Most Maps of the New Ebola Outbreak Are Wrong

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Ed Kong in The Atlantic: “Almost all the maps of the outbreak zone that have thus far been released contain mistakes of this kind. Different health organizations all seem to use their own maps, most of which contain significant discrepancies. Things are roughly in the right place, but their exact positions can be off by miles, as can the boundaries between different regions.

Sinai, a cartographer at UCLA, has been working with the Ministry of Health to improve the accuracy of the Congo’s maps, and flew over on Saturday at their request. For each health zone within the outbreak region, Sinai compiled a list of the constituent villages, plotted them using the most up-to-date sources of geographical data, and drew boundaries that include these places and no others. The maps at the top of this piece show the before (left) and after (right) images….

Consider Bikoro, the health zone where the outbreak may have originated, and where most cases are found. Sinai took a list of all Bikoro’s villages, plotted them using the most up-to-date sources of geographical data, and drew a boundary that includes these places and no others. This new shape is roughly similar to the one on current maps, but with critical differences. Notably, existing maps have the village of Ikoko Impenge—one of the epicenters of the outbreak—outside the Bikoro health zone, when it actually lies within the zone.

 “These visualizations are important for communicating the reality on the ground to all levels of the health hierarchy, and to international partners who don’t know the country,” says Mathias Mossoko, the head of disease surveillance data in DRC.

“It’s really important for the outbreak response to have real and accurate data,” adds Bernice Selo, who leads the cartographic work from the Ministry of Health’s command center in Kinshasa. “You need to know exactly where the villages are, where the health facilities are, where the transport routes and waterways are. All of this helps you understand where the outbreak is, where it’s moving, how it’s moving. You can see which villages have the highest risk.”

To be clear, there’s no evidence that these problems are hampering the response to the current outbreak. It’s not like doctors are showing up in the middle of the forest, wondering why they’re in the wrong place. “Everyone on the ground knows where the health zones start and end,” says Sinai. “I don’t think this will make or break the response. But you surely want the most accurate data.”

It feels unusual to not have this information readily at hand, especially in an era when digital maps are so omnipresent and so supposedly truthful. If you search for San Francisco on Google Maps, you can be pretty sure that what comes up is actually where San Francisco is. On Google Street View, you can even walk along a beach at the other end of the world….(More)”.

But the Congo is a massive country—a quarter the size of the United States with considerably fewer resources. Until very recently, they haven’t had the resources to get accurate geolocalized data. Instead, the boundaries of the health zones and their constituent “health areas,” as well as the position of specific villages, towns, rivers, hospitals, clinics, and other landmarks, are often based on local knowledge and hand-drawn maps. Here’s an example, which I saw when I visited the National Institute for Biomedical Research in March. It does the job, but it’s clearly not to scale.

Mapping the economy in real time is almost ‘within our grasp’

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Delphine Strauss at the Financial Times: “The goal of mapping economic activity in real time, just as we do for weather or traffic, is “closer than ever to being within our grasp”, according to Andy Haldane, the Bank of England’s chief economist. In recent years, “data has become the new oil . . . and data companies have become the new oil giants”, Mr Haldane told an audience at King’s Business School …

But economics and finance have been “rather reticent about fully embracing this oil-rush”, partly because economists have tended to prefer a deductive approach that puts theory ahead of measurement. This needs to change, he said, because relying too much on either theory or real-world data in isolation can lead to serious mistakes in policymaking — as was seen when the global financial crisis exposed the “empirical fragility” of macroeconomic models.

Parts of the private sector and academia have been far swifter to exploit the vast troves of ever-accumulating data now available — 90 per cent of which has been created in the last two years alone. Massachusetts Institute of Technology’s “Billion Prices Project”, name-checked in Mr Haldane’s speech, now collects enough data from online retailers for its commercial arm to provide daily inflation updates for 22 economies….

The UK’s Office for National Statistics — which has faced heavy criticism over the quality of its data in recent years — is experimenting with “web-scraping” to collect price quotes for food and groceries, for example, and making use of VAT data from small businesses to improve its output-based estimates of gross domestic product. In both cases, the increased sample size and granularity could bring considerable benefits on top of existing surveys, Mr Haldane said.

