Author: Stefaan Verhulst

Four steps to precision public health

Curated on Posted on by Stefaan Verhulst
Scott F. Dowell, David Blazes & Susan Desmond-Hellmann at Nature: “When domestic transmission of Zika virus was confirmed in the United States in July 2016, the entire country was not declared at risk — nor even the entire state of Florida. Instead, precise surveillance defined two at-risk areas of Miami-Dade County, neighbourhoods measuring just 2.6 and 3.9 square kilometres. Travel advisories and mosquito control focused on those regions. Six weeks later, ongoing surveillance convinced officials to lift restrictions in one area and expand the other.

By contrast, a campaign against yellow fever launched this year in sub-Saharan Africa defines risk at the level of entire nations, often hundreds of thousands of square kilometres. More granular assessments have been deemed too complex.

The use of data to guide interventions that benefit populations more efficiently is a strategy we call precision public health. It requires robust primary surveillance data, rapid application of sophisticated analytics to track the geographical distribution of disease, and the capacity to act on such information1.

The availability and use of precise data is becoming the norm in wealthy countries. But large swathes of the developing world are not reaping its advantages. In Guinea, it took months to assemble enough data to clearly identify the start of the largest Ebola outbreak in history. This should take days. Sub-Saharan Africa has the highest rates of childhood mortality in the world; it is also where we know the least about causes of death…..

The value of precise disease tracking was baked into epidemiology from the start. In 1854, John Snow famously located cholera cases in London. His mapping of the spread of infection through contaminated water dealt a blow to the idea that the disease was caused by bad air. These days, people and pathogens move across the globe swiftly and in great numbers. In 2009, the H1N1 ‘swine flu’ influenza virus took just 35 days to spread from Mexico and the United States to China, South Korea and 12 other countries…

The public-health community is sharing more data faster; expectations are higher than ever that data will be available from clinical trials and from disease surveillance. In the past two years, the US National Institutes of Health, the Wellcome Trust in London and the Gates Foundation have all instituted open data policies for their grant recipients, and leading journals have declared that sharing data during disease emergencies will not impede later publication.

Meanwhile, improved analysis, data visualization and machine learning have expanded our ability to use disparate data sources to decide what to do. A study published last year4 used precise geospatial modelling to infer that insecticide-treated bed nets were the single most influential intervention in the rapid decline of malaria.

However, in many parts of the developing world, there are still hurdles to the collection, analysis and use of more precise public-health data. Work towards malaria elimination in South Africa, for example, has depended largely on paper reporting forms, which are collected and entered manually each week by dozens of subdistricts, and eventually analysed at the province level. This process would be much faster if field workers filed reports from mobile phones.

Sources: Ref. 8/Bill & Melinda Gates Foundation

…Frontline workers should not find themselves frustrated by global programmes that fail to take into account data on local circumstances. Wherever they live — in a village, city or country, in the global south or north — people have the right to public-health decisions that are based on the best data and science possible, that minimize risk and cost, and maximize health in their communities…(More)”

How The Tech Community Mobilized To Help Refugees

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Steven Melendez at FastCompany: “Thousands of techies the world over have banded together to help refugees flooding Europe to stay connected.

The needs of the waves of migrants from Syria, Afghanistan, and other points—more than a million in 2015—go beyond just shelter, safety, and sustenance.

“You can imagine, crossing to a border or coming to a place you don’t know. Information needs are massive,” says Alyoscia D’Onofrio, senior director at the governance technical unit of the International Rescue Committee, which assists refugees and displaced people around the world.

“One of the big differences between this crisis response and many that have gone before is that you’re got probably a much tech-savvier population on the move and probably much better access to handsets and networks.”

Helping to connect those newcomers to information—and each other—is a group of 15,000 digital volunteers who call themselves the Techfugees.

“We are here not to solve the biggest problems of hygiene, water, clean energy because these are sectors that need a lot of expertise,” says Joséphine Goube, the CEO of the nonprofit that quickly came together last year.

Instead, often with the aid of smartphones many migrants and asylum seekers bring with them, the continent’s tech community aids refugees and asylum seekers in getting back online to find their footing in unfamiliar places….

The IRC has received substantial funding from tech companies to support its efforts, and individual tech workers have flocked to dozens of conferences and hackathons organized by Techfugees around the world since an initial conference in London last October.

“We were actually overwhelmed by the response to our conference,” says Goube, “It just went viral.”

Affiliates of the group have since helped provide infrastructure for refugees to connect to Wi-Fi—even in places with limited electricity—and energize their phones through solar-powered charging hubs. They’ve also developed websites and apps to teach new arrivals everything from basic coding skills that could help them earn a living to how to navigate government bureaucracies in their new countries.

