Interactive map helps patients find the fastest emergency healthcare

Curated on Posted on by Stefaan Verhulst

Springwise: “Waiting is an activity that most people receiving healthcare have acutely experienced, whether it’s being put on a list for treatment or simply passing time before a GP visit. Cutting waiting time is something that can drastically improve patients’ experience, and in the past we’ve seen ideas such as HealthSpot use telemedicine to deliver healthcare advice remotely. For accidents and emergencies that require more hands-on attention however, a new platform called ER Wait Watcher enables users to determine which nearby hospital is likely to see them first.
Developed by journalism nonprofit ProPublica, the tool simply asks for those who have had an accident or emergency to enter in their zip code or street name. Using a number of factors — including average reported wait times for each hospital, how far away each hospital is and live Google traffic reports — it then lists which institution is likely to see them first. Users can see how long they can expect to wait on average before they will be seen, sent home, receive pain medication for a broken bone or transferred to their room for more serious injuries. The site works on the premise that the nearest hospital isn’t necessarily the one that will get patients the treatment they need most speedily.
The site does advise patients to call up their hospital for a more accurate estimate, and users currently need to navigate to the website to use it. Are there ways to make this kind of platform more accurate or user-friendly? Website: www.propublica.org”

Index: Designing for Behavior Change

Curated on Posted on by Shruti Sannon

The Living Library Index – inspired by the Harper’s Index – provides important statistics and highlights global trends in governance innovation. This installment focuses on designing for behavior change and was originally published in 2014.

  • Year the Behavioural Insights or “Nudge” Team was established by David Cameron in the U.K.: 2010
  • Amount saved by the U.K. Courts Service a year by sending people owing fines personalized text messages to persuade them to pay promptly since the creation of the Nudge unit: £30m
    • Entire budget for the Behavioural Insights Team: less than £1 million
    • Estimated reduction in bailiff interventions through the use of personalized text reminders: 150,000 fewer interventions annually
  • Percentage increase among British residents who paid their taxes on time when they received a letter saying that most citizens in their neighborhood pay their taxes on time: 15%
  • Estimated increase in organ-donor registrations in the U.K. if people are asked “If you needed an organ transplant, would you take one?”: 96,000
  • Proportion of employees who now have a workplace pension since the U.K. government switched from opt-in to opt-out (illustrating the power of defaults): 83%, 63% before opt-out
  • Increase in 401(k) enrollment rates within the U.S. by changing the default from ‘opt in’ to ‘opt out’: from 13% to 80%
  • Behavioral studies have shown that consumers overestimate savings from credit cards with no annual fees. Reduction in overall borrowing costs to consumers by requiring card issuers to tell consumers how much it would cost them in fees and interest, under the 2009 CARD Act in the U.S.: 1.7% of average daily balances 
  • Many high school students and their families in the U.S. find financial aid forms for college complex and thus delay filling them out. Increase in college enrollment as a result of being helped to complete the FAFSA financial aid form by an H&R tax professional, who then provided immediate estimates of the amount of aid the student was eligible for, and the net tuition cost of four nearby public colleges: 26%
  • How much more likely people are to keep accounting records, calculate monthly revenues, and separate their home and business books if given “rules of thumb”-based training with regards to managing their finances, according to a randomized control trial conducted in a bank in the Dominican Republic: 10%
  • Elderly Americans are asked to choose from over 40 options when enrolling in Medicaid Part D private drug plans. How many switched plans to save money when they received a letter providing information about three plans that would be cheaper for them: almost double 
    • The amount saved on average per person by switching plans due to this intervention: $150 per year
  • Increase in prescriptions to manage cardiac disease when Medicaid enrollees are sent a suite of behavioral nudges such as more salient description of the consequences of remaining untreated and post-it note reminders during an experiment in the U.S.: 78%
  • Reduction in street-litter when a trail of green footprints leading to nearby garbage cans is stenciled on the ground during an experiment in Copenhagen, Denmark: 46%
  • Reduction in missed National Health Service appointments in the U.K. when patients are asked to fill out their own appointment cards: 18%
    • Reduction in missed appointments when patients are also made aware of the number of people who attend their appointments on time: 31%
    • The cost of non-attendance per year for the National Health Service: £700m 
  • How many people in a U.S. experiment chose to ‘downsize’ their meals when asked, regardless of whether they received a discount for the smaller portion: 14-33%
    • Average reduction in calories as a result of downsizing: 200
  • Number of households in the U.K. without properly insulated attics, leading to high energy consumption and bills: 40%
    • Result of offering group discounts to motivate households to insulate their attics: no effect
    • Increase in households that agreed to insulate their attics when offered loft-clearing services even though they had to pay for the service: 4.8 fold increase

Sources

We need a new Bismarck to tame the machines

Curated on Posted on by Stefaan Verhulst
Michael Ignatieff in the Financial Times: “A question haunting democratic politics everywhere is whether elected governments can control the cyclone of technological change sweeping through their societies. Democracy comes under threat if technological disruption means that public policy no longer has any leverage on job creation. Democracy is also in danger if digital technologies give states powers of total surveillance.

