City Data Exchange – Lessons Learned From A Public/Private Data Collaboration


Report by the Municipality of Copenhagen: “The City Data Exchange (CDE) is the product of a collaborative project between the Municipality of Copenhagen, the Capital Region of Denmark, and Hitachi. The purpose of the project is to examine the possibilities of creating a marketplace for the exchange of data between public and private organizations.

The CDE consists of three parts:

  • A collaboration between the different partners on supply, and demand of specific data;
  • A platform for selling and purchasing data aimed at both public, and private organizations;
  • An effort to establish further experience in the field of data exchange between public, and private organizations.

In 2013, the City of Copenhagen, and the Copenhagen Region decided to invest in the creation of a marketplace for the exchange of public, and private sector data. The initial investment was meant as a seed towards a self-sustained marketplace. This was an innovative approach to test the readiness of the market to deliver new data-sharing solutions.

The CDE is the result of a tender by the Municipality of Copenhagen and the Capital Region of Denmark in 2015. Hitachi Consulting won the tender and has invested, and worked with the Municipality of Copenhagen, and the Capital Region of Denmark to establish an organization and a technical platform.

The City Data Exchange (CDE) has closed a gap in regional data infrastructure. Both public-and private sector organizations have used the CDE to gain insights into data use cases, new external data sources, GDPR issues, and to explore the value of their data. Before the CDE was launched, there were only a few options available to purchase or sell data.

The City and the Region of Copenhagen are utilizing the insights from the CDE project to improve their internal activities and to shape new policies. The lessons from the CDE also provide insights into a wider national infrastructure for effective data sharing. Based on the insights from approximately 1000 people that the CDE has been in contact with, the recommendations are:

  • Start with the use case, as it is key to engage the data community that will use the data;
  • Create a data competence hub, where the data community can meet and get support;
  • Create simple standards and guidelines for data publishing.

The following paper presents some of the key findings from our work with the CDE. It has been compiled by Smart City Insights on behalf of the partners of the City Data Exchange project…(More)”.

4 reasons why Data Collaboratives are key to addressing migration


Stefaan Verhulst and Andrew Young at the Migration Data Portal: “If every era poses its dilemmas, then our current decade will surely be defined by questions over the challenges and opportunities of a surge in migration. The issues in addressing migration safely, humanely, and for the benefit of communities of origin and destination are varied and complex, and today’s public policy practices and tools are not adequate. Increasingly, it is clear, we need not only new solutions but also new, more agile, methods for arriving at solutions.

Data are central to meeting these challenges and to enabling public policy innovation in a variety of ways. Yet, for all of data’s potential to address public challenges, the truth remains that most data generated today are in fact collected by the private sector. These data contains tremendous possible insights and avenues for innovation in how we solve public problems. But because of access restrictions, privacy concerns and often limited data science capacity, their vast potential often goes untapped.

Data Collaboratives offer a way around this limitation.

Data Collaboratives: A new form of Public-Private Partnership for a Data Age

Data Collaboratives are an emerging form of partnership, typically between the private and public sectors, but often also involving civil society groups and the education sector. Now in use across various countries and sectors, from health to agriculture to economic development, they allow for the opening and sharing of information held in the private sector, in the process freeing data silos up to serve public ends.

Although still fledgling, we have begun to see instances of Data Collaboratives implemented toward solving specific challenges within the broad and complex refugee and migrant space. As the examples we describe below suggest (which we examine in more detail Stanford Social Innovation Review), the use of such Collaboratives is geographically dispersed and diffuse; there is an urgent need to pull together a cohesive body of knowledge to more systematically analyze what works, and what doesn’t.

This is something we have started to do at the GovLab. We have analyzed a wide variety of Data Collaborative efforts, across geographies and sectors, with a goal of understanding when and how they are most effective.

