Collection

#OpenZika project

Curated on June 1, 2016August 3, 2018 by Stefaan Verhulst

World Community Grid: “In February 2016, the World Health Organization declared the Zika virus to be a global public health emergency due to its rapid spread and new concerns about its link to a rise in neurological conditions.

The virus is rapidly spreading in new geographic areas such as the Americas, where people have not been previously exposed to the disease and therefore have little immunity to it. In April 2016, the Centers for Disease Control announced that a rise in severe neurological disorders, especially in children, has been linked to the Zika virus. Some pregnant women who have contracted the Zika virus have given birth to infants with a condition called microcephaly, which results in brain development issues typically leading to severe mental deficiencies. In other cases, paralysis and other neurological problems can occur, even in adults.

Problem

Currently, there is no vaccine to provide immunity to the disease and no antiviral drug for curing Zika, although various efforts are underway. Even though the virus was first identified in 1947, there has been little research since then, because the symptoms of the infection are usually mild. However, new data on links between Zika and microcephaly or other neurological issues have revealed that the disease may not be so benign, prompting the need for intensified research efforts.

Proposed Solution

The OpenZika project on World Community Grid aims to identify drug candidates to treat the Zika virus in someone who has been infected. The project will target proteins that the Zika virus likely uses to survive and spread in the body, based on what is known from similar diseases, such as dengue virus and yellow fever. In order to develop an anti-Zika drug, researchers need to identify which of millions of chemical compounds might be effective at interfering with these key proteins. The effectiveness of each compound will be tested in virtual experiments, called “docking calculations,” performed on World Community Grid volunteers’ computers and Android devices. These calculations would help researchers focus on the most likely compounds that may eventually lead to an antiviral medicine….(More)”

Real-Time Data Can Improve Traffic Management in Major Cities

Curated on June 1, 2016August 3, 2018 by Stefaan Verhulst

World Bank: “Traffic management agencies and city planners will soon have access to real-time data to better manage traffic flows on the streets of Cebu City and Metro Manila.

Grab, The World Bank, and the Department of Transportation and Communications (DOTC) launched today the OpenTraffic initiative, which will help address traffic congestion and road safety challenges.

Grab is the leading ride-hailing platform in Southeast Asia and operates in 30 cities across six countries – Singapore, Indonesia, Philippines, Malaysia, Thailand, and Vietnam.

Grab and the World Bank have been developing free, open-source tools that translate Grab’s voluminous driver GPS data into traffic statistics, including speeds, flows, and intersection delays. These statistics power big data open source tools such as OpenTraffic, for analysing traffic speeds and flows, and DRIVER, for identifying road incident blackspots and improving emergency response. Grab and the World Bank plan to make OpenTraffic available to other Southeast Asian city governments in the near future.

“Using big data is one of the potential solutions to the challenges faced by our transport systems. Through this we can provide accurate, real-time information for initiatives that can help alleviate traffic congestion and improve road safety,” said DOTC Secretary Joseph Emilio A. Abaya.

Last month, the World Bank and DOTC helped train more than 200 government staff from the agency, the Philippine National Police (PNP), the Metro Manila Development Authority (MMDA), the Department of Public Works and Highways (DPWH), and the Cebu City Transportation Office on the use of the OpenTraffic platform….In the near future, traffic statistics derived through OpenTraffic will be fed into another application called “DRIVER” or Data for Road Incident Visualization, Evaluation, and Reporting for road incident recording and analysis. This application, developed by the World Bank, will help engineering units to prioritize crash-prone areas for interventions and improve emergency response….(More)”

All European scientific articles to be freely accessible by 2020

Curated on June 1, 2016August 3, 2018 by Stefaan Verhulst

EU Presidency: “All scientific articles in Europe must be freely accessible as of 2020. EU member states want to achieve optimal reuse of research data. They are also looking into a European visa for foreign start-up founders.

And, according to the new Innovation Principle, new European legislation must take account of its impact on innovation. These are the main outcomes of the meeting of the Competitiveness Council in Brussels on 27 May.