If, in the words of Google chairman Eric Schmidt, there is a “race between people and computers” even he suspects people may not win, democrats everywhere should be worried. In the same vein, Lawrence Summers, former Treasury secretary, recently noted that new technology could be liberating but that the government needed to soften its negative effects and make sure the benefits were distributed fairly. The problem, he went on, was that “we don’t yet have the Gladstone, the Teddy Roosevelt or the Bismarck of the technology era”.

These Victorian giants have much to teach us. They were at the helm when their societies were transformed by the telegraph, the electric light, the telephone and the combustion engine. Each tried to soften the blow of change, and to equalise the benefits of prosperity for working people. With William Gladstone it was universal primary education and the vote for Britain’s working men. With Otto von Bismarck it was legislation that insured German workers against ill-health and old age. For Roosevelt it was the entire progressive agenda, from antitrust legislation and regulation of freight rates to the conservation of America’s public lands….

The Victorians created the modern state to tame the market in the name of democracy but they wanted a nightwatchman state, not a Leviathan. Thanks to the new digital technologies, the state they helped create now has powers of surveillance that threaten our privacy and freedom. What new technology makes possible, states will do. Keeping technology in the service of democracy will not be easy. Asking judges to guard the guards only bloats the state apparatus still further. Allowing dissident insiders to get away with leaking the state’s secrets will only result in more secretive, paranoid and controlling government.

The Victorians would have said there is a solution – representative government itself – but it requires citizens to trust their representatives to hold the government in check. The Victorians created modern, mass representative democracy so that collective public choice could control change for everyone’s benefit. They believed that representatives, if given the authority and the necessary information, could control the power that technology confers on the modern state.
This is still a viable ideal but we have plenty of rebuilding before our democratic institutions are ready for the task. Congress and parliament need to regain trust and capability; and, if they do, we can start recovering the faith of the Victorians we so sorely need: the belief that democracy can master the technologies that are transforming our lives.“

Selected Readings on Behavioral Economics: Nudges

Curated on Posted on by Andrew Young

The Living Library’s Selected Readings series seeks to build a knowledge base on innovative approaches for improving the effectiveness and legitimacy of governance. This curated and annotated collection of recommended works on the topic of behavioral economics was originally published in 2014.

The 2008 publication of Richard Thaler and Cass Sunstein’s Nudge ushered in a new era of behavioral economics, and since then, policy makers in the United States and elsewhere have been applying behavioral economics to the field of public policy. Like Smart Disclosure, behavioral economics can be used in the public sector to improve the decisionmaking ability of citizens without relying on regulatory interventions. In the six years since Nudge was published, the United Kingdom has created the Behavioural Insights Team (also known as the Nudge Unit), a cross-ministerial organization that uses behavioral economics to inform public policy, and the White House has recently followed suit by convening a team of behavioral economists to create a behavioral insights-driven team in the United States. Policymakers have been using behavioral insights to design more effective interventions in the fields of long term unemployment; roadway safety; enrollment in retirement plans; and increasing enrollment in organ donation registries, to name some noteworthy examples. The literature of this nascent field provides a look at the growing optimism in the potential of applying behavioral insights in the public sector to improve people’s lives.

Selected Reading List (in alphabetical order)

  • John Beshears, James Choi, David Laibson and Brigitte C. Madrian – The Importance of Default Options for Retirement Savings Outcomes: Evidence from the United States – a paper examining the role default options play in encouraging intelligent retirement savings decisionmaking.
  • Cabinet Office and Behavioural Insights Team, United Kingdom – Applying Behavioural Insights to Health – a paper outlining some examples of behavioral economics being applied to the healthcare landscape using cost-efficient interventions.
  • Matthew Darling, Saugato Datta and Sendhil Mullainathan – The Nature of the BEast: What Behavioral Economics Is Not – a paper discussing why control and behavioral economics are not as closely aligned as some think, reiterating the fact that the field is politically agnostic.
  • Antoinette Schoar and Saugato Datta – The Power of Heuristics – a paper exploring the concept of “heuristics,” or rules of thumb, which can provide helpful guidelines for pushing people toward making “reasonably good” decisions without a full understanding of the complexity of a situation.
  • Richard H. Thaler and Cass R. Sunstein – Nudge: Improving Decisions About Health, Wealth, and Happiness – an influential book describing the many ways in which the principles of behavioral economics can be and have been used to influence choices and behavior through the development of new “choice architectures.” 
  • U.K. Parliament Science and Technology Committee – Behaviour Change – an exploration of the government’s attempts to influence the behaviour of its citizens through nudges, with a focus on comparing the effectiveness of nudges to that of regulatory interventions.

Annotated Selected Reading List (in alphabetical order)

Beshears, John, James Choi, David Laibson and Brigitte C. Madrian. “The Importance of Default Options for Retirement Savings Outcomes: Evidence from the United States.” In Jeffrey R. Brown, Jeffrey B. Liebman and David A. Wise, editors, Social Security Policy in a Changing Environment, Cambridge: National Bureau of Economic Research, 2009. http://bit.ly/LFmC5s.

  • This paper examines the role default options play in pushing people toward making intelligent decisions regarding long-term savings and retirement planning.
  • Importantly, the authors provide evidence that a strategically oriented default setting from the outset is likely not enough to fully nudge people toward the best possible decisions in retirement savings. They find that the default settings in every major dimension of the savings process (from deciding whether to participate in a 401(k) to how to withdraw money at retirement) have real and distinct effects on behavior.

