Citizens’ voices for better health and social policies

Curated on Posted on by Stefaan Verhulst

Olivia Biermann et al at PLOS Blog Speaking of Medicine: “Citizen engagement is important to make health and social policies more inclusive and equitable, and to contribute to learning and responsive health and social systems. It is also valuable in understanding the complexities of the social structure and how to adequately respond to them with policies. By engaging citizens, we ensure that their tacit knowledge feeds into the policy-making process. What citizens know can be valuable in identifying feasible policy options, understanding contextual factors, and putting policies into practice. In addition, the benefit of citizen engagement extends much beyond improving health policy-making processes by making them more participatory and inclusive; being engaged in policy-making processes can build patients’ capacity and empower them to speak up for their own and their families’ health and social needs, and to hold policy-makers accountable. Moreover, apart from being involved in their own care, citizen-patients can contribute to quality improvement, research and education.

Most studies on citizen engagement to date originate from high-income countries. The engagement methods used are not necessarily applicable in low- and middle-income countries, and even the political support, the culture of engagement and established citizen engagement processes might be different. Still, published processes of engaging citizens can be helpful in identifying key components across different settings, e.g. in terms of levels of engagement, communication channels and methods of recruitment. Contextualizing the modes of engagement between and within countries is a must.

Examples of citizen engagement

There are many examples of ad hoc citizen engagement initiatives at local, national and international levels. Participedia, a repository of public participation initiatives around the globe, showcases that the field of citizen engagement is extremely vibrant.  In the United Kingdom, the Citizens’ Council of the National Institute for Health and Clinical Excellence (NICE) provides NICE with a public perspective on overarching moral and ethical issues that NICE has to take into account when producing guidance. In the United States of America, the National Issues Forum supports the implementation of deliberative forums on pressing national policy issues. Yet, there are few examples that have long-standing programs of engagement and that engage citizens in evidence-informed policymaking.

A pioneer in engaging citizens in health policy-making processes is the McMaster Health Forum in Hamilton, Canada. The citizens who are invited to engage in a “citizen panel” first receive a pre-circulated, plain-language briefing document to spark deliberation about a pressing health and social-system issue. During the panels, citizens then discuss the problem and its causes, options to address it and implementation considerations. The values that they believe should underpin action to address the issue are captured in a panel summary which is used to inform a policy dialogue on the same topic, also organized by the McMaster Health Forum….(More)”.

‘Digital colonialism’: why some countries want to take control of their people’s data from Big Tech

Curated on Posted on by Stefaan Verhulst

Jacqueline Hicks at the Conversation: “There is a global standoff going on about who stores your data. At the close of June’s G20 summit in Japan, a number of developing countries refused to sign an international declaration on data flows – the so-called Osaka Track. Part of the reason why countries such as India, Indonesia and South Africa boycotted the declaration was because they had no opportunity to put their own interests about data into the document.

With 50 other signatories, the declaration still stands as a statement of future intent to negotiate further, but the boycott represents an ongoing struggle by some countries to assert their claim over the data generated by their own citizens.

Back in the dark ages of 2016, data was touted as the new oil. Although the metaphor was quickly debunked it’s still a helpful way to understand the global digital economy. Now, as international negotiations over data flows intensify, the oil comparison helps explain the economics of what’s called “data localisation” – the bid to keep citizens’ data within their own country.

Just as oil-producing nations pushed for oil refineries to add value to crude oil, so governments today want the world’s Big Tech companies to build data centres on their own soil. The cloud that powers much of the world’s tech industry is grounded in vast data centres located mainly around northern Europe and the US coasts. Yet, at the same time, US Big Tech companies are increasingly turning to markets in the global south for expansion as enormous numbers of young tech savvy populations come online….(More)”.

The Global Disinformation Order: 2019 Global Inventory of Organised Social Media Manipulation

Curated on Posted on by Stefaan Verhulst

Report by Philip Howard and Samantha Bradshaw: “…The report explores the tools, capacities, strategies and resources employed by global ‘cyber troops’, typically government agencies and political parties, to influence public opinion in 70 countries.

Key findings include:

  • Organized social media manipulation has more than doubled since 2017, with 70 countries using computational propaganda to manipulate public opinion.
  • In 45 democracies, politicians and political parties have used computational propaganda tools by amassing fake followers or spreading manipulated media to garner voter support.
  • In 26 authoritarian states, government entities have used computational propaganda as a tool of information control to suppress public opinion and press freedom, discredit criticism and oppositional voices, and drown out political dissent.
  • Foreign influence operations, primarily over Facebook and Twitter, have been attributed to cyber troop activities in seven countries: China, India, Iran, Pakistan, Russia, Saudi Arabia and Venezuela.
  • China has now emerged as a major player in the global disinformation order, using social media platforms to target international audiences with disinformation.
  • 25 countries are working with private companies or strategic communications firms offering a computational propaganda as a service.
  • Facebook remains the platform of choice for social media manipulation, with evidence of formally organised campaigns taking place in 56 countries….

