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Stefaan Verhulst

Book edited by Ben Wagner, Matthias C. Kettemann and Kilian Vieth: “In a digitally connected world, the question of how to respect, protect and implement human rights has become unavoidable. This contemporary Research Handbook offers new insights into well-established debates by framing them in terms of human rights. It examines the issues posed by the management of key Internet resources, the governance of its architecture, the role of different stakeholders, the legitimacy of rule making and rule-enforcement, and the exercise of international public authority over users. Highly interdisciplinary, its contributions draw on law, political science, international relations and even computer science and science and technology studies…(More)”.

Research Handbook on Human Rights and Digital Technology

The GovLab: “The road to achieving the Sustainable Development Goals is complex and challenging. Policymakers around the world need both new solutions and new ways to become more innovative. This includes evidence-based policy and program design, as well as improved monitoring of progress made.

Unlocking privately processed data through data collaboratives — a new form of public-private partnership in which private industry, government and civil society work together to release previously siloed data — has become essential to address the challenges of our era.

Yet while research has proven its promise and value, several barriers to scaling data collaboration exist.

Ensuring trust and shared responsibility in how the data will be handled and used proves particularly challenging, because of the high transaction costs involved in drafting contracts and agreements of sharing.

Ensuring Trust in Data Collaboration

The goal of the Contracts for Data Collaboration (C4DC) initiative is to address the inefficiencies of developing contractual agreements for public-private data collaboration.

The intent is to inform and guide those seeking to establish a data collaborative by developing and making available a shared repository of contractual clauses (taken from existing data sharing agreements) that covers a host of issues, including (non –exclusive):

  • The provenance, quality and purpose of data;
  • Security and privacy concerns;
  • Roles and responsibilities of participants;
  • Access provisions; and use limitations;
  • Governance mechanisms;
  • Other contextual mechanisms

In addition to the searchable library of contractual clauses, the repository will house use cases, guides and other information that analyse common patterns, language and best practices.

Help Us Scale Data Collaboration

Contracts for Data Collaboration builds on efforts from member organizations that have experience in developing and managing data collaboratives; and have documented the legal challenges and opportunities of data collaboration.

The initiative is an open collaborative with charter members from the GovLab at NYU, UN SDSN Thematic Research Network on Data and Statistics (TReNDS), University of Washington and the World Economic Forum.

Organizations interested in joining the initiative should contact the individuals noted below; or share any agreements they have used for data sharing activities (without any sensitive or identifiable information): Stefaan Verhulst, GovLab (Stefaan@thegovlab.org) …(More)

Contracts for Data Collaboration

Paper by Jessica Stockdale, Jackie Cassell and Elizabeth Ford: “The use of patients’ medical data for secondary purposes such as health research, audit, and service planning is well established in the UK, and technological innovation in analytical methods for new discoveries using these data resources is developing quickly. Data scientists have developed, and are improving, many ways to extract and process information in medical records. This continues to lead to an exciting range of health related discoveries, improving population health and saving lives. Nevertheless, as the development of analytic technologies accelerates, the decision-making and governance environment as well as public views and understanding about this work, has been lagging behind1.

Public opinion and data use

A range of small studies canvassing patient views, mainly in the USA, have found an overall positive orientation to the use of patient data for societal benefit27. However, recent case studies, like NHS England’s ill-fated Care.data scheme, indicate that certain schemes for secondary data use can prove unpopular in the UK. Launched in 2013, Care.data aimed to extract and upload the whole population’s general practice patient records to a central database for prevalence studies and service planning8. Despite the stated intention of Care.data to “make major advances in quality and patient safety”8, this programme was met with a widely reported public outcry leading to its suspension and eventual closure in 2016. Several factors may have been involved in this failure, from the poor public communication about the project, lack of social licence9, or as pressure group MedConfidential suggests, dislike of selling data to profit-making companies10. However, beyond these specific explanations for the project’s failure, what ignited public controversy was a concern with the impact that its aim to collect and share data on a large scale might have on patient privacy. The case of Care.data indicates a reluctance on behalf of the public to share their patient data, and it is still not wholly clear whether the public are willing to accept future attempts at extracting and linking large datasets of medical information. The picture of mixed opinion makes taking an evidence-based position, drawing on social consensus, difficult for legislators, regulators, and data custodians who may respond to personal or media generated perceptions of public views. However, despite differing results of studies canvassing public views, we hypothesise that there may be underlying ethical principles that could be extracted from the literature on public views, which may provide guidance to policy-makers for future data-sharing….(More)”.

