Cass R. Sunstein and Lucia A. Reisch in the Oxford Research Encyclopedia of Climate Science (Forthcoming): “Careful attention to choice architecture promises to open up new possibilities for reducing greenhouse gas emissions – possibilities that go well beyond, and that may supplement or complement, the standard tools of economic incentives, mandates, and bans. How, for example, do consumers choose between climate-friendly products or services and alternatives that are potentially damaging to the climate but less expensive? The answer may well depend on the default rule. Indeed, climate-friendly default rules may well be a more effective tool for altering outcomes than large economic incentives. The underlying reasons include the power of suggestion; inertia and procrastination; and loss aversion. If well-chosen, climate-friendly defaults are likely to have large effects in reducing the economic and environmental harms associated with various products and activities. In deciding whether to establish climate-friendly defaults, choice architects (subject to legal constraints) should consider both consumer welfare and a wide range of other costs and benefits. Sometimes that assessment will argue strongly in favor of climate-friendly defaults, particularly when both economic and environmental considerations point in their direction. Notably, surveys in the United States and Europe show that majorities in many nations are in favor of climate-friendly defaults….(More)”
Transparency and the open society: Practical lessons for effective policy
Book by Roger Taylor and Tim Kelsey: “Greater transparency is increasingly seen as the answer to a wide range of social issues by governments, NGOs and businesses around the world. However, evidence of its impact is mixed. Using case studies from around the world including India, Tanzania, the UK and US, Transparency and the open society surveys the adoption of transparency globally, providing an essential framework for assessing its likely performance as a policy and the steps that can be taken to make it more effective. It addresses the role of transparency in the context of growing use by governments and businesses of surveillance and database driven decision making. The book is written for anyone involved in the use of transparency whether campaigning from outside or working inside government or business to develop policies….(More)”
Is artificial intelligence key to dengue prevention?
BreakDengue: “Dengue fever outbreaks are increasing in both frequency and magnitude. Not only that, the number of countries that could potentially be affected by the disease is growing all the time.
This growth has led to renewed efforts to address the disease, and a pioneering Malaysian researcher was recently recognized for his efforts to harness the power of big data and artificial intelligence to accurately predict dengue outbreaks.
Dr. Dhesi Baha Raja received the Pistoia Alliance Life Science Award at King’s College London in April of this year, for developing a disease prediction platform that employs technology and data to give people prior warning of when disease outbreaks occur.The medical doctor and epidemiologist has spent years working to develop AIME (Artificial Intelligence in Medical Epidemiology)…
it relies on a complex algorithm, which analyses a wide range of data collected by local government and also satellite image recognition systems. Over 20 variables such as weather, wind speed, wind direction, thunderstorm, solar radiation and rainfall schedule are included and analyzed. Population models and geographical terrain are also included. The ultimate result of this intersection between epidemiology, public health and technology is a map, which clearly illustrates the probability and location of the next dengue outbreak.
The ground-breaking platform can predict dengue fever outbreaks up to two or three months in advance, with an accuracy approaching 88.7 per cent and within a 400m radius. Dr. Dhesi has just returned from Rio de Janeiro, where the platform was employed in a bid to fight dengue in advance of this summer’s Olympics. In Brazil, its perceived accuracy was around 84 per cent, whereas in Malaysia in was over 88 per cent – giving it an average accuracy of 86.37 per cent.
The web-based application has been tested in two states within Malaysia, Kuala Lumpur, and Selangor, and the first ever mobile app is due to be deployed across Malaysia soon. Once its capability is adequately tested there, it will be rolled out globally. Dr. Dhesi’s team are working closely with mobile digital service provider Webe on this.
By making the app free to download, this will ensure the service becomes accessible to all, Dr Dhesi explains.
“With the web-based application, this could only be used by public health officials and agencies. We recognized the need for us to democratize this health service to the community, and the only way to do this is to provide the community with the mobile app.”
This will also enable the gathering of even greater knowledge on the possibility of dengue outbreaks in high-risk areas, as well as monitoring the changing risks as people move to different areas, he adds….(More)”
Estonia Is Demonstrating How Government Should Work in a Digital World
Motherboard: “In May, Manu Sporny became the 10,000th “e-Resident” of Estonia. Sporny, the founder and CEO of a digital payments and identity company located in the United States, has never set foot in Estonia. However, he heard about the country’s e-Residency program and decided it would be an obvious choice for his company’s European headquarters.
People like Sporny are why Estonia launched a digital residency program in December 2014. The program allows anyone in the world to apply for a digital identity, which will let them: establish and run a location independent business online, get easier access to EU markets, open a bank account and conduct e-banking, use international payment service providers, declare taxes, and sign all relevant documents and contracts remotely…..
One of the most essential components of a functioning digital society is a secure digital identity. The state and the private sector need to know who is accessing these online services. Likewise, users need to feel secure that their identity is protected.
Estonia found the solution to this problem. In 2002, we started issuing residents a mandatory ID-card with a chip that empowers them to categorically identify themselves and verify legal transactions and documents through a digital signature. A digital signature has been legally equivalent to a handwritten one throughout the European Union—not just in Estonia—since 1999.
With this new digital identity system, the state could serve not only areas with a low population, but also the entire Estonian diaspora. Estonians anywhere in the world could maintain a connection to their homeland via e-services, contribute to the legislative process, and even participate in elections. Once the government realized that it could scale this service worldwide, it seemed logical to offer its e-services to those without physical residency in Estonia. This meant the Estonian country suddenly had value as a service in addition to a place to live.
What does “Country as a Service” mean?
With the rise of a global internet, we’ve seen more skilled workers and businesspeople offering their services across nations, regardless of their physical location. A survey by Intuit estimates that this number will reach 40 percent in the US alone by 2020.
These entrepreneurs and skilled artisans are ultimately looking for the simplest way to create and maintain a legal, global identity as an outlet for their global offerings.
