What patients value in data reuse for oncology research: a multi-stakeholder qualitative study to inform the European Health Data Space implementation in Belgium and beyond

Paper by Teodora Lalova-Spinks et al: “The reuse of health data is critical for advancing health research, yet it raises complex ethical, legal, and societal challenges. In the European Union, the recently adopted European Health Data Space (EHDS) aims to harmonize access to and reuse of health data for research and innovation, while safeguarding individual rights. However, questions remain about what patients value in data reuse and how their values can be embedded in governance frameworks. Belgium, with its strong research tradition and central role in EU policymaking, offers an important testbed for these questions…(More)”.