Reform: This report looks at the access and use of NHS data by private sector companies for research or product and service development purposes….
The private sector is an important partner to the NHS and plays a crucial role in the development of healthcare technologies that use data collected by hospitals or GP practices. It provides the skills and know-how to develop data-driven tools which can be used to improve patient care. However, this is not a one-sided exchange as the NHS makes the data available to build these tools and offers medical expertise to make sense of the data. This is known as the “value exchange”. Our research uncovered that there is a lack of clarity over what a fair value exchange looks like. This lack of clarity in conjunction with the lack of national guidance on the types of partnerships that could be developed has led to a patchwork on the ground….
Knowing what the “value exchange” is between patients, the NHS and industry allows for a more informed conversation about what constitutes a fair partnership when there is access to data to create a product or service
WHAT NEEDS TO CHANGE?
- Engage with the public
- A national strategy
- Access to good quality data
- Commercial and legal skills…(More)