Citizen Science and the Flint Water Crisis


The Wilson Center’s Commons Lab: “In April 2014, the city of Flint, Michigan decided to switch its water supply source from the Detroit water system to a cheaper alternative, the Flint River. But in exchange for the cheaper price tag, the Flint residents paid a greater price with one of the worst public health crises of the past decade.

Despite concerns from Flint citizens about the quality of the water, the Michigan Department of Environmental Quality repeatedly attributed the problem to the plumbing system. It was 37-year-old mother of four, LeeAnne Walters who, after noticing physical and behavioral changes in her children and herself, set off a chain of events that exposed the national scandal. Eventually, with the support of Dr. Marc Edwards, an environmental engineering professor at Virginia Tech (VT), Walters discovered lead concentration levels of 13,200 parts per billion in her water, 880 times the maximum concentration allowed by law and more than twice the level the Environmental Protection Agency considers to be hazardous waste.

Citizen science emerged as an important piece of combating the Flint water crisis. Alarmed by the government’s neglect and the health issues spreading all across Flint, Edwards and Walters began the Flint Water Study, a collaboration between the Flint residents and research team from VT. Using citizen science, the VT researchers provided the Flint residents with kits to sample and test their homes’ drinking water and then analyzed the results to unearth the truth behind Flint’s water quality.

The citizen-driven project illustrates the capacity for nonprofessional scientists to use science in order to address problems that directly affect themselves and their community. While the VT team needed the Flint residents to provide water samples, the Flint residents in turn needed the VT team to conduct the analysis. In short, both parties achieved mutually beneficial results and the partnership helped expose the scandal. Surprisingly, the “traditional” problems associated with citizen science, including the inability to mobilize the local constituent base and the lack of collaboration between citizens and professional scientists, were not the obstacles in Flint….(More)”

Privacy as a Public Good


Joshua A.T. Fairfield & Christoph Engel in Duke Law Journal: “Privacy is commonly studied as a private good: my personal data is mine to protect and control, and yours is yours. This conception of privacy misses an important component of the policy problem. An individual who is careless with data exposes not only extensive information about herself, but about others as well. The negative externalities imposed on nonconsenting outsiders by such carelessness can be productively studied in terms of welfare economics. If all relevant individuals maximize private benefit, and expect all other relevant individuals to do the same, neoclassical economic theory predicts that society will achieve a suboptimal level of privacy. This prediction holds even if all individuals cherish privacy with the same intensity. As the theoretical literature would have it, the struggle for privacy is destined to become a tragedy.

But according to the experimental public-goods literature, there is hope. Like in real life, people in experiments cooperate in groups at rates well above those predicted by neoclassical theory. Groups can be aided in their struggle to produce public goods by institutions, such as communication, framing, or sanction. With these institutions, communities can manage public goods without heavy-handed government intervention. Legal scholarship has not fully engaged this problem in these terms. In this Article, we explain why privacy has aspects of a public good, and we draw lessons from both the theoretical and the empirical literature on public goods to inform the policy discourse on privacy…(More)”

See also:

Privacy, Public Goods, and the Tragedy of the Trust Commons: A Response to Professors Fairfield and Engel, Dennis D. Hirsch

Response to Privacy as a Public Good, Priscilla M. Regan

Encryption and Evolving Technology: Implications for U.S. Law Enforcement Investigations


Kristin Finklea at the Congressional Research Service: “Because modern-day criminals are constantly developing new tools and techniques to facilitate their illicit activities, law enforcement is challenged with leveraging its tools and authorities to keep pace. For instance, interconnectivity and technological innovation have not only fostered international business and communication, they have also helped criminals carry out their operations. At times, these same technological advances have presented unique hurdles for law enforcement and officials charged with combating malicious actors.

Technology as a barrier for law enforcement is by no means a new issue in U.S. policing. In the 1990s, for instance, there were concerns about digital and wireless communications potentially hampering law enforcement in carrying out court-authorized surveillance. To help combat these challenges, Congress passed the Communications Assistance for Law Enforcement Act (CALEA; P.L. 103-414), which among other things, required telecommunications carriers to assist law enforcement in executing authorized electronic surveillance.

