Governance and business models for sustainablehealth data collaboratives

Report by The Data Tank and Impact Licensing Initiative: “…report develops an overview of mechanisms and components of business and data governance
models for health data collaboratives. In this report, we use the terms ‘data collaborative’ or
‘ecosystem for data reuse’ indistinguishably to refer to collaborations between different stakeholders
across multiple sectors to exchange data in a way that overcomes silos to create public value (Susha
et al., 2017).
This report synthesises a rapid literature review of academic, policy, and industry documents,
including case studies, to examine governance and business models for health data reuse. We
examine in the literature different dimensions involved in sustaining an ecosystem for data reuse.
The report sets these out in the current regulatory context. It also considers the role that
mechanisms like a social license and impact licensing play in the sustainable governance of the
different business models as essential complements to the regulatory context. It analyses case
studies that can be mapped onto these models and offers pathways for a process to decide on a
business model…(More)”.