Sharing knowledge freely

Under the presidency of Netherlands State Secretary for Education, Culture and Science Sander Dekker, the EU ministers responsible for research and innovation decided unanimously to take these significant steps. Mr Dekker is pleased that these ambitions have been translated into clear agreements to maximise the impact of research. ‘Research and innovation generate economic growth and more jobs and provide solutions to societal challenges,’ the state secretary said. ‘And that means a stronger Europe. To achieve that, Europe must be as attractive as possible for researchers and start-ups to locate here and for companies to invest. That calls for knowledge to be freely shared. The time for talking about open access is now past. With these agreements, we are going to achieve it in practice.’

Open access

Open access means that scientific publications on the results of research supported by public and public-private funds must be freely accessible to everyone. That is not yet the case. The results of publicly funded research are currently not accessible to people outside universities and knowledge institutions. As a result, teachers, doctors and entrepreneurs do not have access to the latest scientific insights that are so relevant to their work, and universities have to take out expensive subscriptions with publishers to gain access to publications.

Reusing research data

From 2020, all scientific publications on the results of publicly funded research must be freely available. It also must be able to optimally reuse research data. To achieve that, the data must be made accessible, unless there are well-founded reasons for not doing so, for example intellectual property rights or security or privacy issues….(More)”

Time for sharing data to become routine: the seven excuses for not doing so are all invalid

Curated on May 30, 2016October 24, 2018 by Stefaan Verhulst

Paper by Richard Smith and Ian Roberts: “Data are more valuable than scientific papers but researchers are incentivised to publish papers not share data. Patients are the main beneficiaries of data sharing but researchers have several incentives not to share: others might use their data to get ahead in the academic rat race; they might be scooped; their results might not be replicable; competitors may reach different conclusions; their data management might be exposed as poor; patient confidentiality might be breached; and technical difficulties make sharing impossible. All of these barriers can be overcome and researchers should be rewarded for sharing data. Data sharing must become routine….(More)”

If you build it… will they come?

Curated on May 27, 2016August 3, 2018 by Stefaan Verhulst

Laura Bacon at Omidyar Network: “What do datasets on Danish addresses, Indonesian elections, Singapore Dengue Fever, Slovakian contracts, Uruguayan health service provision, and Global weather systems have in common? Read on to learn more…

On May 12, 2016, more than 40 nations’ leaders gathered in London for an Anti-Corruption Summit, convened by UK Prime Minister David Cameron. Among the commitments made, 40 countries pledged to make their procurement processes open by default, with 14 countries specifically committing to publish to the Open Contracting Data Standard.

This conference and these commitments can be seen as part of a larger global norm toward openness and transparency, also embodied by the Open Government Partnership, Open Data Charter, and increasing numbers of Open Data Portals.

As government data is increasingly published openly in the public domain, valid questions have been raised about what impact the data will have: As governments release this data, will it be accessed and used? Will it ultimately improve lives, root out corruption, hold answers to seemingly intractable problems, and lead to economic growth?*

Omidyar Network — having supported several Open Data organizations and platforms such as Open Data Institute, Open Knowledge, and Web Foundation — sought data-driven answers to these questions. After a public call for proposals, we selected NYU’s GovLab to conduct research on the impact open data has already had. Not the potential or prospect of impact, but past proven impact. The GovLab research team, led by Stefaan Verhulst, investigated a variety of sectors — health, education, elections, budgets, contracts, etc. — in a variety of locations, spanning five continents.

Their findings are promising and exciting, demonstrating that open data is changing the world by empowering people, improving governance, solving public problems, and leading to innovation. A summary is contained in thisKey Findings report, and is accompanied by many open data case studies posted in this Open Data Impact Repository.

Of course, stories such as this are not 100% rosy, and the report is clear about the challenges ahead. There are plenty of cases in which open data has had minimal impact. There are cases where there was negative impact. And there are obstacles to open data reaching its full potential: namely, open data projects that don’t respond to citizens’ questions and needs, a lack of technical capacity on either the data provider and data user side, inadequate protections for privacy and security, and a shortage of resources.