The benefits of Data Collaboratives in the migration field

As part of our research, we have identified four main value propositions for the use of Data Collaboratives in addressing different elements of the multi-faceted migration issue. …(More)”,

Data Stewards: Data Leadership to Address the Challenges of the 21st Century


Data Stewards_screenshot

The GovLab at the NYU Tandon School of Engineering is pleased to announce the launch of its Data Stewards website — a new portal for connecting organizations across sectors that seek to promote responsible data leadership that can address the challenges of the 21st century — developed with generous support from the William and Flora Hewlett Foundation.

Increasingly, the private sector is collaborating with the public sector and researchers on ways to use private-sector data and analytical expertise for public good. With these new practices of data collaborations come the need to reimagine roles and responsibilities to steer the process of using this data, and the insights it can generate, to address society’s biggest questions and challenges: Data Stewards.

Today, establishing and sustaining these new collaborative and accountable approaches requires significant and time-consuming effort and investment of resources for both data holders on the supply side, and institutions that represent the demand. By establishing Data Stewardship as a function — recognized within the private sector as a valued responsibility — the practice of Data Collaboratives can become more predictable, scaleable, sustainable and de-risked.

Together with BrightFront Group and Adapt, we are:

  • Exploring the needs and priorities of current private sector Data Stewards who act as change agents within their firms. Responsible for determining what, when, how and with whom to share private data for public good, these individuals are critical catalysts for ensuring insights are turned into action.
  • Identifying and connecting existing Data Stewards across sectors and regions to create an online and in-person community for exchanging knowledge and best practices.
  • Developing methodologies, tools and frameworks to use data more responsibly, systematically and efficiently to decrease the transaction cost, time and energy currently needed to establish Data Collaboratives.

To learn more about the Data Stewards Initiative, including new insights, ideas, tools and information about the Data Steward of the Year Award program, visit datastewards.net.

If you are a Data Steward, or would like to join a community of practice to learn from your peers, please contact datastewards@thegovlab.org to join the Network of Data Stewards.

For more information about The GovLab, visit thegovlab.org.

Creating a Machine Learning Commons for Global Development


Blog by Hamed Alemohammad: “Advances in sensor technology, cloud computing, and machine learning (ML) continue to converge to accelerate innovation in the field of remote sensing. However, fundamental tools and technologies still need to be developed to drive further breakthroughs and to ensure that the Global Development Community (GDC) reaps the same benefits that the commercial marketplace is experiencing. This process requires us to take a collaborative approach.

Data collaborative innovation — that is, a group of actors from different data domains working together toward common goals — might hold the key to finding solutions for some of the global challenges that the world faces. That is why Radiant.Earth is investing in new technologies such as Cloud Optimized GeoTiffsSpatial Temporal Asset Catalogues (STAC), and ML. Our approach to advance ML for global development begins with creating open libraries of labeled images and algorithms. This initiative and others require — and, in fact, will thrive as a result of — using a data collaborative approach.

“Data is only as valuable as the decisions it enables.”

This quote by Ion Stoica, professor of computer science at the University of California, Berkeley, may best describe the challenge facing those of us who work with geospatial information:

How can we extract greater insights and value from the unending tsunami of data that is before us, allowing for more informed and timely decision making?…(More).

UK can lead the way on ethical AI, says Lords Committee


Lords Select Committee: “The UK is in a strong position to be a world leader in the development of artificial intelligence (AI). This position, coupled with the wider adoption of AI, could deliver a major boost to the economy for years to come. The best way to do this is to put ethics at the centre of AI’s development and use concludes a report by the House of Lords Select Committee on Artificial Intelligence, AI in the UK: ready, willing and able?, published today….

One of the recommendations of the report is for a cross-sector AI Code to be established, which can be adopted nationally, and internationally. The Committee’s suggested five principles for such a code are:

  1. Artificial intelligence should be developed for the common good and benefit of humanity.
  2. Artificial intelligence should operate on principles of intelligibility and fairness.
  3. Artificial intelligence should not be used to diminish the data rights or privacy of individuals, families or communities.
  4. All citizens should have the right to be educated to enable them to flourish mentally, emotionally and economically alongside artificial intelligence.
  5. The autonomous power to hurt, destroy or deceive human beings should never be vested in artificial intelligence.