They look to other countries, not because they are looking for a tax haven, but because they have been prevented from incorporating and maintaining a business, due to barriers from their own government.
The most important thing for these entrepreneurs is that the creation and upkeep of the company is easy and hassle-free. It is also important that, despite being incorporated in a different nation, they remain honest taxpayers within their country of physical residence.
This is exactly what Estonia offers—a location-independent, hassle-free and fully-digital economic and financial environment where entrepreneurs can run their own company globally….
When an e-Resident establishes a company, it means that the company will likely start using the services offered by other Estonian companies (like creating a bank account, partnering with a payment service provider, seeking assistance from accountants, auditors and lawyers). As more clients are created for Estonian companies, their growth potential increases, along with the growth potential of the Estonian economy.
Eventually, there will be more residents outside borders than inside them
If states fail to redesign and simplify the machinery of bureaucracy and make it location-independent, there will be an opportunity for countries that can offer such services across borders.
Estonia has learned that it’s incredibly important in a small state to serve primarily small and micro businesses. In order to sustain a nation on this, we must automate and digitize processes to scale. Estonia’s model, for instance, is location-independent, making it simple to scale successfully. We hope to acquire at least 10 million digital residents (e-Residents) in a way that is mutually beneficial by the nation-states where these people are tax residents….(More)”
Open access: All human knowledge is there—so why can’t everybody access it?
Glyn Moody at ArsTechnica: “In 1836, Anthony Panizzi, who later became principal librarian of the British Museum, gave evidence before a parliamentary select committee. At that time, he was only first assistant librarian, but even then he had an ambitious vision for what would one day became the British Library. He told the committee:
I want a poor student to have the same means of indulging his learned curiosity, of following his rational pursuits, of consulting the same authorities, of fathoming the most intricate inquiry as the richest man in the kingdom, as far as books go, and I contend that the government is bound to give him the most liberal and unlimited assistance in this respect.
He went some way to achieving that goal of providing general access to human knowledge. In 1856, after 20 years of labour as Keeper of Printed Books, he had helped boost the British Museum’s collection to over half a million books, making it the largest library in the world at the time. But there was a serious problem: to enjoy the benefits of those volumes, visitors needed to go to the British Museum in London.
Imagine, for a moment, if it were possible to provide access not just to those books, but to all knowledge for everyone, everywhere—the ultimate realisation of Panizzi’s dream. In fact, we don’t have to imagine: it is possible today, thanks to the combined technologies of digital texts and the Internet. The former means that we can make as many copies of a work as we want, for vanishingly small cost; the latter provides a way to provide those copies to anyone with an Internet connection. The global rise of low-cost smartphones means that group will soon include even the poorest members of society in every country.
That is to say, we have the technical means to share all knowledge, and yet we are nowhere near providing everyone with the ability to indulge their learned curiosity as Panizzi wanted it.
What’s stopping us? That’s the central question that the “open access” movement has been asking, and trying to answer, for the last two decades. Although tremendous progress has been made, with more knowledge freely available now than ever before, there are signs that open access is at a critical point in its development, which could determine whether it will ever succeed in realising Panizzi’s plan.
Table of Contents
- The arcana of academic publishing
- What about us?
- In the beginning was arXiv
- Scholarly skywriting
- Opening up the Americas
- Public Library of Science
- Open access is born
- CERN’s SCOAP
- PLoS ONE
- Gold open access
- Hybrid problems
- Green open access
- The empire strikes back
- Diamond open access
- From Aaron Swartz…
- …to Sci-Hub“
Connect the corporate dots to see true transparency
Gillian Tett at the Financial Times: “…In all this, a crucial point is often forgotten: simply amassing data will not solve the problem of transparency. What is also needed is a way for analysts to track the connections that exist between companies scattered across different national jurisdictions.
There are more than 45,000 companies listed on global stock exchanges and, according to Chris Taggart of OpenCorporates, an independent data company, there are between 250m and 400m unlisted groups. Many of these are listed on national registries but, since registries are extremely fragmented, it is very difficult for shareholders or regulators to form a complete picture of company activity.
It also creates financial stability risks. One reason why it is currently hard to track the scale of Chinese corporate debt, say, is that it is being issued by an opaque web of legal entities. Similarly, regulators struggled to cope with the fallout from the Lehman Brothers collapse in 2008 because the bank was operating almost 3,000 different legal entities around the world.
Is there a solution to this? A good place to start would be for governments to put their corporate registries online. Another crucial step would be for governments and companies to agree on a common standard for labelling legal entities, so that these can be tracked across borders.
Happily, work on that has begun: in 2014, the Global Legal Entity Identifier Foundation was created. It supports the implementation and use of “legal entity identifiers”, a data standard that identifies participants in financial transactions. Groups such as the Data Coalition in Washington DC are lobbying for laws that would force companies to use LEIs….However, this inter-governmental project is moving so slowly that the private sector may be a better bet. In recent years, companies such as Dun & Bradstreet have begun to amass proprietary information about complex corporate webs, and computer nerds are also starting to use the power of big data to join up the corporate dots in a public format.
OpenCorporates is a good example. Over the past five years, a dozen staff there have been painstakingly scraping national corporate registries to create a database designed to show how companies are connected around the world. This is far from complete but data from 100m entities have already been logged. And in the wake of the Panama Papers, more governments are coming on board — data from the Cayman Islands are currently being added and France is likely to collaborate soon.
Sadly, these moves will not deliver real transparency straight away. If you type “MIO” into the search box on the OpenCorporates website, you will not see a map of all of McKinsey’s activities — at least not yet.
