App facilitates charity work in Jordan

Curated on Posted on by Stefaan Verhulst

Springwise: “We have already seen how technology can be harnessed to help facilitate charitable and environmental efforts. For example, the recycling organization which helps businesses rehome unwanted goods, donating money to charity in addition to helping businesses be more economical. Another example in which technology has been used to raise awareness is through the charity chatbot, which teaches users about women’s daily journey to find water in Ethiopia.

JoodLife is a start-up which aims to make the most of technology and take advantage of it in order to help voluntary efforts in Jordan.

The application works as a social platform to connect volunteers and donors in order to facilitate charity work. Donors can register their donations via the app, and then all the available grants are displayed. The grants can be searched for on the app, and users can specify the area they wish to search. The donor and the volunteer can then agree a mechanism by which they wish to transfer the grant. At which point the available grant will no longer be shown on the app search. The app aims to serve as a link between donors and volunteers to save both parties time and effort. This makes it much easier to make monetary and material donations. The social aspect of the app also increases solidarity between charity workers and makes it much simpler to distribute roles in the most efficient way….(More)”.

Managing Public Trust

Curated on Posted on by Stefaan Verhulst

Book edited by Barbara Kożuch, Sławomir J. Magala and Joanna Paliszkiewicz: “This book brings together the theory and practice of managing public trust. It examines the current state of public trust, including a comprehensive global overview of both the research and practical applications of managing public trust by presenting research from seven countries (Brazil, Finland, Poland, Hungary, Portugal, Taiwan, Turkey) from three continents. The book is divided into five parts, covering the meaning of trust, types, dimension and the role of trust in management; the organizational challenges in relation to public trust; the impact of social media on the development of public trust; the dynamics of public trust in business; and public trust in different cultural contexts….(More)”.

Selected Readings on Data Responsibility, Refugees and Migration

Curated on Posted on by Andrew Young

By Kezia Paladina, Alexandra Shaw, Michelle Winowatan, Stefaan Verhulst, and Andrew Young

The Living Library’s Selected Readings series seeks to build a knowledge base on innovative approaches for improving the effectiveness and legitimacy of governance. This curated and annotated collection of recommended works on the topic of Data Collaboration for Migration was originally published in 2018.

Special thanks to Paul Currion whose data responsibility literature review gave us a headstart when developing the below. (Check out his article listed below on Refugee Identity)

The collection below is also meant to complement our article in the Stanford Social Innovation Review on Data Collaboration for Migration where we emphasize the need for a Data Responsibility Framework moving forward.

From climate change to politics to finance, there is growing recognition that some of the most intractable problems of our era are information problems. In recent years, the ongoing refugee crisis has increased the call for new data-driven approaches to address the many challenges and opportunities arising from migration. While data – including data from the private sector – holds significant potential value for informing analysis and targeted international and humanitarian response to (forced) migration, decision-makers often lack an actionable understanding of if, when and how data could be collected, processed, stored, analyzed, used, and shared in a responsible manner.

Data responsibility – including the responsibility to protect data and shield its subjects from harms, and the responsibility to leverage and share data when it can provide public value – is an emerging field seeking to go beyond just privacy concerns. The forced migration arena has a number of particularly important issues impacting responsible data approaches, including the risks of leveraging data regarding individuals fleeing a hostile or repressive government.

In this edition of the GovLab’s Selected Readings series, we examine the emerging literature on the data responsibility approaches in the refugee and forced migration space – part of an ongoing series focused on Data Responsibiltiy. The below reading list features annotated readings related to the Policy and Practice of data responsibility for refugees, and the specific responsibility challenges regarding Identity and Biometrics.

Data Responsibility and Refugees – Policy and Practice

International Organization for Migration (IOM) (2010) IOM Data Protection Manual. Geneva: IOM.

  • This IOM manual includes 13 data protection principles related to the following activities: lawful and fair collection, specified and legitimate purpose, data quality, consent, transfer to third parties, confidentiality, access and transparency, data security, retention and personal data, application of the principles, ownership of personal data, oversight, compliance and internal remedies (and exceptions).
  • For each principle, the IOM manual features targeted data protection guidelines, and templates and checklists are included to help foster practical application.

Norwegian Refugee Council (NRC) Internal Displacement Monitoring Centre / OCHA (eds.) (2008) Guidance on Profiling Internally Displaced Persons. Geneva: Inter-Agency Standing Committee.

