Essay by Peter Strauss: “This essay has been written to set the context for a future issue of Daedalus, the quarterly of the American Academy of Arts and Sciences, addressing the prospects of American administrative law in the Twenty-first Century. It recounts the growth of American government over the centuries since its founding, in response to the profound changes in the technology, economy, and scientific understandings it must deal with, under a Constitution written for the governance of a dispersed agrarian population operating with hand tools in a localized economy. It then suggests profound challenges of the present day facing administrative law’s development: the transition from processes of the paper age to those of the digital age; the steadily growing centralization of decision in an opaque, political presidency, displacing the focused knowledge and expertise of agencies Congress created to pursue particular governmental ends; the thickening, as well, of the political layer within agencies themselves, threatening similar displacements; and the revival in the courts of highly formalized analytic techniques inviting a return to the forms of government those who wrote the Constitution might themselves have imagined. The essay will not be published until months after the November election. While President Trump’s first term in office has sharply illustrated an imbalance in American governance between law and politics and law, reason and unreason, that imbalance is hardly new; it has been growing for decades. There lie the challenges….(More)”
The $100 Million Nudge: Increasing Tax Compliance of Businesses and the Self-Employed using a Natural Field Experiment
Paper by Justin E. Holz et al: “This paper uses a natural field experiment to examine the effectiveness of specific nudges on tax compliance amongst firms and the self-employed in the Dominican Republic. In collaboration with the Dominican Republic’s tax authority, we designed messages for more than 28,000 self-employed workers and over 56,000 firms. Leveraging administrative tax data, we find evidence that our nudges (increasing the salience of prison sentences or public disclosure of tax evaders) have large effects on increasing tax compliance, primarily working through the channel of decreasing claimed tax exemptions. Interestingly, we find that firms are more impacted than the self-employed, and that firm size is critically linked to nudge effectiveness: larger firms are considerably more influenced by nudges than smaller firms. We find this latter result noteworthy given the paucity of evidence showing significant behavioral impacts of nudges amongst the largest players in a market. Overall, our messages increased tax revenue by $193 million (roughly 0.23% of the Dominican Republic’s GDP in 2018), with over $100 million constituting income that the government would not have received without our field experimental nudges….(More)”.
Can You Fight Systemic Racism With Design?
Reboot’s “Design With” podcast with Antionette Carroll: “What began as a 24-hour design challenge addressing racial inequality in Ferguson, MO has since grown into a powerful organization fighting inequity with its own brand of collaborative design. Antionette Carroll, founder of Creative Reaction Lab, speaks about Equity-Centered Community Design—and how Black and Latinx youth are using design as their tool of choice to dismantle the very systems designed to exclude them….(More)”.
What privacy preserving techniques make possible: for transport authorities
Blog by Georgina Bourke: “The Mayor of London listed cycling and walking as key population health indicators in the London Health Inequalities Strategy. The pandemic has only amplified the need for people to use cycling as a safer and healthier mode of transport. Yet as the majority of cyclists are white, Black communities are less likely to get the health benefits that cycling provides. Groups like Transport for London (TfL) should monitor how different communities cycle and who is excluded. Organisations like the London Office of Technology and Innovation (LOTI) could help boroughs procure privacy preserving technology to help their efforts.
But at the moment, it’s difficult for public organisations to access mobility data held by private companies. One reason is because mobility data is sensitive. Even if you remove identifiers like name and address, there’s still a risk you can reidentify someone by linking different data sets together. This means you could track how an individual moved around a city. I wrote more about the privacy risks with mobility data in a previous blog post. The industry’s awareness of privacy issues in using and sharing mobility data is rising. In the case of Los Angeles Department of Transport’s Mobility Data Specification (LADOT), Uber is concerned about sharing anonymised data because of the privacy risk. Both organisations are now involved in a legal battle to see which has the rights to the data. This might have been avoided if Uber had applied privacy preserving techniques….
Privacy preserving techniques can help mobility providers share important insights with authorities without compromising peoples’ privacy.
