Crowd diagnosis could spot rare diseases doctors miss

Curated on Posted on by Stefaan Verhulst

New Scientist: “Diagnosing rare illnesses could get easier, thanks to new web-based tools that pool information from a wide variety of sources…CrowdMed, launched on 16 April at the TedMed conference in Washington DC, uses crowds to solve tough medical cases.

Anyone can join CrowdMed and analyse cases, regardless of their background or training. Participants are given points that they can then use to bet on the correct diagnosis from lists of suggestions. This creates a prediction market, with diagnoses falling and rising in value based on their popularity, like stocks in a stock market. Algorithms then calculate the probability that each diagnosis will be correct. In 20 initial test cases, around 700 participants identified each of the mystery diseases as one of their top three suggestions….

Frustrated patients and doctors can also turn to FindZebra, a recently launched search engine for rare diseases. It lets users search an index of rare disease databases looked after by a team of researchers. In initial trials, FindZebra returned more helpful results than Google on searches within this same dataset.”

Newark's Cory Booker: Social Media Can Help Fix Broken Government

Curated on Posted on by Stefaan Verhulst

Internet Evolution on Cory Booker’s panel at Ad Age Digital Conference: “Social media have been a part of a transformation of the City of Newark from a butt of jokes to a community experiencing economic growth, Booker told the Ad Age conference. Newark has a population of 300,000 in a state with 9 million people, and yet, Newark has a third of the economic growth in the state. The city population is growing for the first time in 60 years.
Social media can be a big part of the cure for government that has become unresponsive to the needs of its citizens, Booker said. He quoted California Lt. Governor Gavin Newsom, who uses the phrase “vending machine government.” Citizens pay for government services, and get prepackaged offerings in return. “If you don’t like what you get, you shake the vending machine,” Booker said…
When people lean back and disengage, government becomes unresponsive. But social media provide the tools for citizens to collaborate with government.  “We have all these tools pulling government away from citizens,” Booker said. These include special interest groups and moneyed corporate lobbies. “But social media brings us closer.”
Twitter helped Newark rebuild its reputation. The city had been a butt of jokes for years. When Conan O’Brien made a joke at Newark’s expense, Booker replied with an online video that said O’Brien was now on the no-fly list at Newark Airport. The TSA got into the act, issuing a statement that Booker didn’t have that power. Then-Secretary of State Hillary Clinton followed up with a plea for Booker and O’Brien to just get along.
And it’s not just a matter of public relations; social media have helped improve Newark in concrete ways — Newark’s government is more effective. For example, its inspectors are vastly more efficient at finding violations when citizens can use social media to point up problems, Booker said.
Video can be an even more powerful tool for getting a message out than microblogging services such as Twitter, Booker said. And that led to discussion of Booker’s startup, #waywire. The beta video service, updated this week to focus on video curation, is a place where people can collect and share online video.”
 

Public health, disaster recovery and social media

Curated on Posted on by Stefaan Verhulst

Janice Jacobs:  “Increasingly, social media is playing a key role in helping to ease the heavy burden of these tragedies by connecting individuals and communities with each other and with critical resources…
Social media, in its simplest form, can notify the masses in real-time about situations that are happening or are about to happen.

  • In August 2011, several New Yorkers learned of an earthquake on Twitter prior to feeling it. From the D.C. area, tweets began popping up in droves almost 30 seconds before anyone felt the tremors in New York City, and ahead of any media reports about it. Twitter said that more than 40,000 earthquake-related tweets were sent within a minute of the earthquake’s manifestation…...

Social media can be used to identify trouble spots and to react quickly during emergencies.

Social media can be used to foster communication among various healthcare, aid, government agencies and individuals.

  • Cory Booker, Mayor of Newark, NJ, a prolific Twitter user, consistently tweeted helpful information for the Newark community following Hurricane Sandy in late October 2012.”

 

Data for the Boston Marathon Investigation Will Be Crowdsourced

Curated on Posted on by Stefaan Verhulst

WIRED: “The investigation of Monday’s deadly twin bombings in Boston will rely to an extraordinary extent on crowdsourced surveillance, provided by Marathon spectators’ cellphone photos, Vine videos, and Instagram feeds….There are limits to the crowdsourcing. The data used in the investigation will be crowdsourced. The investigation will not be. A crowdsourced investigation runs a high risk of becoming a witchhunt, as we saw in the Newton shooting spree.”

Should Local Government Be Run Like Silicon Valley?

Curated on Posted on by Stefaan Verhulst

The April issue of Governing magazine features Jen Pahlka of Code for America: “One of the things I love about Silicon Valley is the experimentation and willingness to play around,” says Pahlka. “That is wonderful, but sometimes becomes trivialization. As a society we can’t afford to have some of our brightest minds working on trivial things like, you know, Facebook apps.”…Pahlka’s vision for the group was essentially that by taking start-up values to government, “this thing that works” (Silicon Valley) would “fix this thing that doesn’t” (government). She quickly concluded that idea was wrong….What was broken, though, was the relationship between government and the citizenry. “That’s a problem on both sides,” Pahlka says.

Boston blasts show two sides of social media

Curated on Posted on by Stefaan Verhulst

Zach Miners in ComputerWorld: “Twitter users reacted fast to the explosions that ripped through the Boston Marathon Monday, but the incident also revealed how social media can only be so reliable in such situations. Twitter spread news of the blasts quickly and was a useful communications tool for public authorities such as the Boston police and the marathon organizers. But information on social media sites can also be questionable or just plain inaccurate, noted Greg Sterling, senior analyst with Opus Research…
The Boston Police Department’s Twitter log showed a positive side of social media. It was updated minute by minute in the aftermath of the bombings, often with instructions about which areas to avoid, or information about where the most police officers might be stationed.
There was also misinformation, however. A report was circulated quickly on Twitter that police had shut down cellphone service in Boston to prevent detonation of further blasts, though it ultimately turned out to be inaccurate, according to network operators.
Others had nefarious intentions. At one point, a Twitter account with the handle @_BostonMarathon was promising to donate US$1 to victims of the blast for every one of its tweets that was retweeted. Users soon called it out as a fake, noting the real Twitter account for the Boston Marathon was @BostonMarathon.”
See also: Google’s Person Finder

Big Data can help keep the peace

Curated on Posted on by Stefaan Verhulst

NextGov story: “Some of the same social media analyses that have helped Google and the Centers for Disease Control and Prevention spot warning signs of a flu outbreak could be used to detect the rumblings of violent conflict before it begins, scholars said in a paper released this week.
Kenyan officials used essentially this system to track hate speech on Facebook, blogs and Twitter in advance of that nation’s 2013 presidential election, which brought Uhuru Kenyatta to power.
Similar efforts to track Syrian social media have been able to identify ceasefire violations within 15 minutes of when they occur, according to the paper on New Technology and the Prevention of Violence and Conflict prepared by the United States Agency for International Development, the United Nations Development Programme and the International Peace Institute and presented at the United States Institute of Peace Friday.”