The good news, however, is that with every data scrape, or use of an LEI, the picture of global corporate activity is becoming slightly less opaque thanks to the work of a hidden army of geeks. They deserve acclaim and support — even (or especially) from management consultants….(More)”
Selected Readings on Data Collaboratives
By Neil Britto, David Sangokoya, Iryna Susha, Stefaan Verhulst and Andrew Young
The Living Library’s Selected Readings series seeks to build a knowledge base on innovative approaches for improving the effectiveness and legitimacy of governance. This curated and annotated collection of recommended works on the topic of data collaboratives was originally published in 2017.
The term data collaborative refers to a new form of collaboration, beyond the public-private partnership model, in which participants from different sectors (including private companies, research institutions, and government agencies ) can exchange data to help solve public problems. Several of society’s greatest challenges — from addressing climate change to public health to job creation to improving the lives of children — require greater access to data, more collaboration between public – and private-sector entities, and an increased ability to analyze datasets. In the coming months and years, data collaboratives will be essential vehicles for harnessing the vast stores of privately held data toward the public good.
Selected Reading List (in alphabetical order)
- G. Agaba, et al – Big data and Positive Social Change in the Developing World: A White Paper for Practitioners and Researchers – a white paper describing the potential of big data, and corporate data in particular, to positively benefit development efforts.
- C. Ansell and A. Gash – Collaborative Governance in Theory and Practice – a journal article describing the emerging practice of public-private partnerships, particularly those built around data sharing.
- Amparo Ballivian and Bill Hoffman – Public-Private Partnerships for Data: Issues Paper for Data Revolution Consultation – an issues paper prepared by the World Bank on financing and sustaining the post-2015 “data revolution” movement through data public-private partnerships.
- Matthew Brack and Tito Castillo – Data Sharing for Public Health: Key Lessons from Other Sectors – a Chatham House report describing the need for data sharing and collaboration for global public health emergencies and potential lessons learned from the commercial sector.
- Yves-Alexandre de Montjoye, Jake Kendall, and Cameron F. Kerry – Enabling Humanitarian Use of Mobile Phone Data – an issues paper from the Brookings Institution on leveraging the benefits of mobile phone data for humanitarian use while minimizing risks to privacy.
- Silja M. Eckartz, Wout J. Hofman, Anne Fleur Van Veenstra – A Decision Model for Data Sharing – a paper proposing a decision model for data sharing arrangements aimed at addressing identified risks and challenges.
- Harlan M. Krumholz et al. – Sea Change in Open Science and Data Sharing Leadership by Industry – a review of industry-led efforts and cross-sector collaborations to share data from clinical trials to inform clinical practice.
- Institute of Medicine (IOM) – Sharing Clinical Trial Data: Maximizing Benefits, Minimizing Risk – a consensus, peer-revieed IOM report recommending how to promote responsible clinical trial data sharing and minimize risks and challenges of sharing.
- Gideon Mann – Private Data and the Public Good – the transcript of a keynote talk on the potential of leveraging corporate data to help solve public problems.
- D. Pastor Escuredo, Morales-Guzmán, A. et al – Flooding through the Lens of Mobile Phone Activity – an analysis of aggregated and anonymized call details records (CDR) conducted in collaboration with the UN, Government of Mexico, academia and Telefonica suggests high potential in using shared telecom data to improve early warning and emergency management mechanisms.
- M. Perkmann and H. Schildt – Open Data Partnerships Between Firms and Universities: The Role of Boundary Organizations – a paper highlighting the advantages of third-party organizations enabling data sharing between industry and academia to uncover new insights to benefit the public good.
- Matt Stempeck – Sharing Data Is A Form Of Corporate Philanthropy’ – a Harvard Business Review article on data philanthropy, the practice of companies donating data for public good, and its benefits and challenges.
- N. Robin, T. Klein, J. Jütting – Public-Private Partnerships for Statistics: Lessons Learned, Future Steps – a working paper describing how privately held data sources could fill current gaps in the efforts of National Statistics Offices.
- Elizabeth Stuart, Emma Samman, William Avis, and Tom Berliner –The data revolution: finding the missing millions – the Overseas Development Institute’s annual report focused on solutions toward a sustainable data revolution.
- L. Taylor and R. Schroeder – Is Bigger Better? The Emergence of Big Data as a Tool for International Development Policy – a paper describing how data, such as privately held mobile phone data – could improve development policy.
- Willem G. van Panhuis, Proma Paul, Claudia Emerson, John Grefenstette, Richard Wilder, Abraham J. Herbst, David Heymann, and Donald S. Burke – A systematic review of barriers to data sharing in public health – a literature review of potential barriers to public health data sharing.
- Stefaan Verhulst and David Sangokoya – Mapping the Next Frontier of Open Data: Corporate Data Sharing – this essay describes an emerging taxonomy of activities involving corporate data sharing for public good, an emerging trend in which companies share anonymized and aggregated data with third-party users towards data-driven policymaking and greater public good.
- Stefaan Verhulst and David Sangokoya – Data Collaboratives: Exchanging Data to Improve People’s Lives – an essay on leveraging the potential of data to solve complex public problems through data collaboratives and four critical accelerators towards responsible data sharing and collaboration.
- Stefaan Verhulst, Iryna Susha, Alexander Kostura – Data Collaboratives: matching Supply of (Corporate) Data to Solve Public Problems – a report describing emerging practice, opportunities and challenges in data collaboratives as identified at the International Data Responsibility Conference.
- F, Welle Donker, B. van Loenen, A. K. Bregt – Open Data and Beyond – a case study examining the opening of private data by Dutch energy network administrator Liander.
- World Economic Forum – Data-driven development: pathways for progress – an overview report from the World Economic Forum on the existing data deficit and the value and impact of big data for sustainable development
Annotated Selected Readings List (in alphabetical order)
Agaba, G., Akindès, F., Bengtsson, L., Cowls, J., Ganesh, M., Hoffman, N., . . . Meissner, F. “Big Data and Positive Social Change in the Developing World: A White Paper for Practitioners and Researchers.” 2014. http://bit.ly/25RRC6N.
