Massive Ebola data site planned to combat outbreaks


Amy Maxmen at Nature: “More than 11,000 people died when Ebola tore through West Africa between 2014 and 2016, and yet clinicians still lack data that would enable them to reliably identify the disease when a person first walks into a clinic. To fill that gap and others before the next outbreak hits, researchers are developing a platform to organize and share Ebola data that have so far been scattered beyond reach.

The information system is coordinated by the Infectious Diseases Data Observatory (IDDO), an international research network based at the University of Oxford, UK, and is expected to launch by the end of the year. …

During the outbreak, for example, a widespread rumour claimed that the plague was an experiment conducted by the West, which led some people to resist going to clinics and helped Ebola to spread.

Merson and her collaborators want to avoid the kind of data fragmentation that hindered efforts to stop the outbreak in Liberia, Guinea and Sierra Leone. As the Ebola crisis was escalating in October 2014, she visited treatment units in the three countries to advise on research. Merson found tremendous variation in practices, which complicated attempts to merge and analyse the information. For instance, some record books listed lethargy and hiccups as symptoms, whereas others recorded fatigue but not hiccups.

“People were just collecting what they could,” she recalls. Non-governmental organizations “were keeping their data private; academics take a year to get it out; and West Africa had set up surveillance but they were siloed from the international systems”, she says. …

In July 2015, the IDDO received pilot funds from the UK charity the Wellcome Trust to pool anonymized data from the medical records of people who contracted Ebola — and those who survived it — as well as data from clinical trials and public health projects during outbreaks in West Africa, Uganda and the Democratic Republic of Congo. The hope is that a researcher could search for data to help in diagnosing, treating and understanding the disease. The platform would also provide a home for new data as they emerge. A draft research agenda lists questions that the information might answer, such as how long the virus can survive outside the human body, and what factors are associated with psychological issues in those who survive Ebola.

One sensitive issue is deciding who will control the data. …It’s vital that these discussions happen now, in a period of relative calm, says Jeremy Farrar, director of the Wellcome Trust in London. When the virus emerges again, clinicians, scientists, and regulatory boards will need fast access to data so as not to repeat mistakes made last time. “We need to sit down and make sure we have a data platform in place so that we can respond to a new case of Ebola in hours and days, and not in months and years,” he says. “A great danger is that the world will move on and forget the horror of Ebola in West Africa.”…(More)”

Open & Shut


Harsha Devulapalli: “Welcome to Open & Shut — a new blog dedicated to exploring the opportunities and challenges of working with open data in closed societies around the world. Although we’ll be exploring questions relevant to open data practitioners worldwide, we’re particularly interested in seeing how civil society groups and actors in the Global South are using open data to push for greater government transparency, and tackle daunting social and economic challenges facing their societies….Throughout this series we’ll be profiling and interviewing organisations working with open data worldwide, and providing do-it-yourself data tutorials that will be useful for beginners as well as data experts. …

What do we mean by the terms ‘open data’ and ‘closed societies’?

It’s important to be clear about what we’re dealing with, here. So let’s establish some key terms. When we talk about ‘open data’, we mean data that anyone can access, use and share freely. And when we say ‘closed societies’, we’re referring to states or regions in which the political and social environment is actively hostile to notions of openness and public scrutiny, and which hold principles of freedom of information in low esteem. In closed societies, data is either not published at all by the government, or else is only published in inaccessible formats, is missing data, is hard to find or else is just not digitised at all.

Iran is one such state that we would characterise as a ‘closed society’. At Small Media, we’ve had to confront the challenges of poor data practice, secrecy, and government opaqueness while undertaking work to support freedom of information and freedom of expression in the country. Based on these experiences, we’ve been working to build Iran Open Data — a civil society-led open data portal for Iran, in an effort to make Iranian government data more accessible and easier for researchers, journalists, and civil society actors to work with.

Iran Open Data — an open data portal for Iran, created by Small Media

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..Open & Shut will shine a light on the exciting new ways that different groups are using data to question dominant narratives, transform public opinion, and bring about tangible change in closed societies. At the same time, it’ll demonstrate the challenges faced by open data advocates in opening up this valuable data. We intend to get the community talking about the need to build cross-border alliances in order to empower the open data movement, and to exchange knowledge and best practices despite the different needs and circumstances we all face….(More)

Where’s the ‘Civic’ in CivicTech?


Blog by Pius Enywaru: “The ideology of community participation and development is a crucial topic for any nation or community seeking to attain sustainable development. Here in Uganda, oftentimes when the opportunity for public participation either in local planning or in holding local politicians to account — the ‘don’t care’ attitude reigns….

What works?