The BoE itself is trying to make better use of financial data — for example, by using administrative data on owner-occupied mortgages to better understand pricing decisions in the UK housing market. Mr Haldane sees scope to go further with the new data coming on stream on payment, credit and banking flows. …New data sources and techniques could also help policymakers think about human decision-making — which rarely conforms with the rational process assumed in many economic models. Data on music downloads from Spotify, used as an indicator of sentiment, has recently been shown to do at least as well as a standard consumer confidence survey in tracking consumer spending….(More)”.

CrowdLaw Manifesto

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At the Rockefeller Foundation Bellagio Center this spring, assembled participants  met to discuss CrowdLaw, namely how to use technology to improve the quality and effectiveness of law and policymaking through greater public engagement. We put together and signed 12 principles to promote the use of CrowdLaw by local legislatures and national parliaments, calling for legislatures, technologists and the public to participate in creating more open and participatory lawmaking practices. We invite you to sign the Manifesto using the form below.

Draft dated May 29, 2018

  1. To improve public trust in democratic institutions, we must improve how we govern in the 21st century.
  2. CrowdLaw is any law, policy-making or public decision-making that offers a meaningful opportunity for the public to participate in one or multiples stages of decision-making, including but not limited to the processes of problem identification, solution identification, proposal drafting, ratification, implementation or evaluation.
  3. CrowdLaw draws on innovative processes and technologies and encompasses diverse forms of engagement among elected representatives, public officials, and those they represent.
  4. When designed well, CrowdLaw may help governing institutions obtain more relevant facts and knowledge as well as more diverse perspectives, opinions and ideas to inform governing at each stage and may help the public exercise political will.
  5. When designed well, CrowdLaw may help democratic institutions build trust and the public to play a more active role in their communities and strengthen both active citizenship and democratic culture.
  6. When designed well, CrowdLaw may enable engagement that is thoughtful, inclusive, informed but also efficient, manageable and sustainable.
  7. Therefore, governing institutions at every level should experiment and iterate with CrowdLaw initiatives in order to create formal processes for diverse members of society to participate in order to improve the legitimacy of decision-making, strengthen public trust and produce better outcomes.
  8. Governing institutions at every level should encourage research and learning about CrowdLaw and its impact on individuals, on institutions and on society.
  9. The public also has a responsibility to improve our democracy by demanding and creating opportunities to engage and then actively contributing expertise, experience, data and opinions.
  10. Technologists should work collaboratively across disciplines to develop, evaluate and iterate varied, ethical and secure CrowdLaw platforms and tools, keeping in mind that different participation mechanisms will achieve different goals.
  11. Governing institutions at every level should encourage collaboration across organizations and sectors to test what works and share good practices.
  12. Governing institutions at every level should create the legal and regulatory frameworks necessary to promote CrowdLaw and better forms of public engagement and usher in a new era of more open, participatory and effective governing.

The CrowdLaw Manifesto has been signed by the following individuals and organizations:

Individuals

  • Victoria Alsina, Senior Fellow at The GovLab and Faculty Associate at Harvard Kennedy School, Harvard University
  • Marta Poblet Balcell , Associate Professor, RMIT University
  • Robert Bjarnason — President & Co-founder, Citizens Foundation; Better Reykjavik
  • Pablo Collada — Former Executive Director, Fundación Ciudadano Inteligente
  • Mukelani Dimba — Co-chair, Open Government Partnership
  • Hélène Landemore, Associate Professor of Political Science, Yale University
  • Shu-Yang Lin, re:architect & co-founder, PDIS.tw
  • José Luis Martí , Vice-Rector for Innovation and Professor of Legal Philosophy, Pompeu Fabra University
  • Jessica Musila — Executive Director, Mzalendo
  • Sabine Romon — Chief Smart City Officer — General Secretariat, Paris City Council
  • Cristiano Ferri Faría — Director, Hacker Lab, Brazilian House of Representatives
  • Nicola Forster — President and Founder, Swiss Forum on Foreign Policy
  • Raffaele Lillo — Chief Data Officer, Digital Transformation Team, Government of Italy
  • Tarik Nesh-Nash — CEO & Co-founder, GovRight; Ashoka Fellow
  • Beth Simone Noveck, Director, The GovLab and Professor at New York University Tandon School of Engineering
  • Ehud Shapiro , Professor of Computer Science and Biology, Weizmann Institute of Science