- This white paper, produced by “a group of activists, researchers and data experts” explores the potential of big data to improve development outcomes and spur positive social change in low- and middle-income countries. Using examples, the authors discuss four areas in which the use of big data can impact development efforts:
- Advocating and facilitating by “opening[ing] up new public spaces for discussion and awareness building;
- Describing and predicting through the detection of “new correlations and the surfac[ing] of new questions;
- Facilitating information exchange through “multiple feedback loops which feed into both research and action,” and
- Promoting accountability and transparency, especially as a byproduct of crowdsourcing efforts aimed at “aggregat[ing] and analyz[ing] information in real time.
- The authors argue that in order to maximize the potential of big data’s use in development, “there is a case to be made for building a data commons for private/public data, and for setting up new and more appropriate ethical guidelines.”
- They also identify a number of challenges, especially when leveraging data made accessible from a number of sources, including private sector entities, such as:
- Lack of general data literacy;
- Lack of open learning environments and repositories;
- Lack of resources, capacity and access;
- Challenges of sensitivity and risk perception with regard to using data;
- Storage and computing capacity; and
- Externally validating data sources for comparison and verification.
Ansell, C. and Gash, A. “Collaborative Governance in Theory and Practice.” Journal of Public Administration Research and Theory 18 (4), 2008. http://bit.ly/1RZgsI5.
- This article describes collaborative arrangements that include public and private organizations working together and proposes a model for understanding an emergent form of public-private interaction informed by 137 diverse cases of collaborative governance.
- The article suggests factors significant to successful partnering processes and outcomes include:
- Shared understanding of challenges,
- Trust building processes,
- The importance of recognizing seemingly modest progress, and
- Strong indicators of commitment to the partnership’s aspirations and process.
- The authors provide a ‘’contingency theory model’’ that specifies relationships between different variables that influence outcomes of collaborative governance initiatives. Three “core contingencies’’ for successful collaborative governance initiatives identified by the authors are:
- Time (e.g., decision making time afforded to the collaboration);
- Interdependence (e.g., a high degree of interdependence can mitigate negative effects of low trust); and
- Trust (e.g. a higher level of trust indicates a higher probability of success).
Ballivian A, Hoffman W. “Public-Private Partnerships for Data: Issues Paper for Data Revolution Consultation.” World Bank, 2015. Available from: http://bit.ly/1ENvmRJ
- This World Bank report provides a background document on forming public-prviate partnerships for data with the private sector in order to inform the UN’s Independent Expert Advisory Group (IEAG) on sustaining a “data revolution” in sustainable development.
- The report highlights the critical position of private companies within the data value chain and reflects on key elements of a sustainable data PPP: “common objectives across all impacted stakeholders, alignment of incentives, and sharing of risks.” In addition, the report describes the risks and incentives of public and private actors, and the principles needed to “build[ing] the legal, cultural, technological and economic infrastructures to enable the balancing of competing interests.” These principles include understanding; experimentation; adaptability; balance; persuasion and compulsion; risk management; and governance.
- Examples of data collaboratives cited in the report include HP Earth Insights, Orange Data for Development Challenges, Amazon Web Services, IBM Smart Cities Initiative, and the Governance Lab’s Open Data 500.
Brack, Matthew, and Tito Castillo. “Data Sharing for Public Health: Key Lessons from Other Sectors.” Chatham House, Centre on Global Health Security. April 2015. Available from: http://bit.ly/1DHFGVl
- The Chatham House report provides an overview on public health surveillance data sharing, highlighting the benefits and challenges of shared health data and the complexity in adapting technical solutions from other sectors for public health.
- The report describes data sharing processes from several perspectives, including in-depth case studies of actual data sharing in practice at the individual, organizational and sector levels. Among the key lessons for public health data sharing, the report strongly highlights the need to harness momentum for action and maintain collaborative engagement: “Successful data sharing communities are highly collaborative. Collaboration holds the key to producing and abiding by community standards, and building and maintaining productive networks, and is by definition the essence of data sharing itself. Time should be invested in establishing and sustaining collaboration with all stakeholders concerned with public health surveillance data sharing.”
- Examples of data collaboratives include H3Africa (a collaboration between NIH and Wellcome Trust) and NHS England’s care.data programme.
de Montjoye, Yves-Alexandre, Jake Kendall, and Cameron F. Kerry. “Enabling Humanitarian Use of Mobile Phone Data.” The Brookings Institution, Issues in Technology Innovation. November 2014. Available from: http://brook.gs/1JxVpxp
- Using Ebola as a case study, the authors describe the value of using private telecom data for uncovering “valuable insights into understanding the spread of infectious diseases as well as strategies into micro-target outreach and driving update of health-seeking behavior.”
- The authors highlight the absence of a common legal and standards framework for “sharing mobile phone data in privacy-conscientious ways” and recommend “engaging companies, NGOs, researchers, privacy experts, and governments to agree on a set of best practices for new privacy-conscientious metadata sharing models.”
Eckartz, Silja M., Hofman, Wout J., Van Veenstra, Anne Fleur. “A decision model for data sharing.” Vol. 8653 LNCS. Lecture Notes in Computer Science (including subseries Lecture Notes in Artificial Intelligence and Lecture Notes in Bioinformatics). 2014. http://bit.ly/21cGWfw.
- This paper proposes a decision model for data sharing of public and private data based on literature review and three case studies in the logistics sector.
- The authors identify five categories of the barriers to data sharing and offer a decision model for identifying potential interventions to overcome each barrier:
- Ownership. Possible interventions likely require improving trust among those who own the data through, for example, involvement and support from higher management
- Privacy. Interventions include “anonymization by filtering of sensitive information and aggregation of data,” and access control mechanisms built around identity management and regulated access.
- Economic. Interventions include a model where data is shared only with a few trusted organizations, and yield management mechanisms to ensure negative financial consequences are avoided.