The report explores the tools and techniques of computational propaganda, including the use of fake accounts – bots, humans, cyborgs and hacked accounts – to spread disinformation. The report finds:

  • 87% of countries used human accounts
  • 80% of countries used bot accounts
  • 11% of countries used cyborg accounts
  • 7% of countries used hacked or stolen accounts…(More)”.

Great Policy Successes

Curated on Posted on by Stefaan Verhulst

Book by Mallory Compton and Edited by Paul ‘t Hart: “With so much media and political criticism of their shortcomings and failures, it is easy to overlook the fact that many governments work pretty well much of the time. Great Policy Successes turns the spotlight on instances of public policy that are remarkably successful. It develops a framework for identifying and assessing policy successes, paying attention not just to their programmatic outcomes but also to the quality of the processes by which policies are designed and delivered, the level of support and legitimacy they attain, and the extent to which successful performance endures over time. The bulk of the book is then devoted to 15 detailed case studies of striking policy successes from around the world, including Singapore’s public health system, Copenhagen and Melbourne’s rise from stilted backwaters to the highly liveable and dynamic urban centres they are today, Brazil’s Bolsa Familia poverty relief scheme, the US’s GI Bill, and Germany’s breakthrough labour market reforms of the 2000s. Each case is set in context, its main actors are introduced, key events and decisions are described, the assessment framework is applied to gauge the nature and level of its success, key contributing factors to success are identified, and potential lessons and future challenges are identified. Purposefully avoiding the kind of heavy theorizing that characterizes many accounts of public policy processes, each case is written in an accessible and narrative style ideally suited for classroom use in conjunction with mainstream textbooks on public policy design, implementation, and evaluation….(More)”.

The Innovation Barometer

Curated on Posted on by Stefaan Verhulst

About: “Demographic changes. Climate crisis. Cybercrime. Budget deficits. Diminishing political legitimacy. From a global perspective there is no shortage of complex problems facing the public sector. The need for innovative solutions is evident, but a systematic knowledge base for necessary public sector innovations is hard to come by.

Private sector companies have been the subject of internationally comparable statistics on innovation for nearly three decades, giving private companies, scholars and public sector decision-makers essential guidance for business development, research and policymaking.

For the public sector, however, anecdotes and opinions have been substitutes for statistical data on innovation. That is why, in 2015, the Danish National Centre for Public Sector Innovation, in association with Statistics Denmark, began separating myth from reality. The result was the Innovation Barometer, the world’s first official statistics on public sector innovation. The statistic is based on a nationwide web-based survey addressed to managers of public sector workplaces of all kinds – kindergartens, schools, hospitals, police stations ect.

While the findings were both surprising and useful, additional insight from national comparisons was missing. But not for long. By 2018 Norway, Sweden, Iceland and Finland had all conducted one or more national surveys, utilising similar methodologies and definitions, though adapted somewhat to better serve national agendas. Their ongoing efforts have also contributed to methodological adjustments, improving the original survey design.

Currently a large variety of people and organisations use Nordic Innovation Barometer data, applying them for their own purposes, e.g. inspiration, policymaking, strategizing, HR development, teaching, research and consultancy services. Or for legitimising certain decisions and criticising others. In short, the Nordic Innovation Barometers are being put to use as the public good they were intended to be, also in ways the developers and adaptors did not foresee.

On behalf of the remarkably innovative Nordic public sectors we are pleased to present the first website containing cross-Nordic comparisons. Although this website does not tell us everything that we would like to know about public sector innovation, it does provide a sorely needed systematic foundation for developing new solutions….(More)”.

GovChain

Curated on Posted on by Stefaan Verhulst

Introduction to Report by Tom Rodden: “This report addresses the most discussed digital technologies of the last few years. There has been considerable debate about the potential benefits and threats that arise from the use of Distributed Ledger Technologies. What is clear from these debates is that blockchain is an important technology that has the potential to transform a range of sectors. The importance of Distributed Ledger Technology was identified and discussed in a 2016 report produced by Sir Mark Walport, the UK Government’s Chief Scientific Adviser at the time.

The report provided recommendations for the use of blockchain to meet national needs, and to ensure the UK’s competitiveness in the global arena. The report outlined the need for a broad response that spanned the public and private sector, whilst also recognising the need for leadership in the development and deployment of blockchain technologies.