Cabinet Office and Behavioural Insights Team, United Kingdom. “Applying Behavioural Insights to Health.” December 2010. http://bit.ly/1eFP16J.

  • In this report, the United Kingdom’s Behavioural Insights Team does not attempt to “suggest that behaviour change techniques are the silver bullet that can solve every problem.” Rather, they explore a variety of examples where local authorities, charities, government and the private-sector are using behavioural interventions to encourage healthier behaviors.  
  • The report features case studies regarding behavioral insights ability to affect the following public health issues:
    • Smoking
    • Organ donation
    • Teenage pregnancy
    • Alcohol
    • Diet and weight
    • Diabetes
    • Food hygiene
    • Physical activity
    • Social care
  • The report concludes with a call for more experimentation and knowledge gathering to determine when, where and how behavioural interventions can be most effective in helping the public become healthier.

Darling, Matthew, Saugato Datta and Sendhil Mullainathan. “The Nature of the BEast: What Behavioral Economics Is Not.” The Center for Global Development. October 2013. https://bit.ly/2QytRmf.

  • In this paper, Darling, Datta and Mullainathan outline the three most pervasive myths that abound within the literature about behavioral economics:
    • First, they dispel the relationship between control and behavioral economics.  Although tools used within behavioral economics can convince people to make certain choices, the goal is to nudge people to make the choices they want to make. For example, studies find that when retirement savings plans change the default to opt-in rather than opt-out, more workers set up 401K plans. This is an example of a nudge that guides people to make a choice that they already intend to make.
    • Second, they reiterate that the field is politically agnostic. Both liberals and conservatives have adopted behavioral economics and its approach is neither liberal nor conservative. President Obama embraces behavioral economics but the United Kingdom’s conservative party does, too.
    • And thirdly, the article highlights that irrationality actually has little to do with behavioral economics. Context is an important consideration when one considers what behavior is rational and what behavior is not. Rather than use the term “irrational” to describe human beings, the authors assert that humans are “infinitely complex” and behavior that is often considered irrational is entirely situational.

Schoar, Antoinette and Saugato Datta. “The Power of Heuristics.” Ideas42. January 2014. https://bit.ly/2UDC5YK.

  • This paper explores the notion that being presented with a bevy of options can be desirable in many situations, but when making an intelligent decision requires a high-level understanding of the nuances of vastly different financial aid packages, for example, options can overwhelm. Heuristics (rules of thumb) provide helpful guidelines that “enable people to make ‘reasonably good’ decisions without needing to understand all the complex nuances of the situation.”
  • The underlying goal heuristics in the policy space involves giving people the type of “rules of thumb” that enable make good decisionmaking regarding complex topics such as finance, healthcare and education. The authors point to the benefit of asking individuals to remember smaller pieces of knowledge by referencing a series of studies conducted by psychologists Beatty and Kahneman that showed people were better able to remember long strings of numbers when they were broken into smaller segments.
  • Schoar and Datta recommend these four rules when implementing heuristics:
    • Use heuristics where possible, particularly in complex situation;
    • Leverage new technology (such as text messages and Internet-based tools) to implement heuristics.
    • Determine where heuristics can be used in adult training programs and replace in-depth training programs with heuristics where possible; and
    • Consider how to apply heuristics in situations where the exception is the rule. The authors point to the example of savings and credit card debt. In most instances, saving a portion of one’s income is a good rule of thumb. However, when one has high credit card debt, paying off debt could be preferable to building one’s savings.

Thaler, Richard H. and Cass R. Sunstein. Nudge: Improving Decisions About Health, Wealth, and Happiness. Yale University Press, 2008. https://bit.ly/2kNXroe.

  • This book, likely the single piece of scholarship most responsible for bringing the concept of nudges into the public consciousness, explores how a strategic “choice architecture” can help people make the best decisions.
  • Thaler and Sunstein, while advocating for the wider and more targeted use of nudges to help improve people’s lives without resorting to overly paternal regulation, look to five common nudges for lessons and inspiration:
    • The design of menus gets you to eat (and spend) more;
    • “Flies” in urinals improve, well, aim;
    • Credit card minimum payments affect repayment schedules;
    • Automatic savings programs increase savings rate; and
    • “Defaults” can improve rates of organ donation.
  • In the simplest terms, the authors propose the wider deployment of choice architectures that follow “the golden rule of libertarian paternalism: offer nudges that are most likely to help and least likely to inflict harm.”

U.K. Parliament Science and Technology Committee. “Behaviour Change.” July 2011. http://bit.ly/1cbYv5j.

  • This report from the U.K.’s Science and Technology Committee explores the government’s attempts to influence the behavior of its citizens through nudges, with a focus on comparing the effectiveness of nudges to that of regulatory interventions.
  • The author’s central conclusion is that, “non-regulatory measures used in isolation, including ‘nudges,’ are less likely to be effective. Effective policies often use a range of interventions.”
  • The report’s other major findings and recommendations are:
    • Government must invest in gathering more evidence about what measures work to influence population behaviour change;
    • They should appoint an independent Chief Social Scientist to provide them with robust and independent scientific advice;
    • The Government should take steps to implement a traffic light system of nutritional labelling on all food packaging; and
    • Current voluntary agreements with businesses in relation to public health have major failings. They are not a proportionate response to the scale of the problem of obesity and do not reflect the evidence about what will work to reduce obesity. If effective agreements cannot be reached, or if they show minimal benefit, the Government should pursue regulation.”