- Data quality. Interventions include identifying additional data sources that could improve the completeness of datasets, and efforts to improve metadata.
- Technical. Interventions include making data available in structured formats and publishing data according to widely agreed upon data standards.
Hoffman, Sharona and Podgurski, Andy. “The Use and Misuse of Biomedical Data: Is Bigger Really Better?” American Journal of Law & Medicine 497, 2013. http://bit.ly/1syMS7J.
- This journal articles explores the benefits and, in particular, the risks related to large-scale biomedical databases bringing together health information from a diversity of sources across sectors. Some data collaboratives examined in the piece include:
- MedMining – a company that extracts EHR data, de-identifies it, and offers it to researchers. The data sets that MedMining delivers to its customers include ‘lab results, vital signs, medications, procedures, diagnoses, lifestyle data, and detailed costs’ from inpatient and outpatient facilities.
- Explorys has formed a large healthcare database derived from financial, administrative, and medical records. It has partnered with major healthcare organizations such as the Cleveland Clinic Foundation and Summa Health System to aggregate and standardize health information from ten million patients and over thirty billion clinical events.
- Hoffman and Podgurski note that biomedical databases populated have many potential uses, with those likely to benefit including: “researchers, regulators, public health officials, commercial entities, lawyers,” as well as “healthcare providers who conduct quality assessment and improvement activities,” regulatory monitoring entities like the FDA, and “litigants in tort cases to develop evidence concerning causation and harm.”
- They argue, however, that risks arise based on:
- The data contained in biomedical databases is surprisingly likely to be incorrect or incomplete;
- Systemic biases, arising from both the nature of the data and the preconceptions of investigators are serious threats the validity of research results, especially in answering causal questions;
- Data mining of biomedical databases makes it easier for individuals with political, social, or economic agendas to generate ostensibly scientific but misleading research findings for the purpose of manipulating public opinion and swaying policymakers.
Krumholz, Harlan M., et al. “Sea Change in Open Science and Data Sharing Leadership by Industry.” Circulation: Cardiovascular Quality and Outcomes 7.4. 2014. 499-504. http://1.usa.gov/1J6q7KJ
- This article provides a comprehensive overview of industry-led efforts and cross-sector collaborations in data sharing by pharmaceutical companies to inform clinical practice.
- The article details the types of data being shared and the early activities of GlaxoSmithKline (“in coordination with other companies such as Roche and ViiV”); Medtronic and the Yale University Open Data Access Project; and Janssen Pharmaceuticals (Johnson & Johnson). The article also describes the range of involvement in data sharing among pharmaceutical companies including Pfizer, Novartis, Bayer, AbbVie, Eli Llly, AstraZeneca, and Bristol-Myers Squibb.
Mann, Gideon. “Private Data and the Public Good.” Medium. May 17, 2016. http://bit.ly/1OgOY68.
-
- This Medium post from Gideon Mann, the Head of Data Science at Bloomberg, shares his prepared remarks given at a lecture at the City College of New York. Mann argues for the potential benefits of increasing access to private sector data, both to improve research and academic inquiry and also to help solve practical, real-world problems. He also describes a number of initiatives underway at Bloomberg along these lines.
- Mann argues that data generated at private companies “could enable amazing discoveries and research,” but is often inaccessible to those who could put it to those uses. Beyond research, he notes that corporate data could, for instance, benefit:
-
- Public health – including suicide prevention, addiction counseling and mental health monitoring.
- Legal and ethical questions – especially as they relate to “the role algorithms have in decisions about our lives,” such as credit checks and resume screening.
-
- Mann recognizes the privacy challenges inherent in private sector data sharing, but argues that it is a common misconception that the only two choices are “complete privacy or complete disclosure.” He believes that flexible frameworks for differential privacy could open up new opportunities for responsibly leveraging data collaboratives.
Pastor Escuredo, D., Morales-Guzmán, A. et al, “Flooding through the Lens of Mobile Phone Activity.” IEEE Global Humanitarian Technology Conference, GHTC 2014. Available from: http://bit.ly/1OzK2bK
- This report describes the impact of using mobile data in order to understand the impact of disasters and improve disaster management. The report was conducted in the Mexican state of Tabasco in 2009 as a multidisciplinary, multi-stakeholder consortium involving the UN World Food Programme (WFP), Telefonica Research, Technical University of Madrid (UPM), Digital Strategy Coordination Office of the President of Mexico, and UN Global Pulse.
- Telefonica Research, a division of the major Latin American telecommunications company, provided call detail records covering flood-affected areas for nine months. This data was combined with “remote sensing data (satellite images), rainfall data, census and civil protection data.” The results of the data demonstrated that “analysing mobile activity during floods could be used to potentially locate damaged areas, efficiently assess needs and allocate resources (for example, sending supplies to affected areas).”
- In addition to the results, the study highlighted “the value of a public-private partnership on using mobile data to accurately indicate flooding impacts in Tabasco, thus improving early warning and crisis management.”
* Perkmann, M. and Schildt, H. “Open data partnerships between firms and universities: The role of boundary organizations.” Research Policy, 44(5), 2015. http://bit.ly/25RRJ2c.
- This paper discusses the concept of a “boundary organization” in relation to industry-academic partnerships driven by data. Boundary organizations perform mediated revealing, allowing firms to disclose their research problems to a broad audience of innovators and simultaneously minimize the risk that this information would be adversely used by competitors.
- The authors identify two especially important challenges for private firms to enter open data or participate in data collaboratives with the academic research community that could be addressed through more involvement from boundary organizations:
- First is a challenge of maintaining competitive advantage. The authors note that, “the more a firm attempts to align the efforts in an open data research programme with its R&D priorities, the more it will have to reveal about the problems it is addressing within its proprietary R&D.”
