MIT Media Lab could estimate what income bracket they occupied. The group then used data from a six-month period between late 2016 and early 2017 to figure out where these people traveled, and how their paths overlapped.

[Screenshot: Atlas of Inequality]

The result is an interactive view of just how filtered, sheltered, or sequestered many people’s lives really are. That’s an important thing to be reminded of at a time when the U.S. feels increasingly ideologically and economically divided. “Economic inequality isn’t just limited to neighborhoods, it’s part of the places you visit every day,” the researchers say in a mission statement about the Atlas….(More)”.

Visualizing where rich and poor people really cross paths—or don’t

About: “The Public Interest Technology Universities Network is a partnership that fosters collaboration between 21 universities and colleges committed to building the nascent field of public interest technology and growing a new generation of civic-minded technologists. Through the development of curricula, research agendas, and experiential learning programs in the public interest technology space, these universities are trying innovative tactics to produce graduates with multiple fluencies at the intersection of technology and policy. By joining PIT-UN, members commit to field building on campus. Members may choose to focus on some or all of these elements, in addition to other initiatives they deem relevant to establishing public interest technology on campus:

  1. Support curriculum and faculty development to enable interdisciplinary and cross-disciplinary education of students, so they can critically assess the ethical, political, and societal implications of new technologies, and design technologies in service of the public good.
  2. Develop experiential learning opportunities such as clinics, fellowships, apprenticeships, and internship, with public and private sector partners in the public interest technology space.
  3. Find ways to support graduates who pursue careers working in public interest technology, recognizing that financial considerations may make careers in this area unaffordable to many.
  4. Create mechanisms for faculty to receive recognition for the research, curriculum development, teaching, and service work needed to build public interest technology as an arena of inquiry.
  5. Provide institutional data that will allow us to measure the effectiveness of our interventions in helping to develop the field of public interest technology….(More)”.
Public Interest Technology University Network

Book by Eric Topol: “Medicine has become inhuman, to disastrous effect. The doctor-patient relationship–the heart of medicine–is broken: doctors are too distracted and overwhelmed to truly connect with their patients, and medical errors and misdiagnoses abound. In Deep Medicine, leading physician Eric Topol reveals how artificial intelligence can help. AI has the potential to transform everything doctors do, from notetaking and medical scans to diagnosis and treatment, greatly cutting down the cost of medicine and reducing human mortality. By freeing physicians from the tasks that interfere with human connection, AI will create space for the real healing that takes place between a doctor who can listen and a patient who needs to be heard. Innovative, provocative, and hopeful, Deep Medicine shows us how the awesome power of AI can make medicine better, for all the humans involved….(More)”.

Deep Medicine: How Artificial Intelligence Can Make Healthcare Human Again

Introduction by A.F. Winfield, K. Michael, J. Pitt, V. Evers of Special Issue of Proceedings of the IEEE: “…The primary focus of this special issue is machine ethics, that is the question of how autonomous systems can be imbued with ethical values. Ethical autonomous systems are needed because, inevitably, near future systems are moral agents; consider driverless cars, or medical diagnosis AIs, both of which will need to make choices with ethical consequences. This special issue includes papers that describe both implicit ethical agents, that is machines designed to avoid unethical outcomes, and explicit ethical agents: machines which either encode or learn ethics and determine actions based on those ethics. Of course ethical machines are socio-technical systems thus, as a secondary focus, this issue includes papers that explore the societal and regulatory implications of machine ethics, including the question of ethical governance. Ethical governance is needed in order to develop standards and processes that allow us to transparently and robustly assure the safety of ethical autonomous systems and hence build public trust and confidence….(More)?

Machine Ethics: The Design and Governance of Ethical AI and Autonomous Systems

Presentation by Constance Carr and Markus Hesse: “We want to address a discrepancy; that is, the discrepancy between processes and practices of technological development on one hand and/or production processes of urban change and urban problems on the other. There’s a gap here, that we can illustrate with the case of the so called“Google City”.

The scholarly literature on digital cities is quite clear that there are externalities, uncertainties and risks associated with the hype around, and the rash introduction of, ‘smartness’. To us, an old saying comes to mind: Don’t put the wagon before the horse.