Some of these tools include Ask Your Government Uganda, a platform built to help members of the public get the information they want about from 106 public agencies in Uganda. U-Report developed by UNICEF provides an SMS-based social monitoring tool designed to address issues affecting the youth of Uganda. Mentioned in a previous blog post, Parliament Watchbrings the proceedings of the Par­lia­ment of Uganda to the citizens. The or­ga­ni­za­tion lever­ages tech­nol­ogy to share live up­dates on so­cial me­dia and pro­vides in-depth analy­sis to cre­ate a bet­ter un­der­stand­ing on the busi­ness of Par­lia­ment. Other tools used include citizen scorecards, public media campaigns and public petitions. Just recently, we have had a few calls to action to get people to sign petitions, with somewhat lackluster results.

What doesn’t work?

Although the usage of these tools have dramatically grown, there is still a lack of awareness and consequently, community participation. In order to understand the interventions which the Government of Uganda believes are necessary for sustainable urban development, it is important to examine the realities pertaining to urban areas and their planning processes. There are many challenges in deploying community participation tools based on ICT such as limited funding and support for such initiatives, low literacy levels, low technical literacy, a large digital divide, low rates of seeking input from communities in developing these tools, lack of adequate government involvement and resistance/distrust of change by both government and citizens. Furthermore, in many of these initiatives, a large marketing or sensitization push is needed to let citizens know that these services exist for their benefit.

There are great minds who have brilliant ideas to try and bring literally everyone on board though civic engagement. When you have a look at their ideas, you will agree that indeed they might make a reputable service and bring about remarkable change in different communities. However, the biggest question has always been, “How do these ideas get executed and adopted by these communities that they target”? These ideas suffer a major setback of lack of inclusivity to enhance community participation. This still remains a puzzle for most folks that have these ideas….(More)”.

The Tech Revolution That’s Changing How We Measure Poverty


Alvin Etang Ndip at the Worldbank: “The world has an ambitious goal to end extreme poverty by 2030. But, without good poverty data, it is impossible to know whether we are making progress, or whether programs and policies are reaching those who are the most in need.

Countries, often in partnership with the World Bank Group and other agencies, measure poverty and wellbeing using household surveys that help give policymakers a sense of who the poor are, where they live, and what is holding back their progress. Once a paper-and-pencil exercise, technology is beginning to revolutionize the field of household data collection, and the World Bank is tapping into this potential to produce more and better poverty data….

“Technology can be harnessed in three different ways,” says Utz Pape, an economist with the World Bank. “It can help improve data quality of existing surveys, it can help to increase the frequency of data collection to complement traditional household surveys, and can also open up new avenues of data collection methods to improve our understanding of people’s behaviors.”

As technology is changing the field of data collection, researchers are continuing to find new ways to build on the power of mobile phones and tablets.

The World Bank’s Pulse of South Sudan initiative, for example, takes tablet-based data collection a step further. In addition to conducting the household survey, the enumerators also record a short, personalized testimonial with the people they are interviewing, revealing a first-person account of the situation on the ground. Such testimonials allow users to put a human face on data and statistics, giving a fuller picture of the country’s experience.

Real-time data through mobile phones

At the same time, more and more countries are generating real-time data through high-frequency surveys, capitalizing on the proliferation of mobile phones around the world. The World Bank’s Listening to Africa (L2A) initiative has piloted the use of mobile phones to regularly collect information on living conditions. The approach combines face-to-face surveys with follow-up mobile phone interviews to collect data that allows to monitor well-being.

The initiative hands out mobile phones and solar chargers to all respondents. To minimize the risk of people dropping out, the respondents are given credit top-ups to stay in the program. From monitoring health care facilities in Tanzania to collecting data on frequency of power outages in Togo, the initiative has been rolled out in six countries and has been used to collect data on a wide range of areas. …

Technology-driven data collection efforts haven’t been restricted to the Africa region alone. In fact, the approach was piloted early in Peru and Honduras with the Listening 2 LAC program. In Europe and Central Asia, the World Bank has rolled out the Listening to Tajikistan program, which was designed to monitor the impact of the Russian economic slowdown in 2014 and 2015. Initially a six-month pilot, the initiative has now been in operation for 29 months, and a partnership with UNICEF and JICA has ensured that data collection can continue for the next 12 months. Given the volume of data, the team is currently working to create a multidimensional fragility index, where one can monitor a set of well-being indicators – ranging from food security to quality jobs and public services – on a monthly basis…

