Power to the people: how open data is improving health service delivery


The Guardian: “…What’s really interesting is how this data can be utilised by citizens to enable them to make more informed choices and demand improved services in sectors such as health. A growing community of technologists and social activists is emerging across Africa, supported by a burgeoning network of technology innovation hubs. They’re beginning to explore the ways in which data can be utilised to improve health outcomes.
In Northern Uganda, the brutal Lord’s Resistance Army conflict displaced two million people, leaving the social infrastructure in tatters. In 2008, the government launched a Peace, Recovery and Development Plan, but progress has been limited. There are insufficient health centres to serve the population, a severe shortage of staff, drugs and equipment, and corruption is widespread.
Cipesa – an organisation that uses communication technologies to support poverty reduction and development – and Numec, a local media organisation, have launched the iParticipate project. A multimedia platform is being populated with baseline data outlining the current status of the health service across three districts….
In the same region, Wougnet is training women to use information technologies to tackle social challenges. Local officials and community members have formed voluntary social accountability committees and been trained in the use of an online platform to capture and store information relating to poor governance and corruption in the health sector, often via mobile phones.
The platform strengthened campaign efforts which resulted in the construction of a health centre in Aloni Parish. In Amuru district, five health workers were arrested following reports highlighting negligence.
In the village of Bagega in Nigeria, 400 children died and thousands suffered significant health problems as the result of lead poisoning caused by poor mining practices. The government pledged $5.3m (£3.23m) for remediation, but the funds never reached the affected region.
A local organisation, Follow the Money, created an infographic highlighting the government’s commitments and combined this with real life testimonies and photographs showing the actual situation on the ground. Within 48 hours of a targeted Twitter campaign, the president committed to releasing funds to the village and, in February this year, children started receiving long overdue medical attention.
All these initiatives depend on access to critical government data and an active citizens who feel empowered to effect change in their own lives and communities. At present, it’s often hard to access data which is sufficiently granular, particularly at district or local level. For citizens to be engaged with information from government, it also needs to be accessible in ways that are simple to understand and linked to campaigns that impact their daily lives.
Tracking expenditure can also operate across borders. Donors are beginning to open up aid data by publishing to the IATI registry. This transparency by donor governments should improve the effectiveness of aid spending and contribute towards improved health outcomes.
It’s hard to draw general conclusions about how technology can contribute towards improving health outcomes, particularly when context is so critical and the field is so new. Nonetheless, some themes are emerging which can maximise the chances of an intervention’s success.
It can at times be challenging to encourage citizens to report for an array of reasons, including a lack of belief in their ability to effect change, cultural norms, a lack of time and both perceived and real risks. Still, participation seems to increase when citizens receive feedback from reports submitted and when mechanisms are in place that enable citizens to take collective action. On-the-ground testimonies and evidence can also help shift public opinion and amplify critical messages.
Interventions are dramatically strengthened when integrated into wider programmes, implemented by organisations that have established a strong relationship with the communities in which they work. They need to be backed by at least one strong civil society organisation that can follow up on any reports, queries or challenges which may arise. Where possible, engagement from government and local leaders can make a real difference. Identifying champions within government can also significantly improve responsiveness.”

New business models for open data in the digital economy: a preliminary assessment of the literature


Conference paper by Bonina, Carla M. and Elaluf-Calderwood, Silvia: “There is increasing excitement about the potential economic and social benefits of using newly released data in open access format (open data). For the government, open data offers potential for improving public service delivery, transparency and efficiency of operations. Open data bring also promising opportunities to generate innovation and economic growth in the economy. By releasing open data, individuals and companies will build new products and services that can feed back into the economy and promote economic growth. Despite recent advances on the matter, the business models that may help extracting the potential value of open data are not well understood. In this research in progress, we review possible directions in the literature to address in what ways open data may be a source for new business and innovation, as well as what challenges and potential barriers emerge on its take up.”

