Deliberative Mini-Publics as a Response to Populist Democratic Backsliding

Curated on Posted on by Stefaan Verhulst

Chapter by Oran Doyle and Rachael Walsh: “Populisms come in different forms, but all involve a political rhetoric that invokes the will of a unitary people to combat perceived constraints, whether economic, legal, or technocratic. In this chapter, our focus is democratic backsliding aided by populist rhetoric. Some have suggested deliberative democracy as a means to combat this form of populism. Deliberative democracy encourages and facilitates both consultation and contestation, emphasizing plurality of voices, the legitimacy of disagreement, and the imperative of reasoned persuasion. Its participatory and inclusive character has the potential to undermine the credibility of populists’ claims to speak for a unitary people. Ireland has been widely referenced in constitutionalism’s deliberative turn, given its recent integration of deliberative mini-publics into the constitutional amendment process.

Reviewing the Irish experience, we suggest that deliberative mini-publics are unlikely to reverse democratic backsliding. Populist rhetoric is fueled by the very measures intended to combat democratic backsliding: enhanced constitutional constraints merely illustrate how the will of the people is being thwarted. The virtues of Ireland’s experiment in deliberative democracy — citizen participation, integration with representative democracy, deliberation, balanced information, expertise — have all been criticized in ways that are at least consistent with populist narratives. The failure of such narratives to take hold in Ireland, we suggest, may be due to a political system that is already resistant to populist rhetoric, as well as a tradition of participatory constitutionalism. The experiment with deliberative mini-publics may have strengthened Ireland’s constitutional culture by reinforcing anti-populist features. But it cannot be assumed that this experience would be replicated in larger countries polarized along political, ethnic, or religious lines….(More)”.

Why isn’t the government publishing more data about coronavirus deaths?

Curated on Posted on by Stefaan Verhulst

Article by Jeni Tennison: “Studying the past is futile in an unprecedented crisis. Science is the answer – and open-source information is paramount…Data is a necessary ingredient in day-to-day decision-making – but in this rapidly evolving situation, it’s especially vital. Everything has changed, almost overnight. Demands for food, transport, and energy have been overhauled as more people stop travelling and work from home. Jobs have been lost in some sectors, and workers are desperately needed in others. Historic experience can no longer tell us how our society or economy is working. Past models hold little predictive power in an unprecedented situation. To know what is happening right now, we need up-to-date information….

This data is also crucial for scientists, who can use it to replicate and build upon each other’s work. Yet no open data has been published alongside the evidence for the UK government’s coronavirus response. While a model that informed the US government’s response is freely available as a Google spreadsheet, the Imperial College London model that prompted the current lockdown has still not been published as open-source code. Making data open – publishing it on the web, in spreadsheets, without restrictions on access – is the best way to ensure it can be used by the people who need it most.

There is currently no open data available on UK hospitalisation rates; no regional, age or gender breakdown of daily deaths. The more granular breakdown of registered deaths provided by the Office of National Statistics is only published on a weekly basis, and with a delay. It is hard to tell whether this data does not exist or the NHS has prioritised creating dashboards for government decision makers rather than informing the rest of the country. But the UK is making progress with regard to data: potential Covid-19 cases identified through online and call-centre triage are now being published daily by NHS Digital.

Of course, not all data should be open. Singapore has been publishing detailed data about every infected person, including their age, gender, workplace, where they have visited and whether they had contact with other infected people. This can both harm the people who are documented and incentivise others to lie to authorities, undermining the quality of data.

When people are concerned about how data about them is handled, they demand transparency. To retain our trust, governments need to be open about how data is collected and used, how it’s being shared, with whom, and for what purpose. Openness about the use of personal data to help tackle the Covid-19 crisis will become more pressing as governments seek to develop contact tracing apps and immunity passports….(More)”.