Other conclusions from the report include:

  • Many jobs will be enhanced by AI, many will disappear and many new, as yet unknown jobs, will be created. Significant Government investment in skills and training will be necessary to mitigate the negative effects of AI. Retraining will become a lifelong necessity.
  • Individuals need to be able to have greater personal control over their data, and the way in which it is used. The ways in which data is gathered and accessed needs to change, so that everyone can have fair and reasonable access to data, while citizens and consumers can protect their privacy and personal agency. This means using established concepts, such as open data, ethics advisory boards and data protection legislation, and developing new frameworks and mechanisms, such as data portability and data trusts.
  • The monopolisation of data by big technology companies must be avoided, and greater competition is required. The Government, with the Competition and Markets Authority, must review the use of data by large technology companies operating in the UK.
  • The prejudices of the past must not be unwittingly built into automated systems. The Government should incentivise the development of new approaches to the auditing of datasets used in AI, and also to encourage greater diversity in the training and recruitment of AI specialists.
  • Transparency in AI is needed. The industry, through the AI Council, should establish a voluntary mechanism to inform consumers when AI is being used to make significant or sensitive decisions.
  • At earlier stages of education, children need to be adequately prepared for working with, and using, AI. The ethical design and use of AI should become an integral part of the curriculum.
  • The Government should be bold and use targeted procurement to provide a boost to AI development and deployment. It could encourage the development of solutions to public policy challenges through speculative investment. There have been impressive advances in AI for healthcare, which the NHS should capitalise on.
  • It is not currently clear whether existing liability law will be sufficient when AI systems malfunction or cause harm to users, and clarity in this area is needed. The Committee recommend that the Law Commission investigate this issue.
  • The Government needs to draw up a national policy framework, in lockstep with the Industrial Strategy, to ensure the coordination and successful delivery of AI policy in the UK….(More)”.

The Potential and Practice of Data Collaboratives for Migration


Essay by Stefaan Verhulst and Andrew Young in the Stanford Social Innovation Review: “According to recent United Nations estimates, there are globally about 258 million international migrants, meaning people who live in a country other than the one in which they were born; this represents an increase of 49 percent since 2000. Of those, 26 million people have been forcibly displaced across borders, having migrated either as refugees or asylum seekers. An additional 40 million or so people are internally displaced due to conflict and violence, and millions more are displaced each year because of natural disasters. It is sobering, then, to consider that, according to many observers, global warming is likely to make the situation worse.

Migration flows of all kinds—for work, family reunification, or political or environmental reasons—create a range of both opportunities and challenges for nation states and international actors. But the issues associated with refugees and asylum seekers are particularly complex. Despite the high stakes and increased attention to the issue, our understanding of the full dimensions and root causes of refugee movements remains limited. Refugee flows arise in response to not only push factors like wars and economic insecurity, but also powerful pull factors in recipient countries, including economic opportunities, and perceived goods like greater tolerance and rule of law. In addition, more objectively measurable variables like border barriers, topography, and even the weather, play an important role in determining the number and pattern of refugee flows. These push and pull factors interact in complex and often unpredictable ways. Further complicating matters, some experts argue that push-pull research on migration is dogged by a number of conceptual and methodological limitations.

To mitigate negative impacts and anticipate opportunities arising from high levels of global migration, we need a better understanding of the various factors contributing to the international movement of people and how they work together.

Data—specifically, the widely dispersed data sets that exist across governments, the private sector, and civil society—can help alleviate today’s information shortcoming. Several recent initiatives show the potential of using data to address some of the underlying informational gaps. In particular, there is an important role for a new form of data-driven problem-solving and policymaking—what we call “data collaboratives.” Data collaboratives offer the potential for inter-sectoral collaboration, and for the merging and augmentation of otherwise siloed data sets. While public and private actors are increasingly experimenting with various types of data in a variety of sectors and geographies—including sharing disease data to accelerate disease treatments and leveraging private bus data to improve urban planning—we are only beginning to understand the potential of data collaboration in the context of migration and refugee issues….(More)”.