  • This NRC document contains guidelines on gathering better data on Internally Displaced Persons (IDPs), based on country context.
  • IDP profile is defined as number of displaced persons, location, causes of displacement, patterns of displacement, and humanitarian needs among others.
  • It further states that collecting IDPs data is challenging and the current condition of IDPs data are hampering assistance programs.
  • Chapter I of the document explores the rationale for IDP profiling. Chapter II describes the who aspect of profiling: who IDPs are and common pitfalls in distinguishing them from other population groups. Chapter III describes the different methodologies that can be used in different contexts and suggesting some of the advantages and disadvantages of each, what kind of information is needed and when it is appropriate to profile.

United Nations High Commissioner for Refugees (UNHCR). Model agreement on the sharing of personal data with Governments in the context of hand-over of the refugee status determination process. Geneva: UNHCR.

  • This document from UNHCR provides a template of agreement guiding the sharing of data between a national government and UNHCR. The model agreement’s guidance is aimed at protecting the privacy and confidentiality of individual data while promoting improvements to service delivery for refugees.

United Nations High Commissioner for Refugees (UNHCR) (2015). Policy on the Protection of Personal Data of Persons of Concern to UNHCR. Geneva: UNHCR.

  • This policy outlines the rules and principles regarding the processing of personal data of persons engaged by UNHCR with the purpose of ensuring that the practice is consistent with UNGA’s regulation of computerized personal data files that was established to protect individuals’ data and privacy.
  • UNHCR require its personnel to apply the following principles when processing personal data: (i) Legitimate and fair processing (ii) Purpose specification (iii) Necessity and proportionality (iv) Accuracy (v) Respect for the rights of the data subject (vi) Confidentiality (vii) Security (viii) Accountability and supervision.

United Nations High Commissioner for Refugees (UNHCR) (2015) Privacy Impact Assessment of UNHCR Cash Based Interventions.

  • This impact assessment focuses on privacy issues related to financial assistance for refugees in the form of cash transfers. For international organizations like UNHCR to determine eligibility for cash assistance, data “aggregation, profiling, and social sorting techniques,” are often needed, leading a need for a responsible data approach.
  • This Privacy Impact Assessment (PIA) aims to identify the privacy risks posed by their program and seek to enhance safeguards that can mitigate those risks.
  • Key issues raised in the PIA involves the challenge of ensuring that individuals’ data will not be used for purposes other than those initially specified.

Data Responsibility in Identity and Biometrics

Bohlin, A. (2008) “Protection at the Cost of Privacy? A Study of the Biometric Registration of Refugees.” Lund: Faculty of Law of the University of Lund.

  • This 2008 study focuses on the systematic biometric registration of refugees conducted by UNHCR in refugee camps around the world, to understand whether enhancing the registration mechanism of refugees contributes to their protection and guarantee of human rights, or whether refugee registration exposes people to invasions of privacy.
  • Bohlin found that, at the time, UNHCR failed to put a proper safeguards in the case of data dissemination, exposing the refugees data to the risk of being misused. She goes on to suggest data protection regulations that could be put in place in order to protect refugees’ privacy.

Currion, Paul. (2018) “The Refugee Identity.” Medium.

  • Developed as part of a DFID-funded initiative, this essay considers Data Requirements for Service Delivery within Refugee Camps, with a particular focus on refugee identity.
  • Among other findings, Currion finds that since “the digitisation of aid has already begun…aid agencies must therefore pay more attention to the way in which identity systems affect the lives and livelihoods of the forcibly displaced, both positively and negatively.”
  • Currion argues that a Responsible Data approach, as opposed to a process defined by a Data Minimization principle, provides “useful guidelines,” but notes that data responsibility “still needs to be translated into organisational policy, then into institutional processes, and finally into operational practice.”

Farraj, A. (2010) “Refugees and the Biometric Future: The Impact of Biometrics on Refugees and Asylum Seekers.” Colum. Hum. Rts. L. Rev. 42 (2010): 891.

  • This article argues that biometrics help refugees and asylum seekers establish their identity, which is important for ensuring the protection of their rights and service delivery.
  • However, Farraj also describes several risks related to biometrics, such as, misidentification and misuse of data, leading to a need for proper approaches for the collection, storage, and utilization of the biometric information by government, international organizations, or other parties.  