Urgently Needed for Policy Guidance: An Operational Tool for Monitoring the COVID-19 Pandemic

Curated on Posted on by Stefaan Verhulst

Paper by Stephane Luchini et al:” The radical uncertainty around the current COVID19 pandemics requires that governments around the world should be able to track in real time not only how the virus spreads but, most importantly, what policies are effective in keeping the spread of the disease under check. To improve the quality of health decision-making, we argue that it is necessary to monitor and compare acceleration/deceleration of confirmed cases over health policy responses, across countries. To do so, we provide a simple mathematical tool to estimate the convexity/concavity of trends in epidemiological surveillance data. Had it been applied at the onset of the crisis, it would have offered more opportunities to measure the impact of the policies undertaken in different Asian countries, and to allow European and North-American governments to draw quicker lessons from these Asian experiences when making policy decisions. Our tool can be especially useful as the epidemic is currently extending to lower-income African and South American countries, some of which have weaker health systems….(More)”.

Privacy Protection Key for Using Patient Data to Develop AI Tools

Curated on Posted on by Stefaan Verhulst

Article by  Jessica Kent: “Clinical data should be treated as a public good when used for research or artificial intelligence algorithm development, so long as patients’ privacy is protected, according to a report from the Radiological Society of North America (RSNA).

As artificial intelligence and machine learning are increasingly applied to medical imaging, bringing the potential for streamlined analysis and faster diagnoses, the industry still lacks a broad consensus on an ethical framework for sharing this data.

“Now that we have electronic access to clinical data and the data processing tools, we can dramatically accelerate our ability to gain understanding and develop new applications that can benefit patients and populations,” said study lead author David B. Larson, MD, MBA, from the Stanford University School of Medicine. “But unsettled questions regarding the ethical use of the data often preclude the sharing of that information.”

To offer solutions around data sharing for AI development, RSNA developed a framework that highlights how to ethically use patient data for secondary purposes.

“Medical data, which are simply recorded observations, are acquired for the purposes of providing patient care,” Larson said….(More)”

Coronavirus Innovation Map

Curated on Posted on by Stefaan Verhulst

“The Coronavirus Innovation Map is a platform of hundreds of innovations and solutions from around the world that help people cope and adapt to life amid the coronavirus pandemic, and to connect innovators.

The CoronaVirus Innovation Map is a visualized global database that is mapping the innovations related to tackling coronavirus in various fields such as diagnostics, treatment, lifestyle changes, etc., on a geographical scale….

Our goal with the Coronavirus Innovation Map is to build a crowdsourced resource that maps hundreds of innovations and solutions globally that help people cope and adapt to life amid the coronavirus, and to connect innovators.

This platform is a database for innovators to know who the other players are and where the projects or startups are located allowing them to connect and create solutions in this field. Policymakers will also be able to efficiently look for viable solutions in one place.

You may use the map to browse initiatives in specific locations (type a city or country in the search box), or choose a category wherein you would like to find a solution….(More)”

The Fate of the News in the Age of the Coronavirus

Curated on Posted on by Stefaan Verhulst

Michael Luo at the New Yorker: “The shift to paywalls has been a boon for quality journalism. Instead of chasing trends on search engines and social media, subscription-based publications can focus on producing journalism worth paying for, which has meant investments in original reporting of all kinds. A small club of élite publications has now found a sustainable way to support its journalism, through readers instead of advertisers. The Times and the Post, in particular, have thrived in the Trump era. So have subscription-driven startups, such as The Information, which covers the tech industry and charges three hundred and ninety-nine dollars a year. Meanwhile, many of the free-to-read outlets still dependent on ad revenue—including former darlings of the digital-media revolution, such as BuzzFeed, Vice, HuffPost, Mic, Mashable, and the titles under Vox Media—have labored to find viable business models.

