PatientsLikeMe Gives Genentech Full Access


Susan Young Rojahn in MIT Technology Review: “PatientsLikeMe, the largest online network for patients, has established its first broad partnership with a drug company. Genentech, the South San Francisco biotechnology company bought by Roche in 2009, now has access to PatientsLikeMe’s full database for five years.
PatientsLikeMe is an online network of some 250,000 people with chronic diseases who share information about symptoms, treatments, and coping mechanisms. The largest communities within the network are built around fibromyalgia, multiple sclerosis, and amyotrophic lateral sclerosis (ALS), but as many as 2,000 conditions are represented in the system. The hope is that the information shared by people with chronic disease will help the life sciences industry identify unmet needs in patients and generate medical evidence, says co-founder Ben Heywood.
The agreement with Genentech is not the first collaboration between a life sciences company and PatientsLikeMe, named one of 50 Disruptive Companies in 2012 by MIT Technology Review, but it is the broadest. Previous collaborations were more limited in scope, says Heywood, focusing on a particular research question or a specific disease area. The deal with Genentech is an all-encompassing subscription to information posted by the entire PatientsLikeMe population, without the need for new contracts and new business deals if a research program shifts direction from its original focus. “This allows for a much more rapid real-time use of the data,” says Heywood.
In 2010, PatientsLikeMe demonstrated some of its potential to advance medicine. With data from its community of ALS patients, who suffer from a progressive and fatal neurological disease, the company could see that a drug under study was not effective (see “Patients’ Social Network Predicts Drug Outcomes”). Those findings were corroborated by an academic study published that year. Another area of medicine the network can shed light on is the quality of care patients receive, including whether or not doctors are following guidelines established by medical societies for how patients are treated. “As we try to shift to patient-centered health care, we have to understand what [patients] value,” says Heywood.
In exchange for an undisclosed payment to PatientsLikeMe, Genentech has a five-year subscription to the data in the online network. The data will be de-identified– that is, Genentech will not see patient names or email addresses. Heywood says his company is hoping to establish broad agreements with other life sciences companies soon.”

