Using internet search data as part of medical research

Curated on Posted on by Stefaan Verhulst

Blog by Susan Thomas and Matthew Thompson: “…In the UK, almost 50 million health-related searches are made using Google per year. Globally there are 100s of millions of health-related searches every day. And, of course, people are doing these searches in real-time, looking for answers to their concerns in the moment. It’s also possible that, even if people aren’t noticing and searching about changes to their health, their behaviour is changing. Maybe they are searching more at night because they are having difficulty sleeping or maybe they are spending more (or less) time online. Maybe an individual’s search history could actually be really useful for researchers. This realisation has led medical researchers to start to explore whether individuals’ online search activity could help provide those subtle, almost unnoticeable signals that point to the beginning of a serious illness.

Our recent review found 23 studies have been published so far that have done exactly this. These studies suggest that online search activity among people later diagnosed with a variety of conditions ranging from pancreatic cancer and stroke to mood disorders, was different to people who did not have one of these conditions.

One of these studies was published by researchers at Imperial College London, who used online search activity to identify signals of women with gynaecological malignancies. They found that women with malignant (e.g. ovarian cancer) and benign conditions had different search patterns, up to two months prior to a GP referral. 

Pause for a moment, and think about what this could mean. Ovarian cancer is one of the most devastating cancers women get. It’s desperately hard to detect early – and yet there are signals of this cancer visible in women’s internet searches months before diagnosis?…(More)”.

Policies must be justified by their wellbeing-to-cost ratio

Curated on Posted on by Stefaan Verhulst

Article by Richard Layard: “…What is its value for money — that is, how much wellbeing does it deliver per (net) pound it costs the government? This benefit/cost ratio (or BCR) should be central to every discussion.

The science exists to produce these numbers and, if the British government were to require them of the spending departments, it would be setting an example of rational government to the whole world.

Such a move would, of course, lead to major changes in priorities. At the London School of Economics we have been calculating the benefits and costs of policies across a whole range of government departments.

In our latest report on value for money, the best policies are those that save the government more money than they cost — for example by getting people back to work. Classic examples of this are treatments for mental health. The NHS Talking Therapies programme now treats 750,000 people a year for anxiety disorders and depression. Half of them recover and the service demonstrably pays for itself. It needs to expand.

But we also need a parallel service for those addicted to alcohol, drugs and gambling. These individuals are more difficult to treat — but the savings if they recover are greater. Again, it will pay for itself. And so will the improved therapy service for children and young people that Labour has promised.

However, most spending policies do cost more than they save. For these it is crucial to measure the benefit/cost ratio, converting the wellbeing benefit into its monetary equivalent. For example, we can evaluate the wellbeing gain to a community of having more police and subsequently less crime. Once this is converted into money, we calculate that the benefit/cost ratio is 12:1 — very high…(More)”.

Data sovereignty for local governments. Considerations and enablers

Curated on Posted on by Stefaan Verhulst

Report by JRC Data sovereignty for local governments refers to a capacity to control and/or access data, and to foster a digital transformation aligned with societal values and EU Commission political priorities. Data sovereignty clauses are an instrument that local governments may use to compel companies to share data of public interest. Albeit promising, little is known about the peculiarities of this instrument and how it has been implemented so far. This policy brief aims at filling the gap by systematising existing knowledge and providing policy-relevant recommendations for its wider implementation…(More)”.

Citizens should be asked to do more

Curated on Posted on by Stefaan Verhulst

Article by Martin Wolf: “In an excellent “Citizens’ White Paper”, in partnership with participation charity Involve, Demos describes the needed revolution as follows, “We don’t just need new policies for these challenging times. We need new ways to tackle the policy challenges we face — from national missions to everyday policymaking. We need new ways to understand and negotiate what the public will tolerate. We need new ways to build back trust in politicians”. In sum, it states, “if government wants to be trusted by the people, it must itself start to trust the people.”

Bar chart of agreement that public should be involved in decision making on these issues (%) showing the public has clear ideas on where it should be most involved

The fundamental aim is to change the perception of government from something that politicians and bureaucrats do to us into an activity that involves not everyone, which is impossible, but ordinary people selected by lot. This, as I have noted, would be the principle of the jury imported into public life.

How might this work? The idea is to select representative groups of ordinary people affected by policies into official discussion on problems and solutions. This could be at the level of central, devolved or local government. The participants would not just be asked for opinions, but be actively engaged in considering issues and shaping (though not making) decisions upon them. The paper details a number of different approaches — panels, assemblies, juries, workshops and wider community conversations. Which would be appropriate would depend on the task…(More)”.

Automating public services

Curated on Posted on by Stefaan Verhulst

Report by Anna Dent: “…Public bodies, under financial stress and looking for effective solutions, are at risk of jumping on the automation bandwagon without critically assessing whether it’s actually appropriate for their needs, and whether the potential benefits outweigh the risks. To realise the benefits of automation and minimise problems for communities and public bodies themselves, a clear-eyed approach which really gets to grips with the risks is needed. 

The temptation to introduce automation to tackle complex social challenges is strong; they are often deep-rooted and expensive to deal with, and can have life-long implications for individuals and communities. But precisely because of their complex nature they are not the best fit for rules-based automated processes, which may fail to deliver what they set out to achieve. 

Bias is increasingly recognised as a critical challenge with automation in the public sector. Bias can be introduced through training data, and can occur when automated tools are disproportionately used on a particular community. In either case, the effectiveness of the tool or process is undermined, and citizens are at risk of discrimination, unfair targeting and exclusion from services. 

