Better Data Sharing for Benefits Delivery

Curated on Posted on by Stefaan Verhulst

Article by Chris Sadler and Claire Park: “Robust federal assistance programs and social services are essential to a thriving society. This is especially the case as people continue to contend with the fallout from the COVID-19 pandemic, which jeopardized livelihoods and put millions out of employment. Government benefits at the federal, state, and local level help people across the country pay for food, housing, health care, and other basic living expenses. But more work is required at the federal level to ensure that these benefits reach everyone in need. For instance, the historic $1.2 trillion Infrastructure Investment and Jobs Act signed into law last year included a $14.2 billion program called the Affordable Connectivity Program (ACP) to help qualifying low-income households pay for internet service. While the program is off to a strong start, improved data sharing between federal agencies, state and local governments, and institutions can leverage existing data from other benefits programs to streamline eligibility processes and ensure those who qualify receive the benefit. Expanding data sharing for benefits eligibility also aligns with one of the goals in the recent executive order to advance racial equity.

We discuss how data sharing could be improved, as well as other steps that the federal government can take to maximize the impact of this benefit on the digital divide. The solutions outlined here can be applied to both current and future programs that help people find housing, prepare children for school, and ensure everyone has enough to eat…(More)”.

What Happened to Consensus Reality?

Curated on Posted on by Stefaan Verhulst

Essay by Jon Askonas: “Do you feel that people you love and respect are going insane? That formerly serious thinkers or commentators are increasingly unhinged, willing to subscribe to wild speculations or even conspiracy theories? Do you feel that, even if there’s some blame to go around, it’s the people on the other side of the aisle who have truly lost their minds? Do you wonder how they can possibly be so blind? Do you feel bewildered by how absurd everything has gotten? Do many of your compatriots seem in some sense unintelligible to you? Do you still consider them your compatriots?

If you feel this way, you are not alone.

We have come a long way from the optimism of the 1990s and 2000s about how the Internet would usher in a new golden era, expanding the domain of the information society to the whole world, with democracy sure to follow. Now we hear that the Internet foments misinformation and erodes democracy. Yet as dire as these warnings are, they are usually followed with suggestions that with more scrutiny on tech CEOs, more aggressive content moderation, and more fact-checking,  Americans might yet return to accepting the same model of reality. Last year, a New York Times article titled “How the Biden Administration Can Help Solve Our Reality Crisis”  suggested creating a federal “reality czar.”

This is a fantasy. The breakup of consensus reality — a shared sense of facts, expectations, and concepts about the world — predates the rise of social media and is driven by much deeper economic and technological currents.

Postwar Americans enjoyed a world where the existence of an objective, knowable reality just seemed like common sense, where alternate facts belonged only to fringe realms of the deluded or deluding. But a shared sense of reality is not natural. It is the product of social institutions that were once so powerful they could hold together a shared picture of the world, but are now well along a path of decline. In the hope of maintaining their power, some have even begun to abandon the project of objectivity altogether.

Attempts to restore consensus reality by force — the current implicit project of the establishment — are doomed to failure. The only question now is how we will adapt our institutions to a life together where a shared picture of the world has been shattered.

This series aims to trace the forces that broke consensus reality. More than a history of the rise and fall of facts, these essays attempt to show a technological reordering of social reality unlike any before encountered, and an accompanying civilizational shift not seen in five hundred years…(More)”.

Aligning investment and values: How an Economic Value Atlas can map regional strategies

Curated on Posted on by Stefaan Verhulst

Report by Adie Tomer and Caroline George: “Traditional built environment and economic development practices are falling short in the face of a convergent set of environmental, economic, and social challenges. With each passing year, more communities find themselves vulnerable to extreme weather events; income disparities continue to rise, leaving too many households unable to afford essential services; and employers, especially many young and minority-owned businesses, often struggle to find talented workers and access financial capital. 

Public, private, and civic leaders increasingly recognize that achieving inclusive growth and designing resilient communities require more than recruiting out-of-town businesses or attempting to reduce highway congestion. Those leaders need a new kind of policy playbook—one that addresses the cross-sectoral challenges regions face and designs strategies across disciplines.  