 

…(More)”

Selected Readings on Data Responsibility, Refugees and Migration


By Kezia Paladina, Alexandra Shaw, Michelle Winowatan, Stefaan Verhulst, and Andrew Young

The Living Library’s Selected Readings series seeks to build a knowledge base on innovative approaches for improving the effectiveness and legitimacy of governance. This curated and annotated collection of recommended works on the topic of Data Collaboration for Migration was originally published in 2018.

Special thanks to Paul Currion whose data responsibility literature review gave us a headstart when developing the below. (Check out his article listed below on Refugee Identity)

The collection below is also meant to complement our article in the Stanford Social Innovation Review on Data Collaboration for Migration where we emphasize the need for a Data Responsibility Framework moving forward.

From climate change to politics to finance, there is growing recognition that some of the most intractable problems of our era are information problems. In recent years, the ongoing refugee crisis has increased the call for new data-driven approaches to address the many challenges and opportunities arising from migration. While data – including data from the private sector – holds significant potential value for informing analysis and targeted international and humanitarian response to (forced) migration, decision-makers often lack an actionable understanding of if, when and how data could be collected, processed, stored, analyzed, used, and shared in a responsible manner.

Data responsibility – including the responsibility to protect data and shield its subjects from harms, and the responsibility to leverage and share data when it can provide public value – is an emerging field seeking to go beyond just privacy concerns. The forced migration arena has a number of particularly important issues impacting responsible data approaches, including the risks of leveraging data regarding individuals fleeing a hostile or repressive government.

In this edition of the GovLab’s Selected Readings series, we examine the emerging literature on the data responsibility approaches in the refugee and forced migration space – part of an ongoing series focused on Data Responsibiltiy. The below reading list features annotated readings related to the Policy and Practice of data responsibility for refugees, and the specific responsibility challenges regarding Identity and Biometrics.

Data Responsibility and Refugees – Policy and Practice

International Organization for Migration (IOM) (2010) IOM Data Protection Manual. Geneva: IOM.

  • This IOM manual includes 13 data protection principles related to the following activities: lawful and fair collection, specified and legitimate purpose, data quality, consent, transfer to third parties, confidentiality, access and transparency, data security, retention and personal data, application of the principles, ownership of personal data, oversight, compliance and internal remedies (and exceptions).
  • For each principle, the IOM manual features targeted data protection guidelines, and templates and checklists are included to help foster practical application.

Norwegian Refugee Council (NRC) Internal Displacement Monitoring Centre / OCHA (eds.) (2008) Guidance on Profiling Internally Displaced Persons. Geneva: Inter-Agency Standing Committee.

  • This NRC document contains guidelines on gathering better data on Internally Displaced Persons (IDPs), based on country context.
  • IDP profile is defined as number of displaced persons, location, causes of displacement, patterns of displacement, and humanitarian needs among others.
  • It further states that collecting IDPs data is challenging and the current condition of IDPs data are hampering assistance programs.
  • Chapter I of the document explores the rationale for IDP profiling. Chapter II describes the who aspect of profiling: who IDPs are and common pitfalls in distinguishing them from other population groups. Chapter III describes the different methodologies that can be used in different contexts and suggesting some of the advantages and disadvantages of each, what kind of information is needed and when it is appropriate to profile.

United Nations High Commissioner for Refugees (UNHCR). Model agreement on the sharing of personal data with Governments in the context of hand-over of the refugee status determination process. Geneva: UNHCR.

  • This document from UNHCR provides a template of agreement guiding the sharing of data between a national government and UNHCR. The model agreement’s guidance is aimed at protecting the privacy and confidentiality of individual data while promoting improvements to service delivery for refugees.

United Nations High Commissioner for Refugees (UNHCR) (2015). Policy on the Protection of Personal Data of Persons of Concern to UNHCR. Geneva: UNHCR.

  • This policy outlines the rules and principles regarding the processing of personal data of persons engaged by UNHCR with the purpose of ensuring that the practice is consistent with UNGA’s regulation of computerized personal data files that was established to protect individuals’ data and privacy.
  • UNHCR require its personnel to apply the following principles when processing personal data: (i) Legitimate and fair processing (ii) Purpose specification (iii) Necessity and proportionality (iv) Accuracy (v) Respect for the rights of the data subject (vi) Confidentiality (vii) Security (viii) Accountability and supervision.