'Hackathons' Aim to Solve Health Care's Ills


Amy Dockser Marcus in the Wall Street Journal: “Hackathons, the high-octane, all-night problem-solving sessions popularized by the software-coding community, are making their way into the more traditional world of health care. At Massachusetts Institute of Technology, a recent event called Hacking Medicine’s Grand Hackfest attracted more than 450 people to work for one weekend on possible solutions to problems involving diabetes, rare diseases, global health and information technology used at hospitals.
Health institutions such as New York-Presbyterian Hospital and Brigham and Women’s Hospital in Boston have held hackathons. MIT, meantime, has co-sponsored health hackathons in India, Spain and Uganda.
Hackathons of all kinds are increasingly popular. Intel Corp.  recently bought a group that organizes them. Companies hoping to spark creative thinking sponsor them. And student-run hackathons have turned into intercollegiate competitions.
But in health care, where change typically comes much more slowly than in Silicon Valley, they represent a cultural shift. To solve a problem, scientists and doctors can spend years painstakingly running experiments, gathering data, applying for grants and publishing results. So the idea of an event where people give two-minute pitches describing a problem, then join a team of strangers to come up with a solution in the course of one weekend is radical.
“We are not trying to replace the medical culture with Facebook culture,” said Elliot Cohen, who wore a hoodie over a button-down dress shirt at the MIT event in March and helped start MIT Hacking Medicine while at business school. “But we want to try to blend them more.”
Mr. Cohen co-founded and is chief technology officer at PillPack, a pharmacy that sends customers personalized packages of their medications, a company that started at a hackathon.
At MIT’s health-hack, physicians, researchers, students and a smattering of people wearing Google Glass sprawled on the floor of MIT’s Media Lab and at tables with a view of the Boston skyline. At one table, a group of college students, laptops plastered with stickers, pulled juice boxes and snacks out of backpacks, trash piling up next to them as they feverishly wrote code.
Nupur Garg, an emergency-room physician and one of the eventual winners, finished her hospital shift at 2 a.m. Saturday in New York, drove to Boston and arrived at MIT in time to pitch the need for a way to capture images of patients’ ears and throats that can be shared with specialists to help make diagnoses. She and her team immediately started working on a prototype for the device, testing early versions on anyone who stopped by their table.
Dr. Garg and teammate Nancy Liang, who runs a company that makes Web apps for 3-D printers, caught a few hours of sleep in a dorm room Saturday night. They came up with the idea for their product’s name—MedSnap—later that night while watching students use cellphone cameras to send SnapChats to one another. “There was no time to conduct surveys on what was the best name,” said Ms. Liang. “Many ideas happen after midnight.”
Winning teams in each category won $1,000, as well as access to the hackathons sponsors for advice and pilot projects.
Yet even supporters say hackathons can’t solve medicine’s challenges overnight. Harlan Krumholz, a professor at Yale School of Medicine who ran a many-months trial that found telemonitoring didn’t reduce hospitalizations or deaths of cardiology patients, said he supports the problem-solving ethos of hackathons. But he added that “improvements require a long-term commitment, not just a weekend.”
Ned McCague, a data scientist at Blue Cross Blue Shield of Massachusetts, served as a mentor at the hackathon. He said he wasn’t representing his employer, but he used his professional experiences to push groups to think about the potential customer. “They have a good idea and are excited about it, but they haven’t thought about who is paying for it,” he said.
Zen Chu, a senior lecturer in health-care innovation and entrepreneur-in-residence at MIT, and one of the founders of Hacking Medicine, said more than a dozen startups conceived since the first hackathon, in 2011, are still in operation. Some received venture-capital funding.
The upsides of hackathons were made clear to Sharon Moalem, a physician who studies rare diseases. He had spent years developing a mobile app that can take pictures of faces to help diagnose rare genetic conditions, but was stumped on how to give the images a standard size scale to make comparisons. At the hackathon, Dr. Moalem said he was approached by an MIT student who suggested sticking a coin on the subjects’ forehead. Since quarters have a standard measurement, it “creates a scale,” said Dr. Moalem.
Dr. Moalem said he had never considered such a simple, elegant solution. The team went on to write code to help standardize facial measurements based on the dimensions of a coin and a credit card.
“Sometimes when you are too close to something, you stop seeing solutions, you only see problems,” Dr. Moalem said. “I needed to step outside my own silo.”

Smart cities are here today — and getting smarter


Computer World: “Smart cities aren’t a science fiction, far-off-in-the-future concept. They’re here today, with municipal governments already using technologies that include wireless networks, big data/analytics, mobile applications, Web portals, social media, sensors/tracking products and other tools.
These smart city efforts have lofty goals: Enhancing the quality of life for citizens, improving government processes and reducing energy consumption, among others. Indeed, cities are already seeing some tangible benefits.
But creating a smart city comes with daunting challenges, including the need to provide effective data security and privacy, and to ensure that myriad departments work in harmony.

The global urban population is expected to grow approximately 1.5% per year between 2025 and 2030, mostly in developing countries, according to the World Health Organization.

What makes a city smart? As with any buzz term, the definition varies. But in general, it refers to using information and communications technologies to deliver sustainable economic development and a higher quality of life, while engaging citizens and effectively managing natural resources.
Making cities smarter will become increasingly important. For the first time ever, the majority of the world’s population resides in a city, and this proportion continues to grow, according to the World Health Organization, the coordinating authority for health within the United Nations.
A hundred years ago, two out of every 10 people lived in an urban area, the organization says. As recently as 1990, less than 40% of the global population lived in a city — but by 2010 more than half of all people lived in an urban area. By 2050, the proportion of city dwellers is expected to rise to 70%.
As many city populations continue to grow, here’s what five U.S. cities are doing to help manage it all:

Scottsdale, Ariz.