Organizations

  • Citizens Foundation, Iceland
  • Fundación Ciudadano Inteligente, Chile
  • International School for Transparency, South Africa
  • Mzalendo, Kenya
  • Smart Cities, Paris City Council, Paris, France
  • Hacker Lab, Brazilian House of Representatives, Brazil
  • Swiss Forum on Foreign Policy, Switzerland
  • Digital Transformation Team, Government of Italy, Italy
  • The Governance Lab, New York, United States
  • GovRight, Morocco
  • ICT4Dev, Morocco

On Dimensions of Citizenship

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Introduction by Niall Atkinson, Ann Lui, and Mimi Zeiger to a Special Exhibit and dedicated set of Essays: “We begin by defining citizenship as a cluster of rights, responsibilities, and attachments, and by positing their link to the built environment. Of course architectural examples of this affiliation—formal articulations of inclusion and exclusion—can seem limited and rote. The US-Mexico border wall (“The Wall,” to use common parlance) dominates the cultural imagination. As an architecture of estrangement, especially when expressed as monolithic prototypes staked in the San Diego-Tijuana landscape, the border wall privileges the rhetorical security of nationhood above all other definitions of citizenship—over the individuals, ecologies, economies, and communities in the region. And yet, as political theorist Wendy Brown points out, The Wall, like its many counterparts globally, is inherently fraught as both a physical infrastructure and a nationalist myth, ultimately racked by its own contradictions and paradoxes.

Calling border walls across the world “an ad hoc global landscape of flows and barriers,” Brown writes of the paradoxes that riddle any effort to distinguish the nation as a singular, cohesive form: “[O]ne irony of late modern walling is that a structure taken to mark and enforce an inside/outside distinction—a boundary between ‘us’ and ‘them’ and between friend and enemy—appears precisely the opposite when grasped as part of a complex of eroding lines between the police and the military, subject and patria, vigilante and state, law and lawlessness.”1 While 2018 is a moment when ideologies are most vociferously cast in binary rhetoric, the lived experience of citizenship today is rhizomic, overlapping, and distributed. A person may belong and feel rights and responsibilities to a neighborhood, a voting district, remain a part of an immigrant diaspora even after moving away from their home country, or find affiliation on an online platform. In 2017, Blizzard Entertainment, the maker of World of Warcraft, reported a user community of 46 million people across their international server network. Thus, today it is increasingly possible to simultaneously occupy multiple spaces of citizenship independent from the delineation of a formal boundary.

Conflict often makes visible emergent spaces of citizenship, as highlighted by recent acts both legislative and grassroots. Gendered bathrooms act as renewed sites of civil rights debate. Airports illustrate the thresholds of national control enacted by the recent Muslim bans. Such clashes uncover old scar tissue, violent histories and geographies of spaces. The advance of the Keystone XL pipeline across South Dakota, for example, brought the fight for indigenous sovereignty to the fore.

If citizenship itself designates a kind of border and the networks that traverse and ultimately elude such borders, then what kind of architecture might Dimensions of Citizenship offer in lieu of The Wall? What designed object, building, or space might speak to the heart of what and how it means to belong today? The participants in the United States Pavilion offer several of the clear and vital alternatives deemed so necessary by Samuel R. Delany: The Cobblestone. The Space Station. The Watershed.

Dimensions of Citizenship argues that citizenship is indissociable from the built environment, which is exactly why that relationship can be the source for generating or supporting new forms of belonging. These new forms may be more mutable and ephemeral, but no less meaningful and even, perhaps, ultimately more equitable. Through commissioned projects, and through film, video artworks, and responsive texts, Dimensions of Citizenship exhibits the ways that architects, landscape architects, designers, artists, and writers explore the changing form of citizenship: the different dimensions it can assume (legal, social, emotional) and the different dimensions (both actual and virtual) in which citizenship takes place. The works are valuably enigmatic, wide-ranging, even elusive in their interpretations, which is what contemporary conditions seem to demand. More often than not, the spaces of citizenship under investigation here are marked by histories of inequality and the violence imposed on people, non-human actors, ecologies. Our exhibition features spaces and individuals that aim to manifest the democratic ideals of inclusion against the grain of broader systems: new forms of “sharing economy” platforms, the legacies of the Underground Railroad, tenuous cross-national alliances at the border region, or the seemingly Sisyphean task of buttressing coastline topologies against the rising tides….(More)”.

