Stefaan Verhulst

Sophie Haigney at The New York Times: “Taja Lindley, a Brooklyn-based interdisciplinary artist and activist, will spend the next year doing an unconventional residency — she’ll be collaborating with the New York City Department of Health and Mental Hygiene, working on a project that deals with unequal birth outcomes and maternal mortality for pregnant and parenting black people in the Bronx.

Ms. Lindley is one of four artists who were selected this year for the City’s Public Artists in Residence program, or PAIR, which is managed by New York City’s Department of Cultural Affairs. The program, which began in 2015, matches artists and public agencies, and the artists are tasked with developing creative projects around social issues.

Ms. Lindley will be working with the Tremont Neighborhood Health Action Center, part of the department of health, in the Bronx. “People who are black are met with skepticism, minimized and dismissed when they seek health care,” Ms. Lindley said, “and the voices of black people can really shift medical practices and city practices, so I’ll really be centering those voices.” She said that performance, film and storytelling are likely to be incorporated in her project.

The other three artists selected this year are the artist Laura Nova, who will be in residence with the Department for the Aging; the artist Julia Weist, who will be in residence with the Department of Records and Information Services; and the artist Janet Zweig, who will be in residence with the Mayor’s Office of Sustainability. Each will receive $40,000. There is a three-month-long research phase and then the artists will spend a minimum of nine months creating and producing their work….(More)”.

Editorial by David Murakami Wood and Torin Monahan of Special Issue of Surveillance and Society: “This editorial introduces this special responsive issue on “platform surveillance.” We develop the term platform surveillance to account for the manifold and often insidious ways that digital platforms fundamentally transform social practices and relations, recasting them as surveillant exchanges whose coordination must be technologically mediated and therefore made exploitable as data. In the process, digital platforms become dominant social structures in their own right, subordinating other institutions, conjuring or sedimenting social divisions and inequalities, and setting the terms upon which individuals, organizations, and governments interact.

Emergent forms of platform capitalism portend new governmentalities, as they gradually draw existing institutions into alignment or harmonization with the logics of platform surveillance while also engendering subjectivities (e.g., the gig-economy worker) that support those logics. Because surveillance is essential to the operations of digital platforms, because it structures the forms of governance and capital that emerge, the field of surveillance studies is uniquely positioned to investigate and theorize these phenomena….(More)”.

Case Study by Cities of Service: “Mexico City was faced with a massive task: drafting a constitution. Mayor Miguel Ángel Mancera, who oversaw the drafting and adoption of the 212-page document, hoped to democratize the process. He appointed a drafting committee made up of city residents and turned to the Laboratório para la Ciudad (LabCDMX) to engage everyday citizens. LabCDMX conducted a comprehensive survey and employed the online platform Change.org to solicit ideas for the new constitution. Several petitioners without a legal or political background seized on the opportunity and made their voices heard with successful proposals on topics like green space, waterway recuperation, and LGBTI rights in a document that will have a lasting impact on Mexico City’s governance….(More)”.

Paper by B. Tyr Fothergill et al: “Current discussions of the ethical aspects of big data are shaped by concerns regarding the social consequences of both the widespread adoption of machine learning and the ways in which biases in data can be replicated and perpetuated. We instead focus here on the ethical issues arising from the use of big data in international neuroscience collaborations.

Neuroscience innovation relies upon neuroinformatics, large-scale data collection and analysis enabled by novel and emergent technologies. Each step of this work involves aspects of ethics, ranging from concerns for adherence to informed consent or animal protection principles and issues of data re-use at the stage of data collection, to data protection and privacy during data processing and analysis, and issues of attribution and intellectual property at the data-sharing and publication stages.