- Second, involves the misalignment of incentives between the private and academic field. Perkmann and Schildt argue that, a firm seeking to build collaborations around its opened data “will have to provide suitable incentives that are aligned with academic scientists’ desire to be rewarded for their work within their respective communities.”
Robin, N., Klein, T., & Jütting, J. “Public-Private Partnerships for Statistics: Lessons Learned, Future Steps.” OECD. 2016. http://bit.ly/24FLYlD.
- This working paper acknowledges the growing body of work on how different types of data (e.g, telecom data, social media, sensors and geospatial data, etc.) can address data gaps relevant to National Statistical Offices (NSOs).
- Four models of public-private interaction for statistics are describe: in-house production of statistics by a data-provider for a national statistics office (NSO), transfer of data-sets to NSOs from private entities, transfer of data to a third party provider to manage the NSO and private entity data, and the outsourcing of NSO functions.
- The paper highlights challenges to public-private partnerships involving data (e.g., technical challenges, data confidentiality, risks, limited incentives for participation), suggests deliberate and highly structured approaches to public-private partnerships involving data require enforceable contracts, emphasizes the trade-off between data specificity and accessibility of such data, and the importance of pricing mechanisms that reflect the capacity and capability of national statistic offices.
- Case studies referenced in the paper include:
- A mobile network operator’s (MNO Telefonica) in house analysis of call detail records;
- A third-party data provider and steward of travel statistics (Positium);
- The Data for Development (D4D) challenge organized by MNO Orange; and
- Statistics Netherlands use of social media to predict consumer confidence.
Stuart, Elizabeth, Samman, Emma, Avis, William, Berliner, Tom. “The data revolution: finding the missing millions.” Overseas Development Institute, 2015. Available from: http://bit.ly/1bPKOjw
- The authors of this report highlight the need for good quality, relevant, accessible and timely data for governments to extend services into underrepresented communities and implement policies towards a sustainable “data revolution.”
- The solutions focused on this recent report from the Overseas Development Institute focus on capacity-building activities of national statistical offices (NSOs), alternative sources of data (including shared corporate data) to address gaps, and building strong data management systems.
Taylor, L., & Schroeder, R. “Is bigger better? The emergence of big data as a tool for international development policy.” GeoJournal, 80(4). 2015. 503-518. http://bit.ly/1RZgSy4.
- This journal article describes how privately held data – namely “digital traces” of consumer activity – “are becoming seen by policymakers and researchers as a potential solution to the lack of reliable statistical data on lower-income countries.
- They focus especially on three categories of data collaborative use cases:
- Mobile data as a predictive tool for issues such as human mobility and economic activity;
- Use of mobile data to inform humanitarian response to crises; and
- Use of born-digital web data as a tool for predicting economic trends, and the implications these have for LMICs.
- They note, however, that a number of challenges and drawbacks exist for these types of use cases, including:
- Access to private data sources often must be negotiated or bought, “which potentially means substituting negotiations with corporations for those with national statistical offices;”
- The meaning of such data is not always simple or stable, and local knowledge is needed to understand how people are using the technologies in question
- Bias in proprietary data can be hard to understand and quantify;
- Lack of privacy frameworks; and
- Power asymmetries, wherein “LMIC citizens are unwittingly placed in a panopticon staffed by international researchers, with no way out and no legal recourse.”
van Panhuis, Willem G., Proma Paul, Claudia Emerson, John Grefenstette, Richard Wilder, Abraham J. Herbst, David Heymann, and Donald S. Burke. “A systematic review of barriers to data sharing in public health.” BMC public health 14, no. 1 (2014): 1144. Available from: http://bit.ly/1JOBruO
- The authors of this report provide a “systematic literature of potential barriers to public health data sharing.” These twenty potential barriers are classified in six categories: “technical, motivational, economic, political, legal and ethical.” In this taxonomy, “the first three categories are deeply rooted in well-known challenges of health information systems for which structural solutions have yet to be found; the last three have solutions that lie in an international dialogue aimed at generating consensus on policies and instruments for data sharing.”
- The authors suggest the need for a “systematic framework of barriers to data sharing in public health” in order to accelerate access and use of data for public good.
Verhulst, Stefaan and Sangokoya, David. “Mapping the Next Frontier of Open Data: Corporate Data Sharing.” In: Gasser, Urs and Zittrain, Jonathan and Faris, Robert and Heacock Jones, Rebekah, “Internet Monitor 2014: Reflections on the Digital World: Platforms, Policy, Privacy, and Public Discourse (December 15, 2014).” Berkman Center Research Publication No. 2014-17. http://bit.ly/1GC12a2
- This essay describe a taxonomy of current corporate data sharing practices for public good: research partnerships; prizes and challenges; trusted intermediaries; application programming interfaces (APIs); intelligence products; and corporate data cooperatives or pooling.
- Examples of data collaboratives include: Yelp Dataset Challenge, the Digital Ecologies Research Partnerhsip, BBVA Innova Challenge, Telecom Italia’s Big Data Challenge, NIH’s Accelerating Medicines Partnership and the White House’s Climate Data Partnerships.
- The authors highlight important questions to consider towards a more comprehensive mapping of these activities.
Verhulst, Stefaan and Sangokoya, David, 2015. “Data Collaboratives: Exchanging Data to Improve People’s Lives.” Medium. Available from: http://bit.ly/1JOBDdy
- The essay refers to data collaboratives as a new form of collaboration involving participants from different sectors exchanging data to help solve public problems. These forms of collaborations can improve people’s lives through data-driven decision-making; information exchange and coordination; and shared standards and frameworks for multi-actor, multi-sector participation.
- The essay cites four activities that are critical to accelerating data collaboratives: documenting value and measuring impact; matching public demand and corporate supply of data in a trusted way; training and convening data providers and users; experimenting and scaling existing initiatives.
- Examples of data collaboratives include NIH’s Precision Medicine Initiative; the Mobile Data, Environmental Extremes and Population (MDEEP) Project; and Twitter-MIT’s Laboratory for Social Machines.
