DNA databases are too white. This man aims to fix that.

Curated on Posted on by Stefaan Verhulst

Interview of Carlos D. Bustamante by David Rotman: “In the 15 years since the Human Genome Project first exposed our DNA blueprint, vast amounts of genetic data have been collected from millions of people in many different parts of the world. Carlos D. Bustamante’s job is to search that genetic data for clues to everything from ancient history and human migration patterns to the reasons people with different ancestries are so varied in their response to common diseases.

Bustamante’s career has roughly spanned the period since the Human Genome Project was completed. A professor of genetics and biomedical data science at Stanford and 2010 winner of a MacArthur genius award, he has helped to tease out the complex genetic variation across different populations. These variants mean that the causes of diseases can vary greatly between groups. Part of the motivation for Bustamante, who was born in Venezuela and moved to the US when he was seven, is to use those insights to lessen the medical disparities that still plague us.

But while it’s an area ripe with potential for improving medicine, it’s also fraught with controversies over how to interpret genetic differences between human populations. In an era still obsessed with race and ethnicity—and marred by the frequent misuse of science in defining the characteristics of different groups—Bustamante remains undaunted in searching for the nuanced genetic differences that these groups display.

Perhaps his optimism is due to his personality—few sentences go by without a “fantastic” or “extraordinarily exciting.” But it is also his recognition as a population geneticist of the incredible opportunity that understanding differences in human genomes presents for improving health and fighting disease.

David Rotman, MIT Technology Review’s editor at large, discussed with Bustamante why it’s so important to include more people in genetic studies and understand the genetics of different populations.

How good are we at making sure that the genomic data we’re collecting is inclusive?

I’m optimistic, but it’s not there yet.

In our 2011 paper, the statistic we had was that more than 96% of participants in genome-wide association studies were of European descent. In the follow-up in 2016, the number went from 96% to around 80%. So that’s getting better. Unfortunately, or perhaps fortunately, a lot of that is due to the entry of China into genetics. A lot of that was due to large-scale studies in Chinese and East Asian populations. Hispanics, for example, make up less than 1% of genome-wide association studies. So we need to do better. Ultimately, we want precision medicine to benefit everybody.

Aside from a fairness issue, why is diversity in genomic data important? What do we miss without it?

First of all, it has nothing to do with political correctness. It has everything to do with human biology and the fact that human populations and the great diaspora of human migrations have left their mark on the human genome. The genetic underpinnings of health and disease have shared components across human populations and things that are unique to different populations….(More)”.

Here’s What the USMCA Does for Data Innovation

Curated on Posted on by Stefaan Verhulst

Joshua New at the Center for Data Innovation: “…the Trump administration announced the United States-Mexico-Canada Agreement (USMCA), the trade deal it intends to replace NAFTA with. The parties—Canada, Mexico, and the United States—still have to adopt the deal, and if they do, they will enjoy several welcome provisions that can give a boost to data-driven innovation in all three countries.

First, USMCA is the first trade agreement in the world to promote the publication of open government data. Article 19.18 of the agreement officially recognizes that “facilitating public access to and use of government information fosters economic and social development, competitiveness, and innovation.” Though the deal does not require parties to publish open government data, to the extent they choose to publish this data, it directs them to adhere to best practices for open data, including ensuring it is in open, machine-readable formats. Additionally, the deal directs parties to try to cooperate and identify ways they can expand access to and the use of government data, particularly for the purposes of creating economic opportunity for small and medium-sized businesses. While this is a welcome provision, the United States still needs legislation to ensure that publishing open data becomes an official responsibility of federal government agencies.

Second, Article 19.11 of USMCA prevents parties from restricting “the cross-border transfer of information, including personal information, by electronic means if this activity is for the conduct of the business of a covered person.” Additionally, Article 19.12 prevents parties from requiring people or firms “to use or locate computing facilities in that Party’s territory as a condition for conducting business in that territory.” In effect, these provisions prevent parties from enacting protectionist data localization requirements that inhibit the flow of data across borders. This is important because many countries have disingenuously argued for data localization requirements on the grounds that it protects their citizens from privacy or security harms, despite the location of data having no bearing on either privacy or security, to prop up their domestic data-driven industries….(More)”.