This report provides an update and reflection on the use of blockchain technologies by Governments and Public Sector bodies around the world. Much has happened since 2016 and this report provides a reminder of the importance of Distributed Ledger Technologies for the public sector, and the various orientations of blockchains adopted across the globe. The team have mapped the various regulatory and policy responses to blockchain, and cryptocurrencies more broadly. This mapping not only reveals a varying degree of friendliness towards blockchain, it also highlights the challenges involved in implementing Distributed Ledger Technology systems in the public sector.

Distributed Ledger Technologies are an important technology for the public sector, albeit there exists a number of policy implications. If we are to show leadership in the use of blockchain and its application it is imperative that we are aware of both its benefits and limitations; and the issues that need to be addressed to ensure we gain value from the use of Distributed Ledger Technologies. This report captures the public sector experiences of blockchain technologies across the globe, and also documents the issues raised and the various responses. This is a hugely informative and useful document for those who seek to make use of blockchains in the public sector….(More)”.

Real-time flu tracking. By monitoring social media, scientists can monitor outbreaks as they happen.

Curated on Posted on by Stefaan Verhulst

Charles Schmidt at Nature: “Conventional influenza surveillance describes outbreaks of flu that have already happened. It is based on reports from doctors, and produces data that take weeks to process — often leaving the health authorities to chase the virus around, rather than get on top of it.

But every day, thousands of unwell people pour details of their symptoms and, perhaps unknowingly, locations into search engines and social media, creating a trove of real-time flu data. If such data could be used to monitor flu outbreaks as they happen and to make accurate predictions about its spread, that could transform public-health surveillance.

Powerful computational tools such as machine learning and a growing diversity of data streams — not just search queries and social media, but also cloud-based electronic health records and human mobility patterns inferred from census information — are making it increasingly possible to monitor the spread of flu through the population by following its digital signal. Now, models that track flu in real time and forecast flu trends are making inroads into public-health practice.

“We’re becoming much more comfortable with how these models perform,” says Matthew Biggerstaff, an epidemiologist who works on flu preparedness at the US Centers for Disease Control and Prevention (CDC) in Atlanta, Georgia.

In 2013–14, the CDC launched the FluSight Network, a website informed by digital modelling that predicts the timing, peak and short-term intensity of the flu season in ten regions of the United States and across the whole country. According to Biggerstaff, flu forecasting helps responders to plan ahead, so they can be ready with vaccinations and communication strategies to limit the effects of the virus. Encouraged by progress in the field, the CDC announced in January 2019 that it will spend US$17.5 million to create a network of influenza-forecasting centres of excellence, each tasked with improving the accuracy and communication of real-time forecasts.

The CDC is leading the way on digital flu surveillance, but health agencies elsewhere are following suit. “We’ve been working to develop and apply these models with collaborators using a range of data sources,” says Richard Pebody, a consultant epidemiologist at Public Health England in London. The capacity to predict flu trajectories two to three weeks in advance, Pebody says, “will be very valuable for health-service planning.”…(More)”.

Citizens need to know numbers

Curated on Posted on by Stefaan Verhulst

David Spiegelhalter at Aeon: “…Many criticised the Leave campaign for its claim that Britain sends the EU £350 million a week. When Boris Johnson repeated it in 2017 – by which time he was Foreign Secretary – the chair of the UK Statistics Authority (the official statistical watchdog) rebuked him, noting it was a ‘clear misuse of official statistics’. A private criminal prosecution was even made against Johnson for ‘misconduct in a public office’, but it was halted by the High Court.

The message on the bus had a strong emotional resonance with millions of people, even though it was essentially misinformation. The episode demonstrates both the power and weakness of statistics: they can be used to amplify an entire worldview, and yet they often do not stand up to scrutiny. This is why statistical literacy is so important – in an age in which data plays an ever-more prominent role in society, the ability to spot ways in which numbers can be misused, and to be able to deconstruct claims based on statistics, should be a standard civic skill.

Statistics are not cold hard facts – as Nate Silver writes in The Signal and the Noise (2012): ‘The numbers have no way of speaking for themselves. We speak for them. We imbue them with meaning.’ Not only has someone used extensive judgment in choosing what to measure, how to define crucial ideas, and to analyse them, but the manner in which they are communicated can utterly change their emotional impact. Let’s assume that £350 million is the actual weekly contribution to the EU. I often ask audiences to suggest what they would put on the side of the bus if they were on the Remain side. A standard option for making an apparently big number look small is to consider it as a proportion of an even bigger number: for example, the UK’s GDP is currently around £2.3 trillion, and so this contribution would comprise less than 1 per cent of GDP, around six months’ typical growth. An alternative device is to break down expenditure into smaller, more easily grasped units: for example, as there are 66 million people in the UK, £350 million a week is equivalent to around 75p a day, less than $1, say about the cost of a small packet of crisps (potato chips). If the bus had said: We each send the EU the price of a packet of crisps each day, the campaign might not have been so successful.

