Google’s ‘Project Nightingale’ Gathers Personal Health Data on Millions of Americans

Curated on Posted on by Stefaan Verhulst

Rob Copeland at Wall Street Journal: “Google is engaged with one of the U.S.’s largest health-care systems on a project to collect and crunch the detailed personal-health information of millions of people across 21 states.

The initiative, code-named “Project Nightingale,” appears to be the biggest effort yet by a Silicon Valley giant to gain a toehold in the health-care industry through the handling of patients’ medical data. Amazon.com Inc., Apple Inc.  and Microsoft Corp. are also aggressively pushing into health care, though they haven’t yet struck deals of this scope.

Google began Project Nightingale in secret last year with St. Louis-based Ascension, a Catholic chain of 2,600 hospitals, doctors’ offices and other facilities, with the data sharing accelerating since summer, according to internal documents.

The data involved in the initiative encompasses lab results, doctor diagnoses and hospitalization records, among other categories, and amounts to a complete health history, including patient names and dates of birth….

Neither patients nor doctors have been notified. At least 150 Google employees already have access to much of the data on tens of millions of patients, according to a person familiar with the matter and the documents.

In a news release issued after The Wall Street Journal reported on Project Nightingale on Monday, the companies said the initiative is compliant with federal health law and includes robust protections for patient data….(More)”.

Finland’s model in utilising forest data

Curated on Posted on by Stefaan Verhulst

Report by Matti Valonen et al: “The aim of this study is to depict the Finnish Forest Centre’s Metsään.fiwebsite’s background, objectives and implementation and to assess its needs for development and future prospects. The Metsään.fi-service included in the Metsään.fi-website is a free e-service for forest owners and corporate actors (companies, associations and service providers) in the forest sector, which aim is to support active decision-making among forest owners by offering forest resource data and maps on forest properties, by making contacts with the authorities easier through online services and to act as a platform for offering forest services, among other things.

In addition to the Metsään.fi-service, the website includes open forest data services that offer the users national forest resource data that is not linked with personal information.

Private forests are in a key position as raw material sources for traditional and new forest-based bioeconomy. In addition to wood material, the forests produce non-timber forest products (for example berries and mushrooms), opportunities for recreation and other ecosystem services.

Private forests cover roughly 60 percent of forest land, but about 80 percent of the domestic wood used by forest industry. In 2017 the value of the forest industry production was 21 billion euros, which is a fifth of the entire industry production value in Finland. The forest industry export in 2017 was worth about 12 billion euros, which covers a fifth of the entire export of goods. Therefore, the forest sector is important for Finland’s national economy…(More)”.

OMB rethinks ‘protected’ or ‘open’ data binary with upcoming Evidence Act guidance

Curated on Posted on by Stefaan Verhulst

Jory Heckman at Federal News Network: “The Foundations for Evidence-Based Policymaking Act has ordered agencies to share their datasets internally and with other government partners — unless, of course, doing so would break the law.

Nearly a year after President Donald Trump signed the bill into law, agencies still have only a murky idea of what data they can share, and with whom. But soon, they’ll have more nuanced options of ranking the sensitivity of their datasets before sharing them out to others.

Chief Statistician Nancy Potok said the Office of Management and Budget will soon release proposed guidelines for agencies to provide “tiered” access to their data, based on the sensitivity of that information….

OMB, as part of its Evidence Act rollout, will also rethink how agencies ensure protected access to data for research. Potok said agency officials expect to pilot a single application governmentwide for people seeking access to sensitive data not available to the public.

The pilot resembles plans for a National Secure Data Service envisioned by the Commission on Evidence-Based Policymaking, an advisory group whose recommendations laid the groundwork for the Evidence Act.

“As a state-of-the-art resource for improving government’s capacity to use the data it already collects, the National Secure Data Service will be able to temporarily link existing data and provide secure access to those data for exclusively statistical purposes in connection with approved projects,” the commission wrote in its 2017 final report.

