Paper by Lupton, Deborah, from the Sydney Unversity’s Department of Sociology and Social Policy . Abstract: “As part of the digital health phenomenon, a plethora of interactive digital platforms have been established in recent years to elicit lay people’s experiences of illness and healthcare. The function of these platforms, as expressed on the main pages of their websites, is to provide the tools and forums whereby patients and caregivers, and in some cases medical practitioners, can share their experiences with others, benefit from the support and knowledge of other contributors and contribute to large aggregated data archives as part of developing better medical treatments and services and conducting medical research.
However what may not always be readily apparent to the users of these platforms are the growing commercial uses by many of the platforms’ owners of the archives of the data they contribute. This article examines this phenomenon of what I term ‘the digital patient experience economy’. In so doing I discuss such aspects as prosumption, the phenomena of big data and metric assemblages, the discourse and ethic of sharing and the commercialisation of affective labour via such platforms. I argue that via these online platforms patients’ opinions and experiences may be expressed in more diverse and accessible forums than ever before, but simultaneously they have become exploited in novel ways.”
A Page From the Tri-Sector Athlete Playbook: Designing a Pro-Bono Partnership Model for Cities and Public Agencies
Jeremy Goldberg: “Leaders in our social systems and institutions are faced with many of the same challenges of the past century, but they are tasked to solve them within new fiscal realities. In the United States these fiscal realities are tied to the impact of the most recent economic recession coupled with declining property and tax revenues. While these issues seem largely to be “problems” that many perceive to belong to our government, leadership across sectors has had to respond and adapt in numerous ways, some of which unfortunately include pay and hiring-freezes, lay-offs and cuts to important public services and programs related to education, parks and safety.
Fortunately, within this “new normal” there are examples of leadership within the public and private sector confronting these challenges head-on through innovative public-private partnerships (p3s). For example, municipal governments are turning to opportunities like IBM’s Smarter Cities Challenge, which provides funding and a team of IBM employees to assist the city in solving specific public problems. Other cities such as Boston, Louisville and San Francisco have established initiatives, projects and Offices of Civic Innovation where government, technologists, communities and residents are collaborating to solve problems through open-data initiatives and platforms.
This new generation of innovative P3s demonstrates the inherent power of what Joseph Nye coined a tri-sector athlete — someone who is able and experienced in business, government and the social sector. Today, unlike any other time before, tri-sector athletes are demonstrating that business as usual just won’t cut it. These athletes, myself included, believe it’s the perfect moment for civic innovation, the perfect time civic collaboration, and the perfect moment for an organization like Fuse Corps to lead the national civic entrepreneurship movement… and I’m proud to be a part of it.”
Bringing the deep, dark world of public data to light
Venturebeat: “The realm of public data is like a vast cave. It is technically open to all, but it contains many secrets and obstacles within its walls.
Enigma launched out of beta today to shed light on this hidden world. This “big data” startup focuses on data in the public domain, such as those published by governments, NGOs, and the media….
The company describes itself as “Google for public data.” Using a combination of automated web crawlers and directly reaching out to government agencies, Engima’s database contains billions of public records across more than 100,000 datasets. Pulling them all together breaks down the barriers that exist between various local, state, federal, and institutional search portals. On top of this information is an “entity graph” which searches through the data to discover relevant results. Furthermore, once the information is broken out of the silos, users can filter, reshape, and connect various datasets to find correlations….
The technology has a wide range of applications, including professional services, finance, news media, big data, and academia. Engima has formed strategic partnerships in each of these verticals with Deloitte, Gerson Lehrman Group, The New York Times, S&P Capital IQ, and Harvard Business School, respectively.”
Personal Information Is the Currency of the 21st Century
Tom Cochran (CTO at Atlantic Media) in All Things D: “The currency of the 21st century digital economy is your personal information. It has no transaction costs and does not decrease in value when the supply increases. Contrary to the laws of economics, it may even increase in value with greater supply. The more information you provide to companies, the more value they can extract from it….
Conversely, we tend to ignore this process because the most magnificent, technologically advanced and socially connected digital city is being built from it.
You are living in this growing digital city, and I’m guessing that you really like it here. Unfortunately, you can’t live in this city for free. Your rent is due in the form of your personal information, and you have to accept a certain loss of your privacy….
As a society, we need to define the rules under which our personal information can be mined. Our collective unease is largely the result of not having clear parameters to create an equilibrium between privacy and personalization.
These parameters will help shift our focus from the negatives to the positives, because in return for your personal information, you realize a net benefit with tremendous value.”