Using Blockchain Technology to Create Positive Social Impact

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Randall Minas in Healthcare Informatics: “…Healthcare is yet another area where blockchain can make a substantial impact. Blockchain technology could be used to enable the WHO and CDC to better monitor disease outbreaks over time by creating distributed “ledgers” that are both secure and updated hundreds of times per day. Issued in near real-time, these updates would alert healthcare professionals to spikes in local cases almost immediately. Additionally, using blockchain would allow accurate diagnosis and streamline the isolation of clusters of cases as quickly as possible. Providing blocks of real-time disease information—especially in urban areas—would be invaluable.

In the United States, disease updates are provided in a Morbidity and Mortality Weekly Report (MMWR) from the CDC. This weekly report provides tables of current disease trends for hospitals and public health officials. Another disease reporting mechanism is the National Outbreak Reporting System (NORS), launched in 2009. NORS’ web-based tool provides outbreak data through 2016 and is accessible to the general public. There are two current weaknesses in the NORS reporting system and both can be addressed by blockchain technology.

The first issue lies in the number of steps required to accurately report each outbreak. A health department reports an outbreak to the NORS system, the CDC checks it for accuracy, analyzes the data, then provides a summary via the MMRW. Instantiating blockchain as the technology through which the NORS data is reported, every health department in the country could have preliminary data on disease trends at their fingertips without having to wait for the next MMRW publication.

The second issue is the inherent cybersecurity vulnerabilities using a web-based platform to monitor disease reporting. As we have seen with cyberattacks both domestic and abroad, cybersecurity vulnerabilities underlie most of our modern-day computing infrastructure. Blockchain was designed to be secure because it is decentralized across many computer networks and, since it was designed as a digital ledger, the previous data (or “blocks”) in the blockchain are difficult to alter.

While the NORS platform could be hacked with malware to gain access to our electricity and water infrastructure, instituting blockchain technology would limit the potential damage of the malware based on the inherent security of the technology. If this does not sound important, imagine the damage and ensuing panic that could be caused by a compromised NORS reporting a widespread Ebola outbreak.

The use of blockchain in monitoring epidemic outbreaks might not only apply to fast-spreading outbreaks like the flu, but also to epidemics that have lasted for decades. Since blockchain allows an unchangeable snapshot of data over time and can be anonymous, partner organizations could provide HIV test results to an individual’s “digital ledger” with a date of the test and the results.

Individuals could then exchange their HIV status securely, in an application, before engaging in high-risk behaviors. Since many municipalities provide free or low-cost, anonymous HIV testing, the use of blockchain would allow disease monitoring and exchange of status in a secure and trusted manner. The LGBTQ community and other high-risk communities could use an application to securely exchange HIV status with potential partners. With widespread adoption of this status-exchange system, an individual’s high-risk exposure could be limited, further reducing the spread of the epidemic.

While much of the creative application around blockchain has focused on supply chain-like models, including distribution of renewable energy and local sourcing of goods, it is important also to think innovatively about how blockchain can be used outside of supply chain and accounting.

In healthcare, blockchain has been discussed frequently in relation to electronic health records (EHRs), yet even that could be underappreciating the technology’s potential. Leaders in the blockchain arena should invest in application development for epidemic monitoring and disease control using blockchain technology. …(More)”.

Gender is personal – not computational

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Foad Hamidi, Morgan Scheuerman and Stacy Branham in the Conversation: “Efforts at automatic gender recognition – using algorithms to guess a person’s gender based on images, video or audio – raise significant social and ethical concerns that are not yet fully explored. Most current research on automatic gender recognition technologies focuses instead on technological details.

Our recent research found that people with diverse gender identities, including those identifying as transgender or gender nonbinary, are particularly concerned that these systems could miscategorize them. People who express their gender differently from stereotypical male and female norms already experience discrimination and harm as a result of being miscategorized or misunderstood. Ideally, technology designers should develop systems to make these problems less common, not more so.

As digital technologies become more powerful and sophisticated, their designers are trying to use them to identify and categorize complex human characteristics, such as sexual orientation, gender and ethnicity. The idea is that with enough training on abundant user data, algorithms can learn to analyze people’s appearance and behavior – and perhaps one day characterize people as well as, or even better than, other humans do.