“Giving something back”: A systematic review and ethical enquiry into public views on the use of patient data for research in the United Kingdom and the Republic of Ireland

John Kay: “For the past fifty years or so, the economic theory of the firm has been based on the paradigmatic model of corporate activity which perceives the firm as a nexus of contracts, its boundaries defined by the relative transaction costs of market-based and hierarchical organisation.  Issues of both corporate governance and corporate management are seen as principal-agent problems, to be resolved by the establishment of appropriate incentives.  This approach has had considerable influence on corporate behaviour and on public policy.  Business has placed ever-greater emphasis on ‘shareholder value’ and incentive-based schemes of executive remuneration have become widespread.

            In this paper, I describe the origins, development and effect of the ‘markets and hierarchies’ approach.  I argue that this reductionist account fails at a political level, giving no coherent account of the legitimacy of such corporate activity – that is, no answer to the question ‘what gives them the right to do that?’ – and additionally that the model bears little relation to the reality of successful corporations.  I describe an alternative tradition in the understanding of business, owing more to organisation theory, corporate strategy and business history, which treats the concept of corporate personality as more than a legal doctrine.  In this view, corporations are social organisations: their competitive advantage is based on distinctive capabilities which are the product of their history, their internal architecture and organisational design, and the relationships with employers, customers, suppliers and commentators at large which arise from them.  This is not just a more plausible account of what firms actually do: by recognising the social foundations of corporations, we are better placed to understand how and why corporations and their varied stakeholders succeed…(More)”

The Concept of the Corporation

Natalie Leal at Global Government Forum: “A new initiative by two US think tanks aims to help public bodies explore innovative ways of consulting and engaging with communities, finding new answers to public policy challenges. 

The People-Led Innovation project was launched on Tuesday by GovLab and the Bertelsmann Foundation. Noting that citizens’ knowledge, insights and ideas often hold the key to the problems faced by governments, GovLab co-founder Stefaan Verhulst said the new tools will help officials consider “the most effective ways to engage the right people for the right task at the right time.”

Verhulst explained that the initiative, ‘People-Led Innovation: Toward a Methodology for Solving Urban Problems in the 21st Century’, is “built on the idea that, as governments increasingly experiment with new means for drawing on the public’s knowledge and skills to address common challenges, one-size-fits-all citizen engagement efforts are often too broad and unwieldy to surface useful insights.”

A fresh methodology

The new site aims to provide leaders with a toolkit and “a set of steps that enable them to tap into their potentially most important – but underutilized – asset: people.” While the project’s main audience is US city governments, the skills and methodology are transferable and the researchers have drawn on case studies from around the world.

The methodology breaks the process down into four distinct stages: defining the problem; curating possible solutions using people and data; experimenting and testing what works in practice; and reviewing and ‘expanding’ – incorporating feedback and transferring lessons learned to a wider audience. At each stage, leaders are encouraged to identify stakeholders to consult or co-create with. 

At the heart of the initiative is the idea that everyone – from local residents, small businesses and community bodies through to government agencies, corporate giants and international organisations – can contribute valuable ideas and help solve complex problems....

“People’s expertise comes in a range of flavours – from interests and experiences to skills and credentialed knowledge – yet all are equally valuable to engage when solving problems,” say the creators in a report on the website. 

