Data sharing restrictions are hampering precision health in the European Union

Paper by Cristina Legido-Quigley et al: “Contemporary healthcare is undergoing a transition, shifting from a population-based approach to personalized medicine on an individual level. In October 2023, the European Partnership for Personalized Medicine was officially launched to communicate the benefits of this approach to citizens and healthcare systems in member countries. The main debate revolves around the inconsistency in regulatory changes within personal data access and its potential commercialization. Moreover, the lack of unified consensus within European Union (EU) countries is leading to problems with data sharing to progress personalized medicine. Here we discuss the integration of biological data with personal information on a European scale for the advancement of personalized medicine, raising legal considerations of data protection under the EU General Data Protection Regulation (GDPR)…(More)”.