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Confronting the Challenges of Sensitive Open Data

Article by Cheryl M. Danton and Christopher Graziul: “…Data sovereignty is a critical issue for indigenous communities wary of extractive practices, a conversation that predates current debates (Kukutai and Taylor, 2016). We speak about the American context here, which is influenced by Canadian efforts to support First Nations (Carroll et al., 2020), but the tensions involved emerge in multiple contexts around the world (e.g., Australia, see Lovett et al., 2020). We cannot speak to these contexts individually but highlight relevant aspects of indigenous data sovereignty in the United States as an example.

The FAIR principles—published in 2016 to promote best practices in scientific data sharing—are designed to make data “Findable, Accessible, Interoperable, and Reusable” (Wilkinson et al., 2016). A complementary set of principles, the CARE Principles—“Collective Benefit, Authority to Control, Responsibility, and Ethics”—were developed by the International Indigenous Data Sovereignty Interest Group, through consultations with Indigenous Peoples, academic experts, government representatives, and other affected parties, in response to increasing concerns regarding the secondary use of data belonging to Indigenous communities. According to their authors, the CARE Principles integrate Indigenous worldviews that center “people” and “purpose” to address critical gaps in conventional data frameworks by ensuring that Indigenous Peoples benefit from data activities and maintain control over their data (Carroll et al., 2020)…(More)

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