In an effort to strike a balance between access and privacy, Potok said OMB has also asked agencies to provide a list of the statutes that prohibit them from sharing data amongst themselves….(More)”.

Geolocation Data for Pattern of Life Analysis in Lower-Income Countries

Curated on Posted on by Stefaan Verhulst

Report by Eduardo Laguna-Muggenburg, Shreyan Sen and Eric Lewandowski: “Urbanization processes in the developing world are often associated with the creation of informal settlements. These areas frequently have few or no public services exacerbating inequality even in the context of substantial economic growth.

In the past, the high costs of gathering data through traditional surveying methods made it challenging to study how these under-served areas evolve through time and in relation to the metropolitan area to which they belong. However, the advent of mobile phones and smartphones in particular presents an opportunity to generate new insights on these old questions.

In June 2019, Orbital Insight and the United Nations Development Programme (UNDP) Arab States Human Development Report team launched a collaborative pilot program assessing the feasibility of using geolocation data to understand patterns of life among the urban poor in Cairo, Egypt.

The objectives of this collaboration were to assess feasibility (and conditionally pursue preliminary analysis) of geolocation data to create near-real time population density maps, understand where residents of informal settlements tend to work during the day, and to classify universities by percentage of students living in informal settlements.

The report is organized as follows. In Section 2 we describe the data and its limitations. In Section 3 we briefly explain the methodological background. Section 4 summarizes the insights derived from the data for the Egyptian context. Section 5 concludes….(More)”.

The Value of Data: Towards a Framework to Redistribute It

Curated on Posted on by Stefaan Verhulst

Paper by Maria Savona: “This note attempts a systematisation of different pieces of literature that underpin the recent policy and academic debate on the value of data. It mainly poses foundational questions around the definition, economic nature and measurement of data value, and discusses the opportunity to redistribute it. It then articulates a framework to compare ways of implementing redistribution, distinguishing between data as capital, data as labour or data as an intellectual property. Each of these raises challenges, revolving around the notions of data property and data rights, that are also briefly discussed. The note concludes by indicating areas for policy considerations and a research agenda to shape the future structure of data governance more at large….(More)”.