GSMA (2017) Landscape Report: Mobile Money, Humanitarian Cash Transfers and Displaced Populations. London: GSMA.

  • This paper from GSMA seeks to evaluate how mobile technology can be helpful in refugee registration, cross-organizational data sharing, and service delivery processes.
  • One of its assessments is that the use of mobile money in a humanitarian context depends on the supporting regulatory environment that contributes to unlocking the true potential of mobile money. The examples include extension of SIM dormancy period to anticipate infrequent cash disbursements, ensuring that persons without identification are able to use the mobile money services, and so on.
  • Additionally, GMSA argues that mobile money will be most successful when there is an ecosystem to support other financial services such as remittances, airtime top-ups, savings, and bill payments. These services will be especially helpful in including displaced populations in development.

GSMA (2017) Refugees and Identity: Considerations for mobile-enabled registration and aid delivery. London: GSMA.

  • This paper emphasizes the importance of registration in the context of humanitarian emergency, because being registered and having a document that proves this registration is key in acquiring services and assistance.
  • Studying cases of Kenya and Iraq, the report concludes by providing three recommendations to improve mobile data collection and registration processes: 1) establish more flexible KYC for mobile money because where refugees are not able to meet existing requirements; 2) encourage interoperability and data sharing to avoid fragmented and duplicative registration management; and 3) build partnership and collaboration among governments, humanitarian organizations, and multinational corporations.

Jacobsen, Katja Lindskov (2015) “Experimentation in Humanitarian Locations: UNHCR and Biometric Registration of Afghan Refugees.” Security Dialogue, Vol 46 No. 2: 144–164.

  • In this article, Jacobsen studies the biometric registration of Afghan refugees, and considers how “humanitarian refugee biometrics produces digital refugees at risk of exposure to new forms of intrusion and insecurity.”

Jacobsen, Katja Lindskov (2017) “On Humanitarian Refugee Biometrics and New Forms of Intervention.” Journal of Intervention and Statebuilding, 1–23.

  • This article traces the evolution of the use of biometrics at the Office of the United Nations High Commissioner for Refugees (UNHCR) – moving from a few early pilot projects (in the early-to-mid-2000s) to the emergence of a policy in which biometric registration is considered a ‘strategic decision’.

Manby, Bronwen (2016) “Identification in the Context of Forced Displacement.” Washington DC: World Bank Group. Accessed August 21, 2017.

  • In this paper, Bronwen describes the consequences of not having an identity in a situation of forced displacement. It prevents displaced population from getting various services and creates higher chance of exploitation. It also lowers the effectiveness of humanitarian actions, as lacking identity prevents humanitarian organizations from delivering their services to the displaced populations.
  • Lack of identity can be both the consequence and and cause of forced displacement. People who have no identity can be considered illegal and risk being deported. At the same time, conflicts that lead to displacement can also result in loss of ID during travel.
  • The paper identifies different stakeholders and their interest in the case of identity and forced displacement, and finds that the biggest challenge for providing identity to refugees is the politics of identification and nationality.
  • Manby concludes that in order to address this challenge, there needs to be more effective coordination among governments, international organizations, and the private sector to come up with an alternative of providing identification and services to the displaced persons. She also argues that it is essential to ensure that national identification becomes a universal practice for states.

McClure, D. and Menchi, B. (2015). Challenges and the State of Play of Interoperability in Cash Transfer Programming. Geneva: UNHCR/World Vision International.

  • This report reviews the elements that contribute to the interoperability design for Cash Transfer Programming (CTP). The design framework offered here maps out these various features and also looks at the state of the problem and the state of play through a variety of use cases.
  • The study considers the current state of play and provides insights about the ways to address the multi-dimensionality of interoperability measures in increasingly complex ecosystems.     

NRC / International Human Rights Clinic (2016). Securing Status: Syrian refugees and the documentation of legal status, identity, and family relationships in Jordan.

  • This report examines Syrian refugees’ attempts to obtain identity cards and other forms of legally recognized documentation (mainly, Ministry of Interior Service Cards, or “new MoI cards”) in Jordan through the state’s Urban Verification Exercise (“UVE”). These MoI cards are significant because they allow Syrians to live outside of refugee camps and move freely about Jordan.
  • The text reviews the acquirement processes and the subsequent challenges and consequences that refugees face when unable to obtain documentation. Refugees can encounter issues ranging from lack of access to basic services to arrest, detention, forced relocation to camps and refoulement.  
  • Seventy-two Syrian refugee families in Jordan were interviewed in 2016 for this report and their experiences with obtaining MoI cards varied widely.