Gender is a hard topic for people to handle. It’s a complex concept with important roles both as a cultural construct and a core aspect of an individual’s identity. Researchers, scholars and activists are increasingly revealing the diverse, fluid and multifaceted aspects of gender. In the process, they find that ignoring this diversity can lead to both harmful experiences and social injustice. For example, according to the 2016 National Transgender Survey, 47 percent of transgender participants stated that they had experienced some form of discrimination at their workplace due to their gender identity. More than half of transgender people who were harassed, assaulted or expelled because of their gender identity had attempted suicide….(More)”.

International Data Flows and Privacy: The Conflict and its Resolution

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World Bank Policy Research Working Paper by Aaditya Mattoo and Joshua P Meltzer: “The free flow of data across borders underpins today’s globalized economy. But the flow of personal dataoutside the jurisdiction of national regulators also raises concerns about the protection of privacy. Addressing these legitimate concerns without undermining international integration is a challenge. This paper describes and assesses three types of responses to this challenge: unilateral development of national or regional regulation, such as the European Union’s Data Protection Directive and forthcoming General Data Protection Regulation; international negotiation of trade disciplines, most recently in the Comprehensive and Progressive Agreement for Trans-Pacific Partnership (CPTPP); and international cooperation involving regulators, most significantly in the EU-U.S. Privacy Shield Agreement.

The paper argues that unilateral restrictions on data flows are costly and can hurt exports, especially of data-processing and other data-based services; international trade rules that limit only the importers’ freedom to regulate cannot address the challenge posed by privacy; and regulatory cooperation that aims at harmonization and mutual recognition is not likely to succeed, given the desirable divergence in national privacy regulation. The way forward is to design trade rules (as the CPTPP seeks to do) that reflect the bargain central to successful international cooperation (as in the EU-US Privacy Shield): regulators in data destination countries would assume legal obligations to protect the privacy of foreign citizens in return for obligations on data source countries not to restrict the flow of data. Existing multilateral rules can help ensure that any such arrangements do not discriminate against and are open to participation by other countries….(More)”.

The promise and peril of military applications of artificial intelligence

Curated on Posted on by Stefaan Verhulst

Michael C. Horowitz at the Bulletin of the Atomic Scientists: “Artificial intelligence (AI) is having a moment in the national security space. While the public may still equate the notion of artificial intelligence in the military context with the humanoid robots of the Terminatorfranchise, there has been a significant growth in discussions about the national security consequences of artificial intelligence. These discussions span academia, business, and governments, from Oxford philosopher Nick Bostrom’s concern about the existential risk to humanity posed by artificial intelligence to Tesla founder Elon Musk’s concern that artificial intelligence could trigger World War III to Vladimir Putin’s statement that leadership in AI will be essential to global power in the 21st century.

What does this really mean, especially when you move beyond the rhetoric of revolutionary change and think about the real world consequences of potential applications of artificial intelligence to militaries? Artificial intelligence is not a weapon. Instead, artificial intelligence, from a military perspective, is an enabler, much like electricity and the combustion engine. Thus, the effect of artificial intelligence on military power and international conflict will depend on particular applications of AI for militaries and policymakers. What follows are key issues for thinking about the military consequences of artificial intelligence, including principles for evaluating what artificial intelligence “is” and how it compares to technological changes in the past, what militaries might use artificial intelligence for, potential limitations to the use of artificial intelligence, and then the impact of AI military applications for international politics.

The potential promise of AI—including its ability to improve the speed and accuracy of everything from logistics to battlefield planning and to help improve human decision-making—is driving militaries around the world to accelerate their research into and development of AI applications. For the US military, AI offers a new avenue to sustain its military superiority while potentially reducing costs and risk to US soldiers. For others, especially Russia and China, AI offers something potentially even more valuable—the ability to disrupt US military superiority. National competition in AI leadership is as much or more an issue of economic competition and leadership than anything else, but the potential military impact is also clear. There is significant uncertainty about the pace and trajectory of artificial intelligence research, which means it is always possible that the promise of AI will turn into more hype than reality. Moreover, safety and reliability concerns could limit the ways that militaries choose to employ AI…(More)”,

If, When and How Blockchain Technologies Can Provide Civic Change

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By Stefaan G. Verhulst and Andrew Young

The hype surrounding the potential of blockchain technologies– the distributed ledger technology (DLT) undergirding cryptocurrencies like Bitcoin – to transform the way industries and sectors operate and exchange records is reaching a fever pitch.

