Who decides what and how data is reused? Lessons learned from youth engagement and co-design for responsible data reuse in services

Paper by Elena Murray, Moiz Raja Shaikh, Stefaan Verhulst, Hinali Doshi, Romeo Leapciuc, Perizat Mamutalieva and Mahadia Tunga: “As data-driven service delivery expands, data reuse holds significant potential to improve access to and quality of essential services for young people. However, limited youth involvement in decisions about how their data is reused risks perpetuating mistrust and deepening the inequalities that these services seek to address, particularly if young people choose to avoid seeking services or withhold critical information out of fear of misuse. Grounded in a social license approach, responsible data reuse aimed at enhancing service delivery therefore requires methodologies that meaningfully engage youth and reflect their preferences and expectations. This article presents findings from the NextGenData project, which developed and piloted a scalable methodology for engaging young people aged 19–24 in co-designing responsible data reuse strategies. Conducted as a year-long participatory action research initiative across India, Tanzania, Moldova, and Kyrgyzstan, the approach implemented youth assemblies, deliberative methods, and localised facilitation by national partners to engage young people. Through a cross-contextual analysis, this study emphasises the importance of context-sensitive, multi-phase engagement in supporting the development of a social license for data reuse and presents a publicly available toolkit designed to support the replication and adaptation of this engagement strategy in diverse contexts. Drawing on the findings, recommendations are presented for policymakers and practitioners to guide future initiatives…(More)”.