Office of Internal Oversight Services (2015). Audit of the operations in Jordan for the Office of the United Nations High Commissioner for Refugees. Report 2015/049. New York: UN.

  • This report documents the January 1, 2012 – March 31, 2014 audit of Jordanian operations, which is intended to ensure the effectiveness of the UNHCR Representation in the state.
  • The main goals of the Regional Response Plan for Syrian refugees included relieving the pressure on Jordanian services and resources while still maintaining protection for refugees.
  • The audit results concluded that the Representation was initially unsatisfactory, and the OIOS suggested several recommendations according to the two key controls which the Representation acknowledged. Those recommendations included:
    • Project management:
      • Providing training to staff involved in financial verification of partners supervise management
      • Revising standard operating procedure on cash based interventions
      • Establishing ways to ensure that appropriate criteria for payment of all types of costs to partners’ staff are included in partnership agreements
    • Regulatory framework:
      • Preparing annual need-based procurement plan and establishing adequate management oversight processes
      • Creating procedures for the assessment of renovation work in progress and issuing written change orders
      • Protecting data and ensuring timely consultation with the UNHCR Division of Financial and Administrative Management

UNHCR/WFP (2015). Joint Inspection of the Biometrics Identification System for Food Distribution in Kenya. Geneva: UNHCR/WFP.

  • This report outlines the partnership between the WFP and UNHCR in its effort to promote its biometric identification checking system to support food distribution in the Dadaab and Kakuma refugee camps in Kenya.
  • Both entities conducted a joint inspection mission in March 2015 and was considered an effective tool and a model for other country operations.
  • Still, 11 recommendations are proposed and responded to in this text to further improve the efficiency of the biometric system, including real-time evaluation of impact, need for automatic alerts, documentation of best practices, among others.

The Age of Perplexity: Rethinking the World we Knew

Curated on Posted on by Stefaan Verhulst

BVBA Open Access Book: “The impact of globalization, of technological progress and of the insecurity that they cause is reflected in people’s decisions, and by the path that our society is following. This path that will decide our future, in the sense that it will determine our capability of facing the challenges and taking advantage of the opportunities offered up by the advances in science and technology.

In this book, we look at generalized subjects, taking in the transformation that computing and the greater availability of information brings to our perceptions and understanding of things, and in the social imaginaries, that shape our attitudes and reactions to the events that we observe.
All this underpins the changes in politics we are witnessing, the appearance of populist movements or, more generally, the lack of commitment or disaffection with political institutions and the values that support the existing democracies. In these arenas, the new digital media, new types of digital political activism, and the rise of movements that question the dominant economic and political paradigm all play a key role.

In the supranational and geopolitical level we discuss the importance of incorporating a feminist perspective to international relations (as well, of course, as to all the spheres of human activity); new types of warfare, in which neither the contenders, strategies or media resemble anything we knew before; the huge geopolitical challenge represented by the complex and diverse Arab Islamic question; the end of the brief unipolar world era, with the emergence of powers that question the United States’ hegemony, among which we highlight China; or the future role of Latin America in the global map.

Regarding the economic questions that are at the root of the current perplexity, insecurity and discontent, we examine the impact of globalization and technological change on growth, the welfare state and, above all, employment.

From this base, we look at which are the most suitable economic policies and forms of organization for harnessing the potential of the digital revolution, and also for minimizing the risks of a society with increasing inequality, with a huge number of jobs taken over by machines, or even the loss of control of individual or collective decisions.

This technological revolution will undoubtedly require a complex transition process, but we also have before us a wonderful opportunity to better tend to the needs and demands of people: with more growth, jobs and a fairer distribution of wealth, and a richer and fuller life for the whole of humanity….(More)”.

How the government will operate in 2030

Curated on Posted on by Stefaan Verhulst

Darrell West at the Hill: “Imagine it is 2030 and you are a U.S. government employee working from home. With the assistance of the latest technology, you participate in video calls with clients and colleagues, augment your job activities through artificial intelligence and a personal digital assistant, work through collaboration software, and regularly get rated on a one-to-five scale by clients regarding your helpfulness, follow-through, and task completion.