Verhulst, Stefaan, Susha, Iryna, Kostura, Alexander. “Data Collaboratives: matching Supply of (Corporate) Data to Solve Public Problems.” Medium. February 24, 2016. http://bit.ly/1ZEp2Sr.
- This piece articulates a set of key lessons learned during a session at the International Data Responsibility Conference focused on identifying emerging practices, opportunities and challenges confronting data collaboratives.
- The authors list a number of privately held data sources that could create positive public impacts if made more accessible in a collaborative manner, including:
- Data for early warning systems to help mitigate the effects of natural disasters;
- Data to help understand human behavior as it relates to nutrition and livelihoods in developing countries;
- Data to monitor compliance with weapons treaties;
- Data to more accurately measure progress related to the UN Sustainable Development Goals.
- To the end of identifying and expanding on emerging practice in the space, the authors describe a number of current data collaborative experiments, including:
- Trusted Intermediaries: Statistics Netherlands partnered with Vodafone to analyze mobile call data records in order to better understand mobility patterns and inform urban planning.
- Prizes and Challenges: Orange Telecom, which has been a leader in this type of Data Collaboration, provided several examples of the company’s initiatives, such as the use of call data records to track the spread of malaria as well as their experience with Challenge 4 Development.
- Research partnerships: The Data for Climate Action project is an ongoing large-scale initiative incentivizing companies to share their data to help researchers answer particular scientific questions related to climate change and adaptation.
- Sharing intelligence products: JPMorgan Chase shares macro economic insights they gained leveraging their data through the newly established JPMorgan Chase Institute.
- In order to capitalize on the opportunities provided by data collaboratives, a number of needs were identified:
- A responsible data framework;
- Increased insight into different business models that may facilitate the sharing of data;
- Capacity to tap into the potential value of data;
- Transparent stock of available data supply; and
- Mapping emerging practices and models of sharing.
Vogel, N., Theisen, C., Leidig, J. P., Scripps, J., Graham, D. H., & Wolffe, G. “Mining mobile datasets to enable the fine-grained stochastic simulation of Ebola diffusion.” Paper presented at the Procedia Computer Science. 2015. http://bit.ly/1TZDroF.
- The paper presents a research study conducted on the basis of the mobile calls records shared with researchers in the framework of the Data for Development Challenge by the mobile operator Orange.
- The study discusses the data analysis approach in relation to developing a situation of Ebola diffusion built around “the interactions of multi-scale models, including viral loads (at the cellular level), disease progression (at the individual person level), disease propagation (at the workplace and family level), societal changes in migration and travel movements (at the population level), and mitigating interventions (at the abstract government policy level).”
- The authors argue that the use of their population, mobility, and simulation models provide more accurate simulation details in comparison to high-level analytical predictions and that the D4D mobile datasets provide high-resolution information useful for modeling developing regions and hard to reach locations.
Welle Donker, F., van Loenen, B., & Bregt, A. K. “Open Data and Beyond.” ISPRS International Journal of Geo-Information, 5(4). 2016. http://bit.ly/22YtugY.
- This research has developed a monitoring framework to assess the effects of open (private) data using a case study of a Dutch energy network administrator Liander.
- Focusing on the potential impacts of open private energy data – beyond ‘smart disclosure’ where citizens are given information only about their own energy usage – the authors identify three attainable strategic goals:
- Continuously optimize performance on services, security of supply, and costs;
- Improve management of energy flows and insight into energy consumption;
- Help customers save energy and switch over to renewable energy sources.
- The authors propose a seven-step framework for assessing the impacts of Liander data, in particular, and open private data more generally:
- Develop a performance framework to describe what the program is about, description of the organization’s mission and strategic goals;
- Identify the most important elements, or key performance areas which are most critical to understanding and assessing your program’s success;
- Select the most appropriate performance measures;
- Determine the gaps between what information you need and what is available;
- Develop and implement a measurement strategy to address the gaps;
- Develop a performance report which highlights what you have accomplished and what you have learned;
- Learn from your experiences and refine your approach as required.
- While the authors note that the true impacts of this open private data will likely not come into view in the short term, they argue that, “Liander has successfully demonstrated that private energy companies can release open data, and has successfully championed the other Dutch network administrators to follow suit.”
World Economic Forum, 2015. “Data-driven development: pathways for progress.” Geneva: World Economic Forum. http://bit.ly/1JOBS8u
- This report captures an overview of the existing data deficit and the value and impact of big data for sustainable development.
- The authors of the report focus on four main priorities towards a sustainable data revolution: commercial incentives and trusted agreements with public- and private-sector actors; the development of shared policy frameworks, legal protections and impact assessments; capacity building activities at the institutional, community, local and individual level; and lastly, recognizing individuals as both produces and consumers of data.
Refugees and the Technology of Exile
David Lepeska in Wilson Quaterly: “While working for a Turkish tech firm, Akil learned how to program for mobile phones, and decided to make a smartphone app to help Syrians get all the information they need to build new lives in Turkey. In early 2014, he and a friend launched Gherbtna, named for an Arabic word referring to the loneliness of foreign exile….
About one-tenth of the 2.7 million Syrians in Turkey live in refugee camps. The rest fend for themselves, mostly in big cities. Now that they look set to stay in Turkey for some time, their need to settle and build stable, secure lives is much more acute. This may explain why downloads of Gherbtna more than doubled in the past six months. “We started this project to help people, and when we have reached all Syrian refugees, to help them find jobs, housing, whatever they need to build a new life in Turkey, then we have achieved our goal,” said Akil. “Our ultimate dream for Gherbtna is to reach all refugees around the world, and help them.”
