I’ve just finished two packed days at the Health Datapalooza, put on by the Health Data Consortium with the Department of Health and Human Services. As I’ve just heard someone say, many of the 2000 people here are a bit “Palooza”d out.” But this fourth annual event shows the growing power of open government data on health and health care services. The two-day event covered both the knowledge and applications that can come from the release of data like that on Medicare claims, and the ways in which the Affordable Care Act is driving the use of data for better delivery of high-quality care. The participation of leaders from the United Kingdom’s National Health Service added an international perspective as well.
There’s too much to summarize in a single blog post, but you can follow these links to read about the Health Data Consortium and its new CEO’s goals; the DataPalooza’s opening plenary session, with luminaries from government, business, and the New Yorker; and today’s keynote by Todd Park, with reflections on some of new companies that open government data is supporting.
– Joel Gurin, GovLab network member and Founder and Editor, OpenDataNow.com
Empowering Consumers through the Smart Disclosure of Data
OSTP: “Today, the Administration’s interagency National Science and Technology Council released Smart Disclosure and Consumer Decision Making: Report of the Task Force on Smart Disclosure—the first comprehensive description of the Federal Government’s efforts to promote the smart disclosure of information that can help consumers make wise decisions in the marketplace.
Whether they are searching for colleges, health insurance, credit cards, airline flights, or energy providers, consumers can find it difficult to identify the specific product or service that best suits their particular needs. In some cases, the effort required to sift through all of the available information is so large that consumers make decisions using inadequate information. As a result, they may overpay, miss out on a product that would better meet their needs, or be surprised by fees.
The report released today outlines ways in which Federal agencies and other governmental and non-governmental organizations can use—and in many cases are already using—smart disclosure approaches that increase market transparency and empower consumers facing complex choices in domains such as health, education, energy and personal finance.”
A Data-Powered Revolution in Health Care
Todd Park @ White House Blog: “Thomas Friedman’s New York Times column, Obamacare’s Other Surprise, highlights a rising tide of innovation that has been unleashed by the Affordable Care Act and the Administration’s health IT and data initiatives. Supported by digital data, new data-driven tools, and payment policies that reward improving the quality and value of care, doctors, hospitals, patients, and entrepreneurs across the nation are demonstrating that smarter, better, more accessible, and more proactive care is the best way to improve quality and control health care costs.
We are witnessing the emergence of a data-powered revolution in health care. Catalyzed by the Recovery Act, adoption of electronic health records is increasing dramatically. More than half of all doctors and other eligible providers and nearly 80 percent of hospitals are using electronic health records to improve care, an increase of more than 200 percent since 2008. In addition, the Administration’s Health Data Initiative is making a growing supply of key government data on everything from hospital charges and quality to regional health care system performance statistics freely available in computer-readable, downloadable form, as fuel for innovation, entrepreneurship, and discovery.
If My Data Is an Open Book, Why Can’t I Read It?
Natasha Singer in the New York Times: “Never mind all the hoopla about the presumed benefits of an “open data” society. In our day-to-day lives, many of us are being kept in the data dark.
“The fact that I am producing data and companies are collecting it to monetize it, if I can’t get a copy myself, I do consider it unfair,” says Latanya Sweeney, the director of the Data Privacy Lab at Harvard, where she is a professor of government and technology….
In fact, a few companies are challenging the norm of corporate data hoarding by actually sharing some information with the customers who generate it — and offering tools to put it to use. It’s a small but provocative trend in the United States, where only a handful of industries, like health care and credit, are required by federal law to provide people with access to their records.
Last year, San Diego Gas and Electric, a utility, introduced an online energy management program in which customers can view their electricity use in monthly, daily or hourly increments. There is even a practical benefit: customers can earn credits by reducing energy consumption during peak hours….
Disruptive technologies: Advances that will transform life, business, and the global economy
New Report by McKinsey Global Institute: “Disruptive technologies: Advances that will transform life, business, and the global economy, a report from the McKinsey Global Institute, cuts through the noise and identifies 12 technologies that could drive truly massive economic transformations and disruptions in the coming years. The report also looks at exactly how these technologies could change our world, as well as their benefits and challenges, and offers guidelines to help leaders from businesses and other institutions respond.
We estimate that, together, applications of the 12 technologies discussed in the report could have a potential economic impact between $14 trillion and $33 trillion a year in 2025. This estimate is neither predictive nor comprehensive. It is based on an in-depth analysis of key potential applications and the value they could create in a number of ways, including the consumer surplus that arises from better products, lower prices, a cleaner environment, and better health….
Policy makers can use advanced technology to address their own operational challenges (for example, by deploying the Internet of Things to improve infrastructure management). The nature of work will continue to change, and that will require strong education and retraining programs. To address challenges that the new technologies themselves will bring, policy makers can use some of those very technologies—for example, by creating new educational and training systems with the mobile Internet, which can also help address an ever-increasing productivity imperative to deliver public services more efficiently and effectively. To develop a more nuanced and useful view of technology’s impact, governments may also want to consider new metrics that capture more than GDP effects. This approach can help policy makers balance the need to encourage growth with their responsibility to look out for the public welfare as new technologies reshape economies and lives.”
Use of Social Network Diagrams
New York Times: “Consulting companies like Activate Networks create social network diagrams to help pharmaceutical marketers identify prescribing histories and relationships among doctors. Such diagrams can help marketers pinpoint highly connected physicians, the best potential targets for marketing.”
How Estonia became E-stonia
Tim Mansel from BBC News: “In some countries, computer programming might be seen as the realm of the nerd.
But not in Estonia, where it is seen as fun, simple and cool.
This northernmost of the three Baltic states, a small corner of the Soviet Union until 1991, is now one of the most internet-dependent countries in the world.