Automated tools and processes rely on huge amounts of data; in public services this will often mean personal information and data about us and our lives which we may or may not feel comfortable being used. Balancing everyone’s right to privacy with the desire for efficiency and better outcomes is rarely straightforward, and if done badly can lead to a breakdown in trust…(More)”.

AI mass surveillance at Paris Olympics

Curated on Posted on by Stefaan Verhulst

Article by Anne Toomey McKenna: “The 2024 Paris Olympics is drawing the eyes of the world as thousands of athletes and support personnel and hundreds of thousands of visitors from around the globe converge in France. It’s not just the eyes of the world that will be watching. Artificial intelligence systems will be watching, too.

Government and private companies will be using advanced AI tools and other surveillance tech to conduct pervasive and persistent surveillance before, during and after the Games. The Olympic world stage and international crowds pose increased security risks so significant that in recent years authorities and critics have described the Olympics as the “world’s largest security operations outside of war.”

The French government, hand in hand with the private tech sector, has harnessed that legitimate need for increased security as grounds to deploy technologically advanced surveillance and data gathering tools. Its surveillance plans to meet those risks, including controversial use of experimental AI video surveillance, are so extensive that the country had to change its laws to make the planned surveillance legal.

The plan goes beyond new AI video surveillance systems. According to news reports, the prime minister’s office has negotiated a provisional decree that is classified to permit the government to significantly ramp up traditional, surreptitious surveillance and information gathering tools for the duration of the Games. These include wiretapping; collecting geolocation, communications and computer data; and capturing greater amounts of visual and audio data…(More)”.

An Algorithm Told Police She Was Safe. Then Her Husband Killed Her.

Curated on Posted on by Stefaan Verhulst

Article by Adam Satariano and Roser Toll Pifarré: “Spain has become dependent on an algorithm to combat gender violence, with the software so woven into law enforcement that it is hard to know where its recommendations end and human decision-making begins. At its best, the system has helped police protect vulnerable women and, overall, has reduced the number of repeat attacks in domestic violence cases. But the reliance on VioGén has also resulted in victims, whose risk levels are miscalculated, getting attacked again — sometimes leading to fatal consequences.

Spain now has 92,000 active cases of gender violence victims who were evaluated by VioGén, with most of them — 83 percent — classified as facing little risk of being hurt by their abuser again. Yet roughly 8 percent of women who the algorithm found to be at negligible risk and 14 percent at low risk have reported being harmed again, according to Spain’s Interior Ministry, which oversees the system.

At least 247 women have also been killed by their current or former partner since 2007 after being assessed by VioGén, according to government figures. While that is a tiny fraction of gender violence cases, it points to the algorithm’s flaws. The New York Times found that in a judicial review of 98 of those homicides, 55 of the slain women were scored by VioGén as negligible or low risk for repeat abuse…(More)”.

What does a ‘mission-driven’ approach to government mean and how can it be delivered?

Curated on Posted on by Stefaan Verhulst

Report by the Institute for Government and Nesta: “… set out a recommended approach for how government could effectively organise itself to deliver missions. It should act as a guide for public servants at the start of a new administration that has pledged to do things differently.

Missions are designed to set bold visions for change, inspiring collaboration across the system and society to break down silos and work towards a common goal. They represent the ultimate purpose of the Government, and the story it aims to tell by the end of the Parliament.

To succeed, government will need to adopt three key roles: driving public service innovation, shaping markets and harnessing collective intelligence to improve decision-making. Achieving these missions will require strong foundations and well-recognised enablers of good government, pursued in a specific manner to bring about a cultural change in Whitehall…(More)”.

AI: a transformative force in maternal healthcare

Curated on Posted on by Stefaan Verhulst

Article by Afifa Waheed: “Artificial intelligence (AI) and robotics have enormous potential in healthcare and are quickly shifting the landscape – emerging as a transformative force. They offer a new dimension to the way healthcare professionals approach disease diagnosis, treatment and monitoring. AI is being used in healthcare to help diagnose patients, for drug discovery and development, to improve physician-patient communication, to transcribe voluminous medical documents, and to analyse genomics and genetics. Labs are conducting research work faster than ever before, work that otherwise would have taken decades without the assistance of AI. AI-driven research in life sciences has included applications looking to address broad-based areas, such as diabetes, cancer, chronic kidney disease and maternal health.

In addition to increasing the knowledge of access to postnatal and neonatal care, AI can predict the risk of adverse events in antenatal and postnatal women and their neonatal care. It can be trained to identify those at risk of adverse events, by using patients’ health information such as nutrition status, age, existing health conditions and lifestyle factors. 

AI can further be used to improve access to women located in rural areas with a lack of trained professionals – AI-enabled ultrasound can assist front-line workers with image interpretation for a comprehensive set of obstetrics measurements, increasing quality access to early foetal ultrasound scans. The use of AI assistants and chatbots can also improve pregnant mothers’ experience by helping them find available physicians, schedule appointments and even answer some patient questions…

Many healthcare professionals I have spoken to emphasised that pre-existing conditions such as high blood pressure that leads to preeclampsia, iron deficiency, cardiovascular disease, age-related issues for those over 35, various other existing health conditions, and failure in the progress of labour that might lead to Caesarean (C-section), could all cause maternal deaths. Training AI models to detect these diseases early on and accurately for women could prove to be beneficial. AI algorithms can leverage advanced algorithms, machine learning (ML) techniques, and predictive models to enhance decision-making, optimise healthcare delivery, and ultimately improve patient outcomes in foeto-maternal health…(More)”.