“Things that seem very trivial to us can actually be very complicated,” says Vincent Olislagers, a member of a team developing an interactive chatbot called HealthIntelligence, which is designed to provide refugees in Norway with information about using the country’s health care system. The tool was developed after the team met with a recent arrival to the country who had difficulty arranging hospital transportation for his pregnant wife due to language barriers and financial constraints.

“He had to call, for his wife, his caretaker at the refugee center,” Olislagers says. “The caretaker had to send an ambulance at the right location.”

The team is working with Norwegian health officials and refugee aid groups to ultimately make the chatbot available as part of a standard package of materials provided to refugees entering the country. The project was a finalist in an October hackathon organized by Techfugees in Oslo. The hackathon’s ultimate winner was a group called KomInn, which pairs families fluent in Norwegian with newcomers who come to their homes to practice the language over dinner. That group developed a digital tool to streamline finding matches, which had previously been a laborious process, says Goube….(More)”

neveragain.tech

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neveragain.tech: “We, the undersigned, are employees of tech organizations and companies based in the United States. We are engineers, designers, business executives, and others whose jobs include managing or processing data about people. We are choosing to stand in solidarity with Muslim Americans, immigrants, and all people whose lives and livelihoods are threatened by the incoming administration’s proposed data collection policies. We refuse to build a database of people based on their Constitutionally-protected religious beliefs. We refuse to facilitate mass deportations of people the government believes to be undesirable…..

Today we stand together to say: not on our watch, and never again.

We commit to the following actions:

  • We refuse to participate in the creation of databases of identifying information for the United States government to target individuals based on race, religion, or national origin.
  • We will advocate within our organizations:
    • to minimize the collection and retention of data that would facilitate ethnic or religious targeting.
    • to scale back existing datasets with unnecessary racial, ethnic, and national origin data.
    • to responsibly destroy high-risk datasets and backups.
    • to implement security and privacy best practices, in particular, for end-to-end encryption to be the default wherever possible.
    • to demand appropriate legal process should the government request that we turn over user data collected by our organization, even in small amounts.
  • If we discover misuse of data that we consider illegal or unethical in our organizations:
    • We will work with our colleagues and leaders to correct it.
    • If we cannot stop these practices, we will exercise our rights and responsibilities to speak out publicly and engage in responsible whistleblowing without endangering users.
    • If we have the authority to do so, we will use all available legal defenses to stop these practices.
    • If we do not have such authority, and our organizations force us to engage in such misuse, we will resign from our positions rather than comply.
  • We will raise awareness and ask critical questions about the responsible and fair use of data and algorithms beyond our organization and our industry….(More)“

21st Century Enlightenment Revisited

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Matthew Taylor at the RSA: “The French historian Tzvetan Todorov describes the three essential ideas of the Enlightenment as ‘autonomy’, ‘universalism’ and ‘humanism’. The ideal of autonomy speaks to every individual’s right to self-determination. Universalism asserts that all human beings equally deserve basic rights and dignity (although, of course, in the 18th and 19th century most thinkers restricted this ambition to educated white men). The idea of humanism is that it is up to the people – not Gods or monarchs – through the use of rational inquiry to determine the path to greater human fulfilment….

21st Century Enlightenment 

Take autonomy; too often today we think of freedom either as a shrill demand to be able to turn our backs on wider society or in the narrow possessive terms of consumerism. Yet, brain and behavioural science have confirmed the intuition of philosophers through the ages genuine autonomy is something we only attain when we become aware of our human frailties and understand our truly social nature. Of course, freedom from oppression is the base line, but true autonomy is not a right to be granted but a goal to be pursued through self-awareness and engagement in society.

What of universalism, or social justice as we now tend to think of it? In most parts of the world and certainly in the West there have been incredible advances in equal rights. Discrimination and injustice still exist, but through struggle and reform huge strides have been made in widening the Enlightenment brotherhood of rich white men to women, people of different ethnicity, homosexuals and people with disabilities. Indeed the progress in legal equality over recent decades stands in contrast to the stubborn persistence, and even worsening, of social inequality, particularly based on class.