Many of these companies attracted hundreds of millions of dollars in venture funding, and built sizable newsrooms. Even so, they’ve struggled to succeed as businesses, in part because Google and Facebook take in the bulk of the revenue derived from digital advertising. Some sites have been forced to shutter; others have slashed their staffs and scaled back their journalistic ambitions. There are free digital news sites that continue to attract outsized audiences: CNN and Fox News, for instance, each draw well over a hundred million visitors a month. But the news on these sites tends to be commodified. Velocity is the priority, not complexity and depth.

A robust, independent press is widely understood to be an essential part of a functioning democracy. It helps keep citizens informed; it also serves as a bulwark against the rumors, half-truths, and propaganda that are rife on digital platforms. It’s a problem, therefore, when the majority of the highest-quality journalism is behind a paywall. In recent weeks, recognizing the value of timely, fact-based news during a pandemic, the Times, The Atlantic, the Wall Street Journal, the Washington Post, and other publications—including The New Yorker—have lowered their paywalls for portions of their coronavirus coverage. But it’s unclear how long publishers will stay committed to keeping their paywalls down, as the state of emergency stretches on. The coronavirus crisis promises to engulf every aspect of society, leading to widespread economic dislocations and social disruptions that will test our political processes and institutions in ways far beyond the immediate public-health threat. With the misinformation emanating from the Trump White House, the need for reliable, widely-accessible information and facts is more urgent than ever. Yet the economic shutdown created by the spread of covid-19 promises to decimate advertising revenue, which could doom more digital news outlets and local newspapers.

It’s easy to underestimate the information imbalance in American society. After all, “information” has never felt more easily available. A few keyboard strokes on an Internet search engine instantly connects us to unlimited digital content. On Facebook, Instagram, and other social-media platforms, people who might not be intentionally looking for news encounter it, anyway. And yet the apparent ubiquity of news and information is misleading. Between 2004 and 2018, nearly one in five American newspapers closed; in that time, print newsrooms have shed nearly half of their employees. Digital-native publishers employ just a fraction of the diminished number of journalists who still remain at legacy outlets, and employment in broadcast-TV newsrooms trails that of newspapers. On some level, news is a product manufactured by journalists. Fewer journalists means less news. The tributaries that feed the river of information have been drying up. There are a few mountain springs of quality journalism; most sit behind a paywall.

A report released last year by the Reuters Institute for the Study of Journalism maps the divide that is emerging among news readers. The proportion of people in the United States who pay for online news remains small: just sixteen per cent. Those readers tend to be wealthier, and are more likely to have college degrees; they are also significantly more likely to find news trustworthy. Disparities in the level of trust that people have in their news diets, the data suggests, are likely driven by the quality of the news they are consuming….(More)”.

Doctors Turn to Social Media to Develop Covid-19 Treatments in Real Time

Curated on Posted on by Stefaan Verhulst

Michael Smith and Michelle Fay Cortez at Bloomberg: “There is a classic process for treating respiratory problems: First, give the patient an oxygen mask, or slide a small tube into the nose to provide an extra jolt of oxygen. If that’s not enough, use a “Bi-Pap” machine, which pushes air into the lungs more forcefully. If that fails, move to a ventilator, which takes over the patient’s breathing.

But these procedures tend to fail With Covid-19 patients. Physicians found that by the time they reached that last step, it was often too late; the patient was already dying.

In past pandemics like the 2003 global SARS outbreak, doctors sought answers to such mysteries from colleagues in hospital lounges or maybe penned articles for medical journals. It could take weeks or months for news of a breakthrough to reach the broader community.

For Covid-19, a kind of medical hive mind is on the case. By the tens of thousands, doctors are joining specialized social media groups to develop answers in real time. One of them, a Facebook group called the PMG COVID19 Subgroup, has 30,000 members worldwide….

Doctors are trying to fill an information void online. Sabry, an emergency-room doctor in two hospitals outside Los Angeles, found that the 70,000-strong, Physician Moms Group she started five years ago on Facebook was so overwhelmed by coronavirus threads that she created the Covid-19 offshoot. So many doctors tried to join the new subgroup that Facebook’s click-to-join code broke. Some 10,000 doctors waited in line as the social media company’s engineers devised a fix.