Humanity is currently facing its greatest refugee crisis since World War II, with more than 60 million people forced from their homes. Much has been written about their use of technology — how Google Maps, WhatsApp, Facebook, and other tools have proven invaluable to the displaced and desperate. But helping refugees find their way, connect with family, or read the latest updates about route closings is one thing. Enabling them to grasp minute legal details, find worthwhile jobs and housing, enroll their children in school, and register for visas and benefits when they don’t understand the local tongue is another.
Due to its interpretation of the 1951 Geneva Convention on refugees, Ankara does not categorize Syrians in Turkey as refugees, nor does it accord them the pursuant rights and advantages. Instead, it has given them the unusual legal status of temporary guests, which means that they cannot apply for asylum and that Turkey can send them back to their countries of origin whenever it likes. What’s more, the laws and processes that apply to Syrians have been less than transparent and have changed several times. Despite all this — or perhaps because of it — government outreach has been minimal. Turkey has spent some $10 billion on refugees, and it distributes Arabic-language brochures at refugee camps and in areas with many Syrian residents. Yet it has created no Arabic-language website, app, or other online tool to communicate the relevant laws, permits, and legal changes to Syrians and other refugees.
Independent apps targeting these hurdles have begun to proliferate. Gherbtna’s main competitor in Turkey is the recently launched Alfanus (“Lantern” in Arabic), which its Syrian creators call an “Arab’s Guide to Turkey.” Last year, Souktel, a Palestinian mobile solutions firm, partnered with the international arm of the American Bar Association to launch a text-message service that provides legal information to Arabic speakers in Turkey. Norway is running a competition to develop a game-based learning app to educate Syrian refugee children. German programmers created Germany Says Welcome and the similar Welcome App Dresden. And Akil’s tech firm, Namaa Solutions, recently launched Tarjemly Live, a live translation app for English, Arabic, and Turkish.
But the extent to which these technologies have succeeded — have actually helped Syrians adjust and build new lives in Turkey, in particular — is in doubt. Take Gherbtna. The app has nine tools, including Video, Laws, Alerts, Find a Job, and “Ask me.” It offers restaurant and job listings; advice on getting a residence permit, opening a bank account, or launching a business; and much more. Like Souktel, Gherbtna has partnered with the American Bar Association to provide translations of Turkish laws. The app has been downloaded about 50,000 times, or by about 5 percent of Syrians in Turkey. (It is safe to assume, however, that a sizable percentage of refugees do not have smartphones.) Yet among two dozen Gherbtna users recently interviewed in Gaziantep and Istanbul — two Turkish cities with the most dense concentration of Syrians — most found it lacking. Many appreciate Gherbtna’s one-stop-shop appeal, but find little cause to keep using it. ”…(More)”
Open Data For Social Good: The Case For Better Transport Services
Martin Howell at TechWeek Europe: “The growing focus on data protection, driven partly by stronger legislation and partly by consumer pressure, has put the debate on the benefits of open data somewhat on the back burner.
The continuing spate of high-profile data breaches and the abuse of public trust in the form of constant bombardment of automated calls, spam emails and clumsily ‘personalised’ advertising has done little to further the open data agenda. In fact it left many consumers feeling lukewarm about the prospects of organisations opening up their data feeds, even at a promise of a better service in return.
That’s a worrying trend. In many industries effective use of open data can lead to development of solutions that address some of the major challenges populations are faced with today, allowing for faster innovation and adaptability to change. There are significant ways in which individuals, and society as a whole could benefit from open data, if organisations and governments get data sharing right.
Open data for transport
A good example is city transportation. Many metropolises face a major challenge – growing populations are placing pressure on current infrastructure systems, leading to congestion and inefficiency.
An open data system, where commuters use a single travel account for all travel transactions and information – whether that’s public transport, walking, using the bike, using Uber, and so on, would give the city unprecedented insight into how people commute and what’s behind their travel choices.
The key to engaging the public with this is the condition that data is used responsibly and for the greater good. Currently, Transport for London (TfL) operates a meet-in-the-middle model. Consumers can travel anonymously on the TfL network, with only the point of entry and point of exit being recorded, and the company provides that anonymised data to third-party app developers who can then use it to release useful travel applications.
TfL doesn’t profit from sharing consumer data but it does enjoy the benefits that come with it. Third-party travel applications make it easier for commuters to use TfL’s network and make the service itself appear more efficient – in short, everyone benefits.
Mutual benefit
Let’s now imagine a scenario that takes this mutually beneficial relationship a step forward, with consumers willingly giving up some information about themselves to the responsible parties (in this case, the city) and receiving personalised service in return. In this scenario, the more information commuters can provide to the system, the more useful the system can be to them.
Apart from providing personalised travel information and recommendations, such a system would have one more important benefit – it would enable cities to encourage greater social responsibility, extending the benefits from the individual to the community as a whole….(More)”
Big Data Quality: a Roadmap for Open Data
Paper by Paolo Ciancarini, Francesco Poggi and Daniel Russo: “Open Data (OD) is one of the most discussed issue of Big Data which raised the joint interest of public institutions, citizens and private companies since 2009. In addition to transparency in public administrations, another key objective of these initiatives is to allow the development of innovative services for solving real world problems, creating value in some positive and constructive way. However, the massive amount of freely available data has not yet brought the expected effects: as of today, there is no application that has exploited the potential provided by large and distributed information sources in a non-trivial way, nor any service has substantially changed for the better the lives of people. The era of a new generation applications based on open data is far to come. In this context, we observe that OD quality is one of the major threats to achieving the goals of the OD movement. The starting point of this study is the quality of the OD released by the five Constitutional offices of Italy. W3C standards about OD are widely known accepted in Italy by the Italian Digital Agency (AgID). According to the most recent Italian Laws the Public Administration may release OD according to the AgID standards. Our exploratory study aims to assess the quality of such releases and the real implementations of OD. The outcome suggests the need of a drastic improvement in OD quality. Finally we highlight some key quality principles for OD, and propose a roadmap for further research….(more)”