Normalizing Health-Positive Technology

Curated on Posted on by Stefaan Verhulst

Article by By Sara J. Singer, Stephen Downs, Grace Ann Joseph, Neha Chaudhary, Christopher Gardner, Nina Hersher, Kelsey P. Mellard, Norma Padrón & Yennie Solheim: “….Aligning the technology sector with a societal goal of greater health and well-being entails a number of shifts in thinking. The most fundamental is understanding health not as a vertical market segment, but as a horizontal value: In addition to developing a line of health products or services, health should be expressed across a company’s full portfolio of products and services. Rather than pushing behaviors on people through information and feedback, technology companies should also pull behaviors from people by changing the environment and products they are offered; in addition to developing technology to help people overcome the challenge of being healthy, we need to envision technology that helps to reduce the challenges to being healthy. And in addition to holding individuals responsible for choices that they make, we also need to recognize the collective responsibility that society bears for the choices it makes available.

How to catalyze these shifts?

To find out, we convened a “tech-enabled health,” in which 50 entrepreneurs, leaders from large technology companies, investors, policymakers, clinicians, and public health experts designed a hands-on, interactive, and substantively focused agenda. Participants brainstormed ways that consumer-facing technologies could help people move more, eat better, sleep well, stay socially connected, and reduce stress. In groups and collectively, participants also considered ways in which ideas related and might be synergistic, potential barriers and contextual conditions that might impede or support transformation, and strategies for catalyzing the desired shift. Participants were mixed in terms of sector, discipline, and gender (though the attendees were not as diverse in terms of race/ethnicity or economic strata as the users we potentially wanted to impact—a limitation noted by participants). We intentionally maintained a positive tone, emphasizing potential benefits of shifting toward a health-positive approach, rather than bemoaning the negative role that technology can play….(More)”.

Defining a ‘new normal’ for data privacy in the wake of COVID-19

Curated on Posted on by Stefaan Verhulst

Jack Dunn at IAPP: “…It is revealing that our relationship with privacy is amorphous and requires additional context in light of transformative technologies, new economic realities and public health emergencies. How can we reasonably evaluate the costs and benefits of Google or Facebook sharing location data with the federal government when it has been perfectly legal for Walgreen’s to share access to customer data with pharmaceutical advertisers? How does aggregating and anonymizing data safeguard privacy when a user’s personal data can be revealed through other data points?

The pandemic is only revealing that we’ve yet to reach a consensus on privacy norms that will come to define the digital age. 

This isn’t the first time that technology confounded notions of privacy and consumer protection. In fact, the constitutional right to privacy was born out of another public health crisis. Before 1965, 32 women per 100,000 live births died while giving birth. Similarly, 25 infants died per 100,000 live births. As a result, medical professionals and women’s rights advocates began arguing for greater access to birth control. When state legislatures sought to minimize access, birth control advocates filed lawsuits that eventually lead to the Supreme Court’s seminal case regarding the right to privacy, Griswold v. Connecticut.…

Today, there is growing public concern over the way in which consumer data is used to consolidate economic gain among the few while steering public perception among the many — particularly at a time when privacy seems to be the price for ending public health emergencies.

But the COVID-19 outbreak is also highlighting how user data has the capacity to improve consumer well being and public health. While strict adherence to traditional notions of privacy may be ineffectual in a time of exponential technological growth, the history of our relationship to privacy and technology suggests regulatory policies can strike a balance between otherwise competing interests….(More)“.

Digital diplomacy: States go online

Curated on Posted on by Stefaan Verhulst

Philipp Grüll at Euractiv: “When Germany takes over the European Council Presidency on 1 July, Berlin will have plenty to do. The draft programme seen by EURACTIV Germany focuses on the major challenges of our time: climate change, digitisation, and the coronavirus.

Berlin wants to establish ‘European Digital Diplomacy’ by creating a ‘Digital Diplomacy Network’ to exist alongside the ‘Technospheres USA and China’.

This should not only be about keeping European industries competitive. After all, the term “digital diplomacy” is not new.

Ilan Manor, a researcher at Oxford University and author of numerous papers on digital diplomacy, defines it as “the use of digital tools to achieve foreign policy goals.”

This definition is intentionally broad, Manor told EURACTIV Germany, because technology can be used in so many areas of international relations….

Manor divides the development of this digital public diplomacy into two phases.

In the first one, from 2008 to 2015, governments took the first cautious steps. They experimented and launched random and often directionless online activities. Foreign ministries and embassies set up social media accounts. Sweden opened a virtual embassy in the online video game “Second Life.”

It was only in the second phase, from 2015 to the present, that foreign ministries began to act more strategically. They used “Big Data” to record public opinion in other countries, and also to track down online propaganda against their own country.