Civic Works Project translates data into community tools

Curated on Posted on by Stefaan Verhulst

The blog of the John S. and James L. Knight Foundation:”The Civic Works Project is a two-year effort to create apps and other tools to help increase the utility of local government data to benefit community organizations and the broader public. w
This project looks systemically at public and private information that can be used to engage residents, solve community problems and increase government accountability. We believe that there is a new frontier where information can be used to improve public services and community building efforts that benefit local residents.
Through the Civic Works Project, we’re seeking to improve access to information and identify solutions to problems facing diverse communities. Uncovering the value of data—and the stories behind it—can enhance the provision of public services through the smart application of technology.
Here’s some of what we’ve accomplished.
Partnership with WBEZ Public Data Blog
The WBEZ Public Data Blog is dedicated to examining and promoting civic data in Chicago, Cook County and Illinois. WBEZ is partnering with the Smart Chicago Collaborative to provide news and analysis on open government by producing content items that explain and tell stories hidden in public data. The project seeks to increase the utility, understanding, awareness and availability of local civic data. It comprises blog postings on the hidden uses of data and stories from the data, while including diverse voices and discussions on how innovations can improve civic life. It also features interviews with community organizations, businesses, government leaders and residents on challenges that could be solved through more effective use of public data.
Crime and Punishment in Chicago
The Crime and Punishment in Chicago project will provide an index of data sources regarding the criminal justice system in Chicago. This site will aggregate sources of data, how this data is generated, how to get it and what data is unavailable.
Illinois OpenTech Challenge
The Illinois Open Technology Challenge aims to bring governments, developers and communities together to create digital tools that use public data to serve today’s civic needs and promote economic development. Smart Chicago and our partners worked with government officials to publish 138 new datasets (34 in Champaign, 15 in Rockford, 12 in Belleville, and 77 from the 42 municipalities in the South Suburban Mayors and Managers Association) on the State of Illinois data portal. Smart Chicago has worked with developers in meet-ups all over the state—in six locations in four cities with 149 people. The project has also allowed Smart Chicago to conduct outreach in each of our communities to reach regular residents with needs that can be addressed through data and technology.
LocalData + SWOP
The LocalData + SWOP project is part of our effort to help bridge technology gaps in high-capacity organizations. This effort helps the Southwest Organizing Project collect information about vacant and abandoned housing using the LocalData tool.
Affordable Care Act Outreach App
With the ongoing implementation of the Affordable Care Act, community organizations such as LISC-Chicago have been hard at work providing navigators to help residents register through the healthcare.gov site.
Currently, LISC-Chicago organizers are in neighborhoods contacting residents and encouraging them to go to their closest Center for Working Families. Using a combination of software, such as Wufoo and Twilio, Smart Chicago is helping LISC with its outreach by building a tool that enables organizers to send text reminders to sign up for health insurance to residents.
Texting Tools: Twilio and Textizen
Smart Chicago is expanding the Affordable Care Act outreach project to engage residents in other ways using SMS messaging.
Smart Chicago is also a local provider for Textizen,  an SMS-based survey tool that civic organizations can use to obtain resident feedback. Organizations can create a survey campaign and then place the survey options on posters, postcards or screens during live events. They can then receive real-time feedback as people text in their answers.
WikiChicago
WikiChicago will be a hyper-local Wikipedia-like website that anyone can edit. For this project, Smart Chicago is partnering with the Chicago Public Library to feature local authors and books about Chicago, and to publish more information about Chicago’s rich history.”

The Rise of the Reluctant Innovator

Curated on Posted on by Stefaan Verhulst

New book by Ken Banks: “Despite the tens of billions spent each year in international aid, some of the most promising and exciting social innovations and businesses have come about by chance. Many of the people behind them didn’t consciously set out to solve anything, but they did. Welcome to the world of the ‘reluctant innovator’…

This book provides a welcome challenge to conventional wisdom in social entrepreneurship. It highlights the personal stories of ten social innovators from around the world. Ten social innovators – ordinary people – who randomly stumbled across problems, injustices and wrongs and, armed with little more than determination and belief, decided not to turn their backs but to dedicate their lives to solving them. Here are their stories….

