Crowdsourcing, Citizen Science, and Data-sharing

Curated on Posted on by Stefaan Verhulst

Sapien Labs: “The future of human neuroscience lies in crowdsourcing, citizen science and data sharing but it is not without its minefields.

A recent Scientific American article by Daniel Goodwin, “Why Neuroscience Needs Hackers,” makes the case that neuroscience, like many fields today, is drowning in data, begging for application of advances in computer science like machine learning. Neuroscientists are able to gather realms of neural data, but often without big data mechanisms and frameworks to synthesize them.

The SA article describes the work of Sebastian Seung, a Princeton neuroscientist, who recently mapped the neural connections of the human retina from an “overwhelming mass” of electron microscopy data using state of the art A.I. and massive crowd-sourcing. Seung incorporated the A.I. into a game called “Eyewire” where 1,000s of volunteers scored points while improving the neural map.   Although the article’s title emphasizes advanced A.I., Dr. Seung’s experiment points even more to crowdsourcing and open science, avenues for improving research that have suddenly become easy and powerful with today’s internet. Eyewire perhaps epitomizes successful crowdsourcing — using an application that gathers, represents, and analyzes data uniformly according to researchers’ needs.

Crowdsourcing is seductive in its potential but risky for those who aren’t sure how to control it to get what they want. For researchers who don’t want to become hackers themselves, trying to turn the diversity of data produced by a crowd into conclusive results might seem too much of a headache to make it worthwhile. This is probably why the SA article title says we need hackers. The crowd is there but using it depends on innovative software engineering. A lot of researchers could really use software designed to flexibly support a diversity of crowdsourcing, some AI to enable things like crowd validation and big data tools.

The Potential

The SA article also points to Open BCI (brain-computer interface), mentioned here in other posts, as an example of how traditional divisions between institutional and amateur (or “citizen”) science are now crumbling; Open BCI is a community of professional and citizen scientists doing principled research with cheap, portable EEG-headsets producing professional research quality data. In communities of “neuro-hackers,” like NeurotechX, professional researchers, entrepreneurs, and citizen scientists are coming together to develop all kinds of applications, such as “telepathic” machine control, prostheses, and art. Other companies, like Neurosky sell EEG headsets and biosensors for bio-/neuro-feedback training and health-monitoring at consumer affordable pricing. (Read more in Citizen Science and EEG)

Tan Le, whose company Emotiv Lifesciences, also produces portable EEG head-sets, says, in an article in National Geographic, that neuroscience needs “as much data as possible on as many brains as possible” to advance diagnosis of conditions such as epilepsy and Alzheimer’s. Human neuroscience studies have typically consisted of 20 to 50 participants, an incredibly small sampling of a 7 billion strong humanity. For a single lab to collect larger datasets is difficult but with diverse populations across the planet real understanding may require data not even from thousands of brains but millions. With cheap mobile EEG-headsets, open-source software, and online collaboration, the potential for anyone can participate in such data collection is immense; the potential for crowdsourcing unprecedented. There are, however, significant hurdles to overcome….(More)”

Prisoners use VR programme as a rehabilitation tool

Curated on Posted on by Stefaan Verhulst

Springwise: “The global prison population currently totals 10.5 million, and while many countries including the UK and US have seen a steady decline in crime rates over the past decade, the rate of reoffending prisoners has increased. About two-thirds of released prisoners in the US are rearrested within three years of release, and about three-quarters of released prisoners were rearrested within five. Virtual Rehab is a new project that seeks to rehabilitate inmates using VR technology.

