Tech Strikes Back

Curated on Posted on by Stefaan Verhulst

Essay by Nadia Asparouhova: “A new tech ideology is ascendant online. “Introducing effective accelerationism,” the pseudonymous user Beff Jezos tweeted, rather grandly, in May 2022. “E/acc” — pronounced ee-ack — “is a direct product [of the] tech Twitter schizosphere,” he wrote. “We hope you join us in this new endeavour.”

The reaction from Jezos’s peers was a mix of positive, critical, and perplexed. “What the f*** is e/acc,” posted multiple users. “Accelerationism is unfortunately now just a buzzword,” sighed political scientist Samo Burja, referring to a related concept popularized around 2017. “I guess unavoidable for Twitter subcultures?” “These [people] are absolutely bonkers,” grumbled Timnit Gebru, an artificial intelligence researcher and activist who frequently criticizes the tech industry. “Their fanaticism + god complex is exhausting.”

Despite the criticism, e/acc persists, and is growing, in the tech hive mind. E/acc’s founders believe that the tech world has become captive to a monoculture. If it becomes paralyzed by a fear of the future, it will never produce meaningful benefits. Instead, e/acc encourages more ideas, more growth, more competition, more action. “Whether you’re building a family, a startup, a spaceship, a robot, or better energy policy, just build,” writes one anonymous poster. “Do something hard. Do it for everyone who comes next. That’s it. Existence will take care of the rest.”…(More)”.

We urgently need data for equitable personalized medicine

Curated on Posted on by Stefaan Verhulst

Article by Manuel Corpas: “…As a bioinformatician, I am now focusing my attention on gathering the statistics to show just how biased medical research data are. There are problems across the board, ranging from which research questions get asked in the first place, to who participates in clinical trials, to who gets their genomes sequenced. The world is moving toward “precision medicine,” where any individual can have their DNA analyzed and that information can be used to help prescribe the right drugs in the right dosages. But this won’t work if a person’s genetic variants have never been identified or studied in the first place.

It’s astonishing how powerful our genetics can be in mediating medicines. Take the gene CYP2D6, which is known to play a vital role in how fast humans metabolize 25 percent of all the pharmaceuticals on the market. If you have a genetic variant of CYP2D6 that makes you metabolize drugs more quickly, or less quickly, it can have a huge impact on how well those drugs work and the dangers you face from taking them. Codeine was banned from all of Ethiopia in 2015, for example, because a high proportion of people in the country (perhaps 30 percent) have a genetic variant of CYP2D6 that makes them quickly metabolize that drug into morphine, making it more likely to cause respiratory distress and even death…(More)”

Consumer vulnerability in the digital age

Curated on Posted on by Stefaan Verhulst

OECD Report: “Protecting consumers when they are most vulnerable has long been a core focus of consumer policy. This report first discusses the nature and scale of consumer vulnerability in the digital age, including its evolving conceptualisation, the role of emerging digital trends, and implications for consumer policy. It finds that in the digital age, vulnerability may be experienced not only by some consumers, but increasingly by most, if not all, consumers. Accordingly, it sets out several measures to address the vulnerability of specific consumer groups and all consumers, and concludes with avenues for more research on the topic…(More)”.

Outpacing Pandemics: Solving the First and Last Mile Challenges of Data-Driven Policy Making

Curated on Posted on by Stefaan Verhulst

Article by Stefaan Verhulst, Daniela Paolotti, Ciro Cattuto, and Alessandro Vespignani: “As society continues to emerge from the legacy of COVID-19, a dangerous complacency seems to be setting in. Amidst recurrent surges of cases, each serving as a reminder of the virus’s persistence, there is a noticeable decline in collective urgency to prepare for future pandemics. This situation represents not just a lapse in memory but a significant shortfall in our approach to pandemic preparedness. It dramatically underscores the urgent need to develop novel and sustainable approaches and responses and to reinvent how we approach public health emergencies.