How did you — and the government — get here? The sharing economy that unfolded in 2018 has revolutionized the public-sector workforce. The days when federal employees were subject to a centrally directed Office of Personnel and Management that oversaw permanent, full-time workers sitting in downtown office buildings are long gone. In their place is a remote workforce staffed by a mix of short- and long-term employees. This has dramatically improved worker productivity and satisfaction.

In the new digital world that has emerged, the goal is to use technology to make employees accountable. Gone are 20- or 30-year careers in the federal bureaucracy. Political leaders have always preached the virtue of running government like a business, and the success of Uber, Airbnb, and WeWork has persuaded them to focus on accountability and performance.

Companies such as Facebook demonstrated they could run large and complex organizations with less than 20,000 employees, and the federal government followed suit in the late 2020s. Now, workers deploy the latest tools of artificial intelligence, virtual reality, data analytics, robots, driverless cars, and digital assistants to improve the government. Unlike the widespread mistrust and cynicism that had poisoned attitudes in the decades before, the general public now sees government as a force for achieving positive results.

Many parts of the federal government are decentralized and mid-level employees are given greater authority to make decisions — but are subject to digital ratings that keep them accountable for their performance. The U.S. government borrowed this technique from China, where airport authorities in 2018 installed digital devices that allowed visitors to rate the performance of individual passport officers after every encounter. The reams of data have enabled Chinese authorities to fire poor performers and make sure foreign visitors see a friendly and competent face at the Beijing International Airport.

Alexa-like devices are given to all federal employees. The devices are used to keep track of leave time, file reimbursement requests, request time off, and complete a range of routine tasks that used to take employees hours. Through voice-activated commands, they navigate these mundane tasks quickly and efficiently. No one can believe the mountains of paperwork required just a decade ago….(More)”.

The People vs. Democracy: Why Our Freedom Is in Danger and How to Save It

Curated on Posted on by Stefaan Verhulst

Book by Yascha Mounk: “The world is in turmoil. From India to Turkey and from Poland to the United States, authoritarian populists have seized power. As a result, Yascha Mounk shows, democracy itself may now be at risk.

Two core components of liberal democracy—individual rights and the popular will—are increasingly at war with each other. As the role of money in politics soared and important issues were taken out of public contestation, a system of “rights without democracy” took hold. Populists who rail against this say they want to return power to the people. But in practice they create something just as bad: a system of “democracy without rights.”

The consequence, Mounk shows in The People vs. Democracy, is that trust in politics is dwindling. Citizens are falling out of love with their political system. Democracy is wilting away. Drawing on vivid stories and original research, Mounk identifies three key drivers of voters’ discontent: stagnating living standards, fears of multiethnic democracy, and the rise of social media. To reverse the trend, politicians need to enact radical reforms that benefit the many, not the few.

The People vs. Democracy is the first book to go beyond a mere description of the rise of populism. In plain language, it describes both how we got here and where we need to go. For those unwilling to give up on either individual rights or the popular will, Mounk shows, there is little time to waste: this may be our last chance to save democracy….(More)”

How Refugees Are Helping Create Blockchain’s Brand New World

Curated on Posted on by Stefaan Verhulst

Jessi Hempel at Wired: “Though best known for underpinning volatile cryptocurrencies, like Bitcoin and Ethereum, blockchain technology has a number of qualities which make it appealing for record-keeping. A distributed ledger doesn’t depend on a central authority to verify its existence, or to facilitate transactions within it, which makes it less vulnerable to tampering. By using applications that are built on the ‘chain, individuals may be able to build up records over time, use those records across borders as a form of identity—essentially creating the trust they need to interact with the world, without depending on a centralized authority, like a government or a bank, to vouch for them.

For now, these efforts are small experiments. In Finland, the Finnish Immigration Service offers refugees a prepaid Mastercard developed by the Helsinki-based startup MONI that also links to a digital identity, composed of the record of one’s financial transactions, which is stored on the blockchain. In Moldova, the government is working with digital identification expertsfrom the United Nations Office for Project Services (UNOPS) to brainstorm ways to use blockchain to provide children living in rural areas with a digital identity, so it’s more difficult for traffickers to smuggle them across borders.