Watching yet another Spanish movie in his friend’s apartment to avoid writing up his doctoral dissertation, Brij Kothari makes a throwaway comment about subtitles, which plants the seed of an idea and spawns a literacy initiative that has had, in Bill Clinton’s words, “a staggering impact on people’s lives”.
Worried about the political turmoil in Kenya, and concerned at the lack of information that is forthcoming from his adoptive country, Erik Hersman mobilises his own five-strong army to conceive, create and launch a web-based facility that revolutionises how breaking news is disseminated worldwide.
Parachuted into the middle of sub-Saharan Africa with a brief to collect public health data, and confronted with a laborious, environmentally wasteful paper-based system, paediatrician Joel Selanikio finds the perfect outlet for the skills he acquired as a Wall Street computer consultant.
Intending to ground himself in the realities of global health during his internship in rural Malawi, Josh Nesbit discovers that it is hard to sit on the sidelines and soon finds himself proposing a solution to overcome the difficulty of connecting patients, community health workers and hospitals.
After watching local doctors and midwives struggle to treat critically ill pregnant women in near-total darkness on a Nigerian maternity ward, where an untimely power cut can mean the difference between life and death, obstetrician Laura Stachel delivers a solar-based solution that enhances survival prospects.
Observing how well the autistic son of a close friend responds to the therapeutic effects of a Chinese massage technique that she has advocated using, Louisa Silva is convinced that the treatment has the potential to benefit thousands of others, but she needs to prove it.
Haunted by the memory of being separated from her older sister during a childhood spent in foster care, and horrified that other siblings are continuing to suffer the same fate, Lynn Price resolves to devise a way to bring such people back together.
An unexpected conversation over dinner leads Priti Radhakrishnan to build an innovative new organisation with a mission to fight for the rights of people denied access to life saving medicines.
Until a visit to the dermatologist turns her world upside down, Sharon Terry has never heard of pseudanthoma elasticum (PXE), but when she discovers that research into the disease afflicting her children is hidebound by scientific protocol, she sets about changing the system with characteristic zeal.
Encounters and conversations with leftover people occupying leftover spaces and using leftover materials, at home and abroad, led architecture professor Wes Janz to view them as urban pioneers, not victims, and teach him a valuable lesson: think small and listen to those at the sharp end.
See http://www.reluctantinnovation.com/”

Selected Readings on Personal Data: Security and Use

Curated on Posted on by Andrew Young

The Living Library’s Selected Readings series seeks to build a knowledge base on innovative approaches for improving the effectiveness and legitimacy of governance. This curated and annotated collection of recommended works on the topic of personal data was originally published in 2014.

Advances in technology have greatly increased the potential for policymakers to utilize the personal data of large populations for the public good. However, the proliferation of vast stores of useful data has also given rise to a variety of legislative, political, and ethical concerns surrounding the privacy and security of citizens’ personal information, both in terms of collection and usage. Challenges regarding the governance and regulation of personal data must be addressed in order to assuage individuals’ concerns regarding the privacy, security, and use of their personal information.

Selected Reading List (in alphabetical order)

Annotated Selected Reading List (in alphabetical order)

Cavoukian, Ann. “Personal Data Ecosystem (PDE) – A Privacy by Design Approach to an Individual’s Pursuit of Radical Control.” Privacy by Design, October 15, 2013. https://bit.ly/2S00Yfu.

  • In this paper, Cavoukian describes the Personal Data Ecosystem (PDE), an “emerging landscape of companies and organizations that believe individuals should be in control of their personal data, and make available a growing number of tools and technologies to enable this control.” She argues that, “The right to privacy is highly compatible with the notion of PDE because it enables the individual to have a much greater degree of control – “Radical Control” – over their personal information than is currently possible today.”
  • To ensure that the PDE reaches its privacy-protection potential, Cavouckian argues that it must practice The 7 Foundational Principles of Privacy by Design:
    • Proactive not Reactive; Preventative not Remedial
    • Privacy as the Default Setting
    • Privacy Embedded into Design
    • Full Functionality – Positive-Sum, not Zero-Sum
    • End-to-End Security – Full Lifecycle Protection
    • Visibility and Transparency – Keep it Open
    • Respect for User Privacy – Keep it User-Centric

Kirkham, T., S. Winfield, S. Ravet, and S. Kellomaki. “A Personal Data Store for an Internet of Subjects.” In 2011 International Conference on Information Society (i-Society). 92–97.  http://bit.ly/1alIGuT.

  • This paper examines various factors involved in the governance of personal data online, and argues for a shift from “current service-oriented applications where often the service provider is in control of the person’s data” to a person centric architecture where the user is at the center of personal data control.
  • The paper delves into an “Internet of Subjects” concept of Personal Data Stores, and focuses on implementation of such a concept on personal data that can be characterized as either “By Me” or “About Me.”
  • The paper also presents examples of how a Personal Data Store model could allow users to both protect and present their personal data to external applications, affording them greater control.

OECD. The 2013 OECD Privacy Guidelines. 2013. http://bit.ly/166TxHy.

  • This report is indicative of the “important role in promoting respect for privacy as a fundamental value and a condition for the free flow of personal data across borders” played by the OECD for decades. The guidelines – revised in 2013 for the first time since being drafted in 1980 – are seen as “[t]he cornerstone of OECD work on privacy.”
  • The OECD framework is built around eight basic principles for personal data privacy and security:
    • Collection Limitation
    • Data Quality
    • Purpose Specification
    • Use Limitation
    • Security Safeguards
    • Openness
    • Individual Participation
    • Accountability

Ohm, Paul. “Broken Promises of Privacy: Responding to the Surprising Failure of Anonymization.” UCLA Law Review 57, 1701 (2010). http://bit.ly/18Q5Mta.

  • This article explores the implications of the “astonishing ease” with which scientists have demonstrated the ability to “reidentify” or “deanonmize” supposedly anonymous personal information.
  • Rather than focusing exclusively on whether personal data is “anonymized,” Ohm offers five factors for governments and other data-handling bodies to use for assessing the risk of privacy harm: data-handling techniques, private versus public release, quantity, motive and trust.