Among the many lessons learned from previous infectious disease outbreaks, the potential and utility of data, and particularly non-traditional forms of data, are surely among the most important lessons. Among other benefits, data has proven useful in providing intelligence and situational awareness in early stages of outbreaks, empowering citizens to protect their health and the health of vulnerable community members, advancing compliance with non-pharmaceutical interventions to mitigate societal impacts, tracking vaccination rates and the availability of treatment, and more. A variety of research now highlights the particular role played by open source data (and other non-traditional forms of data) in these initiatives.

Although multiple data sources are useful at various stages of outbreaks, we focus on two critical stages proven to be especially challenging: what we call the first mile and the last mile.

We argue that focusing on these two stages (or chokepoints) can help pandemic responses and rationalize resources. In particular, we highlight the role of Data Stewards at both stages and in overall pandemic response effectiveness…(More)”.

Data4Philanthropy

Curated on Posted on by Stefaan Verhulst

New Resource and Peer-to-Peer Learning Network: “Today’s global challenges have become increasingly complex and interconnected–from a global pandemic to the climate crisis. Solving these complex problems not only require new solutions, they also demand new methods for developing solutions and making decisions. By responsibly analyzing and using data, we can transform our understanding and approach to addressing societal issues and drive impact through our work.

However, many of these data-driven methods have not yet been adopted by the social sector or integrated across the grant-making cycle.

So we asked, how can innovations in data-driven methods and tools from multiple sectors transform decision making within philanthropy & improve the act of grant giving?

DATA4Philanthropy is a peer-to-peer learning network that aims to identify and advance the responsible use and value of data innovations across philanthropic functions.

Philanthropies can learn more about the potential of data for their sector, who to connect with to learn more about data, and how innovations in data-driven methods and tools are increasingly relevant across the stages of strategy to grant making to impact cycles.

The rapid change in both data supply, and now methods can be integrated across the philanthropy, civil society and government decision-making cycles–from developing joint priorities to improving implementation efficacy to evaluating the impact of investments…(More)”

Revolutionizing Governance: AI-Driven Citizen Engagement

Curated on Posted on by Stefaan Verhulst

Article by Komal Goyal: “Government-citizen engagement has come a long way over the past decade, with governments increasingly adopting AI-powered analytics, automated processes and chatbots to engage with citizens and gain insights into their concerns. A 2023 Stanford University report found that the federal government spent $3.3 billion on AI in the fiscal year 2022, highlighting the remarkable upswing in AI adoption across various government sectors.

As the demands of a digitally empowered and information-savvy society constantly evolve, it is becoming imperative for government agencies to revolutionize how they interact with their constituents. I’ll discuss how AI can help achieve this and pave the way for a more responsive, inclusive and effective form of governance…(More)”.

The story of the R number: How an obscure epidemiological figure took over our lives

Curated on Posted on by Stefaan Verhulst

Article by Gavin Freeguard: “Covid-19 did not only dominate our lives in April 2020. It also dominated the list of new words entered into the Oxford English Dictionary.

Alongside Covid-19 itself (noun, “An acute respiratory illness in humans caused by a coronavirus”), the vocabulary of the virus included “self-quarantine”, “social distancing”, “infodemic”, “flatten the curve”, “personal protective equipment”, “elbow bump”, “WFH” and much else. But nestled among this pantheon of new pandemic words was a number, one that would shape our conversations, our politics, our lives for the next 18 months like no other: “Basic reproduction number (R0): The average number of cases of an infectious disease arising by transmission from a single infected individual, in a population that has not previously encountered the disease.”

graphic

“There have been many important figures in this pandemic,” wrote The Times in January 2021, “but one has come to tower over the rest: the reproduction rate. The R number, as everyone calls it, has been used by the government to justify imposing and lifting lockdowns. Indeed while there are many important numbers — gross domestic product, parliamentary majorities, interest rates — few can compete right now with R” (tinyurl.com/v7j6cth9).