An Economic Value Atlas, or EVA, is part of that playbook. An EVA is a regional engagement, value-setting, and measurement process culminating in an interactive regional map that indexes neighborhood-level, value-based performance metrics. The overall framework helps practitioners delve into geographic disparities in how the region is living up to its values—opening the door to more equitable, place-based decisionmaking for business, infrastructure, and land use purposes…

The EVA framework consists of five phases of work, each of which can be adjusted based on unique local conditions: 

  • The EVA’s leadership team sets a stakeholder table with a diverse collection of regional voices to serve as the board of directors for the EVA process. 
  • The leadership team and stakeholder table develop a shared vision—a collection of specific long-term goals a region would like to achieve. 
  • A research-driven team translates values into indicators and metrics using sets of categorical indicators and quantitative metrics that reflect the goals stakeholders would like to achieve. 
  • A coding team develops and launches EVA software, which uses dynamic and flexible data to benchmark neighborhood performance relative to regional goals. 
  • The leadership team works with government and civic leaders to inform and guide policy and investment decisions using EVA outputs. 

Critically, the EVA framework is designed to deliver results…(More)”

Public Health Struggles to Get Rid of Its Data Silos

Curated on Posted on by Stefaan Verhulst

Article by Carl Smith: “…In September 2019, before the first COVID-19 case was reported in the U.S., the Council of State and Territorial Epidemiologists (CSTE) published a report calling for a “public health data superhighway” capable of detecting health challenges and informing the response to them.

The technology to accomplish this already exists, CSTE noted. But even so, “public health departments struggle to take advantage of these advancements and continue to rely on sluggish, manual processes like paper records, phone calls, spreadsheets, and faxes requiring manual data entry.”

The limitations of this data ecosystem became a considerable liability when public health officials ran up against a virus that had never been seen before, working to both understand and control it at the same time. “There were mixed messages, and the pandemic made us look like our data was not adequate to the task,” says Gail C. Christopher, executive director of the National Collaborative for Health Equity.

This provided an opening for political or social actors to push anti-public health campaigns that continue to fuel public distrust of public health leaders, workers and guidelines. Reliable and timely data could help heal some of the harm that has been done, says Christopher.

“I think every health department has aspects of a complete data system,” says Brian Castrucci, president and CEO of the DeBeaumont Foundation, which funded the CSTE report. “But we need to articulate what a complete data system looks like — right now, we don’t even know what the destination is, so it’s hard to tell when we’re lost.”

A Data Modernization Movement

Data systems improvement is one of three major topics that recur in discussions about rebuilding public health, along with workforce expansion and regaining public trust, says Michael Fraser, executive director of the Association of State and Territorial Health Officials (ASTHO). “A major finding from all the conversations that we’ve had about COVID is that data systems need to be modernized.”

In recent years, there has been considerable effort by the public health community to find ways to move away from “silo-based” or disease-based surveillance between states and the federal government to an enterprise-wide system, says Fraser. “During COVID, a lot of states had a hard time sharing data, and there are many parts of this country where people go back and forth between multiple states on any given day — it’s not just the ability for states to share data with the federal government, but for states to share amongst themselves.”

The CDC’s Data Modernization Initiative, launched in 2020, is a $1.2 billion effort to address this challenge, envisioning resilient, connected systems that could “solve problems before they happen and reduce the harm caused by the problems that do happen.” The CSTE campaign “Data: Elemental to Health” is working to ensure sustained public funding for this work…(More)”.

Understanding Criminal Justice Innovations

Curated on Posted on by Stefaan Verhulst

Paper by Meghan J. Ryan: “Burgeoning science and technology have provided the criminal justice system with the opportunity to address some of its shortcomings. And the criminal justice system has significant shortcomings. Among other issues, we have a mass incarceration problem; clearance rates are surprisingly low; there are serious concerns about wrongful convictions; and the system is layered with racial, religious, and other biases. Innovations that are widely used across industries, as well as those directed specifically at the criminal justice system, have the potential to improve upon such problems. But it is important to recognize that these innovations also have downsides, and criminal justice actors must proceed with caution and understand not only the potential of these interventions but also their limitations. Relevant to this calculation of caution is whether the innovation is broadly used across industry sectors or, rather, whether it has been specifically developed for use within the criminal justice system. These latter innovations have a record of not being sufficiently vetted for accuracy and reliability. Accordingly, criminal justice actors must be sufficiently well versed in basic science and technology so that they have the ability and the confidence to critically assess the usefulness of the various criminal justice innovations in light of their limitations. Considering lawyers’ general lack of competency in these areas, scientific and technological training is necessary to mold them into modern competent criminal justice actors. This training must be more than superficial subject-specific training, though; it must dig deeper, delving into critical thinking skills that include evaluating the accuracy and reliability of the innovation at issue, as well as assessing broader concerns such as the need for development transparency, possible intrusions on individual privacy, and incentives to curtail individual liberties given the innovation at hand….(More)”