United Nations High Commissioner for Refugees (UNHCR) (2015) Privacy Impact Assessment of UNHCR Cash Based Interventions.

  • This impact assessment focuses on privacy issues related to financial assistance for refugees in the form of cash transfers. For international organizations like UNHCR to determine eligibility for cash assistance, data “aggregation, profiling, and social sorting techniques,” are often needed, leading a need for a responsible data approach.
  • This Privacy Impact Assessment (PIA) aims to identify the privacy risks posed by their program and seek to enhance safeguards that can mitigate those risks.
  • Key issues raised in the PIA involves the challenge of ensuring that individuals’ data will not be used for purposes other than those initially specified.

Data Responsibility in Identity and Biometrics

Bohlin, A. (2008) “Protection at the Cost of Privacy? A Study of the Biometric Registration of Refugees.” Lund: Faculty of Law of the University of Lund.

  • This 2008 study focuses on the systematic biometric registration of refugees conducted by UNHCR in refugee camps around the world, to understand whether enhancing the registration mechanism of refugees contributes to their protection and guarantee of human rights, or whether refugee registration exposes people to invasions of privacy.
  • Bohlin found that, at the time, UNHCR failed to put a proper safeguards in the case of data dissemination, exposing the refugees data to the risk of being misused. She goes on to suggest data protection regulations that could be put in place in order to protect refugees’ privacy.

Currion, Paul. (2018) “The Refugee Identity.” Medium.

  • Developed as part of a DFID-funded initiative, this essay considers Data Requirements for Service Delivery within Refugee Camps, with a particular focus on refugee identity.
  • Among other findings, Currion finds that since “the digitisation of aid has already begun…aid agencies must therefore pay more attention to the way in which identity systems affect the lives and livelihoods of the forcibly displaced, both positively and negatively.”
  • Currion argues that a Responsible Data approach, as opposed to a process defined by a Data Minimization principle, provides “useful guidelines,” but notes that data responsibility “still needs to be translated into organisational policy, then into institutional processes, and finally into operational practice.”

Farraj, A. (2010) “Refugees and the Biometric Future: The Impact of Biometrics on Refugees and Asylum Seekers.” Colum. Hum. Rts. L. Rev. 42 (2010): 891.

  • This article argues that biometrics help refugees and asylum seekers establish their identity, which is important for ensuring the protection of their rights and service delivery.
  • However, Farraj also describes several risks related to biometrics, such as, misidentification and misuse of data, leading to a need for proper approaches for the collection, storage, and utilization of the biometric information by government, international organizations, or other parties.  

GSMA (2017) Landscape Report: Mobile Money, Humanitarian Cash Transfers and Displaced Populations. London: GSMA.

  • This paper from GSMA seeks to evaluate how mobile technology can be helpful in refugee registration, cross-organizational data sharing, and service delivery processes.
  • One of its assessments is that the use of mobile money in a humanitarian context depends on the supporting regulatory environment that contributes to unlocking the true potential of mobile money. The examples include extension of SIM dormancy period to anticipate infrequent cash disbursements, ensuring that persons without identification are able to use the mobile money services, and so on.
  • Additionally, GMSA argues that mobile money will be most successful when there is an ecosystem to support other financial services such as remittances, airtime top-ups, savings, and bill payments. These services will be especially helpful in including displaced populations in development.

GSMA (2017) Refugees and Identity: Considerations for mobile-enabled registration and aid delivery. London: GSMA.

  • This paper emphasizes the importance of registration in the context of humanitarian emergency, because being registered and having a document that proves this registration is key in acquiring services and assistance.
  • Studying cases of Kenya and Iraq, the report concludes by providing three recommendations to improve mobile data collection and registration processes: 1) establish more flexible KYC for mobile money because where refugees are not able to meet existing requirements; 2) encourage interoperability and data sharing to avoid fragmented and duplicative registration management; and 3) build partnership and collaboration among governments, humanitarian organizations, and multinational corporations.