Four types of engagement methods are suggested as ways to best “tap into the diverse expertise distributed among people outside of government. These are: commenting, for example a discussion platform to gather views, experiences and opinions; co-creating, e.g. a sector-specific hackathon to leverage datasets; reviewing, including online or offline engagements allowing people to vote on specific proposals or ideas; and reporting, e.g. a crowdsourcing platform for citizens to record incidents of problematic issues such as potholes or graffiti….(More)”.

People-led innovation project to help tackle policy challenges

European Commission Press Release: “Negotiators from the European Parliament, the Council of the EU and the Commission have reached an agreement on a revised directive that will facilitate the availability and re-use of public sector data.

Data is the fuel that drives the growth of many digital products and services. Making sure that high-quality, high-value data from publicly funded services is widely and freely available is a key factor in accelerating European innovation in highly competitive fields such as artificial intelligence requiring access to vast amounts of high-quality data.

In full compliance with the EU General Data Protection Regulation, the new Directive on Open Data and Public Sector Information (PSI) – which can be for example anything from anonymised personal data on household energy use to general information about national education or literacy levels – updates the framework setting out the conditions under which public sector data should be made available for re-use, with a particular focus on the increasing amounts of high-value data that is now available.

Vice-President for the Digital Single Market Andrus Ansip said: “Data is increasingly the lifeblood of today’s economy and unlocking the potential of public open data can bring significant economic benefits. The total direct economic value of public sector information and data from public undertakings is expected to increase from €52 billion in 2018 to €194 billion by 2030. With these new rules in place, we will ensure that we can make the most of this growth” 

Commissioner for Digital Economy and Society Mariya Gabriel said: “Public sector information has already been paid for by the taxpayer. Making it more open for re-use benefits the European data economy by enabling new innovative products and services, for example based on artificial intelligence technologies. But beyond the economy, open data from the public sector is also important for our democracy and society because it increases transparency and supports a facts-based public debate.”

As part of the EU Open Data policy, rules are in place to encourage Member States to facilitate the re-use of data from the public sector with minimal or no legal, technical and financial constraints. But the digital world has changed dramatically since they were first introduced in 2003.

What do the new rules cover?

  • All public sector content that can be accessed under national access to documents rules is in principle freely available for re-use. Public sector bodies will not be able to charge more than the marginal cost for the re-use of their data, except in very limited cases. This will allow more SMEs and start-ups to enter new markets in providing data-based products and services.
  • A particular focus will be placed on high-value datasets such as statistics or geospatial data. These datasets have a high commercial potential, and can speed up the emergence of a wide variety of value-added information products and services.
  • Public service companies in the transport and utilities sector generate valuable data. The decision on whether or not their data has to be made available is covered by different national or European rules, but when their data is available for re-use, they will now be covered by the Open Data and Public Sector Information Directive. This means they will have to comply with the principles of the Directive and ensure the use of appropriate data formats and dissemination methods, while still being able to set reasonable charges to recover related costs.
  • Some public bodies strike complex data deals with private companies, which can potentially lead to public sector information being ‘locked in’. Safeguards will therefore be put in place to reinforce transparency and to limit the conclusion of agreements which could lead to exclusive re-use of public sector data by private partners.
  • More real-time data, available via Application Programming Interfaces (APIs), will allow companies, especially start-ups, to develop innovative products and services, e.g. mobility apps. Publicly-funded research data is also being brought into the scope of the directive: Member States will be required to develop policies for open access to publicly funded research data while harmonised rules on re-use will be applied to all publicly-funded research data which is made accessible via repositories….(More)”.
EU negotiators agree on new rules for sharing of public sector data

Paper by Jonathan Spiteri and Marie Briguglio: “This study examines the relationship between good governance and trust in government. It sets out to test which aspects of good governance, if any, foster strong trust in government. We construct a panel data set drawn from 29 European countries over the period 2004 to 2015. The data set includes measures of government trust, six different dimensions of good governance, as well as variables on GDP growth and income inequality.