Instead of requiring access to all customer trip data, authorities could ask specific questions like, where are the least popular places to cycle? If mobility providers apply techniques like randomised response, an individual’s identity is obscured by the noise added to the data. This means it’s highly unlikely that someone could be reidentified later on. And because this technique requires authorities to ask very specific questions – for randomised response to work, the answer has to be binary, ie Yes or No – authorities will also be practicing data minimisation by default.
It’s easy to imagine transport authorities like TfL combining privacy preserved mobility data from multiple mobility providers to compare insights and measure service provision. They could cross reference the privacy preserved bike trip data with demographic data in the local area to learn how different communities cycle. The first step to addressing inequality is being able to measure it….(More)”.
The co-ops that electrified Depression-era farms are now building rural internet
Nicolás Rivero at Quartz: “In 2017, Mark McKinney decided enough was enough. The head of the Jackson County Rural Electric Membership Corporation in southern Indiana, a co-op that provides electricity to a rural community of 20,000 members, McKinney was still living without a reliable internet connection. No internet service provider would build the infrastructure to get him or his neighbors online.
“We realized no one was interested due to the capital expense and limited number of members per mile,” says McKinney, “so the board made the decision to go at it on our own.”
The coronavirus pandemic quickly proved the wisdom of their decision: Thanks to their new fiber optic connection, McKinney and his wife were able to self-quarantine without missing work after they were exposed to the virus. Their son finished the spring semester at home after his university shut down in March. “We could not have done that without this connection,” he said.
Across the rural US, more than 100 cooperatives, first launched to provide electric and telephone services as far back as the 1930s, are now laying miles of fiber optic cable to connect their members to high speed internet. Many started building their own networks after failing to convince established internet service providers to cover their communities.
But while rural fiber optic networks have spread swiftly over the past five years, their progress has been uneven. In North Dakota, for example, fiber optic co-ops cover 82% of the state’s landmass, while Nevada has just one co-op. And in the states where the utilities do exist, they tend to serve the whitest communities….(More)”.
The Truth Is Paywalled But The Lies Are Free
Essay by Nathan J. Robinson: “…This means that a lot of the most vital information will end up locked behind the paywall. And while I am not much of a New Yorker fan either, it’s concerning that the Hoover Institute will freely give you Richard Epstein’s infamous article downplaying the threat of coronavirus, but Isaac Chotiner’s interview demolishing Epstein requires a monthly subscription, meaning that the lie is more accessible than its refutation. Eric Levitz of New York is one of the best and most prolific left political commentators we have. But unless you’re a subscriber of New York, you won’t get to hear much of what he has to say each month.
Possibly even worse is the fact that so much academic writing is kept behind vastly more costly paywalls. A white supremacist on YouTube will tell you all about race and IQ but if you want to read a careful scholarly refutation, obtaining a legal PDF from the journal publisher would cost you $14.95, a price nobody in their right mind would pay for one article if they can’t get institutional access. (I recently gave up on trying to access a scholarly article because I could not find a way to get it for less than $39.95, though in that case the article was garbage rather than gold.) Academic publishing is a nightmarish patchwork, with lots of articles advertised at exorbitant fees on one site, and then for free on another, or accessible only through certain databases, which your university or public library may or may not have access to. (Libraries have to budget carefully because subscription prices are often nuts. A library subscription to the Journal of Coordination Chemistry, for instance, costs $11,367 annually.)
Of course, people can find their ways around paywalls. SciHub is a completely illegal but extremely convenient means of obtaining academic research for free. (I am purely describing it, not advocating it.) You can find a free version of the article debunking race and IQ myths on ResearchGate, a site that has engaged in mass copyright infringement in order to make research accessible. Often, because journal publishers tightly control access to their copyrighted work in order to charge those exorbitant fees for PDFs, the versions of articles that you can get for free are drafts that have not yet gone through peer review, and have thus been subjected to less scrutiny. This means that the more reliable an article is, the less accessible it is. On the other hand, pseudo-scholarhip is easy to find. Right-wing think tanks like the Cato Institute, the Foundation for Economic Education, the Hoover Institution, the Mackinac Center, the American Enterprise Institute, and the Heritage Foundation pump out slickly-produced policy documents on every subject under the sun. They are utterly untrustworthy—the conclusion is always going to be “let the free market handle the problem,” no matter what the problem or what the facts of the case. But it is often dressed up to look sober-minded and non-ideological.