Gartner Hype Cycle

Source: Top Trends in the Gartner Hype Cycle for Emerging Technologies, 2017

Governments and civil society have now also joined the quest and are actively exploring the potential of DLTs to create transformative social change. Experiments are underway to leverage blockchain technologies to address major societal challenges – from homelessness in New York City to the Rohyingya crisis in Myanmar to government corruption around the world. At the same time, a growing backlash to the newest ‘shiny object’ in the technology for good space is gaining ground.   

At this year’s The Impacts of Civic Technology Conference (TICTeC), organized by mySociety in Lisbon, the GovLab’s Stefaan Verhulst and Andrew Young joined the Engine Room’s Nicole Anand, the Natural Resource Governance Institute’s Anders Pedersen, and ITS-Rio’s Marco Konopacki to consider whether or not Blockchain can truly deliver on its promise for creating civic change.

For the GovLab’s contribution to the panel, we shared early findings from our Blockchange: Blockchain for Social Change initiative. Blockchange, funded by the Rockefeller Foundation, seeks to develop a deeper understanding of the promise and practice of DLTs tin addressing public problems – with a particular focus on the lack, the role and the establishment of trusted identities – through a set of detailed case-studies. Such insights may help us develop operational guidelines on when blockchain technology may be appropriate and what design principles should guide the future use of DLTs for good.

Our presentation covered four key areas (Full presentation here):

  1. The evolving package of attributes present in Blockchain technologies: on-going experimentation, development and investment has lead to the realization that there is no one blockchain technology. Rather there are several variations of attributes that provide for different technological scenarios. Some of these attributes remain foundational -– such as immutability, (guaranteed) integrity, and distributed resilience – while others have evolved as optional including disintermediation, transparency, and accessibility. By focusing on the attributes we can transcend the noise that is emerging from having too many well funded start-ups that seek to pitch their package of attributes as the solution;Attributes of DLT
  2. The three varieties of Blockchain for social change use cases: Most of the pilots and use cases where DLTs are being used to improve society and people’s lives can be categorized along three varieties of applications:
    • Track and Trace applications. For instance: 
      1. Versiart creates verifiable, digital certificates for art and collectibles which helps buyers ensure each piece’s provenance.
      2. Grassroots Cooperative along with Heifer USA created a blockchain-powered app that allows every package of chicken marketed and sold by Grassroots to be traced on the Ethereum blockchain.
      3. Everledger works with stakeholders across the diamond supply chain to track diamonds from mine to store.
      4. Ripe is working with Sweetgreen to use blockchain and IoT sensors to track crop growth, yielding higher-quality produce and providing better information for farmers, food distributors, restaurants, and consumers.    
    • Smart Contracting applications. For instance:
      1. In Indonesia, Carbon Conservation and Dappbase have created smart contracts that will distribute rewards to villages that can prove the successful reduction of incidences of forest fires.
      2. Alice has built Ethereum-based smart contracts for a donation project that supports 15 homeless people in London. The smart contracts ensure donations are released only when pre-determined project goals are met.
      3. Bext360 utilizes smart contracts to pay coffee farmers fairly and immediately based on a price determined through weighing and analyzing beans by the Bext360 machine at the source.  
    • Identity applications. For instance:
      1. The State of Illinois is working with Evernym to digitize birth certificates, thus giving individuals a digital identity from birth.
      2. BanQu creates an economic passport for previously unbanked populations by using blockchain to record economic and financial transactions, purchase goods, and prove their existence in global supply chains.
      3. In 2015, AID:Tech piloted a project working with Syrian refugees in Lebanon to distribute over 500 donor aid cards that were tied to non-forgeable identities.
      4. uPort provides digital identities for residents of Zug, Switzerland to use for governmental services.

Three Blockchange applications

  1. The promise of trusted Identity: the potential to establish a trusted identity turns out to be foundational for using blockchain technologies for social change. At the same time identity emerges from a process (involving, for instance, provisioning, authentication, administration, authorization and auditing) and it is key to assess at what stage of the ID lifecycle DLTs provide an advantage vis-a-vis other ID technologies; and how the maturity of the blockchain technology toward addressing the ID challenge. 