Cinq expériences de démocratie 2.0


Le Monde: “Du 23 au 27 novembre, à Strasbourg, les participants au Forum mondial pour la démocratie examineront des initiatives de démocratie participative à l’oeuvre sur tous les continents. En voici quelques exemples. ( Lire aussi l’entretien : “Internet renforce le pouvoir de la société civile”)

  • EN FRANCE, LES ÉLECTEURS PASSENT À L’ÈRE NUMÉRIQUE

Depuis trois ans, les initiatives françaises de démocratie 2.0 se multiplient, avec pour objectif de stimuler la participation citoyenne aux instances démocratiques, qu’elles soient locales ou nationales. Dans la perspective des élections municipales de mars 2014, Questionnezvoselus.org propose ainsi aux internautes d’interroger les candidats à la mairie des 39 villes de France métropolitaine de plus de 100 000 habitants. Objectif ? Etablir la confiance entre les citoyens et leurs élus grâce à davantage de transparence, d’autonomisation et de responsabilité. La démarche rappelle celle de Voxe.org : lors de l’élection présidentielle de 2012, ce comparateur neutre et indépendant des programmes des candidats a enregistré un million de connexions. En complément, Laboxdesmunicipales.com propose des outils d’aide au vote, tandis que Candidat-et-citoyens.fr offre à ceux qui se présentent la possibilité d’associer des citoyens à la construction de leur programme.
Aux adeptes de la transparence, le collectif Democratieouverte.org propose d’interpeller les élus afin qu’ils affichent ouvertement leurs pratiques, et Regardscitoyens.org offre « un accès simplifié au fonctionnement de nos institutions démocratiques à partir des informations publiques »….

Informer, débattre et donner le pouvoir d’agir », tel est le slogan de Puzzled by Policy (PBP, « perplexe quant à la politique »), une plate-forme Internet lancée en octobre 2010 afin d’aider chacun à mieux comprendre les décisions politiques prises au niveau européen et à améliorer ainsi la qualité du débat public….

  • A PORTO ALEGRE,  UN WIKI RELIE HABITANTS ET ÉDILES

Cartographier le territoire et identifier les problèmes que rencontrent les habitants de la ville en utilisant un système « wiki » (c’est-à-dire un site Internet qui s’enrichit des contributions des internautes), telle est la vocation de Porto Alegre.cc.
Conçu pour donner de la visibilité aux causes défendues par les habitants, ce site s’inscrit dans le cadre de la plate-forme « wikicity » (Wikicidade.cc). Un concept dondé sur la méthode de l’intelligence collective, qui s’articule autour de quatre axes : culture de la citoyenneté, éthique de l’attention, responsabilité partagée et engagement civique….

  • EN FINLANDE,  CHACUN LÉGIFÈRE EN LIGNE

Depuis mars 2012, la Constitution finlandaise laisse à tout citoyen ayant atteint la majorité la possibilité d’inscrire des propositions de loi sur l’agenda parlementaire. Ces dernières sont examinées par les élus à condition de recevoir le soutien de 50 000 autres Finlandais (soit 1 % de la population).
Afin d’optimiser l’usage et l’impact de ce dispositif de participation citoyenne, l’ONG Open Ministry a lancé en octobre 2012 une plate-forme facilitant l’implication de tout un chacun. Participation en ligne, ateliers de travail ouverts ou tables rondes sont autant de techniques utilisées à cette fin….

  • AUX ETATS-UNIS, LA FINANCE PARTICIPATIVE GAGNE LES PROJETS PUBLICS

Citizinvestor.com propose aux citoyens américains de participer au financement d’infrastructures publiques. « L’administration n’a jamais assez d’argent pour financer tous les projets et services dont rêvent les citoyens », observent Tony De Sisto et Jordan Tyler Raynor, les cofondateurs du projet, conscients des choix difficiles opérés lors de l’allocation des budgets municipaux et de l’envie des habitants d’avoir leur voix dans ce choix….”

Open Data: From ‘Platform’ to ‘Program’


