Conflicts over access to Americans’ personal data emerging across federal government

Curated on Posted on by Stefaan Verhulst

Article by Caitlin Andrews: “The Trump administration’s fast-moving efforts to limit the size of the U.S. federal bureaucracy, primarily through the recently minted Department of Government Efficiency, are raising privacy and data security concerns among current and former officials across the government, particularly as the administration scales back positions charged with privacy oversight. Efforts to limit the independence of a host of federal agencies through a new executive order — including the independence of the Federal Trade Commission and Securities and Exchange Commission — are also ringing alarm bells among civil society and some legal experts.

According to CNN, several staff within the Office of Personnel Management’s privacy and records keeping department were fired last week. Staff who handle communications and respond to Freedom of Information Act requests were also let go. Though the entire privacy team was not fired, according to the OPM, details about what kind of oversight will remain within the department were limited. The report also states the staff’s termination date is 15 April.

It is one of several moves the Trump administration has made in recent days reshaping how entities access and provide oversight to government agencies’ information.

The New York Times reports on a wide range of incidents within the government where DOGE’s efforts to limit fraudulent government spending by accessing sensitive agency databases have run up against staffers who are concerned about the privacy of Americans’ personal information. In one incident, Social Security Administration acting Commissioner Michelle King was fired after resisting a request from DOGE to access the agency’s database. “The episode at the Social Security Administration … has played out repeatedly across the federal government,” the Times reported…(More)”.

Tab the lab: A typology of public sector innovation labs

Curated on Posted on by Stefaan Verhulst

Paper by Aline Stoll and Kevin C Andermatt: “Many public sector organizations set up innovation laboratories in response to the pressure to tackle societal problems and the high expectations placed on them to innovate public services. Our understanding of the public sector innovation laboratories’ role in enhancing the innovation capacity of administrations is still limited. It is challenging to assess or compare the impact of innovation laboratories because of how they operate and what they do. This paper closes this research gap by offering a typology that organizes the diverse nature of innovation labs and makes it possible to compare various lab settings. The proposed typology gives possible relevant factors to increase the innovation capacity of public organizations. The findings are based on a literature review of primarily explorative papers and case studies, which made it possible to identify the relevant criteria. The proposed typology covers three dimensions: (1) value (intended innovation impact of the labs); (2) governance (role of government and financing model); and (3) network (stakeholders in the collaborative arrangements). Comparing European countries and regions with regards to the repartition of labs shows that Nordic and British countries tend to have broader scope than continental European countries…(More)”.

On Privacy and Technology

Curated on Posted on by Stefaan Verhulst

Book by Daniel J. Solove: “With the rapid rise of new digital technologies and artificial intelligence, is privacy dead? Can anything be done to save us from a dystopian world without privacy?

In this short and accessible book, internationally renowned privacy expert Daniel J. Solove draws from a range of fields, from law to philosophy to the humanities, to illustrate the profound changes technology is wreaking upon our privacy, why they matter, and what can be done about them. Solove provides incisive examinations of key concepts in the digital sphere, including control, manipulation, harm, automation, reputation, consent, prediction, inference, and many others.

Compelling and passionate, On Privacy and Technology teems with powerful insights that will transform the way you think about privacy and technology…(More)”.

Being an Effective Policy Analyst in the Age of Information Overload

Curated on Posted on by Stefaan Verhulst

Blog by Adam Thierer: “The biggest challenge of being an effective technology policy analyst, academic, or journalist these days is that the shelf life of your products is measured in weeks — and sometimes days — instead of months. Because of that, I’ve been adjusting my own strategies over time to remain effective.

The thoughts and advice I offer here are meant mostly for other technology policy analysts, whether you are a student or young professional just breaking into the field, or someone in the middle of your career looking to take it to the next level. But much of what I’ll say here is generally applicable across the field of policy analysis. It’s just a lot more relevant for people in the field of tech policy because of its fast-moving, ever-changing nature.

This essay will repeatedly reference two realities that have shaped my life both as an average citizen and as an academic and policy analyst: First, we used to live in a world of information scarcity, but we now live in a world of information abundance–and that trend is only accelerating. Second, life and work in a world of information overload is simultaneously a wonderful and awful thing, but one thing is for sure: there is absolutely no going back to the sleepy days of information scarcity.