But the rationalist universalism of human rights needs an emotional corollary. People may be careful not to use the wrong words, but they still harbour resentment and suspicion towards other groups. …

Finally, humanism or the call of progress. The utilitarian philosophy that arose from the Enlightenment spoke to the idea that, free from the religious or autocratic dogma, the best routes to human fulfilment could be identified and should be pursued. The great motors of human progress – markets, science and technology, the modern state – shifted into gear and started to accelerate. Aspects of all these phenomena, indeed of Enlightenment ideas themselves, could be found at earlier stages of human history – what was different was the way they fed off each other and became dominant. Yet, in the process, the idea that these forces could deliver progress often became elided with the assumption that their development was the same as human progress.

Today this danger of letting the engines of progress determine the direction of the human journey feels particularly acute in relation to markets and technology. There is, for example, more discussion of how humans should best adapt to AI and robots than about how technological inquiry might be aligned with human fulfilment. The hollowing out of democratic institutions has diminished the space for public debate about what progress should comprise at just the time when the pace and scale of change makes those debates particularly vital.

A twenty first century enlightenment reinstates true autonomy over narrow ideas of freedom, it asserts a universalism based not just on legal status but on empathy and social connection and reminds us that humanism should lie at the heart of progress.

Think like a system act like an entrepreneur

There is one new strand I want to add to the 2010 account. In the face of many defeats, we must care as much about how we achieve change as about the goals we pursue. At the RSA we talk about ‘thinking like a system and acting like an entrepreneur’, a method which seeks to avoid the narrowness and path dependency of so many unsuccessful models of change. To alter the course our society is now on we need more fully to understand the high barriers to change but then to act more creatively and adaptively when we spot opportunities to take a different path….(More)”

Solving some of the world’s toughest problems with the Global Open Policy Report

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 at Creative Commons: “Open Policy is when governments, institutions, and non-profits enact policies and legislation that makes content, knowledge, or data they produce or fund available under a permissive license to allow reuse, revision, remix, retention, and redistribution. This promotes innovation, access, and equity in areas of education, data, software, heritage, cultural content, science, and academia.

For several years, Creative Commons has been tracking the spread of open policies around the world. And now, with the new Global Open Policy Report (PDF) by the Open Policy Network, we’re able to provide a systematic overview of open policy development.

screen-shot-2016-12-02-at-5-57-09-pmThe first-of-its-kind report gives an overview of open policies in 38 countries, across four sectors: education, science, data and heritage. The report includes an Open Policy Index and regional impact and local case studies from Africa, the Middle East, Asia, Australia, Latin America, Europe, and North America. The index measures open policy strength on two scales: policy strength and scope, and level of policy implementation. The index was developed by researchers from CommonSphere, a partner organization of CC Japan.

The Open Policy Index scores were used to classify countries as either Leading, Mid-Way, or Delayed in open policy development. The ten countries with the highest scores are Argentina, Bolivia, Chile, France, Kyrgyzstan, New Zealand, Poland, South Korea, Tanzania, and Uruguay…(More)

Towards a transparency ontology in the context of open government

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Rui Pedro Lourenço, Susana Jorge and Helena Rolas at Electronic Government: “Several open government initiatives have been launched to make available online data enhancing accountability of public officials towards ordinary citizens. However, these initiatives raise several questions, namely: Which data should be disclosed? How to bring together dispersed (fragmented) data? How to improve its understandability by ordinary citizens? Literature shows that, in general, the data selection process does not take into account ordinary citizens’ expectations and information needs. This paper presents the development process of a transparency ontology, which aims to provide an answer to the above questions, in what concerns public sector entities’ use of resources. The process started by creating a list of relevant expressions/terms discussed in national and local newspapers, considering the role of journalists as ‘information brokers’ acting on behalf of ordinary citizens. This list was externally validated for relevance, comprehensiveness and improvements by interviewing journalists, and the resulting transparency ontology was formalised using OWL and Protégé….(More)”.

Data Does Good

Curated on Posted on by Stefaan Verhulst

FastCoExist: “If you don’t have extra money or time to give to charity, a new startup suggests donating something else: yourself. More specifically, your (anonymized) shopping data.

Data Does Good, a benefit corporation, lets users choose a nonprofit to support and link up their Amazon shopping history. The startup’s system automatically strips away personal information, then aggregates it with other data for sale. Each year, your chosen nonprofit gets a $15 donation.

“We both had experience working with consumer data and knew how valuable online shopping information had become,” says Scott Steinberg, who co-founded Data Does Good with fellow Stanford Graduate School of Business grad Eric Peter.

“We also noticed that most consumers weren’t aware they owned this information or that it could be used to their benefit,” he says. “So, we started talking about finding ways to help people take ownership over their data and help them see their shopping data as a valuable resource, rather than something to be feared.”