The Stoplight Battling to End Poverty

Curated on Posted on by Stefaan Verhulst

Nick Dall at OZY: “Over midafternoon coffees and Fantas, Robyn-Lee Abrahams and Joyce Paulse — employees at my local supermarket in Cape Town, South Africa — tell me how their lives have changed in the past 18 months. “I never dreamed my daughter would go to college,” says Paulse. “But yesterday we went online together and started filling in the forms.”

Abrahams notes how she used to live hand to mouth. “But now I’ve got a savings account, which I haven’t ever touched.” The sacrifice? “I eat less chocolate now.”

Paulse and Abrahams are just two of thousands of beneficiaries of the Poverty Stoplight, a self-evaluation tool that’s now redefining poverty in countries as diverse as Argentina and the U.K.; Mexico and Tanzania; Chile and Papua New Guinea. By getting families to rank their own economic condition red, yellow or green based upon 50 indicators, the Poverty Stoplight gives families the agency to pull themselves out of poverty and offers organizations insight into whether their programs are working.

Social entrepreneur Martín Burt, who founded Fundación Paraguaya 33 years ago to promote entrepreneurship and economic empowerment in Paraguay, developed the first, paper-based prototype of the Poverty Stoplight in 2010 to help the organization’s microfinance clients escape the poverty cycle….Because poverty is multidimensional, “you can have a family with a proper toilet but no savings,” points out Burt. Determining questionnaires span six different aspects of people’s lives, including softer indicators such as community involvement, self-confidence and family violence. The survey, a series of 50 multiple-choice questions with visual cues, is aimed at households, not individuals, because “you cannot get a 10-year-old girl out of poverty in isolation,” says Burt. Confidentiality is another critical component….(More)”.

An Overview of National AI Strategies

Curated on Posted on by Stefaan Verhulst

Medium Article by Tim Dutton: “The race to become the global leader in artificial intelligence (AI) has officially begun. In the past fifteen months, Canada, China, Denmark, the EU Commission, Finland, France, India, Italy, Japan, Mexico, the Nordic-Baltic region, Singapore, South Korea, Sweden, Taiwan, the UAE, and the UK have all released strategies to promote the use and development of AI. No two strategies are alike, with each focusing on different aspects of AI policy: scientific research, talent development, skills and education, public and private sector adoption, ethics and inclusion, standards and regulations, and data and digital infrastructure.

This article summarizes the key policies and goals of each strategy, as well as related policies and initiatives that have announced since the release of the initial strategies. It also includes countries that have announced their intention to develop a strategy or have related AI policies in place….(More)”.

As democracy goes digital, those offline are being pushed out of politics

Curated on Posted on by Stefaan Verhulst

Renata Avila at the Web Foundation: “Free and fair elections require an informed, active body of citizens debating the electoral issues of the day and scrutinising the positions of candidates. Participation at each and every stage of an electoral campaign — not just on the day of the vote — is necessary for a healthy democracy.

Those online have access to an increasingly sophisticated set of tools to do just this: to learn about candidates, to participate in political discussions, to shape debate and raise issues that matter to them. Or even, run for office themselves.

What does this mean for those citizens who don’t have access to the internet? Do online debates capture their needs, concerns and interests? Are the priorities of those not connected represented on the political stage?

The Mexican election: a story of digital inequality

María de Jesús “Marichuy” Patricio Martinez was selected as an independent candidate in Mexico’s recent July 1 elections general election — the first indigenous woman to run for president. But digital barriers doomed her candidacy.

Independent presidential candidates in Mexico are required to collect 866,000 signatures using a mandatory mobile app that only runs on relatively new smartphones. This means that to collect the required endorsements, a candidate and their supporters all need a modern smartphone — which typically costs around three times the minimum monthly salary — plus electricity and mobile data. These are resources many people in indigenous communities simply don’t have. While the electoral authorities exempted some municipalities from this process, it did not cover the mostly poor and indigenous areas that Marichuy wanted to represent. She was unable to gather the signatures needed….(More)”.