If you care to be an effective policy analyst today, then you have to come to grips with these new realities. Here are a few tips…(More)”.

Public participation in policymaking: exploring and understanding impact

Curated on Posted on by Stefaan Verhulst

Report by the Scottish Government: “This research builds on that framework and seeks to explore how Scottish Government might better understand the impact of public participation on policy decision-making. As detailed above, there is a plethora of potential, and anticipated, benefits which may arise from increased citizen participation in policy decision-making, as well as lots of participatory activity already taking place across the organisation. Now is an opportune time to consider impact, to support the design and delivery of participatory engagements that are impactful and that are more likely to realise the benefits of public participation. Through a review of academic and grey literature along with stakeholder engagement, this study aims to answer the following questions:

  • 1. How is impact conceptualised in literature related to public participation, and what are some practice examples?
  • 2. How is impact conceptualised by stakeholders and what do they perceive as the current blockers, challenges or facilitators in a Scottish Government setting?
  • 3. What evaluation tools or frameworks are used to evaluate the impact of public participation processes, and which ones might be applicable /usable in a Scottish Government setting?…(More)”.

Trump’s shocking purge of public health data, explained

Curated on Posted on by Stefaan Verhulst

Article by Dylan Scott: “In the initial days of the Trump administration, officials scoured federal websites for any mention of what they deemed “DEI” keywords — terms as generic as “diverse” and “historically” and even “women.” They soon identified reams of some of the country’s most valuable public health data containing some of the targeted words, including language about LGBTQ+ people, and quickly took down much of it — from surveys on obesity and suicide rates to real-time reports on immediate infectious disease threats like bird flu.

The removal elicited a swift response from public health experts who warned that without this data, the country risked being in the dark about important health trends that shape life-and-death public health decisions made in communities across the country.

Some of this data was restored in a matter of days, but much of it was incomplete. In some cases, the raw data sheets were posted again, but the reference documents that would allow most people to decipher them were not. Meanwhile, health data continues to be taken down: The New York Times reported last week that data from the Centers for Disease Control and Prevention on bird flu transmission between humans and cats had been posted and then promptly removed…

It is difficult to capture the sheer breadth and importance of the public health data that has been affected. Here are a few illustrative examples of reports that have either been tampered with or removed completely, as compiled by KFF.

The Behavioral Risk Factor Surveillance System (BRFSS), which is “one of the most widely used national health surveys and has been ongoing for about 40 years,” per KFF, is an annual survey that contacts 400,000 Americans to ask people about everything from their own perception of their general health to exercise, diet, sexual activity, and alcohol and drug use.

That in turn allows experts to track important health trends, like the fluctuations in teen vaping use. One recent study that relied on BRFSS data warned that a recent ban on flavored e-cigarettes (also known as vapes) may be driving more young people to conventional smoking, five years after an earlier Yale study based on the same survey led to the ban being proposed in the first place. The Supreme Court and the Trump administration are currently revisiting the flavored vape ban, and the Yale study was cited in at least one amicus brief for the case.

This survey has also been of particular use in identifying health disparities among LGBTQ+ people, such as higher rates of uninsurance and reported poor health compared to the general population. Those findings have motivated policymakers at the federal, state and local levels to launch new initiatives aimed specifically at that at-risk population.

As of now, most of the BRFSS data has been restored, but the supplemental materials that make it legible to lay people still has not…(More)”.

Net zero: the role of consumer behaviour

Curated on Posted on by Stefaan Verhulst

Horizon Scan by the UK Parliament: “According to research from the Centre for Climate Change and Social Transformation, reaching net zero by 2050 will require individual behaviour change, particularly when it comes to aviation, diet and energy use.

The government’s 2023 Powering Up Britain: Net Zero Growth Plan referred to low carbon choices as ‘green choices’, and described them as public and businesses choosing green products, services, and goods. The plan sets out six principles regarding policies to facilitate green choices. Both the Climate Change Committee and the House of Lords Environment and Climate Change Committee have recommended that government strategies should incorporate greater societal and behavioural change policies and guidance.