Virtual Rehab’s interactive tool includes education on a broad range of themes, from family violence and sexual offences to psychological challenges including mental & emotional disorders. The programme works by placing the prisoner into interactive role play scenarios which reverse the aggressor / victim roles, propelling the prisoner into the skin of an assaulted person with the aim of developing empathy. The programme also includes formal education and vocational job training, developing professional skills to help ex-offenders thrive in the real world. …

Virtual reality has already had an impact in various areas related to rehabilitation, including in the treatment of conditions such as PTSD and anxiety. At Springwise, we recently covered two programmes (a glove and an online platform) that use online gaming to support the recovery of patients….(More)”

Rule by the lowest common denominator? It’s baked into democracy’s design

Curated on Posted on by Stefaan Verhulst

 in The Conversation: “The Trump victory, and the general disaster for Democrats this year, was the victory of ignorance, critics moan.

Writing in Foreign Policy, Georgetown’s Jason Brennan called it “the dance of the dunces” and wrote that “Trump owes his victory to the uninformed.”…

For liberals, Trump’s victory was the triumph of prejudice, bigotry and forces allied against truth and expertise in politics, science and culture at large. Trump brandishes unconcern for traditional political wisdom and protocol – much less facts – like a badge of honor, and his admirers roar with glee. His now famous rallies, the chastened media report, are often scary, sometimes giving way to violence, sometimes threatening to spark broader recriminations and social mayhem. This is a glimpse of how tyrants rise to power, some political minds worry; this is how tyrants enlist the support of rabid masses, and get them to do their bidding.

For the contemporary French philosopher Jacques Rancière, however, the Trump victory provides a useful reminder of the essential nature of democracy – a reminder of what precisely makes it vibrant. And liable to lapse into tyranny at once….

Democracy is rule by the rabble, in Plato’s view. It is the rule by the lowest common denominator. In a democracy, passions are inflamed and proliferate. Certain individuals may take advantage of and channel the storm of ignorance, Plato feared, and consolidate power out of a desire to serve their own interests.

As Rancière explains, there is a “scandal of democracy” for Plato: The best and the high born “must bow before the law of chance” and submit to the rule of the inexpert, the commoner, who knows little about politics or much else.

Merit ought to decide who rules, in Plato’s account. But democracy consigns such logic to the dustbin. The rabble may decide they want to be ruled by one of their own – and electoral conditions may favor them. Democracy makes it possible that someone who has no business ruling lands at the top. His rule may prove treacherous, and risk dooming the state. But, Rancière argues, this is a risk democracies must take. Without it, they lack legitimacy….

Rancière maintains people more happily suffer authority ascribed by chance than authority consigned by birth, merit or expertise. Liberals may be surprised about this last point. According to Rancière, expertise is no reliable, lasting or secure basis for authority. In fact, expertise soon loses authority, and with it, the legitimacy of the state. Why?…(More)”

Public Sector Entrepreneurship and the Integration of Innovative Business Models

Curated on Posted on by Stefaan Verhulst

Book edited by Mateusz Lewandowski and Barbara Kożuch: “While private, for-profit businesses have typically been the most experienced with entrepreneurship, the study of public sector business models is coming to the forefront of entrepreneurial discussions. This shift has allowed researchers and practitioners to expand on their knowledge of positive business choices and paved the way for more profitable business empires.

Public Sector Entrepreneurship and the Integration of Innovative Business Models is a comprehensive source of academic research that discusses the latest entrepreneurial strategies, achievements, and challenges in public sector contexts. Highlighting relevant topics such as public management, crowdsourcing, municipal cooperation, and public sector marketing, this is an ideal resource for managers, practitioners, researchers, and professionals interested in learning more about public sector business ideals, and how these models are shaping positive entrepreneurial communities around the world….(More)”

Towards a sociology of institutional transparency: openness, deception, and the problem of public trust

Curated on Posted on by Stefaan Verhulst

S. Moore in Sociology: “Transparency has become the watchword of twenty-first century liberal democracies. It refers to a project of ‘opening up’ the state by providing online access to public sector data. This article puts forward a sociological critique of the transparency agenda and the purported relationship between institutional openness and public trust. Drawing upon Simmel’s (1906) work, the article argues that open government initiatives routinely prize visibility over intelligibility and ignore the communicative basis of trust. The result is a non-reciprocal form of openness that obscures more than it reveals. In making this point, the article suggests that transparency embodies the ethos of a now-discredited mode of ‘instrumental politics’, reliant on the idea that the state constitutes a ‘domain of plain public facts’ (Ezrahi, 2004: 106). The article examines how alternative mechanisms for achieving government openness might better respond to the distinctive needs of citizens living in late modern societies….(More)”.

