Why we need to unlock health data to beat disease worldwide

Curated on Posted on by Stefaan Verhulst

Article by Takanori Fujita, Masayasu Okajima and Hiroyuki Miuchi: “The digital revolution in healthcare offers the promise of better health and longer lives for people around the world. New digital tools can help doctors and patients to predict, prevent and treat disease, opening the door to personalised medical care that is cost-efficient and highly effective.

Digitization across the entire healthcare sector — from hospital operations to the production of medical devices, vaccines and other pharmaceuticals — stands to benefit everyone, through improved efficiency at medical institutions, better care at home and stronger support for everyday health and wellbeing.

The essential ingredient in digital healthcare is data. Developers and service providers need health data to build and deploy effective solutions. So far, unfortunately, the potential benefits of digital healthcare have been under-realized, in large part because of data chokepoints…

It should go without saying that the ‘reward’ for sharing data is better health. Lifestyle-related diseases, which are more prevalent in ageing populations, often do not become symptomatic until they have progressed to a dangerous level. That makes timely monitoring and assessment crucial. In a world where people are living longer and longer— ‘100-year societies,’ as we say in Japan — data-enabled early detection is perhaps the best tool we have to stave off age-related health crises.

Abstract arguments, however, rarely convince people to consent to sharing personal data. Special efforts are needed to show specific, individual benefits and make people feel a tangible sense of control.

In Japan, the city of Arao is conducting an experiment to enable patients and their families to check information on electronic health records (EHRs) using their smartphones when they visit affiliated hospitals. Test results, prescribed medications and other information can be monitored. The system is expected to reduce costs for municipalities that are struggling to fund medical and nursing care for growing elderly populations. The money saved can be diverted to programs that help people live healthier lives, creating a virtuous cycle….Digital healthcare isn’t just a matter for patients and medical professionals. Lifestyle data with implications for health is broadly distributed, so the non-medical field needs to be involved as well. Takamatsu, another Japanese city, is attempting to address this difficult issue by building a common data collaboration infrastructure for the public and private sectors.

SOMPO Light Vortex, a subsidiary of SOMPO Holdings, a Japanese insurance and nursing care company, has created an app for Covid-19 vaccination certification and personal health records (PHRs) that is connected to Takamatsu’s municipal data infrastructure. Combining a range of data on health and lifestyle patterns in a trusted platform overseen by local government is expected to offer benefits in areas ranging from disaster prevention to wellbeing…(More)”.

What China’s Algorithm Registry Reveals about AI Governance

Curated on Posted on by Stefaan Verhulst

Article by Matt Sheehan, and Sharon Du: “For the past year, the Chinese government has been conducting some of the earliest experiments in building regulatory tools to govern artificial intelligence (AI). In that process, China is trying to tackle a problem that will soon face governments around the world: Can regulators gain meaningful insight into the functioning of algorithms, and ensure they perform within acceptable bounds?

One particular tool deserves attention both for its impact within China, and for the lessons technologists and policymakers in other countries can draw from it: a mandatory registration system created by China’s internet regulator for recommendation algorithms.

Although the full details of the registry are not public, by digging into its online instruction manual, we can reveal new insights into China’s emerging regulatory architecture for algorithms.

The algorithm registry was created by China’s 2022 regulation on recommendation algorithms (English translation), which came into effect in March of this year and was led by the Cyberspace Administration of China (CAC). China’s algorithm regulation has largely focused on the role recommendation algorithms play in disseminating information, requiring providers to ensure that they don’t “endanger national security or the social public interest” and to “give an explanation” when they harm the legitimate interests of users. Other provisions sought to address monopolistic behavior by platforms and hot-button social issues, such as the role that dispatching algorithms play in creating dangerous labor conditions for Chinese delivery drivers…(More)”

China just announced a new social credit law. Here’s what it means.

Curated on Posted on by Stefaan Verhulst

Article by Zeyi Yang: “It’s easier to talk about what China’s social credit system isn’t than what it is. Ever since 2014, when China announced a six-year plan to build a system to reward actions that build trust in society and penalize the opposite, it has been one of the most misunderstood things about China in Western discourse. Now, with new documents released in mid-November, there’s an opportunity to correct the record.