The city of Scottsdale, Ariz., has several initiatives underway.
One is MyScottsdale, a mobile application the city deployed in the summer of 2013 that allows citizens to report cracked sidewalks, broken street lights and traffic lights, road and sewer issues, graffiti and other problems in the community….”

HarassMap: Using Crowdsourced Data to Map Sexual Harassment in Egypt


Chelsea Young in Technology Innovation Management Review: “Through a case study of HarassMap, an advocacy, prevention, and response tool that uses crowdsourced data to map incidents of sexual harassment in Egypt, this article examines the application of crowdsourcing technology to drive innovation in the field of social policy. This article applies a framework that explores the potential, limitations, and future applications of crowdsourcing technology in this sector to reveal how crowdsourcing technology can be applied to overcome cultural and environmental constraints that have traditionally impeded the collection of data. Many of the lessons emerging from this case study hold relevance beyond the field of social policy. Applied to specific problems, this technology can be used to improve the efficiency and effectiveness of mitigation strategies, while facilitating rapid and informed decision making based on “good enough” data. However, this case also illustrates a number of challenges arising from the integrity of crowdsourced data and the potential for ethical conflict when using this data to inform policy formulation.”

Ten Innovations to Compete for Global Innovation Award


Making All Voices Count: “The Global Innovation Competition was launched at the Open Government Partnership Summit in November, 2013 and set out to scout the globe for fresh ideas to enhance government accountability and boost citizen engagement. The call was worldwide and in response, nearly 200 innovative ideas were submitted. After a process of public voting and peer review, these have been reduced to ten.
Below, we highlight the innovations that will now compete for a prize of £65,000 plus six months mentorship at the Global Innovation Week March 31 – April 4, 2014 in Kenya.
The first seven emerged from a process of peer review and the following three were selected by the Global Innovation Jury.

An SMS gateway, connected to local hospitals and the web, to channel citizens’ requests for pregnancy services. At risk women, in need of information such as hospital locations and general advice, will receive relevant and targeted updates utilising both an SMS and a GIS-based system.  The aim is to reduce maternal mortality by targeting at risk women in poorer communities in Indonesia.

“One of the causes of high maternal mortality rate in Indonesia is late response in childbirth treatment and lack of pregnancy care information.”

This project, led by a civil servant, aims to engage citizens in Pakistan in service delivery governance. The project aims to enable and motivate citizens to collect, analyze and disseminate service delivery performance data in order to drive performance and help effective decision making.

“BSDU will serve as a model of better management aided by the citizens, for the citizens.”

A Geographic Information System that gives Indonesian citizens access to information regarding government funded projects. The idea is to enable and motivate citizens to compare a project’s information with its real-world implementation and to provide feedback on this. The ultimate aim is to fight corruption in the public sector by making it easier for citizens to monitor, and provide feedback on, government-funded projects.

“On-the-map information about government-funded projects, where citizens are able to submit their opinions, should became a global standard in budget transparency!”

A digital payment system in South Africa that rewards citizens who participate in activities such as waste separation and community gardening. Citizens are able to ‘spend’ rewards on airtime, pre-paid electricity and groceries. By rewarding social volunteers this project aims to boost citizen engagement, build trust and establish the link between government and citizen actors.

“GEM offers a direct channel for communication and rewards between governments and citizens.”

An app created by a team of software developers to provide Ghanaian citizens with information about the oil and gas industry, with the aim of raising awareness of the revenue generated and to spark debate about how this could be used to improve national development.

“The idea is to bring citizens, the oil and gas companies and the government all onto one platform.”

Ghana Petrol Watch seeks to deliver basic facts and figures associated with oil and gas exploration to the average Ghanaian. The solution employs mobile technology to deliver this information. The audience can voice their concerns as comments on the issue via replies to the SMS. These would then be published on the web portal for further exposure and publicity.

“The information on the petroleum industry is publicly available, but not readily accessible and often does not reach the grassroots community in an easily comprehensible manner.”