Significant dilemmas and challenges with far-reaching implications are also inherent, including reconciling the ethical imperative for openness and validation with data protection compliance, and considering future innovation trajectories or the potential for misuse of research results. Furthermore, these issues are subject to local interpretations within different ethical cultures applying diverse legal systems emphasising different aspects. Neuroscience big data require a concerted approach to research across boundaries, wherein ethical aspects are integrated within a transparent, dialogical data governance process. We address this by developing the concept of ‘responsible data governance’, applying the principles of Responsible Research and Innovation (RRI) to the challenges presented by governance of neuroscience big data in the Human Brain Project (HBP)….(More)”.

Charlotte Jee at MIT Technology Review: “When it comes to earthquakes, every minute counts. Knowing that one has hit—and where—can make the difference between staying inside a building and getting crushed, and running out and staying alive. This kind of timely information can also be vital to first responders.

However, the speed of early warning systems varies from country to country. In Japan  and California, huge networks of sensors and seismic stations can alert citizens to an earthquake. But these networks are expensive to install and maintain. Earthquake-prone countries such as Mexico and Indonesia don’t have such an advanced or widespread system.

A cheap, effective way to help close this gap between countries might be to crowdsource earthquake reports and combine them with traditional detection data from seismic monitoring stations. The approach was described in a paper in Science Advances today.

The crowdsourced reports come from three sources: people submitting information using LastQuake, an app created by the Euro-Mediterranean Seismological Centre; tweets that refer to earthquake-related keywords; and the time and IP address data associated with visits to the EMSC website.

When this method was applied retrospectively to earthquakes that occurred in 2016 and 2017, the crowdsourced detections on their own were 85% accurate. Combining the technique with traditional seismic data raised accuracy to 97%. The crowdsourced system was faster, too. Around 50% of the earthquake locations were found in less than two minutes, a whole minute faster than with data provided only by a traditional seismic network.

When EMSC has identified a suspected earthquake, it sends out alerts via its LastQuake app asking users nearby for more information: images, videos, descriptions of the level of tremors, and so on. This can help assess the level of damage for early responders….(More)”.

Paper by Shona Kalkman, Menno Mostert, Christoph Gerlinger, Johannes J. M. van Delden and Ghislaine J. M. W. van Thiel: ” Large-scale linkage of international clinical datasets could lead to unique insights into disease aetiology and facilitate treatment evaluation and drug development. Hereto, multi-stakeholder consortia are currently designing several disease-specific translational research platforms to enable international health data sharing. Despite the recent adoption of the EU General Data Protection Regulation (GDPR), the procedures for how to govern responsible data sharing in such projects are not at all spelled out yet. In search of a first, basic outline of an ethical governance framework, we set out to explore relevant ethical principles and norms…

We observed an abundance of principles and norms with considerable convergence at the aggregate level of four overarching themes: societal benefits and value; distribution of risks, benefits and burdens; respect for individuals and groups; and public trust and engagement. However, at the level of principles and norms we identified substantial variation in the phrasing and level of detail, the number and content of norms considered necessary to protect a principle, and the contextual approaches in which principles and norms are used....

While providing some helpful leads for further work on a coherent governance framework for data sharing, the current collection of principles and norms prompts important questions about how to streamline terminology regarding de-identification and how to harmonise the identified principles and norms into a coherent governance framework that promotes data sharing while securing public trust….(More)”

Policy Brief by Claudia Biancotti (PIIE) and Paolo Ciocca (Consob): “Over the past few years, it has become apparent that a small number of technology companies have assembled detailed datasets on the characteristics, preferences, and behavior of billions of individuals. This concentration of data is at the root of a worrying power imbalance between dominant internet firms and the rest of society, reflecting negatively on collective security, consumer rights, and competition. Introducing data sharing mandates, or requirements for market leaders to share user data with other firms and academia, would have a positive effect on competition. As data are a key input for artificial intelligence (AI), more widely available information would help spread the benefits of AI through the economy. On the other hand, data sharing could worsen existing risks to consumer privacy and collective security. Policymakers intending to implement a data sharing mandate should carefully evaluate this tradeoff….(More).

