Principles prepared by Transform health: “Data-driven approaches are increasingly the norm or aspiration in the operation of health systems. The collection, processing, storage, analysis, use, sharing and disposal of health data has grown in complexity. This exponential increase in data use necessitates robust and equitable governance of health data. Countries and regions around the world are instituting health data governance policies and legislation. However, there is not yet a comprehensive, global set of principles to guide the governance of health data across public health systems and policies. The Health Data Governance Principles respond to that need.
The Principles are intended as a resource for, and have applicability to, a range of stakeholders involved in the collection and use of health data, including governments, the private sector, international organisations, civil society, among others. We encourage all stakeholders to endorse the Principles.
We want to see the Principles adopted by governments, technology companies, and other institutions responsible for collecting and managing health data…(More)”.