Modern Healthcare: “The Patient-Centered Outcomes Research Institute is trying to live up to the first two words in its name. A team of researchers from the University of Michigan at Ann Arbor has been tapped by PCORI to scale up their prototype of a Web-based crowd-sourcing platform called WellSpringboard, which is designed to enable patients to propose ideas and pledge funds for clinical research.
Washington-based PCORI, an independent not-for-profit group established by the healthcare reform law, recently awarded the Michigan researchers $40,000, the top prize from its PCORI Challenge, a competition seeking novel approaches to connecting researchers with interested patients….
The platform works like this: A person has an idea for a research project and records a video explaining what that idea is. WellSpringboard posts the video on its site, sets a goal for funding and then spreads the word about the project using social media outlets like Facebook and Twitter. Once the funding target is reached, the project is opened up to researchers, who post their profiles to the site and whose applications are reviewed by a board of scientists and members of the public.”
It’s Time to Rewrite the Internet to Give Us Better Privacy, and Security
Larry Lessig in The Daily Beast: “Almost 15 years ago, as I was just finishing a book about the relationship between the Net (we called it “cyberspace” then) and civil liberties, a few ideas seemed so obvious as to be banal: First, life would move to the Net. Second, the Net would change as it did so. Gone would be simple privacy, the relatively anonymous default infrastructure for unmonitored communication; in its place would be a perpetually monitored, perfectly traceable system supporting both commerce and the government. That, at least, was the future that then seemed most likely, as business raced to make commerce possible and government scrambled to protect us (or our kids) from pornographers, and then pirates, and now terrorists.
But another future was also possible, and this was my third, and only important point: Recognizing these obvious trends, we just might get smart about how code (my shorthand for the technology of the Internet) regulates us, and just possibly might begin thinking smartly about how we could embed in that code the protections that the Constitution guarantees us. Because—and here was the punchline, the single slogan that all 724 people who read that book remember—code is law. And if code is law, then we need to be as smart about how code regulates us as we are about how the law does so….
But what astonishes me is that today, more than a decade into the 21st century, the world has remained mostly oblivious to these obvious points about the relationship between law and code….
the fact is that there is technology that could be deployed that would give many the confidence that none of us now have. “Trust us” does not compute. But trust and verify, with high-quality encryption, could. And there are companies, such as Palantir, developing technologies that could give us, and more importantly, reviewing courts, a very high level of confidence that data collected or surveilled was not collected or used in an improper way. Think of it as a massive audit log, recording how and who used what data for what purpose. We could code the Net in a string of obvious ways to give us even better privacy, while also enabling better security.
But what astonishes me is that today, more than a decade into the 21st century, the world has remained mostly oblivious to these obvious points about the relationship between law and code….
the fact is that there is technology that could be deployed that would give many the confidence that none of us now have. “Trust us” does not compute. But trust and verify, with high-quality encryption, could. And there are companies, such as Palantir, developing technologies that could give us, and more importantly, reviewing courts, a very high level of confidence that data collected or surveilled was not collected or used in an improper way. Think of it as a massive audit log, recording how and who used what data for what purpose. We could code the Net in a string of obvious ways to give us even better privacy, while also enabling better security.
Filling Power Vacuums in the New Global Legal Order
Paper by Anne-Marie Slaughter in the latest issue of Boston College Law Review: “In her Keynote Address at the October, 12, 2012 Symposium, Filling Power Vacuums in the New Global Legal Order, Anne-Marie Slaughter describes the concepts of “power over” and “power with” in the global world of law. Power over is the ability to achieve the outcomes you want by commanding or manipulating others. Power with is the ability to mobilize people to do things. In the globalized world, power operates much more through power with than through power over. In contrast to the hierarchical power of national governments, globally it is more important to be central in the horizontal system of multiple sovereigns. This Address illustrates different examples of power over and power with. It concludes that in this globalized world, lawyers are ideally trained and positioned to exercise power.”
If My Data Is an Open Book, Why Can’t I Read It?
Natasha Singer in the New York Times: “Never mind all the hoopla about the presumed benefits of an “open data” society. In our day-to-day lives, many of us are being kept in the data dark.
“The fact that I am producing data and companies are collecting it to monetize it, if I can’t get a copy myself, I do consider it unfair,” says Latanya Sweeney, the director of the Data Privacy Lab at Harvard, where she is a professor of government and technology….
In fact, a few companies are challenging the norm of corporate data hoarding by actually sharing some information with the customers who generate it — and offering tools to put it to use. It’s a small but provocative trend in the United States, where only a handful of industries, like health care and credit, are required by federal law to provide people with access to their records.
Last year, San Diego Gas and Electric, a utility, introduced an online energy management program in which customers can view their electricity use in monthly, daily or hourly increments. There is even a practical benefit: customers can earn credits by reducing energy consumption during peak hours….
Deepbills project
Cato Institute: “The Deepbills project takes the raw XML of Congressional bills (available at FDsys and Thomas) and adds additional semantic information to them in inside the text.
You can download the continuously-updated data at http://deepbills.cato.org/download…
Congress already produces machine-readable XML of almost every bill it proposes, but that XML is designed primarily for formatting a paper copy, not for extracting information. For example, it’s not currently possible to find every mention of an Agency, every legal reference, or even every spending authorization in a bill without having a human being read it….
Currently the following information is tagged:
- Legal citations…
- Budget Authorities (both Authorizations of Appropriations and Appropriations)…
- Agencies, bureaus, and subunits of the federal government.
