Blog by Elena Murray, Moiz Shaikh, and Stefaan G. Verhulst: “Young people seeking essential services — whether mental health support, education, or government benefits — often face a critical challenge: they are asked to share their data without having a say in how it is used or for what purpose. While the responsible use of data can help tailor services to better meet their needs and ensure that vulnerable populations are not overlooked, a lack of trust in data collection and usage can have the opposite effect.
When young people feel uncertain or uneasy about how their data is being handled, they may adopt privacy-protective behaviors — choosing not to seek services at all or withholding critical information out of fear of misuse. This risks deepening existing inequalities rather than addressing them.
To build trust, those designing and delivering services must engage young people meaningfully in shaping data practices. Understanding their concerns, expectations, and values is key to aligning data use with their preferences. But how can this be done effectively?
This question was at the heart of a year-long global collaboration through the NextGenData project, which brought together partners worldwide to explore solutions. Today, we are releasing a key deliverable of that project: The Youth Engagement Toolkit for Responsible Data Reuse:
Based on a methodology developed and piloted during the NextGenData project, the Toolkit describes an innovative methodology for engaging young people on responsible data reuse practices, to improve services that matter to them…(More)”.