It’s not easy or cheap to be an “independent researcher.” When I was writing my first book, Superpredator, I wanted to look through newspaper, magazine, and journal archives to find everything I could about Bill Clinton’s record on race. I was lucky I had a university affiliation, because this gave me access to databases like LexisNexis. If I hadn’t, the cost of finding out what I wanted to find out would likely have run into the thousands of dollars.
A problem beyond cost, though, is convenience. I find that even when I am doing research through databases and my university library, it is often an absolute mess: the sites are clunky and constantly demanding login credentials. The amount of time wasted in figuring out how to obtain a piece of research material is a massive cost on top of the actual pricing. The federal court document database, PACER, for instance, charges 10 cents a page for access to records, which adds up quickly since legal research often involves looking through thousands of pages. They offer an exemption if you are a researcher or can’t afford it, but to get the exemption you have to fill out a three page form and provide an explanation of both why you need each document and why you deserve the exemption. This is a waste of time that inhibits people’s productivity and limits their access to knowledge.
In fact, to see just how much human potential is being squandered by having knowledge dispensed by the “free market,” let us briefly picture what “totally democratic and accessible knowledge” would look like…(More)”.
Resetting the state for the post-covid digital age
Blog by Carlos Santiso: “The COVID-19 crisis is putting our global digital resilience to the test. It has revealed the importance of a country’s digital infrastructure as the backbone of the economy, not just as an enabler of the tech economy. Digitally advanced governments, such as Estonia, have been able to put their entire bureaucracies in remote mode in a matter of days, without major disruption. And some early evidence even suggests that their productivity increased during lockdown.
With the crisis, the costs of not going digital have largely surpassed the risks of doing so. Countries and cities lagging behind have realised the necessity to boost their digital resilience and accelerate their digital transformation. Spain, for example, adopted an ambitious plan to inject 70 billion euro into in its digital transformation over the next five years, with a Digital Spain 2025 agenda comprising 10 priorities and 48 measures. In the case of Brazil, the country was already taking steps towards the digital transformation of its public sector before the COVID-19 crisis hit. The crisis is accelerating this transformation.
The great accelerator
Long before the crisis hit, the data-driven digital revolution has been challenging governments to modernise and become more agile, open and responsive. Progress has nevertheless been uneven, hindered by a variety of factors, from political resistance to budget constraints. Going digital requires the sort of whole-of government reforms that need political muscle and long-term vision to break-up traditional data silos within bureaucracies, jealous to preserve their power. In bureaucracies, information is power. Now, information has become ubiquitous and governing data, a critical challenge.
Cutting red tape will be central to the recovery. Many governments are fast-tracking regulatory simplification and administrative streamlining to reboot hard-hit economic sectors. Digitalisation is resetting the relationship between states and citizens, a Copernican revolution for our rule-based bureaucracies….(More)“.
Public perceptions on data sharing: key insights from the UK and the USA
Paper by Saira Ghafur, Jackie Van Dael, Melanie Leis and Ara Darzi, and Aziz Sheikh: “Data science and artificial intelligence (AI) have the potential to transform the delivery of health care. Health care as a sector, with all of the longitudinal data it holds on patients across their lifetimes, is positioned to take advantage of what data science and AI have to offer. The current COVID-19 pandemic has shown the benefits of sharing data globally to permit a data-driven response through rapid data collection, analysis, modelling, and timely reporting.
Despite its obvious advantages, data sharing is a controversial subject, with researchers and members of the public justifiably concerned about how and why health data are shared. The most common concern is privacy; even when data are (pseudo-)anonymised, there remains a risk that a malicious hacker could, using only a few datapoints, re-identify individuals. For many, it is often unclear whether the risks of data sharing outweigh the benefits.