Algorithmic futures: The life and death of Google Flu Trends

Curated on Posted on by Stefaan Verhulst

Vincent Duclos in Medicine Anthropology Theory: “In the last few years, tracking systems that harvest web data to identify trends, calculate predictions, and warn about potential epidemic outbreaks have proliferated. These systems integrate crowdsourced data and digital traces, collecting information from a variety of online sources, and they promise to change the way governments, institutions, and individuals understand and respond to health concerns. This article examines some of the conceptual and practical challenges raised by the online algorithmic tracking of disease by focusing on the case of Google Flu Trends (GFT). Launched in 2008, GFT was Google’s flagship syndromic surveillance system, specializing in ‘real-time’ tracking of outbreaks of influenza. GFT mined massive amounts of data about online search behavior to extract patterns and anticipate the future of viral activity. But it did a poor job, and Google shut the system down in 2015. This paper focuses on GFT’s shortcomings, which were particularly severe during flu epidemics, when GFT struggled to make sense of the unexpected surges in the number of search queries. I suggest two reasons for GFT’s difficulties. First, it failed to keep track of the dynamics of contagion, at once biological and digital, as it affected what I call here the ‘googling crowds’. Search behavior during epidemics in part stems from a sort of viral anxiety not easily amenable to algorithmic anticipation, to the extent that the algorithm’s predictive capacity remains dependent on past data and patterns. Second, I suggest that GFT’s troubles were the result of how it collected data and performed what I call ‘epidemic reality’. GFT’s data became severed from the processes Google aimed to track, and the data took on a life of their own: a trackable life, in which there was little flu left. The story of GFT, I suggest, offers insight into contemporary tensions between the indomitable intensity of collective life and stubborn attempts at its algorithmic formalization.Vincent DuclosIn the last few years, tracking systems that harvest web data to identify trends, calculate predictions, and warn about potential epidemic outbreaks have proliferated. These systems integrate crowdsourced data and digital traces, collecting information from a variety of online sources, and they promise to change the way governments, institutions, and individuals understand and respond to health concerns. This article examines some of the conceptual and practical challenges raised by the online algorithmic tracking of disease by focusing on the case of Google Flu Trends (GFT). Launched in 2008, GFT was Google’s flagship syndromic surveillance system, specializing in ‘real-time’ tracking of outbreaks of influenza. GFT mined massive amounts of data about online search behavior to extract patterns and anticipate the future of viral activity. But it did a poor job, and Google shut the system down in 2015. This paper focuses on GFT’s shortcomings, which were particularly severe during flu epidemics, when GFT struggled to make sense of the unexpected surges in the number of search queries. I suggest two reasons for GFT’s difficulties. First, it failed to keep track of the dynamics of contagion, at once biological and digital, as it affected what I call here the ‘googling crowds’. Search behavior during epidemics in part stems from a sort of viral anxiety not easily amenable to algorithmic anticipation, to the extent that the algorithm’s predictive capacity remains dependent on past data and patterns. Second, I suggest that GFT’s troubles were the result of how it collected data and performed what I call ‘epidemic reality’. GFT’s data became severed from the processes Google aimed to track, and the data took on a life of their own: a trackable life, in which there was little flu left. The story of GFT, I suggest, offers insight into contemporary tensions between the indomitable intensity of collective life and stubborn attempts at its algorithmic formalization….(More)”.

Leveraging Private Data for Public Good: A Descriptive Analysis and Typology of Existing Practices

Curated on Posted on by Stefaan Verhulst

New report by Stefaan Verhulst, Andrew Young, Michelle Winowatan. and Andrew J. Zahuranec: “To address the challenges of our times, we need both new solutions and new ways to develop those solutions. The responsible use of data will be key toward that end. Since pioneering the concept of “data collaboratives” in 2015, The GovLab has studied and experimented with innovative ways to leverage private-sector data to tackle various societal challenges, such as urban mobility, public health, and climate change.

While we have seen an uptake in normative discussions on how data should be shared, little analysis exists of the actual practice. This paper seeks to address that gap and seeks to answer the following question: What are the variables and models that determine functional access to private sector data for public good? In Leveraging Private Data for Public Good: A Descriptive Analysis and Typology of Existing Practices, we describe the emerging universe of data collaboratives and develop a typology of six practice areas. Our goal is to provide insight into current applications to accelerate the creation of new data collaboratives. The report outlines dozens of examples, as well as a set of recommendations to enable more systematic, sustainable, and responsible data collaboration….(More)”

Internet of Water

Curated on Posted on by Stefaan Verhulst

About: “Water is the essence of life and vital to the well-being of every person, economy, and ecosystem on the planet. But around the globe and here in the United States, water challenges are mounting as climate change, population growth, and other drivers of water stress increase. Many of these challenges are regional in scope and larger than any one organization (or even states), such as the depletion of multi-state aquifers, basin-scale flooding, or the wide-spread accumulation of nutrients leading to dead zones. Much of the infrastructure built to address these problems decades ago, including our data infrastructure, are struggling to meet these challenges. Much of our water data exists in paper formats unique to the organization collecting the data. Often, these organizations existed long before the personal computer was created (1975) or the internet became mainstream (mid 1990’s). As organizations adopted data infrastructure in the late 1990’s, it was with the mindset of “normal infrastructure” at the time. It was built to last for decades, rather than adapt with rapid technological changes. 