Jacobsen, Katja Lindskov (2015) “Experimentation in Humanitarian Locations: UNHCR and Biometric Registration of Afghan Refugees.” Security Dialogue, Vol 46 No. 2: 144–164.

  • In this article, Jacobsen studies the biometric registration of Afghan refugees, and considers how “humanitarian refugee biometrics produces digital refugees at risk of exposure to new forms of intrusion and insecurity.”

Jacobsen, Katja Lindskov (2017) “On Humanitarian Refugee Biometrics and New Forms of Intervention.” Journal of Intervention and Statebuilding, 1–23.

  • This article traces the evolution of the use of biometrics at the Office of the United Nations High Commissioner for Refugees (UNHCR) – moving from a few early pilot projects (in the early-to-mid-2000s) to the emergence of a policy in which biometric registration is considered a ‘strategic decision’.

Manby, Bronwen (2016) “Identification in the Context of Forced Displacement.” Washington DC: World Bank Group. Accessed August 21, 2017.

  • In this paper, Bronwen describes the consequences of not having an identity in a situation of forced displacement. It prevents displaced population from getting various services and creates higher chance of exploitation. It also lowers the effectiveness of humanitarian actions, as lacking identity prevents humanitarian organizations from delivering their services to the displaced populations.
  • Lack of identity can be both the consequence and and cause of forced displacement. People who have no identity can be considered illegal and risk being deported. At the same time, conflicts that lead to displacement can also result in loss of ID during travel.
  • The paper identifies different stakeholders and their interest in the case of identity and forced displacement, and finds that the biggest challenge for providing identity to refugees is the politics of identification and nationality.
  • Manby concludes that in order to address this challenge, there needs to be more effective coordination among governments, international organizations, and the private sector to come up with an alternative of providing identification and services to the displaced persons. She also argues that it is essential to ensure that national identification becomes a universal practice for states.

McClure, D. and Menchi, B. (2015). Challenges and the State of Play of Interoperability in Cash Transfer Programming. Geneva: UNHCR/World Vision International.

  • This report reviews the elements that contribute to the interoperability design for Cash Transfer Programming (CTP). The design framework offered here maps out these various features and also looks at the state of the problem and the state of play through a variety of use cases.
  • The study considers the current state of play and provides insights about the ways to address the multi-dimensionality of interoperability measures in increasingly complex ecosystems.     

NRC / International Human Rights Clinic (2016). Securing Status: Syrian refugees and the documentation of legal status, identity, and family relationships in Jordan.

  • This report examines Syrian refugees’ attempts to obtain identity cards and other forms of legally recognized documentation (mainly, Ministry of Interior Service Cards, or “new MoI cards”) in Jordan through the state’s Urban Verification Exercise (“UVE”). These MoI cards are significant because they allow Syrians to live outside of refugee camps and move freely about Jordan.
  • The text reviews the acquirement processes and the subsequent challenges and consequences that refugees face when unable to obtain documentation. Refugees can encounter issues ranging from lack of access to basic services to arrest, detention, forced relocation to camps and refoulement.  
  • Seventy-two Syrian refugee families in Jordan were interviewed in 2016 for this report and their experiences with obtaining MoI cards varied widely.

Office of Internal Oversight Services (2015). Audit of the operations in Jordan for the Office of the United Nations High Commissioner for Refugees. Report 2015/049. New York: UN.