For most people outside China, the words “social credit system” conjure up an instant image: a Black Mirror–esque web of technologies that automatically score all Chinese citizens according to what they did right and wrong. But the reality is, that terrifying system doesn’t exist, and the central government doesn’t seem to have much appetite to build it, either. 

Instead, the system that the central government has been slowly working on is a mix of attempts to regulate the financial credit industry, enable government agencies to share data with each other, and promote state-sanctioned moral values—however vague that last goal in particular sounds. There’s no evidence yet that this system has been abused for widespread social control (though it remains possible that it could be wielded to restrict individual rights). 

While local governments have been much more ambitious with their innovative regulations, causing more controversies and public pushback, the countrywide social credit system will still take a long time to materialize. And China is now closer than ever to defining what that system will look like. On November 14, several top government agencies collectively released a draft law on the Establishment of the Social Credit System, the first attempt to systematically codify past experiments on social credit and, theoretically, guide future implementation. 

Yet the draft law still left observers with more questions than answers. 

“This draft doesn’t reflect a major sea change at all,” says Jeremy Daum, a senior fellow of the Yale Law School Paul Tsai China Center who has been tracking China’s social credit experiment for years. It’s not a meaningful shift in strategy or objective, he says. 

Rather, the law stays close to local rules that Chinese cities like Shanghai have released and enforced in recent years on things like data collection and punishment methods—just giving them a stamp of central approval. It also doesn’t answer lingering questions that scholars have about the limitations of local rules. “This is largely incorporating what has been out there, to the point where it doesn’t really add a whole lot of value,” Daum adds. 

So what is China’s current system actually like? Do people really have social credit scores? Is there any truth to the image of artificial-intelligence-powered social control that dominates Western imagination? …(More)”.

How Food Delivery Workers Shaped Chinese Algorithm Regulations

Curated on Posted on by Stefaan Verhulst

Article by Matt Sheehan and Sharon Du: “In 2021, China issued a series of policy documents aimed at governing the algorithms that underpin much of the internet today. The policies included a regulation on recommendation algorithms and a draft regulation on synthetically generated media, commonly known as deepfakes. Domestically, Chinese media touted the recommendation engine regulations for the options they gave Chinese internet users, such as the choice to “turn off the algorithm” on major platforms. Outside China, these regulations have largely been seen through the prism of global geopolitics, framed as questions over whether China is “ahead” in algorithm regulations or whether it will export a “Chinese model” of artificial intelligence (AI) governance to the rest of the world.

These are valid questions with complex answers, but they overlook the core driver of China’s algorithm regulations: they are designed primarily to address China’s domestic social, economic, and political problems. The Chinese Communist Party (CCP) is the ultimate arbiter here, deciding both what counts as a problem and how it should be solved. But the CCP doesn’t operate in a vacuum. Like any governing party, it is constantly creating new policies to try to put out fires, head off problems, and respond to public desires.

Through a short case study, we can see how Chinese food delivery drivers, investigative journalists, and academics helped shape one part of the world’s first regulations on recommendation algorithms. From that process, we can learn how international actors might better predict and indirectly influence Chinese algorithm policy…(More)”.

Avert Bangladesh’s looming water crisis through open science and better data

Curated on Posted on by Stefaan Verhulst

Article by Augusto Getirana et al: “Access to data is a huge problem. Bangladesh collects a large amount of hydrological data, such as for stream flow, surface and groundwater levels, precipitation, water quality and water consumption. But these data are not readily available: researchers must seek out officials individually to gain access. India’s hydrological data can be similarly hard to obtain, preventing downstream Bangladesh from accurately predicting flows into its rivers.

Bilateral scientific collaboration between Bangladesh and water-sharing nations, including India, Nepal, Bhutan and China, would be mutually beneficial. The decades-long Mekong River Commission between Cambodia, Laos, Thailand and Vietnam is one successful transboundary agreement that could serve as a model.

Publishing hydrological data in an open-access database would be an exciting step. For now, however, the logistics, funding and politics to make on-the-ground data publicly available are likely to remain out of reach.