Numbers are often used to persuade rather than inform, statistical literacy needs to be improved, and so surely we need more statistics courses in schools and universities? Well, yes, but this should not mean more of the same. After years of researching and teaching statistical methods, I am not alone in concluding that the way in which we teach statistics can be counterproductive, with an overemphasis on mathematical foundations through probability theory, long lists of tests and formulae to apply, and toy problems involving, say, calculating the standard deviation of the weights of cod. The American Statistical Association’s Guidelines for Assessment and Instruction in Statistics Education (2016) strongly recommended changing the pedagogy of statistics into one based on problemsolving, real-world examples, and with an emphasis on communication….(More)”.

Guide to Mobile Data Analytics in Refugee Scenarios

Curated on Posted on by Stefaan Verhulst

Book edited Albert Ali Salah, Alex Pentland, Bruno Lepri and Emmanuel Letouzé: “After the start of the Syrian Civil War in 2011–12, increasing numbers of civilians sought refuge in neighboring countries. By May 2017, Turkey had received over 3 million refugees — the largest r efugee population in the world. Some lived in government-run camps near the Syrian border, but many have moved to cities looking for work and better living conditions. They faced problems of integration, income, welfare, employment, health, education, language, social tension, and discrimination. In order to develop sound policies to solve these interlinked problems, a good understanding of refugee dynamics is necessary.

This book summarizes the most important findings of the Data for Refugees (D4R) Challenge, which was a non-profit project initiated to improve the conditions of the Syrian refugees in Turkey by providing a database for the scientific community to enable research on urgent problems concerning refugees. The database, based on anonymized mobile call detail records (CDRs) of phone calls and SMS messages of one million Turk Telekom customers, indicates the broad activity and mobility patterns of refugees and citizens in Turkey for the year 1 January to 31 December 2017. Over 100 teams from around the globe applied to take part in the challenge, and 61 teams were granted access to the data.

This book describes the challenge, and presents selected and revised project reports on the five major themes: unemployment, health, education, social integration, and safety, respectively. These are complemented by additional invited chapters describing related projects from international governmental organizations, technological infrastructure, as well as ethical aspects. The last chapter includes policy recommendations, based on the lessons learned.

The book will serve as a guideline for creating innovative data-centered collaborations between industry, academia, government, and non-profit humanitarian agencies to deal with complex problems in refugee scenarios. It illustrates the possibilities of big data analytics in coping with refugee crises and humanitarian responses, by showcasing innovative approaches drawing on multiple data sources, information visualization, pattern analysis, and statistical analysis.It will also provide researchers and students working with mobility data with an excellent coverage across data science, economics, sociology, urban computing, education, migration studies, and more….(More)”.

#Kremlin: Using Hashtags to Analyze Russian Disinformation Strategy and Dissemination on Twitter

Curated on Posted on by Stefaan Verhulst

Paper by Sarah Oates, and John Gray: “Reports of Russian interference in U.S. elections have raised grave concerns about the spread of foreign disinformation on social media sites, but there is little detailed analysis that links traditional political communication theory to social media analytics. As a result, it is difficult for researchers and analysts to gauge the nature or level of the threat that is disseminated via social media. This paper leverages both social science and data science by using traditional content analysis and Twitter analytics to trace how key aspects of Russian strategic narratives were distributed via #skripal, #mh17, #Donetsk, and #russophobia in late 2018.

This work will define how key Russian international communicative goals are expressed through strategic narratives, describe how to find hashtags that reflect those narratives, and analyze user activity around the hashtags. This tests both how Twitter amplifies specific information goals of the Russians as well as the relative success (or failure) of particular hashtags to spread those messages effectively. This research uses Mentionmapp, a system co-developed by one of the authors (Gray) that employs network analytics and machine intelligence to identify the behavior of Twitter users as well as generate profiles of users via posting history and connections. This study demonstrates how political communication theory can be used to frame the study of social media; how to relate knowledge of Russian strategic priorities to labels on social media such as Twitter hashtags; and to test this approach by examining a set of Russian propaganda narratives as they are represented by hashtags. Our research finds that some Twitter users are consistently active across multiple Kremlin-linked hashtags, suggesting that knowledge of these hashtags is an important way to identify Russian propaganda online influencers. More broadly, we suggest that Twitter dichotomies such as bot/human or troll/citizen should be used with caution and analysis should instead address the nuances in Twitter use that reflect varying levels of engagement or even awareness in spreading foreign disinformation online….(More)”.