Polonetsky, Jules and Omer Tene. “Privacy in the Age of Big Data: A Time for Big Decisions.” Stanford Law Review Online 64 (February 2, 2012): 63. http://bit.ly/1aeSbtG.

  • In this article, Tene and Polonetsky argue that, “The principles of privacy and data protection must be balanced against additional societal values such as public health, national security and law enforcement, environmental protection, and economic efficiency. A coherent framework would be based on a risk matrix, taking into account the value of different uses of data against the potential risks to individual autonomy and privacy.”
  • To achieve this balance, the authors believe that, “policymakers must address some of the most fundamental concepts of privacy law, including the definition of ‘personally identifiable information,’ the role of consent, and the principles of purpose limitation and data minimization.”

Shilton, Katie, Jeff Burke, Deborah Estrin, Ramesh Govindan, Mark Hansen, Jerry Kang, and Min Mun. “Designing the Personal Data Stream: Enabling Participatory Privacy in Mobile Personal Sensing”. TPRC, 2009. http://bit.ly/18gh8SN.

  • This article argues that the Codes of Fair Information Practice, which have served as a model for data privacy for decades, do not take into account a world of distributed data collection, nor the realities of data mining and easy, almost uncontrolled, dissemination.
  • The authors suggest “expanding the Codes of Fair Information Practice to protect privacy in this new data reality. An adapted understanding of the Codes of Fair Information Practice can promote individuals’ engagement with their own data, and apply not only to governments and corporations, but software developers creating the data collection programs of the 21st century.”
  • In order to achieve this change in approach, the paper discusses three foundational design principles: primacy of participants, data legibility, and engagement of participants throughout the data life cycle.

Report “Big and open data in Europe: A growth engine or a missed opportunity?”

Curated on Posted on by Stefaan Verhulst

Press Release: “Big data and open data are not just trendy issues, they are the concern of the government institutions at the highest level. On January 29th, 2014 a Conference concerning Big & Open Data in Europe 2020 was held in the European Parliament.
Questions were asked and discussed like: Is Big & Open Data a truly transformative phenomena or just a ‘hot air’? Does it matter for Europe? How big is the economic potential of Big and Open Data for Europe till 2020? How each of the 28 Member States may benefit from it?…
The conference complemented a research project by demosEUROPA – Centre for European Strategy on Big and Open Data in Europe that aims at fostering and facilitating policy debate on the socioeconomic impact of data. The key outcome of the project, a pan-European macroeconomic study titled “Big and open data In Europe: A growth engine or a missed opportunity?” carried out by the Warsaw Institute for Economic Studies (WISE) was presented.
We have the pleasure to be one of the first to present some of the findings of the report and offer the report for download.
The report analyses how technologies have the potential to influence various aspects of the European society, about their substantial, long term impact on our wealth and quality of life, but also about the new developmental challenges for the EU as a whole – as well as for its member states and their regions.
You will learn from the report:
–  the resulting economic gains of business applications of big data
– how to structure big data to move from Big Trouble to Big Value
– the costs and benefits of opening data to holders
– 3 challenges that  Europeans face with respect to big and open data
– key areas, growth opportunities and challenges for big and open data in Europe per particular regions.
The study also elaborates on the key principle of open data philosophy, which is open by default.
Europe by 2020. What will happen?
The report contains a prognosis for the 28 countries from the EU about the impact of big and open data from 2020 and its additional output and how it will affect trade, health, manufacturing, information and communication, finance & insurance and public administration in different regions. It foresees that the EU economy will grow by 1.9% by 2020 thanks to big and open data and describes the increase of the general GDP level by countries and sectors.
One of the many interesting findings of the report is that the positive impact of the data revolution will be felt more acutely in Northern Europe, while most of the New Member States and Southern European economies will benefit significantly less, with two notable exceptions being the Czech Republic and Poland. If you would like to have first-hand up-to-date information about the impact of big and open data on the future of Europe – download the report.”

The Moneyball Effect: How smart data is transforming criminal justice, healthcare, music, and even government spending

Curated on Posted on by Stefaan Verhulst

TED: “When Anne Milgram became the Attorney General of New Jersey in 2007, she was stunned to find out just how little data was available on who was being arrested, who was being charged, who was serving time in jails and prisons, and who was being released. It turns out that most big criminal justice agencies like my own didn’t track the things that matter,” she says in today’s talk, filmed at TED@BCG. “We didn’t share data, or use analytics, to make better decisions and reduce crime.”
Milgram’s idea for how to change this: “I wanted to moneyball criminal justice.”
Moneyball, of course, is the name of a 2011 movie starring Brad Pitt and the book it’s based on, written by Michael Lewis in 2003. The term refers to a practice adopted by the Oakland A’s general manager Billy Beane in 2002 — the organization began basing decisions not on star power or scout instinct, but on statistical analysis of measurable factors like on-base and slugging percentages. This worked exceptionally well. On a tiny budget, the Oakland A’s made it to the playoffs in 2002 and 2003, and — since then — nine other major league teams have hired sabermetric analysts to crunch these types of numbers.
Milgram is working hard to bring smart statistics to criminal justice. To hear the results she’s seen so far, watch this talk. And below, take a look at a few surprising sectors that are getting the moneyball treatment as well.