A common platform to be implemented in Khulna City, Bangladesh, where citizens and elected officials will interact on budget, expenditure and information.

“The concept of citizen engagement for the fulfillment of pre-election commitment is an innovation in establishing governance.”

The aim of this project is an increase in child engagement in governmental budgeting and policy formulation in Mwanza City, Tanzania. This project was selected as a wildcard by the Global Innovation Jury.

“In many projects I have seen, children are always the perceived beneficiaries, rarely do you see innovations where children are active participants in achieving a goal in their society. It was great to see children as active contributors to their own discourse.” – Jury Member, Shikoh Gitau.

A ‘watchdog’ newsletter in Kenya focusing on monitoring the actions of officials with the aim of educating, empowering and motivating citizens to hold their leaders to account. This project was selected as a wildcard by the Global Innovation Jury.

“We endeavor to bridge the information gap in northern Kenya by giving voice to the voiceless and also highlighting their challenges. The aim is an increase in the educational level of the people through information.”

Citizen Desk is an open-source tool that combines the ability of citizens to share eyewitness reports with the public need for verified information in real time. Citizen Desk lets citizen journalists file reports via SMS or social media, with no need for technical training. This project was selected as a wildcard by the Global Innovation Jury.

“It has become evident for some time now that good technical innovation must rest on a strong bedrock of social and political activity, on the ground, deeply in touch with local conditions, and sometimes in the face of power and privilege.” – Jury Member Bright Simons.”

Potholes and Big Data: Crowdsourcing Our Way to Better Government


Phil Simon in Wired: “Big Data is transforming many industries and functions within organizations with relatively limited budgets.
Consider Thomas M. Menino, up until recently Boston’s longest-serving mayor. At some point in the past few years, Menino realized that it was no longer 1950. Perhaps he was hobnobbing with some techies from MIT at dinner one night. Whatever his motivation, he decided that there just had to be a better, more cost-effective way to maintain and fix the city’s roads. Maybe smartphones could help the city take a more proactive approach to road maintenance.
To that end, in July 2012, the Mayor’s Office of New Urban Mechanics launched a new project called Street Bump, an app that allows drivers to automatically report the road hazards to the city as soon as they hear that unfortunate “thud,” with their smartphones doing all the work.
The app’s developers say their work has already sparked interest from other cities in the U.S., Europe, Africa and elsewhere that are imagining other ways to harness the technology.
Before they even start their trip, drivers using Street Bump fire up the app, then set their smartphones either on the dashboard or in a cup holder. The app takes care of the rest, using the phone’s accelerometer — a motion detector — to sense when a bump is hit. GPS records the location, and the phone transmits it to an AWS remote server.
But that’s not the end of the story. It turned out that the first version of the app reported far too many false positives (i.e., phantom potholes). This finding no doubt gave ammunition to the many naysayers who believe that technology will never be able to do what people can and that things are just fine as they are, thank you. Street Bump 1.0 “collected lots of data but couldn’t differentiate between potholes and other bumps.” After all, your smartphone or cell phone isn’t inert; it moves in the car naturally because the car is moving. And what about the scores of people whose phones “move” because they check their messages at a stoplight?
To their credit, Menino and his motley crew weren’t entirely discouraged by this initial setback. In their gut, they knew that they were on to something. The idea and potential of the Street Bump app were worth pursuing and refining, even if the first version was a bit lacking. Plus, they have plenty of examples from which to learn. It’s not like the iPad, iPod, and iPhone haven’t evolved considerably over time.
Enter InnoCentive, a Massachusetts-based firm specializing in open innovation and crowdsourcing. The City of Boston contracted InnoCentive to improve Street Bump and reduce the amount of tail chasing. The company accepted the challenge and essentially turned it into a contest, a process sometimes called gamification. InnoCentive offered a network of 400,000 experts a share of $25,000 in prize money donated by Liberty Mutual.
Almost immediately, the ideas to improve Street Bump poured in from unexpected places. This crowd had wisdom. Ultimately, the best suggestions came from:

  • A group of hackers in Somerville, Massachusetts, that promotes community education and research
  • The head of the mathematics department at Grand Valley State University in Allendale, MI.
  • An anonymous software engineer

…Crowdsourcing roadside maintenance isn’t just cool. Increasingly, projects like Street Bump are resulting in substantial savings — and better government.”