Engaging Cities: “A few months ago, Dutch designer Mark van der Net launched OSCity.nl, a highly interesting example of what can be done with open data. At first, it looks like a mapping tool. The interface shows a – beautifully designed – map of The Netherlands, color coded according to whatever open data set the user selects, varying from geographical height to the location of empty office buildings. As such it is an example of a broader current in which artists, citizens, ngos and business actors have build online tools to visualize all kinds of data, varying from open government data to collaboratively produced data sets focused on issues like environmental pollution.
What makes OSCity interesting is that it allows users to intuitively map various datasets in combination with each other in so called ‘map stories’. For instance, a map of empty office space can be combined with maps of urban growth and decline, the average renting price per square meter of office space, as well as map that displays the prices of houses for sale. The intersection of those maps shows you where empty office spaces are offered at or below half the price of regular houses and apartments. The result is thus not just an aesthetically pleasing state of affairs, but an action map. Policy makers, developers and citizens can use the insights produced by the map to find empty offices that are worthwhile to turn into houses.
There are two important lessons we can learn from this project. First, it shows the importance of programs like OSCity to make open data platforms operationable for various actors. Over the last few years governments and other organizations have started to open up their datasets, often accompanied with high expectations of citizen empowerment and greater transparency of governments. However, case studies have showed that opening up data and building an open platform is only a first step. Dawes and Helbig have shown that various stakeholders have various needs in terms of standards and protocols, whereas both citizens and government officials need the relevant skills to be able to understand and operate upon the data. ‘Vast amounts of useful information are contained in government data systems’, they write, ‘but the systems themselves are seldom designed for use beyond the collecting agency’s own needs.’ In other words: what is needed to deliver on the expectations of open data, is not only a platform – a publicly available database – but also what I have called ‘programs’ – online tools with intuitive interfaces that make this data intelligible and actionable in concert with the needs of the public.
There is a second issue that OSCity raises. As Jo Bates has pointed out, the main question is: who exactly is empowered through programs like this? Will ‘programs’ that make data operationable work for citizens? Or will their procedures, standards and access be organized to benefit corporate interests? These do not have to be necessarily contradicting, but if the goal is to empower citizens, it is important to engage them as stakeholders in the design of these programs.”

BBC throws weight behind open data movement


The Telegraph: “The BBC has signed Memoranda of Understanding (MoUs) with the Europeana Foundation, the Open Data Institute, the Open Knowledge Foundation and the Mozilla Foundation, supporting free and open internet technologies…

The agreements will enable closer collaboration between the BBC and each of the four organisations on a range of mutual interests, including the release of structured open data and the use of open standards in web development, according to the BBC.
One aim of the agreement is to give clear technical standards and models to organisations who want to work with the BBC, and give those using the internet a deeper understanding of the technologies involved.
The MoUs also bring together several existing areas of research and provide a framework to explore future opportunities. Through this and other initiatives, the BBC hopes to become a catalyst for open innovation by publishing clear technical standards, models, expertise and – where feasible – data.
The BBC has been publishing linked open data for some time, most notably as part of the /programmes service, where machine-readable information about the programme schedule is made available online.
It also helped to deliver the Olympics Data Service, which underpinned 10,490 athlete pages on the BBC sport website during the 2012 Olympics….

“The BBC has been at the forefront of technological innovation around broadcasting and online for many years delivering the benefits of new technologies to licence fee payers, offering new services and products to audiences around the world, and creating public value in the digital economy,” said James Purnell, BBC Director of Strategy and Digital.”

Open Data and Citizen Engagement – Disentangling the Relationship


Tiago Peixoto: “…Within an ecosystem that combines transparency and participation, examining the relationship between the two becomes essential. More specifically, a clearer understanding of the interaction between open data and participatory institutions remains a frontier to be explored….

R&D for Data-Driven Participation

Coming up with clear hypotheses and testing them is essential if we are to move forward with the ecosystem that brings together open data, participation and accountability. Surely, many organizations working in the open government space are operating with limited resources, squeezing their budgets to keep their operational work going. In this sense, conducting experiments to test hypotheses may appear as a luxury that very few can afford.
Nevertheless, one of the opportunities provided by the use of technologies for civic behavior is that of potentially driving down the costs for experimentation. For instance, online and mobile experiments could play the role of tech-enabled (and affordable) randomized controlled trials, improving our understanding of how open data can be best used to spur collective action. Thinking of the ways in which technology can be used to conduct lowered costs experiments to shed light on behavioral and causal chains is still limited to a small number of people and organizations, and much work is needed on that front.
Yet, it is also important to acknowledge that experiments are not the only source of relevant knowledge. To stick with a simple example, in some cases even an online survey trying to figure out who is accessing data, what data they use, and how they use it may provide us with valuable knowledge about the interaction between open data and citizen action. In any case, however, it may be important that the actors working in that space agree upon a minimal framework that facilitates comparison and incremental learning: the field of technology for accountability desperately needs a more coordinated research agenda.

Citizen Data Platforms?

As more and more players engage in participatory initiatives, there is a significant amount of citizen-generated data being collected, which is important on its own. However, in a similar vein to government data, the potential of citizen data may be further unlocked if openly available to third parties who can learn from it and build upon it. In this respect, it might not be long before we realize the need to have adequate structures and platforms to host this wealth of data that – hopefully – will be increasingly generated around the world. This would entail that not only governments open up their data related to citizen engagement initiatives, but also that other actors working in that field – such as donors and NGOs – do the same. Such structures would also be the means by which lessons generated by experiments and other approaches are widely shared, bringing cumulative knowledge to the field.
However, as we think of future scenarios, we should not lose sight of current challenges and knowledge gaps when it comes to the relationship between citizen engagement and open data. Better disentangling the relationship between the two is the most immediate priority, and a long overdue topic in the open government conversation.”