- Congressional committees
- Federal elective officeholders (Congressmen)”
IRS: Turn over a new leaf, Open up Data
Beth Simone Noveck and Stefaan Verhulst in Forbes: “The core task for Danny Werfel, the new acting commissioner of the IRS, is to repair the agency’s tarnished reputation and achieve greater efficacy and fairness in IRS investigations. Mr. Werfel can show true leadership by restructuring how the IRS handles its tax-exempt enforcement processes.
One of Mr. Werfel’s first actions on the job should be the immediate implementation of the groundbreaking Presidential Executive Order and Open Data policy, released last week, that requires data captured and generated by the government be made available in open, machine-readable formats. Doing so will make the IRS a beacon to other agencies in how to use open data to screen any wrongdoing and strengthen law enforcement.
By sharing readily available IRS data on tax-exempt organizations, encouraging Congress to pass a budget proposal that mandates release of all tax-exempt returns in a machine-readable format, and increasing the transparency of its own processes, the agency can begin to turn the page on this scandal and help rebuild trust and partnership between government and its citizens.”
See full article here.
Finding the Common Good in an Era of Dysfunctional Governance
New Essay by Thomas E. Mann and Norman J. Ornstein in the Spring 2013 issue of Daedalus (a journal of the American Academy of Arts & Sciences):
“The framers designed a constitutional system in which the government would play a vigorous role in securing the liberty and well-being of a large and diverse population. They built a political system around a number of key elements, including debate and deliberation, divided powers competing with one another, regular order in the legislative process, and avenues to limit and punish corruption. America in recent years has struggled to adhere to each of these principles, leading to a crisis of governability and legitimacy. The roots of this problem are twofold. The first is a serious mismatch between our political parties, which have become as polarized and vehemently adversarial as parliamentary parties, and a separation-of-powers governing system that makes it extremely difficult for majorities to act. The second is the asymmetric character of the polarization. The Republican Party has become a radical insurgency—ideologically extreme, scornful of facts and compromise, and dismissive of the legitimacy of its political opposition. Securing the common good in the face of these developments will require structural changes but also an informed and strategically focused citizenry.”
New NAS Report: Copyright in the Digital Era: Building Evidence for Policy
National Academies of Sciences: “Over the course of several decades, copyright protection has been expanded and extended through legislative changes occasioned by national and international developments. The content and technology industries affected by copyright and its exceptions, and in some cases balancing the two, have become increasingly important as sources of economic growth, relatively high-paying jobs, and exports. Since the expansion of digital technology in the mid-1990s, they have undergone a technological revolution that has disrupted long-established modes of creating, distributing, and using works ranging from literature and news to film and music to scientific publications and computer software.
In the United States and internationally, these disruptive changes have given rise to a strident debate over copyright’s proper scope and terms and means of its enforcement–a debate between those who believe the digital revolution is progressively undermining the copyright protection essential to encourage the funding, creation, and distribution of new works and those who believe that enhancements to copyright are inhibiting technological innovation and free expression.
Copyright in the Digital Era: Building Evidence for Policy examines a range of questions regarding copyright policy by using a variety of methods, such as case studies, international and sectoral comparisons, and experiments and surveys. This report is especially critical in light of digital age developments that may, for example, change the incentive calculus for various actors in the copyright system, impact the costs of voluntary copyright transactions, pose new enforcement challenges, and change the optimal balance between copyright protection and exceptions.”
Is Privacy Algorithmically Impossible?
MIT Technology Review
: “In 1995, the European Union introduced privacy legislation that defined “personal data” as any information that could identify a person, directly or indirectly. The legislators were apparently thinking of things like documents with an identification number, and they wanted them protected just as if they carried your name.
Today, that definition encompasses far more information than those European legislators could ever have imagined—easily more than all the bits and bytes in the entire world when they wrote their law 18 years ago.
Here’s what happened. First, the amount of data created each year has grown exponentially (see figure)…
Much of this data is invisible to people and seems impersonal. But it’s not. What modern data science is finding is that nearly any type of data can be used, much like a fingerprint, to identify the person who created it: your choice of movies on Netflix, the location signals emitted by your cell phone, even your pattern of walking as recorded by a surveillance camera. In effect, the more data there is, the less any of it can be said to be private. We are coming to the point that if the commercial incentives to mine the data are in place, anonymity of any kind may be “algorithmically impossible,” says Princeton University computer scientist Arvind Narayanan.”
Life in the City Is Essentially One Giant Math Problem
Smithsonian Magazine : “A new science—so new it doesn’t have its own journal, or even an agreed-upon name—is exploring these laws. We will call it “quantitative urbanism.” It’s an effort to reduce to mathematical formulas the chaotic, exuberant, extravagant nature of one of humanity’s oldest and most important inventions, the city.
The systematic study of cities dates back at least to the Greek historian Herodotus. In the early 20th century, scientific disciplines emerged around specific aspects of urban development: zoning theory, public health and sanitation, transit and traffic engineering. By the 1960s, the urban-planning writers Jane Jacobs and William H. Whyte used New York as their laboratory to study the street life of neighborhoods, the walking patterns of Midtown pedestrians, the way people gathered and sat in open spaces. But their judgments were generally aesthetic and intuitive…
Only in the past decade has the ability to collect and analyze information about the movement of people begun to catch up to the size and complexity of the modern metropolis itself…
Deep mathematical principles underlie even such seemingly random and historically contingent facts as the distribution of the sizes of cities within a country. There is, typically, one largest city, whose population is twice that of the second-largest, and three times the third-largest, and increasing numbers of smaller cities whose sizes also fall into a predictable pattern. This principle is known as Zipf’s law, which applies across a wide range of phenomena…”