New water data infrastructure with new technologies that enable data to flow seamlessly between users and generate information for real-time management are needed to meet our growing water challenges. Decision-makers need accurate, timely data to understand current conditions, identify sustainability problems, illuminate possible solutions, track progress, and adapt along the way. Stakeholders need easy-to-understand metrics of water conditions so they can make sure managers and policymakers protect the environment and the public’s water supplies. The water community needs to continually improve how they manage this complex resource by using data and communicating information to support decision-making. In short, a sustained effort is required to accelerate the development of open data and information systems to support sustainable water resources management. The Internet of Water (IoW) is designed to be just such an effort….(More)”.

Waze launches data-sharing integration for cities with Google Cloud

Curated on Posted on by Stefaan Verhulst

Ryan Johnston at StateScoop: “Thousands of cities across the world that rely on externally-sourced traffic data from Waze, the route-finding mobile app, will now have access to the data through the Google Cloud suite of analytics tools instead of a raw feed, making it easier for city transportation and planning officials to reach data-driven decisions. 

Waze said Tuesday that the anonymized data is now available through Google Cloud, with the goal of making curbside management, roadway maintenance and transit investment easier for small to midsize cities that don’t have the resources to invest in enterprise data-analytics platforms of their own. Since 2014, Waze — which became a Google subsidiary in 2013 — has submitted traffic data to its partner cities through its “Waze for Cities” program, but those data sets arrived in raw feeds without any built-in analysis or insights.

While some cities have built their own analysis tools to understand the free data from the company, others have struggled to stay afloat in the sea of data, said Dani Simons, Waze’s head of public sector partnerships.

“[What] we’ve realized is providing the data itself isn’t enough for our city partners or for a lot of our city and state partners,” Simons said. “We have been asked over time for better ways to analyze and turn that raw data into something more actionable for our public partners, and that’s why we’re doing this.”

The data will now arrive automatically integrated with Google’s free data analysis tool, BigQuery, and a visualization tool, Data Studio. Cities can use the tools to analyze up to a terabyte of data and store up to 10 gigabytes a month for free, but they can also choose to continue to use in-house analysis tools, Simons said. 

The integration was also designed with input from Waze’s top partner cities, including Los Angeles; Seattle; and San Jose, California. One of Waze’s private sector partners, Genesis Pulse, which designs software for emergency responders, reported that Waze users identified 40 percent of roadside accidents an average of 4.5 minutes before those incidents were reported to 911 or public safety.

The integration is Waze’s attempt at solving two of the biggest data problems that cities have today, Simons told StateScoop. For some cities in the U.S., Waze is one of the several private companies sharing transit data with them. Other cities are drowning in data from traffic sensors, city-owned fleets data or private mobility companies….(More)”.

From Transactions Data to Economic Statistics: Constructing Real-Time, High-Frequency, Geographic Measures of Consumer Spending

Curated on Posted on by Stefaan Verhulst

Paper by Aditya Aladangady et al: “Access to timely information on consumer spending is important to economic policymakers. The Census Bureau’s monthly retail trade survey is a primary source for monitoring consumer spending nationally, but it is not well suited to study localized or short-lived economic shocks. Moreover, lags in the publication of the Census estimates and subsequent, sometimes large, revisions diminish its usefulness for real-time analysis. Expanding the Census survey to include higher frequencies and subnational detail would be costly and would add substantially to respondent burden. We take an alternative approach to fill these information gaps. Using anonymized transactions data from a large electronic payments technology company, we create daily estimates of retail spending at detailed geographies. Our daily estimates are available only a few days after the transactions occur, and the historical time series are available from 2010 to the present. When aggregated to the national leve l, the pattern of monthly growth rates is similar to the official Census statistics. We discuss two applications of these new data for economic analysis: First, we describe how our monthly spending estimates are useful for real-time monitoring of aggregate spending, especially during the government shutdown in 2019, when Census data were delayed and concerns about the economy spiked. Second, we show how the geographic detail allowed us quantify in real time the spending effects of Hurricanes Harvey and Irma in 2017….(More)”.