Fortunately, satellite data can help to fill the gaps. Current Earth-observing satellite missions, such as the Gravity Recovery and Climate Experiment (GRACE) Follow-On, the Global Precipitation Measurement (GPM) network, multiple radar altimeters and the Moderate Resolution Imaging Spectroradiometer (MODIS) sensors make data freely available and can provide an overall picture of water availability across the country (this is what we used in many of our analyses). The picture is soon to improve. In December, NASA and CNES, France’s space agency, plan to launch the Surface Water and Ocean Topography (SWOT) satellite mission. SWOT will provide unprecedented information on global ocean and inland surface waters at fine spatial resolution, allowing for much more detailed monitoring of water levels than is possible today. The international scientific community has been working hard over the past 15 years to get ready to store, process and use SWOT data.

New open-science initiatives, particularly NASA’s Earth Information System, launched in 2021, can help by supporting the development of customized data-analysis and modelling tools (see go.nature.com/3cffbh9). The data we present here were acquired in this framework. We are currently working on an advanced hydrological model that will be capable of representing climate-change effects and human impacts on Bangladesh’s water availability. We expect that the co-development of such a modelling system with local partners will support decision-making.

SERVIR, a joint programme of NASA and the US Agency for International Development that focuses on capacity-building, could also help improve forecasting of severe weather for Bangladesh, for example. This could improve the flood monitoring and forecast system operated by the Bangladesh Water Development Board, which is limited in geographical scope — flooding is monitored only at specific locations, not across the country. Such efforts will help with short-term adaptation and emergency responses to flood conditions, and with long-term planning for infrastructure…(More)”.

Can Social Media Rhetoric Incite Hate Incidents? Evidence from Trump’s “Chinese Virus” Tweets

Curated on Posted on by Stefaan Verhulst

Paper by Andy Cao, Jason M. Lindo & Jiee Zhong: “We will investigate whether Donald Trump’s “Chinese Virus” tweets contributed to the rise of anti-Asian incidents. We find that the number of incidents spiked following Trump’s initial “Chinese Virus” tweets and the subsequent dramatic rise in internet search activity for the phrase. Difference-in-differences and event-study analyses leveraging spatial variation indicate that this spike in anti-Asian incidents was significantly more pronounced in counties that supported Donald Trump in the 2016 presidential election relative to those that supported Hillary Clinton. We estimate that anti-Asian incidents spiked by 4000 percent in Trump-supporting counties, over and above the spike observed in Clinton-supporting counties…(More)”.

Society 5.0, Digital Transformation and Disasters

Curated on Posted on by Stefaan Verhulst

Book edited by Sakiko Kanbara, Rajib Shaw, Naonori Kato, Hiroyuki Miyazaki, and Akira Morita: “This book presents the evolution of the science technology paradigm in Japan and analyzes the critical community and local governance issues from the perspectives of the changing risk landscape, Society 5.0, and digital transformation. It also provides suggestions for the future development of a resilient society and community, by drawing lessons from other countries.Advancements in science technology in recent decades in Japan and the world might have increased our capacity to tackle the adverse human consequences of various kinds of disasters and environmental issues. However, the accompanied and interlinking phenomena of urbanization, climate change, rural to urban migration, population decreases, and aged population have posed new challenges, especially in the small, medium-sized cities, and in rural areas of Japan. This is also enhanced by the risk of cascading, complex and systemic risk, which is defining a new normal as “living with uncertainties”.
Society 5.0 is defined as “A human-centered society that balances economic advancement with the resolution of social problems by a system that highly integrates cyberspace and physical space.” Society 5.0 was proposed in the 5th Science and Technology Basic Plan as a future society that Japan should aspire to. Society 5.0 achieves a high degree of convergence between cyberspace (virtual space) and physical space (real space), compared with the past information society (Society 4.0) that people would access a cloud service (databases) in cyberspace via the Internet and search for, retrieve, and analyze information or data…(More)”.

Minben 民本 as an alternative to liberal democracy

Curated on Posted on by Stefaan Verhulst

Essay by Rongxin Li: “Although theorists have proposed non-Western types of democracy, such as Asian Democracy, they have nevertheless actively marginalised these non-Western types. This is partly due to Asian Democracy’s  inextricable link with Confucian traditions – many of which people commonly assume to be anti-democratic. This worry over Confucian values does not, however, detract from the fact that scholars are deliberately ignoring non-Western types of democracy because they do not follow Western narratives. ..