  • This report documents the January 1, 2012 – March 31, 2014 audit of Jordanian operations, which is intended to ensure the effectiveness of the UNHCR Representation in the state.
  • The main goals of the Regional Response Plan for Syrian refugees included relieving the pressure on Jordanian services and resources while still maintaining protection for refugees.
  • The audit results concluded that the Representation was initially unsatisfactory, and the OIOS suggested several recommendations according to the two key controls which the Representation acknowledged. Those recommendations included:
    • Project management:
      • Providing training to staff involved in financial verification of partners supervise management
      • Revising standard operating procedure on cash based interventions
      • Establishing ways to ensure that appropriate criteria for payment of all types of costs to partners’ staff are included in partnership agreements
    • Regulatory framework:
      • Preparing annual need-based procurement plan and establishing adequate management oversight processes
      • Creating procedures for the assessment of renovation work in progress and issuing written change orders
      • Protecting data and ensuring timely consultation with the UNHCR Division of Financial and Administrative Management

UNHCR/WFP (2015). Joint Inspection of the Biometrics Identification System for Food Distribution in Kenya. Geneva: UNHCR/WFP.

  • This report outlines the partnership between the WFP and UNHCR in its effort to promote its biometric identification checking system to support food distribution in the Dadaab and Kakuma refugee camps in Kenya.
  • Both entities conducted a joint inspection mission in March 2015 and was considered an effective tool and a model for other country operations.
  • Still, 11 recommendations are proposed and responded to in this text to further improve the efficiency of the biometric system, including real-time evaluation of impact, need for automatic alerts, documentation of best practices, among others.

Making Better Use of Health Care Data


Benson S. Hsu, MD and Emily Griese in Harvard Business Review: “At Sanford Health, a $4.5 billion rural integrated health care system, we deliver care to over 2.5 million people in 300 communities across 250,000 square miles. In the process, we collect and store vast quantities of patient data – everything from admission, diagnostic, treatment and discharge data to online interactions between patients and providers, as well as data on providers themselves. All this data clearly represents a rich resource with the potential to improve care, but until recently was underutilized. The question was, how best to leverage it.

While we have a mature data infrastructure including a centralized data and analytics team, a standalone virtual data warehouse linking all data silos, and strict enterprise-wide data governance, we reasoned that the best way forward would be to collaborate with other institutions that had additional and complementary data capabilities and expertise.

We reached out to potential academic partners who were leading the way in data science, from university departments of math, science, and computer informatics to business and medical schools and invited them to collaborate with us on projects that could improve health care quality and lower costs. In exchange, Sanford created contracts that gave these partners access to data whose use had previously been constrained by concerns about data privacy and competitive-use agreements. With this access, academic partners are advancing their own research while providing real-world insights into care delivery.

The resulting Sanford Data Collaborative, now in its second year, has attracted regional and national partners and is already beginning to deliver data-driven innovations that are improving care delivery, patient engagement, and care access. Here we describe three that hold particular promise.

  • Developing Prescriptive Algorithms…
  • Augmenting Patient Engagement…
  • Improving Access to Care…(More)”.

Data Collaboratives can transform the way civil society organisations find solutions


Stefaan G. Verhulst at Disrupt & Innovate: “The need for innovation is clear: The twenty-first century is shaping up to be one of the most challenging in recent history. From climate change to income inequality to geopolitical upheaval and terrorism: the difficulties confronting International Civil Society Organisations (ICSOs) are unprecedented not only in their variety but also in their complexity. At the same time, today’s practices and tools used by ICSOs seem stale and outdated. Increasingly, it is clear, we need not only new solutions but new methods for arriving at solutions.

Data will likely become more central to meeting these challenges. We live in a quantified era. It is estimated that 90% of the world’s data was generated in just the last two years. We know that this data can help us understand the world in new ways and help us meet the challenges mentioned above. However, we need new data collaboration methods to help us extract the insights from that data.

UNTAPPED DATA POTENTIAL

For all of data’s potential to address public challenges, the truth remains that most data generated today is in fact collected by the private sector – including ICSOs who are often collecting a vast amount of data – such as, for instance, the International Committee of the Red Cross, which generates various (often sensitive) data related to humanitarian activities. This data, typically ensconced in tightly held databases toward maintaining competitive advantage or protecting from harmful intrusion, contains tremendous possible insights and avenues for innovation in how we solve public problems. But because of access restrictions and often limited data science capacity, its vast potential often goes untapped.

DATA COLLABORATIVES AS A SOLUTION

Data Collaboratives offer a way around this limitation. They represent an emerging public-private partnership model, in which participants from different areas — including the private sector, government, and civil society — come together to exchange data and pool analytical expertise.