New laws to strengthen Canadians’ privacy protection and trust in the digital economy

Curated on Posted on by Stefaan Verhulst

Press Release: “Canadians increasingly rely on digital technology to connect with loved ones, to work and to innovate. That’s why the Government of Canada is committed to making sure Canadians can benefit from the latest technologies, knowing that their personal information is safe and secure and that companies are acting responsibly.

Today, the Honourable François-Philippe Champagne, Minister of Innovation, Science and Industry, together with the Honourable David Lametti, Minister of Justice and Attorney General of Canada, introduced the Digital Charter Implementation Act, 2022, which will significantly strengthen Canada’s private sector privacy law, create new rules for the responsible development and use of artificial intelligence (AI), and continue advancing the implementation of Canada’s Digital Charter. As such, the Digital Charter Implementation Act, 2022 will include three proposed acts: the Consumer Privacy Protection Act, the Personal Information and Data Protection Tribunal Act, and the Artificial Intelligence and Data Act.

The proposed Consumer Privacy Protection Act will address the needs of Canadians who rely on digital technology and respond to feedback received on previous proposed legislation. This law will ensure that the privacy of Canadians will be protected and that innovative businesses can benefit from clear rules as technology continues to evolve. This includes:

  • increasing control and transparency when Canadians’ personal information is handled by organizations;
  • giving Canadians the freedom to move their information from one organization to another in a secure manner;
  • ensuring that Canadians can request that their information be disposed of when it is no longer needed;
  • establishing stronger protections for minors, including by limiting organizations’ right to collect or use information on minors and holding organizations to a higher standard when handling minors’ information;
  • providing the Privacy Commissioner of Canada with broad order-making powers, including the ability to order a company to stop collecting data or using personal information; and
  • establishing significant fines for non-compliant organizations—with fines of up to 5% of global revenue or $25 million, whichever is greater, for the most serious offences.

The proposed Personal Information and Data Protection Tribunal Act will enable the creation of a new tribunal to facilitate the enforcement of the Consumer Privacy Protection Act. 

The proposed Artificial Intelligence and Data Act will introduce new rules to strengthen Canadians’ trust in the development and deployment of AI systems, including:

  • protecting Canadians by ensuring high-impact AI systems are developed and deployed in a way that identifies, assesses and mitigates the risks of harm and bias;
  • establishing an AI and Data Commissioner to support the Minister of Innovation, Science and Industry in fulfilling ministerial responsibilities under the Act, including by monitoring company compliance, ordering third-party audits, and sharing information with other regulators and enforcers as appropriate; and
  • outlining clear criminal prohibitions and penalties regarding the use of data obtained unlawfully for AI development or where the reckless deployment of AI poses serious harm and where there is fraudulent intent to cause substantial economic loss through its deployment…(More)”.

How Period-Tracker Apps Treat Your Data, and What That Means if Roe v. Wade Is Overturned

Curated on Posted on by Stefaan Verhulst

Article by Nicole Nguyen and Cordilia James: “You might not talk to your friends about your monthly cycle, but there’s a good chance you talk to an app about it. And why not? Period-tracking apps are more convenient than using a diary, and the insights are more interesting, too. 

But how much do you know about the ways apps and trackers collect, store—and sometimes share—your fertility and menstrual-cycle data?

The question has taken on new importance following the leak of a draft Supreme Court opinion that would overturn Roe v. Wade. Roe established a constitutional right to abortion, and should the court reverse its 1973 decision, about half the states in the U.S. are likely to restrict or outright ban the procedure.