ID Lifecycle and DLT

  1. Finally, we seek to translate current findings into
    • Operational conditions that can enable the public and civic sector at-large to determine when “to blockchain” including:
      • The need for a clear problem definition (as opposed to certain situations where DLT solutions are in search of a problem);
      • The presence of information asymmetries and high transaction costs incentivize change. (“The Market of Lemons” problem);
      • The availability of (high quality) digital records;
      • The lack of availability of credible and alternative disclosure technologies;
      • Deficiency (or efficiency) of (trusted) intermediaries in the space.
    • Design principles that can increase the likelihood of societal benefit when using Blockchain for identity projects (see picture) .

Design Principles

In the coming months, we will continue to share our findings from the Blockchange project in a number of forms – including a series of case studies, additional presentations and infographics, and an operational field guide for designing and implementing Blockchain projects to address challenges across the identity lifecycle.

The GovLab, in collaboration with the National Resource Governance Institute, is also delighted to announce a new initiative aimed at taking stock of the promise, practice and challenge of the use of Blockchain in the extractives sector. The project is focused in particular on DLTs as they relate to beneficial ownership, licensing and contracting transparency, and commodity trading transparency. This fall, we will share a collection of Blockchain for extractives case studies, as well as a report summarizing if, when, and how Blockchain can provide value across the extractives decision chain.

If you are interested in collaborating on our work to increase our understanding of Blockchain’s real potential for social change, or if you have any feedback on this presentation of early findings, please contact [email protected].

 

Health Citizenship: A New Social Contract To Improve The Clinical Trial Process

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Essay by Cynthia Grossman  and Tanisha Carino: “…We call this new social contract health citizenship, which includes a set of implied rights and responsibilities for all parties.

Three fundamental truths underpin our efforts:

  1. The path to better health and the advancement of science begin and end with engaged patients.
  2. The biomedical research enterprise lives all around us — in clinical trials, the data in our wearables, electronic health records, and data used for payment.
  3. The stakeholders that fuel advancement — clinicians, academia, government, the private sector, and investors — must create a system focused on speeding medical research and ensuring that patients have appropriate access to treatments.

To find tomorrow’s cures, treatments, and prevention measures, every aspect of society needs to get involved. Health citizenship recognizes that the future of innovative research and development depends on both patients and the formal healthcare system stepping up to the plate.

Moving Toward A Culture Of Transparency  

Increasing clinical trials registration and posting of research results are steps in the direction of transparency. Access to information about clinical trials — enrollment criteria, endpoints, locations, and results — is critical to empowering patients, their families, and primary care physicians. Also, transparency has a cascading impact on the cost and speed of scientific discovery, through ensuring validation and reproducibility of results…..

Encouraging Data Sharing

Data is the currency of biomedical research, and now patients are poised to contribute more of it than ever. In fact, many patients who participate in clinical research expect that their data will be shared and want to be partners, not just participants, in how data is used to advance the science and clinical practice that impact their disease or condition.

Engaging more patients in data sharing is only one part of what is needed to advance a data-sharing ecosystem. The National Academies of Science, Engineering, and Medicine (formerly the Institute of Medicine) conducted a consensus study that details the challenges to clinical trial data sharing. Out of that study spun a new data-sharing platform, Vivli, which will publicly launch this year. The New England Journal of Medicine took an important step toward demonstrating the value of sharing clinical trial data through its SPRINT Data Challenge, where it opened up a data set and supported projects that sought to derive new insights from the existing data. Examples like these will go a long way toward demonstrating the value of data sharing to advancing science, academic careers, and, most importantly, patient health.

As the technology to share clinical trial data improves, it will become less of an impediment than aligning incentives. The academic environment incentivizes researchers through first author and top-tier journal publications, which contribute to investigators holding on to clinical trial data. A recent publication suggests a way to ensure academic credit, through publication credit, for sharing data sets and allows investigators to tag data sets with unique IDs.

While this effort could assist in incentivizing data sharing, we see the value of tagging data sets as a way to rapidly gather examples of the value of data sharing, including what types of data sets are taken up for analysis and what types of analyses or actions are most valuable. This type of information is currently missing, and, without the value proposition, it is difficult to encourage data sharing behavior.

The value of clinical trial data will need to be collectively reexamined through embracing the sharing of data both across clinical trials and combined with other types of data. Similar to the airline and car manufacturing industries sharing data in support of public safety,7 as more evidence is gathered to support the impact of clinical trial data sharing and as the technology is developed to do this safely and securely, the incentives, resources, and equity issues will need to be addressed collectively…(More)”.