Data capitalism is cashing in on our privacy . . . for now

Curated on Posted on by Stefaan Verhulst

John Thornhill in the Financial Times: “The buzz at last week’s Consumer Electronics Show in Las Vegas was all about connectivity and machine learning. …The primary effect of these consumer tech products seems limited — but we will need to pay increasing attention to the secondary consequences of these connected devices. They are just the most visible manifestation of a fundamental transformation that is likely to shape our societies far more than Brexit, Donald Trump or squabbles over the South China Sea. It concerns who collects, owns and uses data. The subject of data is so antiseptic that it seldom generates excitement. To make it sound sexy, some have described data as the “new oil”, fuelling our digital economies. In reality, it is likely to prove far more significant than that. Data are increasingly determining economic value, reshaping the practice of power and intruding into the innermost areas of our lives. Some commentators have suggested that this transformation is so profound that we are moving from an era of financial capitalism into one of data capitalism. The Israeli historian Yuval Noah Harari even argues that Dataism, as he calls it, can be compared with the birth of a religion, given the claims of its most fervent disciples to provide universal solutions. …

Sir Nigel Shadbolt, co-founder of the Open Data Institute, argues in a recent FT TechTonic podcast that it is too early to give up on privacy…The next impending revolution, he argues, will be about giving consumers control over their data. Considering the increasing processing power and memory capacity of smartphones, he believes new models of data collection and more localised use may soon gain traction. One example is the Blue Button service used by US veterans, which allows individuals to maintain and update their medical records. “That has turned out to be a really revolutionary step,” he says. “I think we are going to see a lot more of that kind of re-empowering.” According to this view, we can use data to create a far smarter world without sacrificing precious rights. If we truly believe in such a benign future, we had better hurry up and invent it….(More)”

Chasing Shadows: Visions of Our Coming Transparent World

Curated on Posted on by Stefaan Verhulst

A science fiction and tech-vision anthology “about the coming era of transparency in the information age” edited by David Brin & Stephen W. Potts: “Young people log their lives with hourly True Confessions. Cops wear lapel-cams and spy agencies peer at us — and face defections and whistle blowers. Bank records leak and “uncrackable” firewalls topple. As we debate internet privacy, revenge porn, the NSA, and Edward Snowden, cameras get smaller, faster, and more numerous.

Has Orwell’s Big Brother finally come to pass? Or have we become a global society of thousands of Little Brothers — watching, judging, and reporting on one another?

Partnering with the Arthur C. Clarke Center for Human Imagination, and inspired by Brin’s nonfiction book, The Transparent Society: Will Technology Make Us Choose Between Privacy and Freedom?, noted author and futurist David Brin and scholar Stephen W. Potts have compiled essays and short stories from writers such as Robert J. Sawyer, James Morrow, William Gibson, Damon Knight, Jack McDevitt, and many others to examine the benefits and pitfalls of technological transparency in all its permutations.

Among the many questions…

  • Do we answer surveillance with sousveillance, shining accountability upward?
  • Will we spiral into busybody judgmentalism? Or might people choose to leave each other alone?
  • Will empathy increase or decrease in a more transparent world?
  • What if we could own our information, and buy and sell it in a web bazaar?…(More)”

From Servants to Stewards: Design-led Innovation in the Public Sector

Curated on Posted on by Stefaan Verhulst

Adam Hasler: “For years, and very acutely the last few months, citizens of the United States and in many other parts of the world have been pitched into an often uncomfortable morass of debate and discussion about the direction of their country. Problems exist, and persist, which government at all levels has tried to address or currently addresses, and government’s efficacy at addressing problems affects all of us in some way. At such an historical moment like the one in which we live, in which a competing visions of government excite or frighten so many, we remember how much government matters to us.