As an example, Manor cites the Russian embassy in the United Kingdom, which is said to have deliberately disseminated anti-EU narratives prior to the Brexit referendum, packaged in funny and seemingly innocent Internet memes that spread rapidly….(More)”.

The people solving mysteries during lockdown

Curated on Posted on by Stefaan Verhulst

Frank Swain at the BBC: “For almost half a century, Benedictine monks in Herefordshire dutifully logged the readings of a rain gauge on the grounds of Belmont Abbey, recording the quantity of rain that had fallen each month without fail. That is, until 1948, when measurements were suspended while the abbot waited for someone to repair a bullet hole in the gauge funnel.

How the bullet hole came to be there is still a mystery, but it’s just one of the stories uncovered by a team of 16,000 volunteers who have been taking part in Rainfall Rescue, a project to digitise hand-written records of British weather. The documents, held by the Met Office, contain 3.5 million datapoints and stretch as far back as 1820.

Ed Hawkins, a climate scientist at the University of Reading, leads the project. “It launched at the end of March, we realised people would have a lot of spare time on their hands,” he explains. “It was completed in 16 days. I was expecting 16 weeks, not 16 days… the volunteers absolutely blitzed it.” He says the data will be used to improve future weather predictions and climate modelling.

With millions of people trapped at home during the pandemic, citizen science projects are seeing a boom in engagement. Rainfall Rescue uses a platform called Zooniverse, which hosts dozens of projects covering everything from artworks to zebra. While the projects generally have scientific aims, many allow people to also contribute some good to the world. 

Volunteers can scour satellite images for rural houses across Africa so they can be connected to the electricity grid, for example. Another – led by researchers at the University of Nottingham in the UK – is hunting for signs of modern slavery in the shape of brick kilns in South Asia (although the project has faced some criticism for being an over-simplified way of looking at modern slavery).

Others are trying to track the spread of invasive species in the ocean from underwater photographs, or identify earthquakes and tremors by speeding up the seismic signals so they become audible and can be classified by sharp-eared volunteers. “You could type in data on old documents, count penguins, go to the Serengeti and look at track camera images – it’s an incredible array,” says Hawkins. “Whatever you’re interested in there’s something for you.”…(More)”.

Tech Firms Are Spying on You. In a Pandemic, Governments Say That’s OK.

Curated on Posted on by Stefaan Verhulst

Sam Schechner, Kirsten Grind and Patience Haggin at the Wall Street Journal: “While an undergraduate at the University of Virginia, Joshua Anton created an app to prevent users from drunk dialing, which he called Drunk Mode. He later began harvesting huge amounts of user data from smartphones to resell to advertisers.

Now Mr. Anton’s company, called X-Mode Social Inc., is one of a number of little-known location-tracking companies that are being deployed in the effort to reopen the country. State and local authorities wielding the power to decide when and how to reopen are leaning on these vendors for the data to underpin those critical judgment calls.

In California, Gov. Gavin Newsom’s office used data from Foursquare Labs Inc. to figure out if beaches were getting too crowded; when the state discovered they were, it tightened its rules. In Denver, the Tri-County Health Department is monitoring counties where the population on average tends to stray more than 330 feet from home, using data from Cuebiq Inc.

Researchers at the University of Texas in San Antonio are using movement data from a variety of companies, including the geolocation firm SafeGraph, to guide city officials there on the best strategies for getting residents back to work.

Many of the location-tracking firms, data brokers and other middlemen are part of the ad-tech industry, which has come under increasing fire in recent years for building what critics call a surveillance economy. Data for targeting ads at individuals, including location information, can also end up in the hands of law-enforcement agencies or political groups, often with limited disclosure to users. Privacy laws are cropping up in states including California, along with calls for federal privacy legislation like that in the European Union.

But some public-health authorities are setting aside those concerns to fight an unprecedented pandemic. Officials are desperate for all types of data to identify people potentially infected with the virus and to understand how they are behaving to predict potential hot spots—whether those people realize it or not…(More)”

A Practical Guide for Establishing an Evidence Centre

Curated on Posted on by Stefaan Verhulst

Report by Alliance for Useful Evidence: “Since 2013, Nesta and the Alliance for Useful Evidence have supported the development of more than eight evidence centres. This report draws on insight from our own experience, published material and interviews with senior leaders from a range of evidence intermediaries.

The report identifies five common ingredients that contribute to successful evidence centres:

  1. Clear objectives: Good knowledge of the centre’s intended user group(s), clear outcomes to work towards and an evidence-informed theory of change.
  2. Robust organisational development: Commitment to create an independent and sustainable organisation with effective governance and the right mix of skills and experience, over a timescale that will be sufficient to make a difference.
  3. Engaged users: Understanding users’ evidence needs and working collaboratively with them to increase their capability, motivation and opportunity to use evidence in their decision-making.
  4. Rigorous curation and creation of evidence: A robust and transparent approach to selecting and generating high-quality evidence for the centre’s users.
  5. A focus on impact: Commitment to learn from the centre’s activities, including successes and failures, so that you can increase your effectiveness in achieving your objectives…(More)”.