Democracy Is a Habit: Practice It

Curated on Posted on by Stefaan Verhulst

Melvin Rogers at the Boston Review: “After decades of triumph,” The Economist recently concluded, “democracy is losing ground.” But not, apparently, in the West, whose “mature democracies . . . are not yet in serious danger.” On this view, reports of the death of American democracy have been greatly exaggerated. “Donald Trump may scorn liberal norms,” the reasoning goes, “but America’s checks and balances are strong, and will outlast him.” The truly endangered societies are those where “institutions are weaker and democratic habits less ingrained.”

It has become a common refrain, even among those critical of Trump’s administration. “Our democracy is hard to kill,” Harvard political scientist Steven Levitsky said in an interview about his new book with Daniel Zeblatt, How Democracies Die. “We do still have very strong democratic institutions. We’re not Turkey, we’re not Hungary, we’re not Venezuela. We can behave quite recklessly and irresponsibly and probably still muddle through that.”

Is democracy in the United States really so robust? At the outset of World War II, American philosopher John Dewey cautioned against so easy a conclusion—and the simplistic picture of democratic society that it presumes. In Freedom and Culture (1939), he worried that democracy might succumb to the illusion of stability and endurance in the face of threats to liberty and norms of decency. According to Dewey, we must not believe

that democratic conditions automatically maintain themselves, or that they can be identified with fulfillment of prescriptions laid down in a constitution. Beliefs of this sort merely divert attention from what is going on, just as the patter of the prestidigitator enables him to do things that are not noticed by those whom he is engaged in fooling. For what is actually going on may be the formation of conditions that are hostile to any kind of democratic liberties.

Dewey’s was a warning to be wary not just of bad governance but of a more fundamental deformation of society. “This would be too trite to repeat,” he admits, “were it not that so many persons in the high places of business talk as if they believed or could get others to believe that the observance of formulae that have become ritualistic are effective safeguards of our democratic heritage.”…

Dewey may seem like an odd resource to recall in our current political climate. For if we stand in what Hannah Arendt once called “dark times,” Dewey’s optimistic faith in democracy—his unflinching belief in the reflective capacity of human beings to secure the good and avert the bad, and in the progressive character of American democracy—may look ill-equipped to address our current crisis.

Yet this faith was always shaped by an important insight regarding democracy that many seem to have ignored. For Dewey, democracy’s survival depends on a set of habits and dispositions—in short, a culture—to sustain it. …

“The democratic road is the hard one to take,” Dewey concluded in Freedom and Culture. “It is the road which places the greatest burden of responsibility on the greatest number of human beings.” Precisely for this reason, Dewey believed the culture of democracy—the habits and sensibilities of the citizenry—in greater need of scrutiny than its constitution and procedures. For what are constitutions and procedures once you have deformed the ground upon which their proper functioning depends?…(More)”.

Defending Politically Vulnerable Organizations Online

Curated on Posted on by Stefaan Verhulst

Center for Long-Term Cybersecurity (CLTC): “A new report …details how media outlets, human rights groups, NGOs, and other politically vulnerable organizations face significant cybersecurity threats—often at the hands of powerful governments—but have limited resources to protect themselves. The paper, “Defending Politically Vulnerable Organizations Online,” by CLTC Research Fellow Sean Brooks, provides an overview of cybersecurity threats to civil society organizations targeted for political purposes, and explores the ecosystem of resources available to help these organizations improve their cybersecurity.

“From mass surveillance of political dissidents in Thailand to spyware attacks on journalists in Mexico, cyberattacks against civil society organizations have become a persistent problem in recent years,” says Steve Weber, Faculty Director of CLTC. “While journalists, activists, and others take steps to protect themselves, such as installing firewalls and anti-virus software, they often lack the technical ability or capital to establish protections better suited to the threats they face, including phishing. Too few organizations and resources are available help them expand their cybersecurity capabilities.”