Democracy in Retreat


Book by Joshua Kurlantzick (Council on Foreign Relations) on “The Revolt of the Middle Class and the Worldwide Decline of Representative Government”: “Since the end of the Cold War, most political theorists have assumed that as countries develop economically, they will also become more democratic—especially if a vibrant middle class takes root. The triumph of democracy, once limited to a tiny number of states and now spread across the globe, has been considered largely inevitable.
In Democracy in Retreat: The Revolt of the Middle Class and the Worldwide Decline of Representative Government, CFR Fellow for Southeast Asia Joshua Kurlantzick identifies forces that threaten democracy and shows that conventional wisdom has blinded world leaders to a real crisis. “Today a constellation of factors, from the rise of China to the lack of economic growth in new democracies to the West’s financial crisis, has come together to hinder democracy throughout the developing world,” he writes. “Absent radical and unlikely changes in the international system, that combination of antidemocratic factors will have serious staying power.”
Kurlantzick pays particular attention to the revolt of middle class citizens, traditionally proponents of reform, who have turned against democracy in countries such as Venezuela, Pakistan, and Taiwan. He observes that countries once held up as model new democracies, such as Hungary and the Czech Republic, have since curtailed social, economic, and political freedoms. Military coups have grabbed power from Honduras to Thailand to Fiji. The number of representative governments has fallen, and the quality of democracy has deteriorated in many states where it had been making progress, including Russia, Kenya, Argentina, and Nigeria.
The renewed strength of authoritarian rule, warns Kurlantzick, means that billions of people around the world continue to live under repressive regimes.”

The Unwisdom of Crowds




Anne Applebaum on why people-powered revolutions are overrated in the New Republic: “..Yet a successful street revolution, like any revolution, is never guaranteed to leave anything positive in its aftermath—or anything at all. In the West, we often now associate protests with progress, or at least we assume that big crowds—the March on Washington, Paris in 1968—are the benign face of social change. But street revolutions are not always progressive, positive, or even important. Some replace a corrupt tyranny with violence and a political vacuum, which is what happened in Libya. Ukraine’s own Orange Revolution of 2004–2005 produced a new group of leaders who turned out to be just as incompetent as their predecessors. Crowds can be bullying, they can become violent, and they can give rise to extremists: Think Tehran 1979, or indeed Petrograd 1917.
The crowd may not even represent the majority. Because a street revolution makes good copy, and because it provides great photographs, we often mistakenly confuse “people power” with democracy itself. In fact, the creation of democratic institutions—courts, legal systems, bills of rights—is a long and tedious process that often doesn’t interest foreign journalists at all. Tunisia’s ratification of a new constitution earlier this year represented the most significant achievement of the Arab Spring to date, but the agonizing negotiations that led up to that moment were hard for outsiders to understand—and not remotely telegenic
Equally, it is a dangerous mistake to imagine that “people power” can ever be a substitute for actual elections. On television, a demonstration can loom larger than it should. In both Thailand and Turkey, an educated middle class has recently taken to the streets to protest against democratically elected leaders who have grown increasingly corrupt and autocratic, but who might well be voted back into office tomorrow. In Venezuela, elections are not fair and the media is not free, but the president is supported by many Venezuelans who still have faith in his far-left rhetoric, however much his policies may be damaging the country. Demonstrations might help bring change in some of these countries, but if the change is to be legitimate—and permanent—the electorate will eventually have to endorse it.
As we often forget, some of the most successful transitions to democracy did not involve crowds at all. Chile became a democracy because its dictator, Augusto Pinochet, decided it would become one. In early 1989, well before mass demonstrations in Prague or Berlin, the leaders of the Polish opposition sat down at a large round table with their former jailers and negotiated their way out of communism. There are no spectacular photographs of these transitions, and many people found them unsatisfying, even unjust. But Chile and Poland remain democracies today, not least because their new leaders came to power without any overt opposition from the old regime.
It would be nice if these kinds of transitions were more common, but not every dictator is willing to smooth the path toward change. For that reason, the post-revolutionary moment is often more important than the revolution itself, for this is when the emotion of the mob has to be channeled rapidly—immediately—into legitimate institutions. Not everybody finds this easy. In the wake of the Egyptian revolution, demonstrators found it difficult to abandon Tahrir Square. “We won’t leave because we have to make sure this country is set on the right path,” one protester said at the time. In fact, he should already have been at home, back in his neighborhood, perhaps creating the grassroots political party that might have given Egyptians a real alternative to the Muslim Brotherhood…”