Descriptions of it at the start of the pandemic made R the star of the disaster movie reality we lived through. And it wasn’t just a breakout star of the UK’s coronavirus press conferences; in Germany, (then) Chancellor Angela Merkel made the most of her scientific background to explain the meaning of R and its consequences to the public (tinyurl.com/mva7urw5).

But for others, the “obsession” (Professor Linda Bauld, University of Edinburgh) with “the pandemic’s misunderstood metric” (Nature: tinyurl.com/y3sr6n6m) has been “a distraction”, an “unhelpful focus”; as the University of Edinburgh’s Professor Mark Woolhouse told one parliamentary select committee, “we’ve created a monster”.

How did this epidemiological number come to dominate our discourse? How useful is it? And where does it come from?…(More)”.

Future-Proofing Transparency: Re-Thinking Public Record Governance For the Age of Big Data

Curated on Posted on by Stefaan Verhulst

Paper by Beatriz Botero Arcila: “Public records, public deeds, and even open data portals often include personal information that can now be easily accessed online. Yet, for all the recent attention given to informational privacy and data protection, scant literature exists on the governance of personal information that is available in public documents. This Article examines the critical issue of balancing privacy and transparency within public record governance in the age of Big Data.

With Big Data and powerful machine learning algorithms, personal information in public records can easily be used to infer sensitive data about people or aggregated to create a comprehensive personal profile of almost anyone. This information is public and open, however, for many good reasons: ensuring political accountability, facilitating democratic participation, enabling economic transactions, combating illegal activities such as money laundering and terrorism financing, and facilitating. Can the interest in record publicity coexist with the growing ease of deanonymizing and revealing sensitive information about individuals?

This Article addresses this question from a comparative perspective, focusing on US and EU access to information law. The Article shows that the publicity of records was, in the past and not withstanding its presumptive public nature, protected because most people would not trouble themselves to go to public offices to review them, and it was practical impossible to aggregate them to draw extensive profiles about people. Drawing from this insight and contemporary debates on data governance, this Article challenges the binary classification of data as either published or not and proposes a risk-based framework that re-insert that natural friction to public record governance by leveraging techno-legal methods in how information is published and accessed…(More)”.

Defending the rights of refugees and migrants in the digital age

Curated on Posted on by Stefaan Verhulst

Primer by Amnesty International: “This is an introduction to the pervasive and rapid deployment of digital technologies in asylum and migration management systems across the globe including the United States, United Kingdom and the European Union. Defending the rights of refugees and migrants in the digital age, highlights some of the key digital technology developments in asylum and migration management systems, in particular systems that process large quantities of data, and the human rights issues arising from their use. This introductory briefing aims to build our collective understanding of these emerging technologies and hopes to add to wider advocacy efforts to stem their harmful effects…(More)”.

AI for Good: Applications in Sustainability, Humanitarian Action, and Health

Curated on Posted on by Stefaan Verhulst

Book by Juan M. Lavista Ferres, and William B. Weeks: “…delivers an insightful and fascinating discussion of how one of the world’s most recognizable software companies is tackling intractable social problems with the power of artificial intelligence (AI). In the book, you’ll see real in-the-field examples of researchers using AI with replicable methods and reusable AI code to inspire your own uses.

The authors also provide:

  • Easy-to-follow, non-technical explanations of what AI is and how it works
  • Examples of the use of AI for scientists working on mitigating climate change, showing how AI can better analyze data without human bias, remedy pattern recognition deficits, and make use of satellite and other data on a scale never seen before so policy makers can make informed decisions
  • Real applications of AI in humanitarian action, whether in speeding disaster relief with more accurate data for first responders or in helping address populations that have experienced adversity with examples of how analytics is being used to promote inclusivity
  • A deep focus on AI in healthcare where it is improving provider productivity and patient experience, reducing per-capita healthcare costs, and increasing care access, equity, and outcomes
  • Discussions of the future of AI in the realm of social benefit organizations and efforts…(More)”