Minben is a paternalistic model of democracy. It does not involve multi-party elections and, unlike in liberal democracy, disorderly public participation is not one of its priorities. Minben relies on a theory of governance that believes carefully selected elites, usually a qualified minority, can use their knowledge and the constant pursuit of virtuous conduct to deliver the common good.

Liberal democracy maintains its legitimacy through periodic and competitive elections. Minben retains its legitimacy through its ‘output’. It is results, or policy implementation, oriented. Some argue that this performance-driven democracy cannot endure because it depends on people buying into it and consistently supporting it. But we could say the same of any democratic regime. Liberal democracy’s legitimacy is not unassailable – nor is it guaranteed.

Indeed, liberal democracy and Minben have more in common than many Western theorists concede. As Yu Keping underlined, stability is paramount in Chinese Communist Party ideology. John Keane, for example, once likened government and its legitimacy to a slippery egg. The greater the social instability, which may be driven by displeasure over the performance of ruling elites, the slipperier the egg becomes for the elites in question. Both liberal democratic regimes and Minben regimes face the same problem of dealing with social turmoil. Both look to serving the people as a means to staying atop the egg…

Minben – and this may surprise certain Western theorists – does not exclude public participation and deliberation. These instruments convey public voices and concerns to the selected technocrats tasked with deciding for the people. There is representation based on consultation here. Technocrats seek to make good decisions based on full consultation and analysis of public preferences…(More)”.

A ‘Feminist’ Server to Help People Own Their Own Data

Curated on Posted on by Stefaan Verhulst

Article by Padmini Ray Murray: “All of our digital lives reside on servers – mostly in corporate server farms owned by the likes of Google, Amazon, Apple, and Microsoft.  These farms contain machines that store massive volumes of data generated by every single user of the internet. These vast infrastructures allow people to store, connect, and exchange information on the internet. 

Consequently, there is a massive distance between users and where and how the data is stored, which means that individuals have very little control over how their data is stored and used. However, due to the huge reliance on these massive corporate technologies, individuals are left with very little choice but to accept the terms dictated by these businesses. The conceptual alternative of the feminist server was created by groups of feminist and queer activists who were concerned about how little power they have over owning and managing their data on the internet. The idea of the feminist server was described as a project that is interested in “creating a more autonomous infrastructure to ensure that data, projects and memory of feminist groups are properly accessible, preserved and managed” – a safe digital library to store and manage content generated by feminist groups. This was also a direct challenge to the traditionally male-dominated spaces of computer hardware management, spaces which could be very exclusionary and hostile to women or queer individuals who might be interested in learning how to use these technologies. 

There are two related ways by which a server can be considered as feminist. The first is based on who runs the server, and the second is based on who owns the server. Feminist critics have pointed out how the running of servers is often in the hands of male experts who are not keen to share and explain the knowledge required to maintain a server – a role known as a systems admin or, colloquially, a “sysadmin” person. Thus the concept of feminist servers emerged out of a need to challenge patriarchal dominance in hardware and infrastructure spaces, to create alternatives that were nurturing, anti-capitalist, and worked on the basis of community and solidarity…(More)”.

Breakthroughs in Smart City Implementation

Curated on Posted on by Stefaan Verhulst

Book edited by Leo P. Ligthart and Ramjee Prasad: “Breakthroughs in Smart City Implementation should give answers on a wide variety of present social, political and technological problems. Green and long-lasting solutions are needed in coming 10 years and beyond on areas as green and long lasting solutions for improving air quality, quality of life of residents in cities, traffic congestions and many more.Two Conasense branches, established in China and in India, report in six book chapters on initiatives needed to overcome the obvious shortcomings at present. Three more chapters complete this fifth Conasense book: an introductory chapter concerning Smart City from Conasense perspective, a chapter showing that not technology but the people in the cities are most important and a chapter on recent results and prospects of “Human in the Loop” in smart vehicular systems…(More)”.