Obviously, digitization and technology have revolutionized geography in many ways. And, this is nothing new. Roughly twenty years ago, with the rise of the Internet, some, such as MIT’s Bill Mitchell (1995), speculated that it and other ITs would eradicate space into the ‘City of Bits’. However, even back then statements like these didn’t go uncriticised by those who pointed at the inherent technological determinism and exposed that there is a complex relationship between urban development, urban planning, and technological innovation; that the relationship was neither new, nor trivial such that tech, itself, would automatically and necessarily be productive, beneficial, and central to cities.

What has changed is the proliferation of digital technologies and their applications. We agree with Ash et al. (2016) that geography has experienced a ‘digital turn’ where urban geography now produced by, through and of digitization. And, while digitalization of urbanity has provided benefits, it has also come sidelong a number of unsolved problems.

First, behind the production of big data, algorithms, and digital design, there are certain epistemologies – ways of knowing. Data is not value-free. Rather, data is an end product of political and associated methods of framing that structure the production of data. So, now that we “live in a present characterized by a […] diverse array of spatially-enabled digital devices, platforms, applications and services,” (Ash et al. 2016: 28), we can interrogate how these processes and algorithms are informed by socio-economic inequalities, because the risk is that new technologies will simply reproduce them.

Second, the circulation of data around the globe invokes questions about who owns and regulates them when stored and processed in remote geographic locations….(More)”.

Some notes on smart cities and the corporatization of urban governance

Paper by Löfgren, Åsa & Nordblom, Katarina: “…we develop a theoretical model to clarify the underlying mechanisms that drive individual decision making and responses to behavioral interventions, such as nudges. The contribution of the paper is three-fold: First, the model provides a theoretical framework that comprehensively structures the individual decision-making process applicable to a wide range of choice situations. Second, we reduce the confusion regarding what should be called a nudge by offering a clear classification of behavioral interventions. We distinguish among what we label as pure nudges, preference nudges, and other behavioral interventions. Third, we identify the mechanisms behind the effectiveness of behavioral interventions based on the structured decision-making process. Hence, the model can be used to predict under which circumstances, and in which choice situations, a nudge is likely to be effective….(More)”

A theoretical framework explaining the mechanisms of nudging

Introduction to Special Issue of Business and Society by Dirk Matten, Ronald Deibert & Mikkel Flyverbom: “The importance of digital technologies for social and economic developments and a growing focus on data collection and privacy concerns have made the Internet a salient and visible issue in global politics. Recent developments have increased the awareness that the current approach of governments and business to the governance of the Internet and the adjacent technological spaces raises a host of ethical issues. The significance and challenges of the digital age have been further accentuated by a string of highly exposed cases of surveillance and a growing concern about issues of privacy and the power of this new industry. This special issue explores what some have referred to as the “Internet-industrial complex”—the intersections between business, states, and other actors in the shaping, development, and governance of the Internet…(More)”.

The Governance of Digital Technology, Big Data, and the Internet: New Roles and Responsibilities for Business

Book by Alfredo M. Ronchi: “…This book explores a society currently being transformed by the influence of advanced information technology, and provides insights into the main technological and human issues and a holistic approach to inclusion, security, safety and, last but not least, privacy and freedom of expression. Its main aim is to bridge the gap between technological solutions, their successful implementation, and the fruitful utilization of the main set of e-Services offered by governments, private institutions, and commercial companies.
Today, various parameters actively influence e-Services’ success or failure: cultural aspects, organisational issues, bureaucracy and workflow, infrastructure and technology in general, user habits, literacy, capacity or merely interaction design. The purpose of this book is to help in outlining and understanding a realistic scenario of what we can term e-Citizenry. It identifies today’s citizen, who is surrounded by an abundance of digital services, as an “e-Citizen” and explores the transition from their traditional role and behaviour to new ones. The respective chapters presented here will lay the foundation of the technological and social environment in which this societal transition takes place…(More)”.

e-Citizens: Toward a New Model of (Inter)active Citizenry

Book edited by Sarah B. Macfarlane and Carla AbouZahr: “This handbook compiles methods for gathering, organizing and disseminating data to inform policy and manage health systems worldwide. Contributing authors describe national and international structures for generating data and explain the relevance of ethics, policy, epidemiology, health economics, demography, statistics, geography and qualitative methods to describing population health. The reader, whether a student of global health, public health practitioner, programme manager, data analyst or policymaker, will appreciate the methods, context and importance of collecting and using global health data….(More)”.

The Palgrave Handbook of Global Health Data Methods for Policy and Practice

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