Among the more robust programs is a pilot the United Nations World Food Program (WFP) launched in Jordan last May. Syrian refugees stationed at the Azraq Refugee Camp receive vouchers to shop at the local grocery store. The WFP integrated blockchain into its biometric authentication technology, so Syrian refugees can cash in their vouchers at the supermarket by staring into a retina scanner. These transactions are recorded on a private Ethereum-basedblockchain, called Building Blocks. Because the blockchain eliminates the need for WFP to pay banks to facilitate transactions, Building Blocks could save the WFP as much as $150,000 each month in bank fees in Jordan alone. The program has been so successful that by the end of the year, the WFP plans to expand the technology throughout Jordan. Blockchain enthusiasts imagine a future in which refugees can access more than just food vouchers, accumulating a transaction history that could stand in as a credit history when they attempt to resettle….

But in the rush to apply blockchain technology to every problem, many point out that relying on the ledger may have unintended consequences. As the Blockchain for Social Impact chief technology officer at ConsenSys, Robert Greenfeld IV writes, blockchain-based identity “isn’t a silver bullet, and if we don’t think about it/build it carefully, malicious actors could still capitalize on it as an element of control.” If companies rely on private blockchains, he warns, there’s a danger that the individual permissions will prevent these identity records from being used in multiple places. (Many of these projects, like the UNWFP project, are built on private blockchains so that organizations can exert more control over their development.) “If we don’t start to collaborate together with populations, we risk ending up with a bunch of siloed solutions,” says Greenfeld.

For his part, Greenfeld suggests governments could easily use state-sponsored machine learning algorithms to monitor public blockchain activity. But as bitcoin enthusiasts branch out of their get-rich-quick schemes to wrestle with how to make the web more equitable for everyone, they have the power to craft a world of their own devising. The early web should be a lesson to the bitcoin enthusiasts as they promote the blockchain’s potential. Right now we have the power to determine its direction; the dangers exist, but the potential is enormous….(More)”

International Development Doesn’t Care About Patient Privacy

Curated on Posted on by Stefaan Verhulst

Yogesh Rajkotia at the Stanford Social Innovation Review: “In 2013, in southern Mozambique, foreign NGO workers searched for a man whom the local health facility reported as diagnosed with HIV. The workers aimed to verify that the health facility did indeed diagnose and treat him. When they could not find him, they asked the village chief for help. Together with an ever-growing crowd of onlookers, the chief led them to the man’s home. After hesitating and denying, he eventually admitted, in front of the crowd, that he had tested positive and received treatment. With his status made public, he now risked facing stigma, discrimination, and social marginalization. The incident undermined both his health and his ability to live a dignified life.

Similar privacy violations were documented in Burkina Faso in 2016, where community workers asked partners, in the presence of each other, to disclose what individual health services they had obtained.

Why was there such a disregard for the privacy and dignity of these citizens?

As it turns out, unbeknownst to these Mozambican and Burkinabé patients, their local health centers were participating in performance-based financing (PBF) programs financed by foreign assistance agencies. Implemented in more than 35 countries, PBF programs offer health workers financial bonuses for delivering priority health interventions. To ensure that providers do not cheat the system, PBF programs often send verifiers to visit patients’ homes to confirm that they have received specific health services. These verifiers are frequently community members (the World Bank callously notes in its “Performance-Based Financing Toolkit” that even “a local soccer club” can play this role), and this practice, known as “patient tracing,” is common among PBF programs. In World Bank-funded PBF programs alone, 19 out of the 25 PBF programs implement patient tracing. Yet the World Bank’s toolkit never mentions patient privacy or confidentiality. In patient tracing, patients’ rights and dignity are secondary to donor objectives.

Patient tracing within PBF programs is just one example of a bigger problem: Privacy violations are pervasive in global health. Some researchers and policymakers have raised privacy concerns about tuberculosis (TB), human immunodeficiency virus (HIV), family planning, post-abortion care, and disease surveillance programs. A study conducted by the Asia-Pacific Network of People Living with HIV/AIDS found that 34 percent of people living with HIV in India, Indonesia, Philippines, and Thailand reported that health workers breached confidentiality. In many programs, sensitive information about people’s sexual and reproductive health, disease status, and other intimate health details are often collected to improve health system effectiveness and efficiency. Usually, households have no way to opt out, nor any control over how heath care programs use, store, and disseminate this data. At the same time, most programs do not have systems to enforce health workers’ non-disclosure of private information.