But this research holds good news: Danish addresses, Indonesian elections,Singapore Dengue Fever, Slovakian contracts, Uruguayan health service provision, Global weather systems, and others were all opened up. And all changed the world by empowering citizens, improving governance, solving public problems, and leading to innovation. Please see this report for more….(More)”

Data Science Ethical Framework

Curated on May 26, 2016November 14, 2018 by Stefaan Verhulst

UK Cabinet Office: “Data science provides huge opportunities for government. Harnessing new forms of data with increasingly powerful computer techniques increases operational efficiency, improves public services and provides insight for better policymaking.

We want people in government to feel confident using data science techniques to innovate. This guidance is intended to bring together relevant laws and best practice, to give teams robust principles to work with.

The publication is a first version that we are asking the public, experts, civil servants and other interested parties to help us perfect and iterate. This will include taking on evidence from a public dialogue on data science ethics. It was published on 19 May by the Minister for Cabinet Office, Matt Hancock. If you would like to help us iterate the framework, find out how to get in touch at the end of this blog. See Data Science Ethical Framework (PDF, 8.28MB, 17 pages). This file may not be suitable for users of assistive technology. Request an accessible format.“

Improving patient care by bridging the divide between doctors and data scientists

Curated on May 26, 2016August 3, 2018 by Stefaan Verhulst

Leo Anthony Celi at the Conversation: “While wonderful new medical discoveries and innovations are in the news every day, doctors struggle daily with using information and techniques available right now while carefully adopting new concepts and treatments. As a practicing doctor, I deal with uncertainties and unanswered clinical questions all the time….At the moment, a report from the National Academy of Medicine tells us, most doctors base most of their everyday decisions on guidelines from (sometimes biased) expert opinions or small clinical trials. It would be better if they were from multicenter, large, randomized controlled studies, with tightly controlled conditions ensuring the results are as reliable as possible. However, those are expensive and difficult to perform, and even then often exclude a number of important patient groups on the basis of age, disease and sociological factors.

Part of the problem is that health records are traditionally kept on paper, making them hard to analyze en masse. As a result, most of what medical professionals might have learned from experiences was lost – or at least was inaccessible to another doctor meeting with a similar patient.

A digital system would collect and store as much clinical data as possible from as many patients as possible. It could then use information from the past – such as blood pressure, blood sugar levels, heart rate and other measurements of patients’ body functions – to guide future doctors to the best diagnosis and treatment of similar patients.

Industrial giants such as Google, IBM, SAP and Hewlett-Packard have also recognized the potential for this kind of approach, and are now working on how to leverage population data for the precise medical care of individuals.

Collaborating on data and medicine

At the Laboratory of Computational Physiology at the Massachusetts Institute of Technology, we have begun to collect large amounts of detailed patient data in the Medical Information Mart in Intensive Care (MIMIC). It is a database containing information from 60,000 patient admissions to the intensive care units of the Beth Israel Deaconess Medical Center, a Boston teaching hospital affiliated with Harvard Medical School. The data in MIMIC has been meticulously scoured so individual patients cannot be recognized, and is freely shared online with the research community.

But the database itself is not enough. We bring together front-line clinicians (such as nurses, pharmacists and doctors) to identify questions they want to investigate, and data scientists to conduct the appropriate analyses of the MIMIC records. This gives caregivers and patients the best individualized treatment options in the absence of a randomized controlled trial.

Bringing data analysis to the world

At the same time we are working to bring these data-enabled systems to assist with medical decisions to countries with limited health care resources, where research is considered an expensive luxury. Often these countries have few or no medical records – even on paper – to analyze. We can help them collect health data digitally, creating the potential to significantly improve medical care for their populations.

This task is the focus of Sana, a collection of technical, medical and community experts from across the globe that is also based in our group at MIT. Sana has designed a digital health information system specifically for use by health providers and patients in rural and underserved areas.

At its core is an open-source system that uses cellphones – common even in poor and rural nations – to collect, transmit and store all sorts of medical data. It can handle not only basic patient data such as height and weight, but also photos and X-rays, ultrasound videos, and electrical signals from a patient’s brain (EEG) and heart (ECG).