The technology boundary has received renewed attention as companies have implemented advanced security for their products—particularly their mobile devices. In some cases, enhanced encryption measures have been put in place resulting in the fact that companies such as Apple and Google cannot unlock devices for anyone under any circumstances, not even law enforcement.

Law enforcement has concerns over certain technological changes, and there are fears that officials may be unable to keep pace with technological advances and conduct electronic surveillance if they cannot access certain information. Originally, the going dark debate centered on law enforcement’s ability to intercept real-time communications. More recent technology changes have potentially impacted law enforcement capabilities to access not only communications, but stored data as well….(More)”

The Digital Equilibrium Project


Press Release by The Digital Equilibrium Project: “Cybersecurity, government and privacy experts are banding together as part of The ‘Digital Equilibrium Project’ to foster a new, productive dialogue on balancing security and privacy in the connected world. The project aims to address the underlying issues fueling acrimonious debates like the contentious court order between Apple and the U.S. Government.

  • The diverse group includes current and former leaders of some of the world’s largest cybersecurity firms and organizations, former officials in the NSA and national law enforcement, and leaders of some of the nation’s most influential privacy organizations. These individuals believe new thinking and collaboration is needed to avert potential catastrophes as the digital and physical worlds become more interdependent.
  • The group will release its foundational paper ‘Balancing Security and Privacy in the Connected World’ on Tuesday, March 1st at the RSA Conference – the world’s largest cybersecurity conference.
  • This project and related paper, months in the making, seek to end the kinds of standoffs we are seeing between Apple and the U.S. Government, addressing the underlying lack of social norms and legal constructs for the digital world.
  • They will convene a mid-year summit to craft a framework or ‘constitution’ for the digital world. The intent of this constitution is to help guide policy creation, broker compromise and serve as the foundation for decision making around cybersecurity issues. Senior executives from the Justice Department, Apple and other technology firms will be invited to participate…..

Next week the group will publish its foundational paper, crafted over extensive meetings, interviews and working sessions. The paper is meant to foster a new, collaborative discussion on the most pressing questions that could determine the future safety and social value of the Internet and the digital technologies that depend on it. In addition to releasing the paper at the RSA Conference, members of the group will discuss the paper and related issues during a main-stage panel session moderated by Art Coviello, former Executive Chairman of RSA Security, and James Kaplan, a McKinsey partner, on Thursday, March 3rd. Panel members will include: Michael Chertoff, Executive Chairman of The Chertoff Group and former Secretary of Homeland Security; Trevor Hughes, President and CEO of the International Association of Privacy Professionals; Mike McConnell, former Director of the NSA and Director, National Intelligence; and Nuala O’Connor, President and CEO, Center for Democracy & Technology.

The paper urges governments, corporations and privacy advocates to put aside the polarizing arguments that have cast security and privacy as opposing forces, and calls for a mid-year summit meeting between these parties to formulate a new structure for advancement of these pressing issues. It poses four fundamental questions that must be addressed to ensure the digital world can evolve in ways that ensure individual privacy while enabling the productivity and commercial gains that can improve quality of life around the globe. The four questions are:

  • What practices should organizations adopt to achieve their goals while protecting the privacy of their customers and other stakeholders?
  • How can organizations continue to improve the protection of their digital infrastructures and adopt privacy management practices that protect their employees?
  • What privacy management practices should governments adopt to maintain civil liberties and expectations of privacy, while ensuring the safety and security of their citizens, organizations, and critical infrastructure?
  • What norms should countries adopt to protect their sovereignty while enabling global commerce and collaboration against criminal and terrorist threats?

The Digital Equilibrium Project’s foundational paper will available for download on March 1st at www.digitalequilibriumproject.com

Data Could Help Scholars Persuade, If Only They Were Willing to Use It


Paul Basken at the Chronicle of Higher Education: “Thanks to what they’ve learned from university research, consultants like Matthew Kalmans have become experts in modern political persuasion. A co-founder of Applecart, a New York data firm, Mr. Kalmans specializes in shaping societal attitudes by using advanced analytical techniques to discover and exploit personal connections and friendships. His is one of a fast-growing collection of similar companies now raising millions of dollars, fattening businesses, and aiding political campaigns with computerized records of Facebook exchanges, high-school yearbooks, even neighborhood gossip.