New Field Guide Explores Open Data Innovations in Disaster Risk and Resilience


Worldbank: “From Indonesia to Bangladesh to Nepal, community members armed with smartphones and GPS systems are contributing to some of the most extensive and versatile maps ever created, helping inform policy and better prepare their communities for disaster risk.
In Jakarta, more than 500 community members have been trained to collect data on thousands of hospitals, schools, private buildings, and critical infrastructure. In Sri Lanka, government and academic volunteers mapped over 30,000 buildings and 450 km of roadways using a collaborative online resource called OpenStreetMaps.
These are just a few of the projects that have been catalyzed by the Open Data for Resilience Initiative (OpenDRI), developed by the World Bank’s Global Facility for Disaster Reduction and Recovery (GFDRR). Launched in 2011, OpenDRI is active in more than 20 countries today, mapping tens of thousands of buildings and urban infrastructure, providing more than 1,000 geospatial datasets to the public, and developing innovative application tools.
To expand this work, the World Bank Group has launched the OpenDRI Field Guide as a showcase of successful projects and a practical guide for governments and other organizations to shape their own open data programs….
The field guide walks readers through the steps to build open data programs based on the OpenDRI methodology. One of the first steps is data collation. Relevant datasets are often locked because of proprietary arrangements or fragmented in government bureaucracies. The field guide explores tools and methods to enable the participatory mapping projects that can fill in gaps and keep existing data relevant as cities rapidly expand.

GeoNode: Mapping Disaster Damage for Faster Recovery
One example is GeoNode, a locally controlled and open source cataloguing tool that helps manage and visualize geospatial data. The tool, already in use in two dozen countries, can be modified and easily be integrated into existing platforms, giving communities greater control over mapping information.
GeoNode was used extensively after Typhoon Yolanda (Haiyan) swept the Philippines with 300 km/hour winds and a storm surge of over six meters last fall. The storm displaced nearly 11 million people and killed more than 6,000.
An event-specific GeoNode project was created immediately and ultimately collected more than 72 layers of geospatial data, from damage assessments to situation reports. The data and quick analysis capability contributed to recovery efforts and is still operating in response mode at Yolandadata.org.
InaSAFE: Targeting Risk Reduction
A sister project, InaSAFE, is an open, easy-to-use tool for creating impact assessments for targeted risk reduction. The assessments are based on how an impact layer – such as a tsunami, flood, or earthquake – affects exposure data, such as population or buildings.
With InaSAFE, users can generate maps and statistical information that can be easily disseminated and even fed back into projects like GeoNode for simple, open source sharing.
The initiative, developed in collaboration with AusAID and the Government of Indonesia, was put to the test in the 2012 flood season in Jakarta, and its successes provoked a rapid national rollout and widespread interest from the international community.
Open Cities: Improving Urban Planning & Resilience
The Open Cities project, another program operating under the OpenDRI platform, aims to catalyze the creation, management and use of open data to produce innovative solutions for urban planning and resilience challenges across South Asia.
In 2013, Kathmandu was chosen as a pilot city, in part because the population faces the highest mortality threat from earthquakes in the world. Under the project, teams from the World Bank assembled partners and community mobilizers to help execute the largest regional community mapping project to date. The project surveyed more than 2,200 schools and 350 health facilities, along with road networks, points of interest, and digitized building footprints – representing nearly 340,000 individual data nodes.”