Partnering with universities and health organizations, Sana organizes training sessions (which we call “bootcamps”) and collaborative workshops (called “hackathons”) to connect nurses, doctors and community health workers at the front lines of care with technology experts in or near their communities. In 2015, we held bootcamps and hackathons in Colombia, Uganda, Greece and Mexico. The bootcamps teach students in technical fields like computer science and engineering how to design and develop health apps that can run on cellphones. Immediately following the bootcamp, the medical providers join the group and the hackathon begins…At the end of the day, though, the purpose is not the apps….(More)

How innovation agencies work

Curated on May 26, 2016August 3, 2018 by Stefaan Verhulst

Kirsten Bound and Alex Glennie at NESTA: “This report considers how governments can get better at designing and running innovation agencies, drawing on examples from around the world.

Key findings

There is no single model for a ‘successful’ innovation agency. Although there is much to learn from other countries about best practice in institution and programme design, attempts to directly replicate organisational models that operate in very different contexts are likely to fail.
There are a variety of roles that innovation agencies can play. From our case studies, we have identified a number of different approaches that an innovation agency might take, depending on the specific nature of a country’s innovation system, the priorities of policymakers, and available resources.
Innovation agencies need a clear mission, but an ability to adapt and experiment. Working towards many different objectives at once or constantly changing strategic direction can make it difficult for an innovation agency to deliver impactful innovation support for businesses. However, a long-term vision of what success looks like should not prevent innovation agencies from experimenting with new approaches, and responding to new needs and opportunities.
Innovation agencies should be assessed both quantitatively and qualitatively. Evaluations tend to focus on the financial return they generate, but our research suggests that more effort needs to be put into assessing some of the more qualitative aspects of their role, including the quality of their management, their ability to take (and learn from) strategic risks, and the skill with which they design and implement their programmes.
Governments should be both ambitious and realistic about what they expect an innovation agency to achieve. An innovation agency’s role will inevitably be affected by shifts in government priorities. Understanding how innovation agencies shape (and are shaped by) the broader political environment around innovation is a necessary part of ensuring that they are able to deliver on their potential.

Governments around the world are looking for ways to nurture innovative businesses, as a way of solving some of their most urgent economic and societal challenges. Many seek to do this by setting up national innovation agencies: institutions that provide financial and other support to catalyse or drive private sector innovation. Yet we still know relatively little about the range of approaches that these agencies take, what programmes and instruments are likely to work best in a given context, and how to assess their long-term impact.

We have been investigating these questions by studying a diverse group selection of innovation agencies in ten different countries. Our aim has been to improve understanding of the range of existing institutional models and to learn more about their design, evolution and effectiveness. In doing so, we have developed a broad framework to help policymakers think about the set of choices and options they face in the design and management of an innovation agency….(More)”

An App to Save Syria’s Lost Generation? What Technology Can and Can’t Do

Curated on May 25, 2016August 15, 2018 by Stefaan Verhulst

Mark Latonero in Foreign Affairs: ” In January this year, when the refugee and migrant crisis in Europe had hit its peak—more than a million had crossed into Europe over the course of 2015—the U.S. State Department and Google hosted a forum of over 100 technology experts. The goal was to “bridge the education gap for Syrian refugee children.” Speaking to the group assembled at Stanford University, Deputy Secretary of State Antony Blinken announced a $1.7 million prize “to develop a smartphone app that can help Syrian children learn how to read and improve their wellbeing.” The competition, known as EduApp4Syria, is being run by the Norwegian Agency for Development Cooperation (Norad) and is supported by the Australian government and the French mobile company Orange.

Less than a month later, a group called Techfugees brought together over 100 technologists for a daylong brainstorm in New York City focused exclusively on education solutions. “We are facing the largest refugee crisis since World War II,” said U.S. Ambassador to the United Nations Samantha Power to open the conference. “It is a twenty-first-century crisis and we need a twenty-first-century solution.” Among the more promising, according to Power, were apps that enable “refugees to access critical services,” new “web platforms connecting refugees with one another,” and “education programs that teach refugees how to code.”

For example, the nonprofit PeaceGeeks created the Services Advisor app for the UN Refugee Agency, which maps the location of shelters, food distribution centers, and financial services in Jordan….(More)”