Applecart uses that data to try to persuade people on a range of topics by finding voices they trust to deliver endorsements. “You can use this sort of technology to get people to purchase insurance at higher rates, get people to purchase a product, get people to do all sorts of other things that they might otherwise not be inclined to do,” said Mr. Kalmans, a 2014 graduate of the University of Pennsylvania. And in building such a valuable service, he’s found that the intellectual underpinnings are often free. “We are constantly reading academic papers to get ideas on how to do things better,” Mr. Kalmans said. That’s because scholars conduct the field experiments and subsequent tests that Mr. Kalmans needs to build and refine his models. “They do a lot of the infrastructural work that, frankly, a lot of commercial companies don’t have the in-house expertise to do,” he said of university researchers. Yet the story of Applecart stands in contrast to the dominant attitude and approach among university researchers themselves. Universities are full of researchers who intensively study major global problems such as environmental destruction and societal violence, then stop short when their conclusions point to the need for significant change in public behavior.

Some in academe consider that boundary a matter of principle rather than a systematic failure or oversight. “The one thing that we have to do is not be political,” Michael M. Crow, the usually paradigm-breaking president of Arizona State University, said this summer at a conference on academic engagement in public discourse. “Politics is a process that we are informing. We don’t have to be political to inform politicians or political actors.” But other academics contemplate that stance and see a missed opportunity to help convert the millions of taxpayer dollars spent on research into meaningful societal benefit. They include Dan M. Kahan, a professor of law and of psychology at Yale University who has been trying to help Florida officials cope with climate change. Mr. Kahan works with the four-county Southeast Florida Regional Climate Change Compact, which wants to redesign roads, expand public transit, and build pumping stations to prepare for harsher weather. But Mr. Kahan says he and his Florida partners have had trouble getting enough

But Mr. Kahan says he and his Florida partners have had trouble getting enough policy makers to seriously consider the scale of the problem and the necessary solutions. It’s frustrating, Mr. Kahan said, to see so much university research devoted to work inside laboratories on problems like climate, and comparatively little spent on real-world needs such as sophisticated messaging strategies. “There really is a kind of deficit in the research relating to actually operationalizing the kinds of insights that people have developed from research,” he said. That deficit appears to stem from academic culture, said Utpal M. Dholakia, a professor of marketing at Rice University whose work involves testing people’s self-control in areas such as eating and shopping. He then draws conclusions about whether regulations or taxes aimed at changing behaviors will be effective. Companies find advanced personal behavioral data highly useful, said Mr. Dholakia, who works on the side to help retailers devise sales strategies. But his university, he said, appears more interested in seeing him publish his findings than take the time to help policy makers make real-world use of them. “My dean gets very worried if I don’t publish a lot.” Because universities h

That deficit appears to stem from academic culture, said Utpal M. Dholakia, a professor of marketing at Rice University whose work involves testing people’s self-control in areas such as eating and shopping. He then draws conclusions about whether regulations or taxes aimed at changing behaviors will be effective. Companies find advanced personal behavioral data highly useful, said Mr. Dholakia, who works on the side to help retailers devise sales strategies. But his university, he said, appears more interested in seeing him publish his findings than take the time to help policy makers make real-world use of them. “My dean gets very worried if I don’t publish a lot.” …(More)

Improving government effectiveness: lessons from Germany


Tom Gash at Global Government Forum: “All countries face their own unique challenges but advanced democracies also have much in common: the global economic downturn, aging populations, increasingly expensive health and pension spending, and citizens who remain as hard to please as ever.

At an event last week in Bavaria, attended by representatives of Bavaria’s governing party, the Christian Social Union (CSU) and their guests, it also became clear that there is a growing consensus that governments face another common problem. They have relied for too long on traditional legislation and regulation to drive change. The consensus was that simply prescribing in law what citizens and companies can and can’t do will not solve the complex problems governments are facing, that governments cannot legislate their way to improved citizen health, wealth and wellbeing….

…a number of developments …from which both UK and international policymakers and practitioners can learn to improve government effectiveness.