We find that freedom of expression and citizen involvement in the democratic process, to be the good governance dimension that has the strongest relationship with government trust, across all specifications of our regression models. We also find that real GDP growth rates have a significant (albeit weaker) relationship with trust in government. Our results suggest that certain elements of good governance foster trust in government over and above that generated by economic success. We discuss the implications of these findings in light of declining levels of public trust in government around the world….(More)”.

Does good governance foster trust in government? A panel data analysis

Book by R.J. Andrews: “How do we create new ways of looking at the world? Join award-winning data storyteller RJ Andrews as he pushes beyond the usual how-to, and takes you on an adventure into the rich art of informing.

Creating Info We Trust is a craft that puts the world into forms that are strong and true.  It begins with maps, diagrams, and charts — but must push further than dry defaults to be truly effective. How do we attract attention? How can we offer audiences valuable experiences worth their time? How can we help people access complexity?

Dark and mysterious, but full of potential, data is the raw material from which new understanding can emerge. Become a hero of the information age as you learn how to dip into the chaos of data and emerge with new understanding that can entertain, improve, and inspire. Whether you call the craft data storytelling, data visualization, data journalism, dashboard design, or infographic creation — what matters is that you are courageously confronting the chaos of it all in order to improve how people see the world. Info We Trust is written for everyone who straddles the domains of data and people: data visualization professionals, analysts, and all who are enthusiastic for seeing the world in new ways.

This book draws from the entirety of human experience, quantitative and poetic. It teaches advanced techniques, such as visual metaphor and data transformations, in order to create more human presentations of data.  It also shows how we can learn from print advertising, engineering, museum curation, and mythology archetypes. This human-centered approach works with machines to design information for people. Advance your understanding beyond by learning from a broad tradition of putting things “in formation” to create new and wonderful ways of opening our eyes to the world….(More)”.

Info We Trust: How to Inspire the World with Data

Book by Meredith Broussard where she “…argues that our collective enthusiasm for applying computer technology to every aspect of life has resulted in a tremendous amount of poorly designed systems. We are so eager to do everything digitally—hiring, driving, paying bills, even choosing romantic partners—that we have stopped demanding that our technology actually work. Broussard, a software developer and journalist, reminds us that there are fundamental limits to what we can (and should) do with technology. With this book, she offers a guide to understanding the inner workings and outer limits of technology—and issues a warning that we should never assume that computers always get things right.

Making a case against technochauvinism—the belief that technology is always the solution—Broussard argues that it’s just not true that social problems would inevitably retreat before a digitally enabled Utopia. To prove her point, she undertakes a series of adventures in computer programming. She goes for an alarming ride in a driverless car, concluding “the cyborg future is not coming any time soon”; uses artificial intelligence to investigate why students can’t pass standardized tests; deploys machine learning to predict which passengers survived the Titanic disaster; and attempts to repair the U.S. campaign finance system by building AI software. If we understand the limits of what we can do with technology, Broussard tells us, we can make better choices about what we should do with it to make the world better for everyone….(More)”.

Artificial Unintelligence: How Computers Misunderstand the World

Karen Hao atMIT Technology Review : “Using historical data to train risk assessment tools could mean that machines are copying the mistakes of the past. …

AI might not seem to have a huge personal impact if your most frequent brush with machine-learning algorithms is through Facebook’s news feed or Google’s search rankings. But at the Data for Black Lives conference last weekend, technologists, legal experts, and community activists snapped things into perspective with a discussion of America’s criminal justice system. There, an algorithm can determine the trajectory of your life. The US imprisons more people than any other country in the world. At the end of 2016, nearly 2.2 million adults were being held in prisons or jails, and an additional 4.5 million were in other correctional facilities. Put another way, 1 in 38 adult Americans was under some form of correctional supervision. The nightmarishness of this situation is one of the few issues that unite politicians on both sides of the aisle. Under immense pressure to reduce prison numbers without risking a rise in crime, courtrooms across the US have turned to automated tools in attempts to shuffle defendants through the legal system as efficiently and safely as possible. This is where the AI part of our story begins….(More)”.

AI is sending people to jail—and getting it wrong

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