Editorial by Christian Fynbo Christiansen, Persephone Doupi, Nienke Schutte, and Damir Ivanković: “The European Health Data Space (EHDS) regulation creates a health-specific ecosystem for both primary and secondary use of health data. HealthData@EU—the novel cross-border technical infrastructure for secondary use of electronic health data will be crucial for achieving the ambitious goals of the EHDS.
In 2022, the “HealthData@EU pilot project,” co-funded under the EU4Health-framework (GA nr 101079839), brought together 17 partners including potential Health Data Access Bodies’ (HDABs) candidates, health data sharing infrastructures, and European agencies in order to build and test a pilot version of the HealthData@EU infrastructure and provide recommendations for metadata standards, data quality, data security, and data transfer to support development of the EHDS cross-border infrastructure.
This editorial and the other manuscripts presented in this Special EJPH Supplement will provide readers with insights from real-life scenarios that follow the research user journey and highlight the challenges of health research, as well as the solutions the EHDS can provide…(More)”.