And Estonian schools are teaching children as young as seven how to programme computers….
better known is Skype, an Estonian start-up long since gone global.
Skype was bought by Microsoft in 2011 for a cool $8.5bn, but still employs 450 people at its local headquarters on the outskirts of Tallinn, roughly a quarter of its total workforce. Tiit Paananen, from Skype, says they are passionate about education and that it works closely with Estonian universities and secondary schools….
Estonians today vote online and pay tax online. Their health records are online and, using what President Ilves likes to call a “personal access key” – others refer to it as an ID card – they can pick up prescriptions at the pharmacy. The card offers access to a wide range of other services.
All this will be second nature to the youngest generation of E-stonians. They encounter electronic communication as soon as they enter school through the eKool (e-school) system. Exam marks, homework assignments and attendance in class are all available to parents at the click of a mouse.”
Data Edge
Steven Weber, professor in the School of Information and Political Science department at UC Berkeley, in Policy by the Numbers: “It’s commonly said that most people overestimate the impact of technology in the short term, and underestimate its impact over the longer term.
Where is Big Data in 2013? Starting to get very real, in our view, and right on the cusp of underestimation in the long term. The short term hype cycle is (thankfully) burning itself out, and the profound changes that data science can and will bring to human life are just now coming into focus. It may be that Data Science is right now about where the Internet itself was in 1993 or so. That’s roughly when it became clear that the World Wide Web was a wind that would blow across just about every sector of the modern economy while transforming foundational things we thought were locked in about human relationships, politics, and social change. It’s becoming a reasonable bet that Data Science is set to do the same—again, and perhaps even more profoundly—over the next decade. Just possibly, more quickly than that….
Can data, no matter how big, change the world for the better? It may be the case that in some fields of human endeavor and behavior, the scientific analysis of big data by itself will create such powerful insights that change will simply have to happen, that businesses will deftly re-organize, that health care will remake itself for efficiency and better outcomes, that people will adopt new behaviors that make them happier, healthier, more prosperous and peaceful. Maybe. But almost everything we know about technology and society across human history argues that it won’t be so straightforward.
…join senior industry and academic leaders at DataEDGE at UC Berkeley on May 30-31 to engage in what will be a lively and important conversation aimed at answering today’s questions about the data science revolution—and formulating tomorrow’s.
New Open Data Executive Order and Policy
The White House: “The Obama Administration today took groundbreaking new steps to make information generated and stored by the Federal Government more open and accessible to innovators and the public, to fuel entrepreneurship and economic growth while increasing government transparency and efficiency.
Today’s actions—including an Executive Order signed by the President and an Open Data Policy released by the Office of Management and Budget and the Office of Science and Technology Policy—declare that information is a valuable national asset whose value is multiplied when it is made easily accessible to the public. The Executive Order requires that, going forward, data generated by the government be made available in open, machine-readable formats, while appropriately safeguarding privacy, confidentiality, and security.
The move will make troves of previously inaccessible or unmanageable data easily available to entrepreneurs, researchers, and others who can use those files to generate new products and services, build businesses, and create jobs….
Along with the Executive Order and Open Data Policy, the Administration announced a series of complementary actions:
• A new Data.Gov. In the months ahead, Data.gov, the powerful central hub for open government data, will launch new services that include improved visualization, mapping tools, better context to help locate and understand these data, and robust Application Programming Interface (API) access for developers.
• New open source tools to make data more open and accessible. The US Chief Information Officer and the US Chief Technology Officer are releasing free, open source tools on Github, a site that allows communities of developers to collaboratively develop solutions. This effort, known as Project Open Data, can accelerate the adoption of open data practices by providing plug-and-play tools and best practices to help agencies improve the management and release of open data. For example, one tool released today automatically converts simple spreadsheets and databases into APIs for easier consumption by developers. Anyone, from government agencies to private citizens to local governments and for-profit companies, can freely use and adapt these tools starting immediately.
• Building a 21st century digital government. As part of the Administration’s Digital Government Strategy and Open Data Initiatives in health, energy, education, public safety, finance, and global development, agencies have been working to unlock data from the vaults of government, while continuing to protect privacy and national security. Newly available or improved data sets from these initiatives will be released today and over the coming weeks as part of the one year anniversary of the Digital Government Strategy.
• Continued engagement with entrepreneurs and innovators to leverage government data. The Administration has convened and will continue to bring together companies, organizations, and civil society for a variety of summits to highlight how these innovators use open data to positively impact the public and address important national challenges. In June, Federal agencies will participate in the fourth annual Health Datapalooza, hosted by the nonprofit Health Data Consortium, which will bring together more than 1,800 entrepreneurs, innovators, clinicians, patient advocates, and policymakers for information sessions, presentations, and “code-a-thons” focused on how the power of data can be harnessed to help save lives and improve healthcare for all Americans.
For more information on open data highlights across government visit: http://www.whitehouse.gov/administration/eop/ostp/library/docsreports”
Open government data shines a light on hospital billing and health care costs
Alex Howard: “If transparency is the best disinfectant, casting sunlight upon the cost of care in hospitals across the United States will make the health care system itself healthier.
The Department of Health and Human Services has released open data that compares the billing for the 100 most common treatments and procedures performed at more than 3000 hospital in the U.S. The Medicare provider charge data shows significant variation within communies and across the country for the same procedures.
One hospital charged $8,000, another $38,000 — for the same condition. This data is enabling newspapers like the Washington Post to show people the actual costs of health care and create interactive features that enable people to search for individual hospitals and see how they compare. The New York Times explored the potential reasons behind wild disparities in billing at length today, from sicker patients to longer hospitalizations to higher labor costs.”