A series of surveys over recent years indicate that the public holds a range of views about data sharing. Over the past few years, there have been several important data breaches and cyberattacks. This has resulted in patients and the public questioning the safety of their data, including the prospect or risk of their health data being shared with unauthorised third parties.
We surveyed people across the UK and the USA to examine public attitude towards data sharing, data access, and the use of AI in health care. These two countries were chosen as comparators as both are high-income countries that have had substantial national investments in health information technology (IT) with established track records of using data to support health-care planning, delivery, and research. The UK and USA, however, have sharply contrasting models of health-care delivery, making it interesting to observe if these differences affect public attitudes.
Willingness to share anonymised personal health information varied across receiving bodies (figure). The more commercial the purpose of the receiving institution (eg, for an insurance or tech company), the less often respondents were willing to share their anonymised personal health information in both the UK and the USA. Older respondents (≥35 years) in both countries were generally less likely to trust any organisation with their anonymised personal health information than younger respondents (<35 years)…
Despite the benefits of big data and technology in health care, our findings suggest that the rapid development of novel technologies has been received with concern. Growing commodification of patient data has increased awareness of the risks involved in data sharing. There is a need for public standards that secure regulation and transparency of data use and sharing and support patient understanding of how data are used and for what purposes….(More)”.
The Shortcomings of Transparency for Democracy
Paper by Michael Schudson: “Transparency” has become a widely recognized, even taken for granted, value in contemporary democracies, but this has been true only since the 1970s. For all of the obvious virtues of transparency for democracy, they have not always been recognized or they have been recognized, as in the U.S. Freedom of Information Act of 1966, with significant qualifications. This essay catalogs important shortcomings of transparency for democracy, as when it clashes with national security, personal privacy, and the importance of maintaining the capacity of government officials to talk frankly with one another without fear that half-formulated ideas, thoughts, and proposals will become public. And when government information becomes public, that does not make it equally available to all—publicity is not in itself democratic, as public information (as in open legislative committee hearings) is more readily accessed by empowered groups with lobbyists able to attend and monitor the provision of the information. Transparency is an element in democratic government, but it is by no means a perfect emblem of democracy….(More)”.
Project Patient Voice
Press Release: “The U.S. Food and Drug Administration today launched Project Patient Voice, an initiative of the FDA’s Oncology Center of Excellence (OCE). Through a new website, Project Patient Voice creates a consistent source of publicly available information describing patient-reported symptoms from cancer trials for marketed treatments. While this patient-reported data has historically been analyzed by the FDA during the drug approval process, it is rarely included in product labeling and, therefore, is largely inaccessible to the public.
“Project Patient Voice has been initiated by the Oncology Center of Excellence to give patients and health care professionals unique information on symptomatic side effects to better inform their treatment choices,” said FDA Principal Deputy Commissioner Amy Abernethy, M.D., Ph.D. “The Project Patient Voice pilot is a significant step in advancing a patient-centered approach to oncology drug development. Where patient-reported symptom information is collected rigorously, this information should be readily available to patients.”
Patient-reported outcome (PRO) data is collected using questionnaires that patients complete during clinical trials. These questionnaires are designed to capture important information about disease- or treatment-related symptoms. This includes how severe or how often a symptom or side effect occurs.
Patient-reported data can provide additional, complementary information for health care professionals to discuss with patients, specifically when discussing the potential side effects of a particular cancer treatment. In contrast to the clinician-reported safety data in product labeling, the data in Project Patient Voice is obtained directly from patients and can show symptoms before treatment starts and at multiple time points while receiving cancer treatment.
The Project Patient Voice website will include a list of cancer clinical trials that have available patient-reported symptom data. Each trial will include a table of the patient-reported symptoms collected. Each patient-reported symptom can be selected to display a series of bar and pie charts describing the patient-reported symptom at baseline (before treatment starts) and over the first 6 months of treatment. This information provides insights into side effects not currently available in standard FDA safety tables, including existing symptoms before the start of treatment, symptoms over time, and the subset of patients who did not have a particular symptom prior to starting treatment….(More)”.