  1. Behavioural economics: The Behavioural Insights Team (BIT), which span out of government in 2013 and is the subject of a new book by one of its founders and former IfG Director of Research, David Halpern, is being watched carefully by many countries abroad. Some are using its services, while others – including the New South Wales Government in Australia –are building their own skills in this area. BIT and others using similar principles have shown that using insights from social psychology – alongside an experimental approach – can help save money and improve outcomes. Well known successes include increasing the tax take through changing wording of reminder letters (work led by another IfG alumni Mike Hallsworth) and increasing pension take-up through auto-enrolment.
  2. Market design: There is an emerging field of study which is examining how algorithms can be used to match people better with services they need – particularly in cases where it is unfair or morally repugnant to let allow a free market to operate. Alvin Roth, the Harvard Professor and Nobel prize winner, writes about these ‘matching markets’ in his book Who Gets What and Why – in which he also explains how the approach can ensure that more kidneys reach compatible donors, and children find the right education.
  3. Big data: Large datasets can now be mined far more effectively, whether it is to analyse crime patterns to spot where police patrols might be useful or to understand crowd flows on public transport. The use of real-time information allows far more sophisticated deployment of public sector resources, better targeted at demand and need, and better tailored to individual preferences.
  4. Transparency: Transparency has the potential to enhance both the accountability and effectiveness of governments across the world – as shown in our latest Whitehall Monitor Annual Report. The UK government is considered a world-leader for its transparency – but there are still areas where progress has stalled, including in transparency over the costs and performance of privately provided public services.
  5. New management models: There is a growing realisation that new methods are best harnessed when supported by effective management. The Institute’s work on civil service reform highlights a range of success factors from past reforms in the UK – and the benefits of clear mechanisms for setting priorities and sticking to them, as is being attempted by governments new(ish) Implementation Taskforces and the Departmental Implementation Units currently cropping up across Whitehall. I looked overseas for a different model that clearly aligns government activities behind citizens’ concerns – in this case the example of the single non-emergency number system operating in New York City and elsewhere. This system supports a powerful, highly responsive, data-driven performance management regime. But like many performance management regimes it can risk a narrow and excessively short-term focus – so such tools must be combined with the mind-set of system stewardship that the Institute has long championed in its policymaking work.
  6. Investment in new capability: It is striking that all of these developments are supported by technological change and research insights developed outside government. But to embed new approaches in government, there appear to be benefits to incubating new capacity, either in specialist departmental teams or at the centre of government….(More)”

Give Up Your Data to Cure Disease


David B. Agus in The New York Times: “How far would you go to protect your health records? Your privacy matters, of course, but consider this: Mass data can inform medicine like nothing else and save countless lives, including, perhaps, your own.

Over the past several years, using some $30 billion in federal stimulus money, doctors and hospitals have been installing electronic health record systems. ….Yet neither doctors nor patients are happy. Doctors complain about the time it takes to update digital records, while patients worry about confidentiality…

We need to get over it. These digital databases offer an incredible opportunity to examine trends that will fundamentally change how doctors treat patients. They will help develop cures, discover new uses for drugs and better track the spread of scary new illnesses like the Zika virus….

Case in point: Last year, a team led by researchers at the MD Anderson Cancer Center and Washington University found that a common class of heart drugs called beta blockers, which block the effects of adrenaline, may prolong ovarian cancer patients’ survival. This discovery came after the researchers reviewed more than 1,400 patient records, and identified an obvious pattern among those with ovarian cancer who were using beta blockers, most often to control their blood pressure. Women taking earlier versions of this class of drug typically lived for almost eight years after their cancer diagnosis, compared with just three and a half years for the women not taking any beta blocker….

We need to move past that. For one thing, more debate over data sharing is already leading to more data security. Last month a bill was signed into law calling for the Department of Health and Human Services to create a health care industry cybersecurity task force, whose members would hammer out new voluntary standards.

New technologies — and opportunities — come with unprecedented risks and the need for new policies and strategies. We must continue to improve our encryption capabilities and other methods of data security and, most important, mandate that they are used. The hack of the Anthem database last year, for instance, which allowed 80 million personal records to be accessed, was shocking not only for the break-in, but for the lack of encryption….