She’s not alone. The topic also consumed two Facebook groups started by Dr. Nisha Mehta, a 38-year-old radiologist from Charlotte, North Carolina. The 54,000-member Physician Side Gigs, intended for business discussions, and an 11,000-person group called Physician Community for more general topics, are also all coronavirus, all the time, with thousands waiting to join…(More)”.

A Closer Look at Location Data: Privacy and Pandemics

Curated on Posted on by Stefaan Verhulst

Assessment by Stacey Gray: “In light of COVID-19, there is heightened global interest in harnessing location data held by major tech companies to track individuals affected by the virus, better understand the effectiveness of social distancing, or send alerts to individuals who might be affected based on their previous proximity to known cases. Governments around the world are considering whether and how to use mobile location data to help contain the virus: Israel’s government passed emergency regulations to address the crisis using cell phone location data; the European Commission requested that mobile carriers provide anonymized and aggregate mobile location data; and South Korea has created a publicly available map of location data from individuals who have tested positive. 

Public health agencies and epidemiologists have long been interested in analyzing device location data to track diseases. In general, the movement of devices effectively mirrors movement of people (with some exceptions discussed below). However, its use comes with a range of ethical and privacy concerns. 

In order to help policymakers address these concerns, we provide below a brief explainer guide of the basics: (1) what is location data, (2) who holds it, and (3) how is it collected? Finally we discuss some preliminary ethical and privacy considerations for processing location data. Researchers and agencies should consider: how and in what context location data was collected; the fact and reasoning behind location data being classified as legally “sensitive” in most jurisdictions; challenges to effective “anonymization”; representativeness of the location dataset (taking into account potential bias and lack of inclusion of low-income and elderly subpopulations who do not own phones); and the unique importance of purpose limitation, or not re-using location data for other civil or law enforcement purposes after the pandemic is over….(More)”.

Human migration: the big data perspective

Curated on Posted on by Stefaan Verhulst

Alina Sîrbu et al at the International Journal of Data Science and Analytics: “How can big data help to understand the migration phenomenon? In this paper, we try to answer this question through an analysis of various phases of migration, comparing traditional and novel data sources and models at each phase. We concentrate on three phases of migration, at each phase describing the state of the art and recent developments and ideas. The first phase includes the journey, and we study migration flows and stocks, providing examples where big data can have an impact. The second phase discusses the stay, i.e. migrant integration in the destination country. We explore various data sets and models that can be used to quantify and understand migrant integration, with the final aim of providing the basis for the construction of a novel multi-level integration index. The last phase is related to the effects of migration on the source countries and the return of migrants….(More)”.

A controlled trial for reproducibility

Curated on Posted on by Stefaan Verhulst

Marc P. Raphael, Paul E. Sheehan & Gary J. Vora at Nature: “In 2016, the US Defense Advanced Research Projects Agency (DARPA) told eight research groups that their proposals had made it through the review gauntlet and would soon get a few million dollars from its Biological Technologies Office (BTO). Along with congratulations, the teams received a reminder that their award came with an unusual requirement — an independent shadow team of scientists tasked with reproducing their results.

Thus began an intense, multi-year controlled trial in reproducibility. Each shadow team consists of three to five researchers, who visit the ‘performer’ team’s laboratory and often host visits themselves. Between 3% and 8% of the programme’s total funds go to this independent validation and verification (IV&V) work. But DARPA has the flexibility and resources for such herculean efforts to assess essential techniques. In one unusual instance, an IV&V laboratory needed a sophisticated US$200,000 microscopy and microfluidic set-up to make an accurate assessment.

These costs are high, but we think they are an essential investment to avoid wasting taxpayers’ money and to advance fundamental research towards beneficial applications. Here, we outline what we’ve learnt from implementing this programme, and how it could be applied more broadly….(More)”.