Phone and app data have long been shared and sold without prominent disclosure, often for advertising purposes. HIPAA, aka the Health Insurance Portability and Accountability Act, might protect information shared between you and your healthcare provider, but it doesn’t typically apply to data you put into an app, even a health-related one. Flo Health Inc., maker of a popular period and ovulation tracker, settled with the Federal Trade Commission in 2021 for sharing sensitive health data with Facebook without making the practice clear to users.

The company completed an independent privacy audit earlier this year. “We remain committed to ensuring the utmost privacy for our users and want to make it clear that Flo does not share health data with any company,” a spokeswoman said.

In a scenario where Roe is overturned, your digital breadcrumbs—including the kind that come from period trackers—could be used against you in states where laws criminalize aiding in or undergoing abortion, say legal experts.

“The importance of menstrual data is not merely speculative. It has been relevant to the government before, in investigations and restrictions,” said Leah Fowler, research director at University of Houston’s Health Law and Policy Institute. She cited a 2019 hearing where Missouri’s state health department admitted to keeping a spreadsheet of Planned Parenthood abortion patients, which included the dates of their last menstrual period.

Prosecutors have also obtained other types of digital information, including text messages and search histories, as evidence for abortion-related cases…(More)”.

Machine Learning Can Predict Shooting Victimization Well Enough to Help Prevent It

Curated on Posted on by Stefaan Verhulst

Paper by Sara B. Heller, Benjamin Jakubowski, Zubin Jelveh & Max Kapustin: “This paper shows that shootings are predictable enough to be preventable. Using arrest and victimization records for almost 644,000 people from the Chicago Police Department, we train a machine learning model to predict the risk of being shot in the next 18 months. We address central concerns about police data and algorithmic bias by predicting shooting victimization rather than arrest, which we show accurately captures risk differences across demographic groups despite bias in the predictors. Out-of-sample accuracy is strikingly high: of the 500 people with the highest predicted risk, 13 percent are shot within 18 months, a rate 130 times higher than the average Chicagoan. Although Black male victims more often have enough police contact to generate predictions, those predictions are not, on average, inflated; the demographic composition of predicted and actual shooting victims is almost identical. There are legal, ethical, and practical barriers to using these predictions to target law enforcement. But using them to target social services could have enormous preventive benefits: predictive accuracy among the top 500 people justifies spending up to $123,500 per person for an intervention that could cut their risk of being shot in half….(More)”.

Digital Government Model

Curated on Posted on by Stefaan Verhulst

Report by USAID: “The COVID-19 pandemic demonstrated the importance of digital government processes and tools. Governments with digital systems, processes, and infrastructure in place were able to quickly scale emergency response assistance, communications, and payments. At the same time, the pandemic accelerated many risks associated with digital tools, such as mis- and disinformation, surveillance, and the exploitation of personal data.

USAID and development partners are increasingly supporting countries in the process of adopting technologies to create public value– broadly referred to as digital government–while mitigating and avoiding risks. The Digital Government Model provides a basis for establishing a shared understanding and language on the core components of digital government, including the contextual considerations and foundational elements that influence the success of digital government investments…(More)”

Sweeping Legislation Aims to Ban the Sale of Location Data

Curated on Posted on by Stefaan Verhulst

Article by Joseph Cox and Liz Landers: “Sen. Elizabeth Warren and a group of other Democratic lawmakers have introduced a bill that would essentially outlaw the sale of location data harvested from smartphones. The bill also presents a range of other powers to the Federal Trade Commission (FTC) and individual victims to push back against the multibillion-dollar location data industry.

The move comes after Motherboard reported multiple instances in which companies were selling location data of people who visited abortion clinics, and sometimes making subsets of that data freely available. Such data has taken on a new significance in the wake of the Supreme Court’s looming vote on whether to overturn the protections offered by Roe v. Wade. The bill also follows a wave of reporting from Motherboard and others on various abuses and data sales in the location data industry writ large.

“Data brokers profit from the location data of millions of people, posing serious risks to Americans everywhere by selling their most private information,” Warren told Motherboard in a statement. “With this extremist Supreme Court poised to overturn Roe v. Wade and states seeking to criminalize essential health care, it is more crucial than ever for Congress to protect consumers’ sensitive data. The Health and Location Data Protection Act will ban brokers from selling Americans’ location and health data, rein in giant data brokers, and set some long overdue rules of the road for this $200 billion industry.”…(More)”.