Medical research is making progress every day, but the next step depends less on scientists and doctors than it does on the public. Each of us has the potential to be part of tomorrow’s cures. (More)”

The Promise and Perils of Open Medical Data


Sharona Hoffman at the Hastings Center: “Not long ago I visited the Personal Genome Project’s website. The PGP describes its mission as “creating public genome, health, and trait data.” In the “Participant Profiles” section, I found several entries that disclosed the names of individuals along with their date of birth, sex, weight, height, blood type, race, health conditions, medications, allergies, medical procedures, and more. Other profiles did not feature names but provided all of the other details. I had no special access to this information. It is available to absolutely anyone with Internet access. The PGP is part of a trend known as “open data.” Many government and private entities have launched initiatives to compile very large data resources (also known as “big data”) and to make them available to the public. President Obama himself has endorsed open data by issuing a May 2013 executive order directing that, to the extent permitted by law, the federal government must release its data to the public in forms that make it easy to locate, access, and use.

Read more:http://www.thehastingscenter.org/Publications/HCR/Detail.aspx?id=7731#ixzz3zOSM2kF0

Designing a toolkit for policy makers


 at UK’s Open Policy Making Blog: “At the end of the last parliament, the Cabinet Office Open Policy Making team launched the Open Policy Making toolkit. This was about giving policy makers the actual tools that will enable them to develop policy that is well informed, creative, tested, and works. The starting point was addressing their needs and giving them what they had told us they needed to develop policy in an ever changing, fast paced and digital world. In a way, it was the culmination of the open policy journey we have been on with departments for the past 2 years. In the first couple of months we saw thousands of unique visits….

Our first version toolkit has been used by 20,000 policy makers. This gave us a huge audience to talk to to make sure that we continue to meet the needs of policy makers and keep the toolkit relevant and useful. Although people have really enjoyed using the toolkit, user testing quickly showed us a few problems…

We knew what we needed to do. Help people understand what Open Policy Making was, how it impacted their policy making, and then to make it as simple as possible for them to know exactly what to do next.

So we came up with some quick ideas on pen and paper and tested them with people. We quickly discovered what not to do. People didn’t want a philosophy— they wanted to know exactly what to do, practical answers, and when to do it. They wanted a sort of design manual for policy….

How do we make user-centered design and open policy making as understood as agile?

We decided to organise the tools around the journey of a policy maker. What might a policy maker need to understand their users? How could they co-design ideas? How could they test policy? We looked at what tools and techniques they could use at the beginning, middle and end of a project, and organised tools accordingly.

We also added sections to remove confusion and hesitation. Our opening section ‘Getting started with Open Policy Making’ provides people with a clear understanding of what open policy making might mean to them, but also some practical considerations. Sections for limited timeframes and budgets help people realise that open policy can be done in almost any situation.

And finally we’ve created a much cleaner and simpler design that lets people show as much or little of the information as they need….

So go and check out the new toolkit and make more open policy yourselves….(More)”

Innovating and changing the policy-cycle: Policy-makers be prepared!


Marijn Janssen and Natalie Helbig in Government Information Quarterly: “Many policy-makers are struggling to understand participatory governance in the midst of technological changes. Advances in information and communication technologies (ICTs) continue to have an impact on the ways that policy-makers and citizens engage with each other throughout the policy-making process. A set of developments in the areas of opening government data, advanced analytics, visualization, simulation, and gaming, and ubiquitous citizen access using mobile and personalized applications is shaping the interactions between policy-makers and citizens. Yet the impact of these developments on the policy-makers is unclear. The changing roles and need for new capabilities required from the government are analyzed in this paper using two case studies. Salient new roles for policy-makers are outlined focused on orchestrating the policy-making process. Research directions are identified including understand the behavior of users, aggregating and analyzing content from scattered resources, and the effective use of the new tools. Understanding new policy-makers roles will help to bridge the gap between the potential of tools and technologies and the organizational realities and political contexts. We argue that many examples are available that enable learning from others, in both directions, developed countries experiences are useful for developing countries and experiences from the latter are valuable for the former countries…(More)”