Moneyballing music. Last year, Forbes magazine profiled the firm Next Big Sound, a company using statistical analysis to predict how musicians will perform in the market. The idea is that — rather than relying on the instincts of A&R reps — past performance on Pandora, Spotify, Facebook, etc can be used to predict future potential. The article reads, “For example, the company has found that musicians who gain 20,000 to 50,000 Facebook fans in one month are four times more likely to eventually reach 1 million. With data like that, Next Big Sound promises to predict album sales within 20% accuracy for 85% of artists, giving labels a clearer idea of return on investment.”
Moneyballing human resources. In November, The Atlantic took a look at the practice of “people analytics” and how it’s affecting employers. (Billy Beane had something to do with this idea — in 2012, he gave a presentation at the TLNT Transform Conference called “The Moneyball Approach to Talent Management.”) The article describes how Bloomberg reportedly logs its employees’ keystrokes and the casino, Harrah’s, tracks employee smiles. It also describes where this trend could be going — for example, how a video game called Wasabi Waiter could be used by employers to judge potential employees’ ability to take action, solve problems and follow through on projects. The article looks at the ways these types of practices are disconcerting, but also how they could level an inherently unequal playing field. After all, the article points out that gender, race, age and even height biases have been demonstrated again and again in our current hiring landscape.
Moneyballing healthcare. Many have wondered: what about a moneyball approach to medicine? (See this call out via Common Health, this piece in Wharton Magazine or this op-ed on The Huffington Post from the President of the New York State Health Foundation.) In his TED Talk, “What doctors can learn from each other,” Stefan Larsson proposed an idea that feels like something of an answer to this question. In the talk, Larsson gives a taste of what can happen when doctors and hospitals measure their outcomes and share this data with each other: they are able to see which techniques are proving the most effective for patients and make adjustments. (Watch the talk for a simple way surgeons can make hip surgery more effective.) He imagines a continuous learning process for doctors — that could transform the healthcare industry to give better outcomes while also reducing cost.
Moneyballing government. This summer, John Bridgeland (the director of the White House Domestic Policy Council under President George W. Bush) and Peter Orszag (the director of the Office of Management and Budget in Barack Obama’s first term) teamed up to pen a provocative piece for The Atlantic called, “Can government play moneyball?” In it, the two write, “Based on our rough calculations, less than $1 out of every $100 of government spending is backed by even the most basic evidence that the money is being spent wisely.” The two explain how, for example, there are 339 federally-funded programs for at-risk youth, the grand majority of which haven’t been evaluated for effectiveness. And while many of these programs might show great results, some that have been evaluated show troubling results. (For example, Scared Straight has been shown to increase criminal behavior.) Yet, some of these ineffective programs continue because a powerful politician champions them. While Bridgeland and Orszag show why Washington is so averse to making data-based appropriation decisions, the two also see the ship beginning to turn around. They applaud the Obama administration for a 2014 budget with an “unprecendented focus on evidence and results.” The pair also gave a nod to the nonprofit Results for America, which advocates that for every $99 spent on a program, $1 be spent on evaluating it. The pair even suggest a “Moneyball Index” to encourage politicians not to support programs that don’t show results.
In any industry, figuring out what to measure, how to measure it and how to apply the information gleaned from those measurements is a challenge. Which of the applications of statistical analysis has you the most excited? And which has you the most terrified?”

Selected Readings on Big Data

Curated on Posted on by Andrew Young

The Living Library’s Selected Readings series seeks to build a knowledge base on innovative approaches for improving the effectiveness and legitimacy of governance. This curated and annotated collection of recommended works on the topic of big data was originally published in 2014.

Big Data refers to the wide-scale collection, aggregation, storage, analysis and use of data. Government is increasingly in control of a massive amount of raw data that, when analyzed and put to use, can lead to new insights on everything from public opinion to environmental concerns. The burgeoning literature on Big Data argues that it generates value by: creating transparency; enabling experimentation to discover needs, expose variability, and improve performance; segmenting populations to customize actions; replacing/supporting human decision making with automated algorithms; and innovating new business models, products and services. The insights drawn from data analysis can also be visualized in a manner that passes along relevant information, even to those without the tech savvy to understand the data on its own terms (see The GovLab Selected Readings on Data Visualization).

Selected Reading List (in alphabetical order)

Annotated Selected Reading List (in alphabetical order)

Australian Government Information Management Office. The Australian Public Service Big Data Strategy: Improved Understanding through Enhanced Data-analytics Capability Strategy Report. August 2013. http://bit.ly/17hs2xY.

  • This Big Data Strategy produced for Australian Government senior executives with responsibility for delivering services and developing policy is aimed at ingraining in government officials that the key to increasing the value of big data held by government is the effective use of analytics. Essentially, “the value of big data lies in [our] ability to extract insights and make better decisions.”
  • This positions big data as a national asset that can be used to “streamline service delivery, create opportunities for innovation, identify new service and policy approaches as well as supporting the effective delivery of existing programs across a broad range of government operations.”

Bollier, David. The Promise and Peril of Big Data. The Aspen Institute, Communications and Society Program, 2010. http://bit.ly/1a3hBIA.