After the Protests


Zeynep Tufekc in the New York Times on why social media is fueling a boom-and-bust cycle of political: “LAST Wednesday, more than 100,000 people showed up in Istanbul for a funeral that turned into a mass demonstration. No formal organization made the call. The news had come from Twitter: Berkin Elvan, 15, had died. He had been hit in the head by a tear-gas canister on his way to buy bread during the Gezi protests last June. During the 269 days he spent in a coma, Berkin’s face had become a symbol of civic resistance shared on social media from Facebook to Instagram, and the response, when his family tweeted “we lost our son” and then a funeral date, was spontaneous.

Protests like this one, fueled by social media and erupting into spectacular mass events, look like powerful statements of opposition against a regime. And whether these take place in Turkey, Egypt or Ukraine, pundits often speculate that the days of a ruling party or government, or at least its unpopular policies, must be numbered. Yet often these huge mobilizations of citizens inexplicably wither away without the impact on policy you might expect from their scale.

This muted effect is not because social media isn’t good at what it does, but, in a way, because it’s very good at what it does. Digital tools make it much easier to build up movements quickly, and they greatly lower coordination costs. This seems like a good thing at first, but it often results in an unanticipated weakness: Before the Internet, the tedious work of organizing that was required to circumvent censorship or to organize a protest also helped build infrastructure for decision making and strategies for sustaining momentum. Now movements can rush past that step, often to their own detriment….

But after all that, in the approaching local elections, the ruling party is expected to retain its dominance.

Compare this with what it took to produce and distribute pamphlets announcing the Montgomery bus boycott in 1955. Jo Ann Robinson, a professor at Alabama State College, and a few students sneaked into the duplicating room and worked all night to secretly mimeograph 52,000 leaflets to be distributed by hand with the help of 68 African-American political, religious, educational and labor organizations throughout the city. Even mundane tasks like coordinating car pools (in an era before there were spreadsheets) required endless hours of collaborative work.

By the time the United States government was faced with the March on Washington in 1963, the protest amounted to not just 300,000 demonstrators but the committed partnerships and logistics required to get them all there — and to sustain a movement for years against brutally enforced Jim Crow laws. That movement had the capacity to leverage boycotts, strikes and demonstrations to push its cause forward. Recent marches on Washington of similar sizes, including the 50th anniversary march last year, also signaled discontent and a desire for change, but just didn’t pose the same threat to the powers that be.

Social media can provide a huge advantage in assembling the strength in numbers that movements depend on. Those “likes” on Facebook, derided as slacktivism or clicktivism, can have long-term consequences by defining which sentiments are “normal” or “obvious” — perhaps among the most important levers of change. That’s one reason the same-sex marriage movement, which uses online and offline visibility as a key strategy, has been so successful, and it’s also why authoritarian governments try to ban social media.

During the Gezi protests, Prime Minister Recep Tayyip Erdogan called Twitter and other social media a “menace to society.” More recently, Turkey’s Parliament passed a law greatly increasing the government’s ability to censor online content and expand surveillance, and Mr. Erdogan said he would consider blocking access to Facebook and YouTube. It’s also telling that one of the first moves by President Vladimir V. Putin of Russia before annexing Crimea was to shut down the websites of dissidents in Russia.
Media in the hands of citizens can rattle regimes. It makes it much harder for rulers to maintain legitimacy by controlling the public sphere. But activists, who have made such effective use of technology to rally supporters, still need to figure out how to convert that energy into greater impact. The point isn’t just to challenge power; it’s to change it.”