Evaluating Data Types

Curated on Posted on by Stefaan Verhulst

A Guide for Decision Makers using Data to Understand the Extent and Spread of COVID-19 by the National Academies: “This rapid expert consultation provides insight into the strengths and weaknesses of the data on the COVID-19 pandemic by applying five criteria to seven types of data available to support decision making. It was produced through the Societal Experts Action Network (SEAN), an activity of the National Academies of Sciences, Engineering, and Medicine that is sponsored by the National Science Foundation. SEAN links researchers in the social, behavioral, and economic sciences with decision makers to respond to policy questions arising from the COVID-19 pandemic….(More)”

Disinformation Tracker

Curated on Posted on by Stefaan Verhulst

Press Release: “Today, Global Partners Digital (GPD), ARTICLE 19, the Collaboration on International ICT Policy for East and Southern Africa (CIPESA), PROTEGE QV and  the Centre for Human Rights of the University of Pretoria jointly launched an interactive map to track and analyse disinformation laws, policies and patterns of enforcement across Sub-Saharan Africa.

The map offers a birds-eye view of trends in state responses to disinformation across the region, as well as in-depth analysis of the state of play in individual countries, using a bespoke framework to assess whether laws, policies and other state responses are human rights-respecting. 

Developed against a backdrop of rapidly accelerating state action on COVID-19 related disinformation, the map is an open, iterative product. At the time of launch, it covers 31 countries (see below for the full list), with an aim to expand this in the coming months. All data, analysis and insight on the map has been generated by groups and actors based in Africa….(More)”.

Rethinking the digital democratic affordance and its impact on political representation: Toward a new framework

Curated on Posted on by Stefaan Verhulst

Paper by Marco Deseriis: “This article advances a new theory of the digital democratic affordance, a concept first introduced by Lincoln Dahlberg to devise a taxonomy of the democratic capacities of digital media applications. Whereas Dahlberg classifies digital media affordances on the basis of preexisting democratic positions, the article argues that the primary affordance of digital media is to abate the costs of political participation.

This cost-reducing logic of digital media has diverging effects on political participation. On an institutional level, digital democracy applications allow elected representatives to monitor and consult their constituents, closing some gaps in the circuits of representation. On a societal level, digital media allow constituents to organize and represent their own interests directly. In the former case, digital affordances work instrumentally in the service of representative democracy; in the latter, digital democratic affordances provide a mobilized public with emerging tools that put pressure on the autonomy of representatives….(More)”.

How to Sustain Your Activism Against Police Brutality Beyond this Moment

Curated on Posted on by Stefaan Verhulst

Article by Bethany Gordon: “…Despite the haunting nature of these details and the different features of this moment, I am worried that empathetic voices lifting up this cause will quiet too soon for lasting change to occur. But it doesn’t have to happen this way. Gaining a better understanding of the empathy we feel in these moments of awareness and advocacy can help us take a more behaviorally sustainable approach.

Empathy is a complex psychological phenomenon, describing eight distinct ways that we respond to one another’s experiences and emotions, but most commonly defined in the dictionary as “the ability to understand and share the feelings of another.” Using this broader definition, scholars and activists have debated how effective empathy is as a tool for behavior change—particularly when it comes to fighting racism. Paul Bloom argues that empathy allows our bias to drive our decision-making, bell hooks states that empathy is not a promising avenue to systemic racial change, and Alisha Gaines analyzes how an overemphasis on racial empathy in a 1944 landmark study, “An American Dilemma,” led to a blindness about the impact of systemic and institutional racial barriers. This more general understanding and application of empathy has not been an effective aid to fighting systemic oppression and has led to a lot of (well-meaning?) blackface.

A more nuanced understanding of empathy—and its related concepts—may help us use it more effectively in the fight against racism. There are two strains of empathy that are relevant to the George Floyd protests and can help us better understand (and possibly change) our response: empathic distress and empathic concern, also known as compassion.

Empathic distress is a type of empathy we feel when we are disturbed by witnessing another’s suffering. Empathic distress is an egocentric response—a reaction that places our own well-being at its center. When we’re motivated to act through empathic distress, our ultimate goal is to alleviate our own suffering. This may mean we take action to help another person, but it could also mean we distract ourselves from their suffering.

Compassion is a type of empathy that is other-oriented. Compassion operates when you feel for another person rather than being distressed by their suffering, thereby making your ultimate goal about fixing the actual problem….(More)’