  • This report captures insights from the 2009 Roundtable exploring uses of Big Data within a number of important consumer behavior and policy implication contexts.
  • The report concludes that, “Big Data presents many exciting opportunities to improve modern society. There are incalculable opportunities to make scientific research more productive, and to accelerate discovery and innovation. People can use new tools to help improve their health and well-being, and medical care can be made more efficient and effective. Government, too, has a great stake in using large databases to improve the delivery of government services and to monitor for threats to national security.
  • However, “Big Data also presents many formidable challenges to government and citizens precisely because data technologies are becoming so pervasive, intrusive and difficult to understand. How shall society protect itself against those who would misuse or abuse large databases? What new regulatory systems, private-law innovations or social practices will be capable of controlling anti-social behaviors–and how should we even define what is socially and legally acceptable when the practices enabled by Big Data are so novel and often arcane?”

Boyd, Danah and Kate Crawford. “Six Provocations for Big Data.” A Decade in Internet Time: Symposium on the Dynamics of the Internet and Society. September 2011. http://bit.ly/1jJstmz.

  • In this paper, Boyd and Crawford raise challenges to unchecked assumptions and biases regarding big data. The paper makes a number of assertions about the “computational culture” of big data and pushes back against those who consider big data to be a panacea.
  • The authors’ provocations for big data are:
    • Automating Research Changes the Definition of Knowledge
    • Claims to Objectivity and Accuracy are Misleading
    • Big Data is not always Better Data
    • Not all Data is Equivalent
    • Just Because it is accessible doesn’t make it ethical
    • Limited Access to Big Data creates New Digital Divide

The Economist Intelligence Unit. Big Data and the Democratisation of Decisions. October 2012. http://bit.ly/17MpH8L.

  • This report from the Economist Intelligence Unit focuses on the positive impact of big data adoption in the private sector, but its insights can also be applied to the use of big data in governance.
  • The report argues that innovation can be spurred by democratizing access to data, allowing a diversity of stakeholders to “tap data, draw lessons and make business decisions,” which in turn helps companies and institutions respond to new trends and intelligence at varying levels of decision-making power.

Manyika, James, Michael Chui, Brad Brown, Jacques Bughin, Richard Dobbs, Charles Roxburgh, and Angela Hung Byers. Big Data: The Next Frontier for Innovation, Competition, and Productivity.  McKinsey & Company. May 2011. http://bit.ly/18Q5CSl.

  • This report argues that big data “will become a key basis of competition, underpinning new waves of productivity growth, innovation, and consumer surplus, and that “leaders in every sector will have to grapple with the implications of big data.” 
  • The report offers five broad ways in which using big data can create value:
    • First, big data can unlock significant value by making information transparent and usable at much higher frequency.
    • Second, as organizations create and store more transactional data in digital form, they can collect more accurate and detailed performance information on everything from product inventories to sick days, and therefore expose variability and boost performance.
    • Third, big data allows ever-narrower segmentation of customers and therefore much more precisely tailored products or services.
    • Fourth, big sophisticated analytics can substantially improve decision-making.
    • Finally, big data can be used to improve the development of the next generation of products and services.

The Partnership for Public Service and the IBM Center for The Business of Government. “From Data to Decisions II: Building an Analytics Culture.” October 17, 2012. https://bit.ly/2EbBTMg.

  • This report discusses strategies for better leveraging data analysis to aid decision-making. The authors argue that, “Organizations that are successful at launching or expanding analytics program…systematically examine their processes and activities to ensure that everything they do clearly connects to what they set out to achieve, and they use that examination to pinpoint weaknesses or areas for improvement.”
  • While the report features many strategies for government decisions-makers, the central recommendation is that, “leaders incorporate analytics as a way of doing business, making data-driven decisions transparent and a fundamental approach to day-to-day management. When an analytics culture is built openly, and the lessons are applied routinely and shared widely, an agency can embed valuable management practices in its DNA, to the mutual benet of the agency and the public it serves.”

TechAmerica Foundation’s Federal Big Data Commission. “Demystifying Big Data: A Practical Guide to Transforming the Business of Government.” 2013. http://bit.ly/1aalUrs.

  • This report presents key big data imperatives that government agencies must address, the challenges and the opportunities posed by the growing volume of data and the value Big Data can provide. The discussion touches on the value of big data to businesses and organizational mission, presents case study examples of big data applications, technical underpinnings and public policy applications.
  • The authors argue that new digital information, “effectively captured, managed and analyzed, has the power to change every industry including cyber security, healthcare, transportation, education, and the sciences.” To ensure that this opportunity is realized, the report proposes a detailed big data strategy framework with the following steps: define, assess, plan, execute and review.

World Economic Forum. “Big Data, Big Impact: New Possibilities for International Development.” 2012. http://bit.ly/17hrTKW.

  • This report examines the potential for channeling the “flood of data created every day by the interactions of billions of people using computers, GPS devices, cell phones, and medical devices” into “actionable information that can be used to identify needs, provide services, and predict and prevent crises for the benefit of low-income populations”
  • The report argues that, “To realise the mutual benefits of creating an environment for sharing mobile-generated data, all ecosystem actors must commit to active and open participation. Governments can take the lead in setting policy and legal frameworks that protect individuals and require contractors to make their data public. Development organisations can continue supporting governments and demonstrating both the public good and the business value that data philanthropy can deliver. And the private sector can move faster to create mechanisms for the sharing data that can benefit the public.”