There are other initiatives, such as in Mexico where the World Bank and its partners are using satellite imagery and survey data to estimate how many people live below the poverty line down to the municipal level, or guiding data collectors using satellite images to pick a representative sample for the Somali High Frequency Survey. However, despite the innovation, these initiatives are not intended to replace traditional household surveys, which still form the backbone of measuring poverty. When better integrated, they can prove to be a formidable set of tools for data collection to provide the best evidence possible to policymakers….(More)”

Africa’s open data revolution hampered by challenges


Gilbert Nakweya at SciDevNet: “According to the inaugural Africa Data Revolution Report (ADRR), there is minimal or non-existent collaborations among data communities regarding the Sustainable Development Goals (SDGs) and Africa’s Agenda 2063.
…The report cites issues such as legal and policy frameworks, infrastructure, technology and interactions among key actors as challenges that confront data ecosystems of ten African countries studied: Cote d’Ivoire, Ethiopia, Kenya, Madagascar, Nigeria, Rwanda, Senegal, South Africa, Swaziland and Tanzania.

The ADRR was jointly published by the Economic Commission for Africa, United Nations Development Programme (UNDP), World Wide Web Foundation and Open Data for Development Network (OD4D).

“Open data is Africa’s biggest challenge,” says Nnenna Nwakanma, a senior policy manager at the US-headquartered World Wide Web Foundation, noting that open data revolution is key to Africa achieving the SDGs.

Nwakanma tells SciDev.Net that data revolution is built on access to information, the web, and to content, citing open data’s benefits such as governments functioning more efficiently, businesses innovating more and citizens participating in governance and demanding accountability.

Serge Kapto, a policy specialist on data from the UNDP, says that frameworks such as the African charter on statistics and the strategy for harmonisation of statistics in Africa adopted by the continent have laid the groundwork for an African data revolution…
Kapto adds that Africa is well positioned to reap the benefits of the data revolution for sustainable development and leapfrog technology to serve national and regional development priorities.

But, he explains, much work remains to be done to fully take advantage of the opportunity afforded by the data revolution for achieving development plans….(More)”

Chicago police see less violent crime after using predictive code


Jon Fingas at Engadget: “Law enforcement has been trying predictive policing software for a while now, but how well does it work when it’s put to a tough test? Potentially very well, according to Chicago police. The city’s 7th District police reportthat their use of predictive algorithms helped reduce the number of shootings 39 percent year-over-year in the first 7 months of 2017, with murders dropping by 33 percent. Three other districts didn’t witness as dramatic a change, but they still saw 15 to 29 percent reductions in shootings and a corresponding 9 to 18 percent drop in murders.

It mainly comes down to knowing where and when to deploy officers. One of the tools used in the 7th District, HunchLab, blends crime statistics with socioeconomic data, weather info and business locations to determine where crimes are likely to happen. Other tools (such as the Strategic Subject’s List and ShotSpotter) look at gang affiliation, drug arrest history and gunfire detection sensors.

If the performance holds, It’ll suggest that predictive policing can save lives when crime rates are particularly high, as they have been on Chicago’s South Side. However, both the Chicago Police Department and academics are quick to stress that algorithms are just one part of a larger solution. Officers still have be present, and this doesn’t tackle the underlying issues that cause crime, such as limited access to education and a lack of economic opportunity. Still, any successful reduction in violence is bound to be appreciated….(More)”.

Getting on the map: How to fix the problem with addresses


Joshua Howgego at New Scientist: “Kwandengezi is a beguiling neighbourhood on the outskirts of Durban. Its ramshackle dwellings are spread over rolling green hills, with dirt roads winding in between. Nothing much to put it on the map. Until last year, that is, when weird signs started sprouting, nailed to doors, stapled to fences or staked in front of houses. Each consisted of three seemingly random words. Cutaway.jazz.wording said one; tokens.painted.enacted read another.

In a neighbourhood where houses have no numbers and the dirt roads no names, these signs are the fastest way for ambulances to locate women going into labour and who need ferrying to the nearest hospital. The hope is that signs like this will save lives and be adopted elsewhere. For the residents of KwaNdengezi in South Africa aren’t alone – recent estimates suggest that only 80 or so countries worldwide have an up-to-date addressing system. And even where one exists, it isn’t always working as well as it could.

Poor addresses aren’t simply confusing: they frustrate businesses and can shave millions of dollars off economic output. That’s why there’s a growing feeling that we need to reinvent the address – and those makeshift three-word signs are just the beginning.

“Poor addresses frustrate businesses and can shave millions of dollars off economic output”

In itself, an address is a simple thing: its purpose is to unambiguously identify a point on Earth’s surface. But, it also forms a crucial part of the way societies are managed. Governments use lists of addresses to work out how many people they need to serve; without an address by your name, you can’t apply for a passport…(More)”.