Contributors to the horizon scan identified managing consumer behaviour and habits to help achieve net zero as a topic of importance for parliament over the next five years. Change in consumer behaviour could result in approximately 60% of required emission reductions to reach net zero.[5] Behaviour change will be needed from the wealthiest in society, who according to Oxfam typically lead higher-carbon lifestyles.

Incorporating behavioural science principles into policy levers is a well-established method of encouraging desired behaviours. Common examples of policies aiming to influence behaviour include subsidies, regulation and information campaigns (see below).

However, others suggest deliberative public engagement approaches, such as the UK Climate Change Assembly,[7] may be needed to determine which pro-environmental policies are acceptable.[8] Repeated public engagement is seen as key to achieve a just transition as different groups will need different support to enable their green choices (PN 706).

Researchers debate the extent to which individuals should be responsible for making green choices as opposed to the regulatory and physical environment facilitating them, or whether markets, businesses and governments should be the main actors responsible for driving action. They highlight the need for different actions based on the context and the different ways individuals act as consumers, citizens, and within organisations and groups. Health, time, comfort and status can strongly influence individual decisions while finance and regulation are typically stronger motivations for organisations (PN 714)…(More)”

Empowering open data sharing for social good: a privacy-aware approach

Curated on Posted on by Stefaan Verhulst

Paper by Tânia Carvalho et al: “The Covid-19 pandemic has affected the world at multiple levels. Data sharing was pivotal for advancing research to understand the underlying causes and implement effective containment strategies. In response, many countries have facilitated access to daily cases to support research initiatives, fostering collaboration between organisations and making such data available to the public through open data platforms. Despite the several advantages of data sharing, one of the major concerns before releasing health data is its impact on individuals’ privacy. Such a sharing process should adhere to state-of-the-art methods in Data Protection by Design and by Default. In this paper, we use a Covid-19 data set from Portugal’s second-largest hospital to show how it is feasible to ensure data privacy while improving the quality and maintaining the utility of the data. Our goal is to demonstrate how knowledge exchange in multidisciplinary teams of healthcare practitioners, data privacy, and data science experts is crucial to co-developing strategies that ensure high utility in de-identified data…(More).”

Citizens’ assemblies in fragile and conflict-affected settings

Curated on Posted on by Stefaan Verhulst

Article by Nicole Curato, Lucy J Parry, and Melisa Ross: “Citizens’ assemblies have become a popular form of citizen engagement to address complex issues like climate change, electoral reform, and assisted dying. These assemblies bring together randomly selected citizens to learn about an issue, consider diverse perspectives, and develop collective recommendations. Growing evidence highlights their ability to depolarise views, enhance political efficacy, and rebuild trust in institutions. However, the story of citizens’ assemblies is more complicated on closer look. This demanding form of political participation is increasingly critiqued for its limited impact, susceptibility to elite influence, and rigid design features unsuitable to local contexts. These challenges are especially pronounced in fragile and conflict-affected settings, where trust is low, expectations for action are high, and local ownership is critical. Well-designed assemblies can foster civic trust and dialogue across difference, but poorly implemented ones risk exacerbating tensions.

This article offers a framework to examine citizens’ assemblies in fragile and conflict-affected settings, focusing on three dimensions: deliberative design, deliberative integrity, and deliberative sustainability. We apply this framework to cases in Bosnia and France to illustrate both the transformative potential and the challenges of citizens’ assemblies when held amidst or in the aftermath of political conflict. This article argues that citizens’ assemblies can be vital mechanisms to manage intractable conflict, provided they are designed with intentionality, administered deliberatively, and oriented towards sustainability…(More)”.

Call to make tech firms report data centre energy use as AI booms

Curated on Posted on by Stefaan Verhulst

Article by Sandra Laville: “Tech companies should be required by law to report the energy and water consumption for their data centres, as the boom in AI risks causing irreparable damage to the environment, experts have said.

AI is growing at a rate unparalleled by other energy systems, bringing heightened environmental risk, a report by the National Engineering Policy Centre (NEPC) said.

The report calls for the UK government to make tech companies submit mandatory reports on their energy and water consumption and carbon emissions in order to set conditions in which data centres are designed to use fewer vital resources…(More)”.