A very powerful anecdote told to a crowd of listeners at Harvard recently recounted how, during a United States Digital Service project, the prototype for a project delivered to a decision maker and her team didn’t include a feature that was very clearly dictated to them in the requirements. The head of the United States Digital Service team that facilitated the project received an angry call summoning her to the director’s office. There, the policy maker who had added the requirement asked for an explanation why the prototype didn’t meet requirements. “We described to her that we actually took this prototype to a school, and had people use it. It wasn’t a feature they wanted or used, so it didn’t make sense to build it.” The simple common sense of the logic of design-thinking immediately resonated with the policy maker. “Yeah, we shouldn’t build it if they don’t need it.” She stopped for a moment, and continued, “Oh my gosh, this is great, we should do everything like this, we should make policy like this!”

“Yeah, we shouldn’t build it if they don’t need it.” She stopped for a moment, and continued, “Oh my gosh, this is great! We should do everything like this! We should make policy like this!”

This story demonstrates how a growing movement within governments around the world has begun improve the public sector through design-led innovation. This article, presented in four parts, explores various aspects of that movement. To get right to it, the “design” in design-led innovation refers in this work specifically to design thinking, or the idea that design is a process, rather than a domain of outputs. You’ll see that I advocate strongly for a particular design process known as human-centered design, commonly referred to as HCD. HCD is a process made up of alternating divergence and convergence by which an individual or team starts by empathetically understanding a problem through close interaction with the people that experience it. The team then extends that co-creation to the solution phase, and experiments with ideas originating from both the team the humans who have the problem. It relies heavily on prototyping and small-scale releases of potential solutions to facilitate multiple iterations and get as close as possible to a solution whose effectiveness the team measures relative to its ability to solve the original problem. This may represent a bit of a switch to some: rather than become enamored of and advocate for a favored genius idea, many of today’s best designers fall in love with the problem, and don’t rest until a solution, originating from anywhere, gets it closer to solved.

I define innovation here as the process of developing and cultivating new ideas, often from individuals throughout an organization and even outside of it, thereby maximizing the potential of all of the resources at an organization’s disposal and often breaking down organizational silos. The marriage of innovation and design thinking suggests a strategy in which innovation encourages new ideas and helps an organization adapt to ever-changing conditions, and a transparent process that helps to develop a deep understanding of a problem, decreases cost and mitigates the risk of releasing something that doesn’t solve the problem, and provides a mechanism for questioning the system itself.

This work culminates an introductory research project for me. At the heart of the work is the question, “How can design thinking and innovation improve public sector effectiveness, provide more opportunities for rewarding political participation, and facilitate the pursuit of ambitious, shared goals that move us into the future?…(More)”

Notable Privacy and Security Books from 2016

Curated on Posted on by Stefaan Verhulst

Daniel J. Solove at Technology, Academics, Policy: “Here are some notable books on privacy and security from 2016….

Chris Jay Hoofnagle, Federal Trade Commission Privacy Law and Policy

From my blurb: “Chris Hoofnagle has written the definitive book about the FTC’s involvement in privacy and security. This is a deep, thorough, erudite, clear, and insightful work – one of the very best books on privacy and security.”

My interview with Hoofnagle about his book: The 5 Things Every Privacy Lawyer Needs to Know about the FTC: An Interview with Chris Hoofnagle

My further thoughts on the book in my interview post above: “This is a book that all privacy and cybersecurity lawyers should have on their shelves. The book is the most comprehensive scholarly discussion of the FTC’s activities in these areas, and it also delves deep in the FTC’s history and activities in other areas to provide much-needed context to understand how it functions and reasons in privacy and security cases. There is simply no better resource on the FTC and privacy. This is a great book and a must-read. It is filled with countless fascinating things that will surprise you about the FTC, which has quite a rich and storied history. And it is an accessible and lively read too – Chris really makes the issues come alive.”

