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Applying new models of data stewardship to health and care data

Report by the Open Data Institute: “The outbreak of the coronavirus (Covid-19) has amplified and accelerated the need for an effective technology ecosystem that benefits everyone’s health. This report explores models of ‘data stewardship’ (the collection, maintenance and sharing of data) required to enable better evaluation

The pandemic has been accompanied by a marked increase in the use of digital technology, including introduction of remote consultation in general practice, new data flows to support the distribution of food and other essentials, and applications to support digital contact tracing.

This report explores models of ‘data stewardship’ (the collection, maintenance and sharing of data) required to enable better evaluation. It argues everybody involved in technology has a shared responsibility to enable evaluation, whether that means innovators sharing data for evaluation purposes, or healthcare providers being clearer, from the outset, about what data is needed to support effective evaluation.

This report re-envisages the role of evaluators as data stewards, who could use their positions as intermediaries to encourage stakeholders to share data, and help increase access to data for public benefit…(More)”.

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