Human-Based Evolutionary Computing
Abstract of new paper by Jeffrey V. Nickerson on Human-Based Evolutionary Computing (in Handbook of Human Computation, P. Michelucci, eds., Springer, Forthcoming): “Evolution explains the way the natural world changes over time. It can also explain changes in the artificial world, such as the way ideas replicate, alter, and merge. This analogy has led to a family of related computer procedures called evolutionary algorithms. These algorithms are being used to produce product designs, art, and solutions to mathematical problems. While for the most part these algorithms are run on computers, they also can be performed by people. Such human-based evolutionary algorithms are useful when many different ideas, designs, or solutions need to be generated, and human cognition is called for”
What the Internet is Doing to Our Brains
Epipheo.TV: “Most of us are on the Internet on a daily basis and whether we like it or not, the Internet is affecting us. It changes how we think, how we work, and it even changes our brains. We interviewed Nicholas Carr, the author of, “The Shallows: What the Internet is Doing to Our Brains,” about how the Internet is influencing us, our creativity, our thought processes, our ideas, and how we think.”
Civilized Discourse Construction Kit
Jeff Atwood at “Coding Horror“: “Forum software? Maybe. Let’s see, it’s 2013, has forum software advanced at all in the last ten years? I’m thinking no.
Forums are the dark matter of the web, the B-movies of the Internet. But they matter. To this day I regularly get excellent search results on forum pages for stuff I’m interested in. Rarely a day goes by that I don’t end up on some forum, somewhere, looking for some obscure bit of information. And more often than not, I find it there….
At Stack Exchange, one of the tricky things we learned about Q&A is that if your goal is to have an excellent signal to noise ratio, you must suppress discussion. Stack Exchange only supports the absolute minimum amount of discussion necessary to produce great questions and great answers. That’s why answers get constantly re-ordered by votes, that’s why comments have limited formatting and length and only a few display, and so forth….
Today we announce the launch of Discourse, a next-generation, 100% open source discussion platform built for the next decade of the Internet.
The goal of the company we formed, Civilized Discourse Construction Kit, Inc., is exactly that – to raise the standard of civilized discourse on the Internet through seeding it with better discussion software:
- 100% open source and free to the world, now and forever.
- Feels great to use. It’s fun.
- Designed for hi-resolution tablets and advanced web browsers.
- Built in moderation and governance systems that let discussion communities protect themselves from trolls, spammers, and bad actors – even without official moderators.”
D4D Challenge Winners announced
Global Pulse Blog: “The winners of the Data for Development challenge – an international research challenge using a massive anonymized dataset provided by telecommunications company Orange – were announced at the NetMob 2013 Conference in Boston last week….
In this post we’ll look at the winners and how their research could be put to use.
Best Visualization prize winner: “Exploration and Analysis of Massive Mobile Phone Data: A Layered Visual Analytics Approach” –
Best Development prize winner: “AllAboard: a System for Exploring Urban Mobility and Optimizing Public Transport Using Cellphone Data”
Best Scientific prize winner: “Analyzing Social Divisions Using Cell Phone Data”
First prize winner: “Exploiting Cellular Data for Disease Containment and Information Campaigns Strategies in Country-Wide Epidemics””
New NAS Report: Copyright in the Digital Era: Building Evidence for Policy
National Academies of Sciences: “Over the course of several decades, copyright protection has been expanded and extended through legislative changes occasioned by national and international developments. The content and technology industries affected by copyright and its exceptions, and in some cases balancing the two, have become increasingly important as sources of economic growth, relatively high-paying jobs, and exports. Since the expansion of digital technology in the mid-1990s, they have undergone a technological revolution that has disrupted long-established modes of creating, distributing, and using works ranging from literature and news to film and music to scientific publications and computer software.
In the United States and internationally, these disruptive changes have given rise to a strident debate over copyright’s proper scope and terms and means of its enforcement–a debate between those who believe the digital revolution is progressively undermining the copyright protection essential to encourage the funding, creation, and distribution of new works and those who believe that enhancements to copyright are inhibiting technological innovation and free expression.
Copyright in the Digital Era: Building Evidence for Policy examines a range of questions regarding copyright policy by using a variety of methods, such as case studies, international and sectoral comparisons, and experiments and surveys. This report is especially critical in light of digital age developments that may, for example, change the incentive calculus for various actors in the copyright system, impact the costs of voluntary copyright transactions, pose new enforcement challenges, and change the optimal balance between copyright protection and exceptions.”
UK: The nudge unit – has it worked so far?
The Guardian: “Since 2010 David Cameron’s pet project has been tasked with finding ways to improve society’s behaviour – and now the ‘nudge unit’ is going into business by itself. But have its initiatives really worked?….
The idea behind the unit is simpler than you might believe. People don’t always act in their own interests – by filing their taxes late, for instance, overeating, or not paying fines until the bailiffs call. As a result, they don’t just harm themselves, they cost the state a lot of money. By looking closely at how they make their choices and then testing small changes in the way the choices are presented, the unit tries to nudge people into leading better lives, and save the rest of us a fortune. It is politics done like science, effectively – with Ben Goldacre’s approval – and, in many cases, it appears to work….”
See also: Jobseekers’ psychometric test ‘is a failure’ (US institute that devised questionnaire tells ‘nudge’ unit to stop using it as it failed to be scientifically validated)