Non-traditional data in pandemic preparedness and response: identifying and addressing first and last-mile challenges

Paper by Mattia Mazzoli et al: “The pandemic served as an important test case of complementing traditional public health data with non-traditional data (NTD) such as mobility traces, social media activity, and wearables data to inform decision-making. Drawing on an expert workshop and a targeted survey of European modelers, we assess the promise and persistent limitations of such data in pandemic preparedness and response. We distinguish between “first-mile” (accessing and harmonizing data) and “last-mile” challenges (translating insights into actionable interventions). The expert workshop held in 2024 brought together participants from public health, academia, policymakers, and industry to reflect on lessons learned and define strategies for translating NTD insights into policy making. The survey offers evidence of the barriers faced during COVID-19 and highlights key data unavailability and underuse. Our findings reveal ongoing issues with data access, quality, and interoperability, as well as institutional and cognitive barriers to evidence-based decision-making. Around 66% of datasets suffered access problem, with data sharing reluctance for NTD being double that of traditional data (30% vs 15%). Only 10% reported they could use all the data they needed. We propose a set of recommendations: for first-mile challenges, solutions focus on technical and legal frameworks for data access.; for last-mile challenges, we recommend fusion centers, decision accelerator labs, and networks of scientific ambassadors to bridge the gap between analysis and action. Realizing the full value of NTD requires a sustained investment in institutional readiness, cross-sectoral collaboration, and a shift toward a culture of data solidarity. Grounded in the lessons of COVID-19, the article can be used to design a roadmap for using NTD to confront a broader array of public health emergencies, from climate shocks to humanitarian crises…(More)”