To compile their report, Brooks and his colleagues at CLTC undertook an extensive open-source review of more than 100 organizations supporting politically vulnerable organizations, and conducted more than 30 interviews with activists, threat researchers, and cybersecurity professionals. The report details the wide range of threats that politically vulnerable organizations face—from phishing emails, troll campaigns, and government-sanctioned censorship to sophisticated “zero-day” attacks—and it exposes the significant resource constraints that limit these organizations’ access to expertise and technology….(More)”.

Introducing CitizENGAGE – How Citizens Get Things Done

Curated on Posted on by Stefaan Verhulst

Open Gov Partnership: “In a world full of autocracy, bureaucracy, and opacity, it can be easy to feel like you’re fighting an uphill battle against these trends.

Trust in government is at historic lows. Autocratic leaders have taken the reins in countries once thought bastions of democracy. Voter engagement has been declining around the globe for years.

Despite this reality, there is another, powerful truth: citizens are using open government to engage in their communities in innovative, exciting ways, bringing government closer and creating a more inclusive system.

These citizens are everywhere.

In Costa Rica, they are lobbying the government for better and fairer housing for indigenous communities.

In Liberia, they are bringing rights to land back to the communities who are threatened by companies on their traditional lands.

In Madrid, they are using technology to make sure you can participate in government – not just every four years, but every day.

In Mongolia, they are changing the face of education and healthcare services by empowering citizens to share their needs with government.

In Paraguay, hundreds of municipal councils are hearing directly from citizens and using their input to shape how needed public services are delivered.

These powerful examples are the inspiration for the Open Government Partnership’s (OGP) new global campaign to CItizENGAGE.  The campaign will share the stories of citizens engaging in government and changing lives for the better.

CitizENGAGE includes videos, photo essays, and impact stories about citizens changing the way government is involved in their lives. These stories talk about the very real impact open government can have on the lives of everyday citizens, and how it can change things as fundamental as schools, roads, and houses.

We invite you to visit CitizENGAGE and find out more about these reforms, and get inspired. Whether or not your government participates in OGP, you can take the lessons from these powerful stories of transformation and use them to make an impact in your own community….(More)”.

Hope for Democracy: 30 years of Participatory Budgeting Worldwide

Curated on Posted on by Stefaan Verhulst

Book edited by Nelson Dias: “Hope for Democracy” is not only the title of this book, but also the translation of a state of mind infected by innovation and transformative action of many people who in different parts of the world, are engaged in the construction of more lasting and intense ways of living democracy.

The articles found within this publication are “scales” of a fascinating journey through the paths of participatory democracy, from North America to Asia, Oceania to Europe, and Latin America to Africa.

With no single directions, it is up to the readers to choose the route they want to travel, being however invited to reinforce this “democratizing wave”, encouraging the emergence of new and renewed spaces of participation in the territories where they live and work….(More)

Small Wars, Big Data: The Information Revolution in Modern Conflict

Curated on Posted on by Stefaan Verhulst

Book by Eli Berman, Joseph H. Felter & Jacob N. Shapiro: “The way wars are fought has changed starkly over the past sixty years. International military campaigns used to play out between large armies at central fronts. Today’s conflicts find major powers facing rebel insurgencies that deploy elusive methods, from improvised explosives to terrorist attacks. Small Wars, Big Datapresents a transformative understanding of these contemporary confrontations and how they should be fought. The authors show that a revolution in the study of conflict–enabled by vast data, rich qualitative evidence, and modern methods—yields new insights into terrorism, civil wars, and foreign interventions. Modern warfare is not about struggles over territory but over people; civilians—and the information they might choose to provide—can turn the tide at critical junctures.

The authors draw practical lessons from the past two decades of conflict in locations ranging from Latin America and the Middle East to Central and Southeast Asia. Building an information-centric understanding of insurgencies, the authors examine the relationships between rebels, the government, and civilians. This approach serves as a springboard for exploring other aspects of modern conflict, including the suppression of rebel activity, the role of mobile communications networks, the links between aid and violence, and why conventional military methods might provide short-term success but undermine lasting peace. Ultimately the authors show how the stronger side can almost always win the villages, but why that does not guarantee winning the war.

Small Wars, Big Data provides groundbreaking perspectives for how small wars can be better strategized and favorably won to the benefit of the local population….(More)”.