You “own” your digital shopping data the same way that you own traditional paper receipts from physical stores, but since online data can easily be aggregated, it has more value. Virtually any app or website you use collects data about you—for better or worse—but Amazon, as the largest online retailer, has particularly valuable data for any company that wants to sell anything….

With mass participation, the model could dramatically increase funding for nonprofits while donors’ bank accounts remain unchanged….(More)”

The Government Isn’t Doing Enough to Solve Big Problems with AI

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Mike Orcutt at MIT Technology Review: “The government should play a bigger role in developing new tools based on artificial intelligence, or we could miss out on revolutionary applications because they don’t have obvious commercial upside.

That was the message from prominent AI technologists and researchers at a Senate committee hearing last week. They agreed that AI is in a crucial developmental moment, and that government has a unique opportunity to shape its future. They also said that the government is in a better position than technology companies to invest in AI applications aimed at broad societal problems.

Today just a few companies, led by Google and Facebook, account for the lion’s share of AI R&D in the U.S. But Eric Horvitz, technical fellow and managing director of Microsoft Research, told the committee members that there are important areas that are rich and ripe for AI innovation, such as homelessness and addiction, where the industry isn’t making big investments. The government could help support those pursuits, Horvitz said.

For a more specific example, take the plight of a veteran seeking information online about medical options, says Andrew Moore, dean of the school of computer science at Carnegie Mellon University. If an application that could respond to freeform questions, search multiple government data sets at once, and provide helpful information about a veteran’s health care options were commercially attractive, it might be available already, he says.

There is a “real hunger for basic research” says Greg Brockman, cofounder and chief technology officer of the nonprofit research company OpenAI, because technologists understand that they haven’t made the most important advances yet. If we continue to leave the bulk of it to industry, not only could we miss out on useful applications, but also on the chance to adequately explore urgent scientific questions about ethics, safety, and security while the technology is still young, says Brockman. Since the field of AI is growing “exponentially,” it’s important to study these things now, he says, and the government could make that a “top line thing that they are trying to get done.”….(More)”.

Arcep goes forward with crowdsourcing data for regulation in France

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IIC: “France’s regulator, Arcep, says it is taking another step towards crowdsourcing to reflect users’ experience as accurately as possible, as part of a data-centric approach to regulation. It says it has decided to bring changes to its scoreboards on network and service coverage and quality, to provide users with more reliable and more representative measurements of fixed internet access and telephone services. To this end, it intends to make use of new digital tools that will enable any user to obtain a reliable, objective and reproducible measurement of how their individual access is performing. Crowdsourcing instruments will also allow Arcep to obtain a wealth of collaboratively produced information, which will help in identifying any market failures.

The objective over time: to reflect the user experience as accurately as possible, as part of a data-centric approach to regulation. “The aim of making information transparent is to allow citizen-consumers to steer the market”. To be able to commit fully to this new approach, an adjustment must be made to the current regulatory framework, and Arcep has launched a public consultation on a draft decision, amending the framework decision of 2013 on measuring and publishing fixed service QoS indicators. In particular, provisions regarding the quality of fixed internet access and telephone services, which have become superfluous, will be removed starting in the second half of 2017….(More)”

Social Movements and World-System Transformation

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Book edited by Jackie Smith, Michael Goodhart, Patrick Manning, and John Markoff: “At a particularly urgent world-historical moment, this volume brings together some of the leading researchers of social movements and global social change and other emerging scholars and practitioners to advance new thinking about social movements and global transformation. Social movements around the world today are responding to crisis by defying both political and epistemological borders, offering alternatives to the global capitalist order that are imperceptible through the modernist lens. Informed by a world-historical perspective, contributors explain today’s struggles as building upon the experiences of the past while also coming together globally in ways that are inspiring innovation and consolidating new thinking about what a fundamentally different, more equitable, just, and sustainable world order might look like.

This collection offers new insights into contemporary movements for global justice, challenging readers to appreciate how modernist thinking both colors our own observations and complicates the work of activists seeking to resolve inequities and contradictions that are deeply embedded in Western cultural traditions and institutions. Contributors consider today’s movements in the longue durée—that is, they ask how Occupy Wall Street, the Arab Spring, and other contemporary struggles for liberation reflect, build upon, or diverge from anti-colonial and other emancipatory struggles of the past. Critical to this volume is its exploration of how divisions over gender equity and diversity of national cultures and class have impacted what are increasingly intersectional global movements. The contributions of feminist and indigenous movements come to the fore in this collective exploration of what the movements of yesterday and today can contribute to our ongoing effort to understand the dynamics of global transformation in order to help advance a more equitable, just, and ecologically sustainable world….(More)”.

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