In societies with strong stigma around certain health topics—especially sexual and reproductive health—the disclosure of confidential patient information can destroy lives. In contexts where HIV is highly stigmatized, people living with HIV are 2.4 times more likely to delay seeking care until they are seriously ill. In addition to stigma’s harmful effects on people’s health, it can limit individuals’ economic opportunities, cause them to be socially marginalized, and erode their psychological wellbeing….(More)”.

Ethical Concerns of and Risk Mitigation Strategies for Crowdsourcing Contests and Innovation Challenges: Scoping Review

Curated on Posted on by Stefaan Verhulst

Joseph D Tucker at the Journal of  Medical Internet Research: “Crowdsourcing contests (also called innovation challenges, innovation contests, and inducement prize contests) can be used to solicit multisectoral feedback on health programs and design public health campaigns. They consist of organizing a steering committee, soliciting contributions, engaging the community, judging contributions, recognizing a subset of contributors, and sharing with the community.

Objective: This scoping review describes crowdsourcing contests by stage, examines ethical problems at each stage, and proposes potential ways of mitigating risk.

Methods: Our analysis was anchored in the specific example of a crowdsourcing contest that our team organized to solicit videos promoting condom use in China. The purpose of this contest was to create compelling 1-min videos to promote condom use. We used a scoping review to examine the existing ethical literature on crowdsourcing to help identify and frame ethical concerns at each stage.

Results: Crowdsourcing has a group of individuals solve a problem and then share the solution with the public. Crowdsourcing contests provide an opportunity for community engagement at each stage: organizing, soliciting, promoting, judging, recognizing, and sharing. Crowdsourcing poses several ethical concerns: organizing—potential for excluding community voices; soliciting—potential for overly narrow participation; promoting—potential for divulging confidential information; judging—potential for biased evaluation; recognizing—potential for insufficient recognition of the finalist; and sharing—potential for the solution to not be implemented or widely disseminated.

Conclusions: Crowdsourcing contests can be effective and engaging public health tools but also introduce potential ethical problems. We present methods for the responsible conduct of crowdsourcing contests… (More)”.

How We Identified Burned Villages in the Democratic Republic of Congo

Curated on Posted on by Stefaan Verhulst

Christophe Koettl in the New York Times: “In mid-February a source in the human rights community told me that villages in a remote region of the Democratic Republic of Congo were being burned amid a renewal of communal fighting. People fleeing the violence told aid workers of arson attacks.

The clashes between the Hema and Lendu communities — on the eastern side of the Ituri province, bordering Uganda — started in December and escalated in early February.

Historically, these distant conflicts have been difficult to analyze. But new technologies allow us to investigate them in close to real time.

I immediately collected active-fire data from NASA — thermal anomalies, or hot spots, that are recorded daily. It showed dozens of fires on the densely forested mountain ridge and along the shoreline of Lake Albert, one of the African Great Lakes between Congo and Uganda.

(Human rights groups also used this type of data, in combination with other evidence, to document the military’s scorched-earth campaign against the Rohingya in Myanmar.)

Active-fire data does not provide the cause of a fire, so one must exercise caution in interpreting it, especially when researching violence. It is more commonly used to track wildfires and agricultural fires.

The satellites that collect this information do not provide actual images; they only record the location of active fires, and very large ones at that. So don’t get your hopes up about watching your neighbors barbecue from space — we aren’t quite there yet.

Google and other online mapping platforms often show only blurry satellite images, or have no location names for remote areas such as the small fishing villages around Lake Albert. This makes it difficult to find places where people live. To deal with this challenge, I exported residential data from the online mapping site Openstreetmap.

I then overlaid the NASA data with this new data in Google Earth to look for recorded fires that were in or near populated places. This process gave me a shortlist of 10 locations to investigate.

Location of satellite-recorded active fires (the flames) and residential area data (the white outlines) helped to identify remote locations that had possibly been burned. © Google Earth/DigitalGlobe

Next, the satellite company DigitalGlobe provided me with high-resolution satellite imagery and analysis of these places. The results were disturbing: All the villages I had identified were at least partially burned, with hundreds of destroyed homes.

As this was not a comprehensive analysis of the whole area affected by violence, the actual number of burned villages is probably much higher. Aid organizations are reporting around 70 burned villages and more than 2,000 destroyed homes.

This new visual evidence provided us with a strong basis to report out the whole story. We now had details from both sides of the lake, not just at the refugee landing site in Uganda….(More)”