Gary T. Marx, Windows into the Soul: Surveillance and Society in an Age of High Technology

From Peter Grabosky: “The first word that came to mind while reading this book was cornucopia. After decades of research on surveillance, Gary Marx has delivered an abundant harvest indeed. The book is much more than a straightforward treatise. It borders on the encyclopedic, and is literally overflowing with ideas, observations, and analyses. Windows into the Soul commands the attention of anyone interested in surveillance, past, present, and future. The book’s website contains a rich abundance of complementary material. An additional chapter consists of an intellectual autobiography discussing the author’s interest in, and personal experience with, surveillance over the course of his career. Because of its extraordinary breadth, the book should appeal to a wide readership…. it will be of interest to scholars of deviance and social control, cultural studies, criminal justice and criminology. But the book should be read well beyond the towers of academe. The security industry, broadly defined to include private security and intelligence companies as well as state law enforcement and intelligence agencies, would benefit from the book’s insights. So too should it be read by those in the information technology industries, including the manufacturers of the devices and applications which are central to contemporary surveillance, and which are shaping our future.”

Susan C. Lawrence, Privacy and the Past: Research, Law, Archives, Ethics

From the book blurb: “When the new HIPAA privacy rules regarding the release of health information took effect, medical historians suddenly faced a raft of new ethical and legal challenges—even in cases where their subjects had died years, or even a century, earlier. In Privacy and the Past, medical historian Susan C. Lawrence explores the impact of these new privacy rules, offering insight into what historians should do when they research, write about, and name real people in their work.”

Ronald J. Krotoszynski, Privacy Revisited: A Global Perspective on the Right to Be Left Alone

From Mark Tushnet: “Professor Krotoszynski provides a valuable overview of how several constitutional systems accommodate competing interests in privacy, speech, and democracy. He shows how scholarship in comparative law can help one think about one’s own legal system while remaining sensitive to the different cultural and institutional settings of each nation’s law. A very useful contribution.”

Laura K. Donohue, The Future of Foreign Intelligence: Privacy and Surveillance in a Digital Age…

Gordon Corera, Cyberspies: The Secret History of Surveillance, Hacking, and Digital Espionage…

J. Macgregor Wise, Surveillance and Film…(More; See also Nonfiction Privacy + Security Books).

Cancer Research Orgs Release Big Data for Precision Medicine

Curated on Posted on by Stefaan Verhulst

 at HealthITAnalytics: “The American Association for Cancer Research (AACR) is releasing more than 19,000 de-identified genomic records to further the international research community’s explorations into precision medicine.

The big data dump, which includes information on 59 major types of cancer, including breast, colorectal, and lung cancer, is a result of the AACR Project Genomics Evidence Neoplasia Information Exchange (GENIE) initiative, and includes both genomic and some clinical data on consenting patients….

“These data were generated as part of routine patient care and without AACR Project GENIE they would likely never have been shared with the global cancer research community.”

Eight cancer research institutions, including five based in the United States, have contributed to the first phase of the GENIE project.  Dana-Farber Cancer Institute in Boston, Memorial Sloan Kettering Cancer Center in New York City, and the University of Texas MD Anderson Cancer Center in Houston are among the collaborators.

Alongside institutions in Paris, the Netherlands, Toronto, Nashville, and Baltimore, these organizations aim to expand the research community’s knowledge of cancer and its potential treatments by continuing to make the exchange of high-grade clinical data a top priority.

“We are committed to sharing not only the real-world data within the AACR Project GENIE registry but also our best practices, from tips about assembling an international consortium to the best variant analysis pipeline, because only by working together will information flow freely and patients benefit rapidly,” Sawyers added…

Large-scale initiatives like the AACR Project GENIE, alongside separate data collection efforts like the VA’s Million Veterans Project, the CancerLinQ platform, Geisinger Health System’s MyCode databank, and the nascent PMI Cohort, will continue to make critical genomic and clinical data available to investigators across the country and around the world…(More)”.