Book by Saskia Hollander: “This book demonstrates that the generally assumed dichotomy between referendums and representative democracy does not do justice to the great diversity of referendum types and of how referendums are used in European democracies. Although in all referendums citizens vote directly on issues rather than letting their political representatives do this for them, some referendums are more direct than others.

Rather than reflecting the direct power of the People, most referendums in EU countries are held by, and serve the interests of, the political elites, most notably the executive. The book shows that these interests rarely match the justifications given in the public debate. Instead of being driven by the need to compensate for the deficiency of political parties, decision-makers use referendums primarily to protect the position of their party. In unravelling the strategic role played by national referendums in decision-making, this book makes an unconventional contribution to the debate on the impact of referendums on democracy….(More)”

Blog by Stephen King and Paige Nicol: “With a few months under our belts, 2019 looks unlikely to be the year of a great global turnaround for democracy. The decade of democratic ‘recession’ that Larry Diamond declared in 2015 has dragged on and deepened, and may now be teetering on the edge of becoming a full-blown depression. 

The start of each calendar year is marked by the release of annual indices, rankings, and reports on how democracy is faring around the world. 2018 reports from Freedom House and the Economist Intelligence Unit (EIU) highlighted precipitous declines in civil liberties in long-standing democracies as well as authoritarian states. Some groups, including migrants, women, ethnic and other minorities, opposition politicians, and journalists have been particularly affected by these setbacks. According to the Committee to Protect Journalists, the number of journalists murdered nearly doubled last year, while the number imprisoned remained above 250 for the third consecutive year. 

Yet, the EIU also found a considerable increase in political participation worldwide. Levels of participation (including voting, protesting, and running for elected office, among other dimensions) increased substantially enough last year to offset falling scores in the other four categories of the index. Based on the methodology used, the rise in political participation was significant enough to prevent a decline in the global overall score for democracy for the first time in three years.

Though this development could give cause for optimism we believe it could also raise new concerns. 

In Zimbabwe, Sudan, and Venezuela we see people who, through desperation and frustration, have taken to the streets – a form of participation which has been met with brutal crackdowns. Time has yet to tell what the ultimate outcome of these protests will be, but it is clear that governments with autocratic tendencies have more – and cheaper – tools to monitor, direct, control, and suppress participation than ever before. 

Elsewhere, we see a danger of people becoming dislocated and disenchanted with democracy, as their representatives fail to take meaningful action on the issues that matter to them. In the UK Parliament, as Brexit discussions have become increasingly polarised and fractured along party political and ideological lines, Foreign Secretary Jeremy Hunt warned that there was a threat of social unrest if Parliament was seen to be frustrating the ‘will of the people.’ 

While we see enhanced participation as crucial to just and fair societies, it alone will not be the silver bullet that saves democracy. Whether this trend becomes a cause for hope or concern will depend on three factors: who is participating, what form does participation take, and how is participation received by those with power?…(More)”.

Paper by Johannes Wachs, Taha Yasseri, Balázs Lengyel and János Kertész: “Corruption is a social plague: gains accrue to small groups, while its costs are borne by everyone. Significant variation in its level between and within countries suggests a relationship between social structure and the prevalence of corruption, yet, large-scale empirical studies thereof have been missing due to lack of data. In this paper, we relate the structural characteristics of social capital of settlements with corruption in their local governments. Using datasets from Hungary, we quantify corruption risk by suppressed competition and lack of transparency in the settlement’s awarded public contracts. We characterize social capital using social network data from a popular online platform. Controlling for social, economic and political factors, we find that settlements with fragmented social networks, indicating an excess of bonding social capital has higher corruption risk, and settlements with more diverse external connectivity, suggesting a surplus of bridging social capital is less exposed to corruption. We interpret fragmentation as fostering in-group favouritism and conformity, which increase corruption, while diversity facilitates impartiality in public life and stifles corruption….(More)”.