Deadly Data Gaps: How Lack of Information Harms Refugee Policy Making


Interview with Galen Englund by Charlotte Alfred: “The U.N. Refugee Agency recently released its annual estimate of the world’s displaced population: 65.6 million. This figure is primarily based on data provided by governments, each using their own definitions and data collection methods.

This leaves ample space for inconsistencies and data gaps. South Africa, for example, reported 463,900 asylum seekers in 20141.1 million in 2015 and then just 218,300 last year. But the number of people had not fluctuated that wildly. What did change was how asylum seekers are counted.

National estimates can also obscure entire groups of people, like internally displaced groups that governments don’t want to acknowledge, notes Galen Englund, who analyzes humanitarian data at the ONE Campaign advocacy organization.

Over the past year, Englund has been digging into the data on refugees and displaced populations for the ONE Campaign. It was an uphill battle. He collected figures from 67 reports that used 356 differently worded metrics in order to identify the needs of displaced populations. “Frequently information is not there, or it’s siloed within organizations, or there’s too much bureaucratic red tape around it, or it just hasn’t been collected yet,” he said.

His research resulted in a displacement tracking platform called Movement, which compiles various U.N. data, and a briefing paper outlining displacement data gaps that concludes: “The information architecture of humanitarian aid is not fit for purpose.” We spoke to Englund about his findings….

Galen Englund: There’s several layers of massive data gaps that all coincide with each other. Probably the most troubling for me is not being able to understand at a granular level where refugees and displaced people are inside of countries, and the transition between when someone leaves their home and becomes displaced, and when they actually cross international borders and become refugees or asylum seekers. That’s an incredibly difficult transition to track, and one that there’s inadequate data on right now….(More)”.

Data Africa


Data Africa is an open data platform designed to provide information on key themes for research and development such as: agriculture, climate, poverty and child health across Sub-Saharan Africa at the sub-national level. The main goal of the online tool is to present the themes to a wide, even non-technical audience through easily accessible visual narratives.

In its first stage, the platform is focused on national and sub-national level data for 13 countries:

  • Burkina Faso
  • Ethiopia
  • Ghana
  • Kenya
  • Malawi
  • Mali
  • Mozambique
  • Nigeria
  • Rwanda
  • Senegal
  • Tanzania
  • Uganda
  • Zambia

Over time, we anticipate expanding the coverage of the platform with additional countries and increasing the amount of data available through the platform….

The data contained in the online tool draws from a variety of sources, including:

Crowdsourcing Expertise to Increase Congressional Capacity


Austin Seaborn at Beeck Center: “Members of Congress have close connections with their districts, and information arising from local organizations, such as professional groups, academia, industry as well as constituents with relevant expertise (like retirees, veterans or students) is highly valuable to them.  Today, congressional staff capacity is at a historic low, while at the same time, constituents in districts are often well equipped to address the underlying policy questions that Congress seeks to solve….

In meetings we have had with House and Senate staffers, they repeatedly express both the difficulty managing their substantial area-specific work loads and their interest in finding ways to substantively engage constituents to find good nuggets of information to help them in their roles as policymakers. At the same time, constituents are demanding more transparency and dialogue from their elected representatives. In many cases, our project brings these two together. It allows Members to tap the expertise in their districts while at the same time creating an avenue for constituents to contribute their knowledge and area expertise to the legislative process. It’s a win for constituents and a win for Member of Congress and their staffs.

It is important to note that the United States lags behind other democracies in experimenting with more inclusive methods during the policymaking process. In the United Kingdom, for example, the UK Parliament has experimented with a variety of new digital tools to engage with constituents. These methods range from Twitter hashtags, which are now quite common given the rise in social media use by governments and elected officials, to a variety of web forums on a variety of platforms. Since June of 2015, they have also been doing digital debates, where questions from the general public are crowdsourced and later integrated into a parliamentary debate by the Member of Parliament leading the debate. Estonia, South Africa, Taiwan, France also…notable examples.

One promising new development we hope to explore more thoroughly is the U.S. Library of Congress’s recently announced legislative data App Challenge. This competition is distinct from the many hackathons that have been held on behalf of Congress in the past, in that this challenge seeks new methods not only to innovate, but also to integrate and legislate. In his announcement, the Library’s Chief Information Officer, Bernard A. Barton, Jr., stated, “An informed citizenry is better able to participate in our democracy, and this is a very real opportunity to contribute to a better understanding of the work being done in Washington.  It may even provide insights for the people doing the work around the clock, both on the Hill, and in state and district offices.  Your innovation and integration may ultimately benefit the way our elected officials legislate for our future.” We believe these sorts of new methods will play a crucial role in the future of engaging citizens in their democracies….(More)”.