Kick the data secrecy habit and everyone wins


New Scientist:Freely available information has the power to make and save money and enhance our daily life, says Nigel Shadbolt of the Open Data Institute…
What kind of things do these start-ups do?
Our first success was with data analytics company Mastadon C, which used public information to look at doctors’ prescribing habits for cholesterol-lowering drugs. They found that by switching from brand names to generic drugs, doctors could save the NHS more than £200 million a year.
Have you looked at other public resources?
Another start-up, Placr, is unifying timetables and live departure and disruption information for UK bus, rail, underground, ferry and tram services. It uses feeds from many organisations to provide an app for travellers and services for local authorities. A recent review in London – where Transport for London has made lots of its data open – showed that millions of journeys are being altered to avoid disruptions on the basis of this information. Time savings alone add up to £58 million a year.
Is there a danger of creating more big companies that will turn into monopolies?
We want companies that use open data to make money, and they will try to defend their patches. But if we leave the data open, others can exploit it too. Nobody can own or monopolise the data. I think we can make more money and create more benefit by making data open, and I’m sure we will even dislodge a few monopolies along the way.”

New Visions in Citizen Science


New Report by Anne Bowser and Lea Shanley for the Commons Lab within Science and Technology Innovation Program, Woodrow Wilson Center, with the support of the Alfred P. Sloan Foundation: “Citizen science is one form of open innovation, a paradigm where organizations solicit the efforts of external contributors with unique perspectives who generate new knowledge and technology, or otherwise bolster organizational resources.  Recent executive branch policies encourage and support open innovation in the federal government. The President’s 2009 Memorandum on Transparency and Open Government  charged agencies with taking specific action to support transparency, public participation, and collaboration. Similarly, the Obama Administration’s 2013 Memorandum on Open Data Policy—Managing Information as an Asset   instructs agencies to support these principles by sharing government data sets. The Preview Report for the Second Open Government National Action Plan, released October 31, 2013, specifically states that the United States will commit to “harness the ingenuity of the public by enabling, accelerating, and scaling the use of open innovation methods such as incentive prizes, crowdsourcing, and citizen science within the Federal Government.”
This report showcases seventeen case studies that offer a mosaic view of federally-sponsored citizen science and open innovation projects, from in-the-field data collection to online games for collective problem-solving. Its goal is not to provide line-by-line instructions for agencies attempting to create or expand projects of their own; each agency has a unique mission with distinct challenges that inform project designs.  Rather, it offers a sampling of different models that support public contribution, potential challenges, and positive impacts that projects can have on scientific literacy, research, management, and public policy.
Some case studies represent traditional but well-executed projects that illustrate how citizen science functions at its best, by contributing to robust scientific research.  Other projects, such as the National Aeronautics and Space Administration (NASA)’s International Space Apps Challenge, evolve from these traditional models, demonstrating how open innovation can address agency-specific challenges in new and compelling ways. Through this progression, the evolution of citizen science begins to take shape, and the full possibilities of open innovation begin to emerge.”

Four critiques of open data initiatives


Blog by Rob Kitchin: “The arguments concerning the benefits of open data are now reasonably well established and include contentions that open data lead to increased transparency and accountability with respect to public bodies and services; increases the efficiency and productivity of agencies and enhances their governance; promotes public participation in decision making and social innovation; and fosters economic innovation and job and wealth creation (Pollock 2006; Huijboom and Van der Broek 2011; Janssen 2012; Yiu 2012).
What is less well examined are the potential problems affecting, and negative consequences of, open data initiatives.  Consequently, as a provocation for Wednesday’s (Nov 13th, 4-6pm) Programmable City open data event I thought it might be useful to outline four critiques of open data, each of which deserves and demands critical attention: open data lacks a sustainable financial model; promotes a politics of the benign and empowers the empowered; lacks utility and usability; and facilitates the neoliberalisation and marketisation of public services.  These critiques do not suggest abandoning the move towards opening data, but contend that open data initiatives need to be much more mindful of what data are being made open, how data are made available, how they are being used, and how they are being funded.”