While still an emerging practice, examples of such partnerships now exist around the world, across sectors and public policy domains. Importantly several ICSOs have started to collaborate with others around their own data and that of the private and public sector. For example:

  • Several civil society organisations, academics, and donor agencies are partnering in the Health Data Collaborative to improve the global data infrastructure necessary to make smarter global and local health decisions and to track progress against the Sustainable Development Goals (SDGs).
  • Additionally, the UN Office for the Coordination of Humanitarian Affairs (UNOCHA) built Humanitarian Data Exchange (HDX), a platform for sharing humanitarian from and for ICSOs – including Caritas, InterAction and others – donor agencies, national and international bodies, and other humanitarian organisations.

These are a few examples of Data Collaboratives that ICSOs are participating in. Yet, the potential for collaboration goes beyond these examples. Likewise, so do the concerns regarding data protection and privacy….(More)”.

How the Data That Internet Companies Collect Can Be Used for the Public Good


Stefaan G. Verhulst and Andrew Young at Harvard Business Review: “…In particular, the vast streams of data generated through social media platforms, when analyzed responsibly, can offer insights into societal patterns and behaviors. These types of behaviors are hard to generate with existing social science methods. All this information poses its own problems, of complexity and noise, of risks to privacy and security, but it also represents tremendous potential for mobilizing new forms of intelligence.

In a recent report, we examine ways to harness this potential while limiting and addressing the challenges. Developed in collaboration with Facebook, the report seeks to understand how public and private organizations can join forces to use social media data — through data collaboratives — to mitigate and perhaps solve some our most intractable policy dilemmas.

Data Collaboratives: Public-Private Partnerships for Our Data Age 

For all of data’s potential to address public challenges, most data generated today is collected by the private sector. Typically ensconced in corporate databases, and tightly held in order to maintain competitive advantage, this data contains tremendous possible insights and avenues for policy innovation. But because the analytical expertise brought to bear on it is narrow, and limited by private ownership and access restrictions, its vast potential often goes untapped.

Data collaboratives offer a way around this limitation. They represent an emerging public-private partnership model, in which participants from different areas , including the private sector, government, and civil society , can come together to exchange data and pool analytical expertise in order to create new public value. While still an emerging practice, examples of such partnerships now exist around the world, across sectors and public policy domains….

Professionalizing the Responsible Use of Private Data for Public Good

For all its promise, the practice of data collaboratives remains ad hoc and limited. In part, this is a result of the lack of a well-defined, professionalized concept of data stewardship within corporations. Today, each attempt to establish a cross-sector partnership built on the analysis of social media data requires significant and time-consuming efforts, and businesses rarely have personnel tasked with undertaking such efforts and making relevant decisions.

As a consequence, the process of establishing data collaboratives and leveraging privately held data for evidence-based policy making and service delivery is onerous, generally one-off, not informed by best practices or any shared knowledge base, and prone to dissolution when the champions involved move on to other functions.

By establishing data stewardship as a corporate function, recognized within corporations as a valued responsibility, and by creating the methods and tools needed for responsible data-sharing, the practice of data collaboratives can become regularized, predictable, and de-risked.

If early efforts toward this end — from initiatives such as Facebook’s Data for Good efforts in the social media space and MasterCard’s Data Philanthropy approach around finance data — are meaningfully scaled and expanded, data stewards across the private sector can act as change agents responsible for determining what data to share and when, how to protect data, and how to act on insights gathered from the data.

Still, many companies (and others) continue to balk at the prospect of sharing “their” data, which is an understandable response given the reflex to guard corporate interests. But our research has indicated that many benefits can accrue not only to data recipients but also to those who share it. Data collaboration is not a zero-sum game.

With support from the Hewlett Foundation, we are embarking on a two-year project toward professionalizing data stewardship (and the use of data collaboratives) and establishing well-defined data responsibility approaches. We invite others to join us in working to transform this practice into a widespread, impactful means of leveraging private-sector assets, including social media data, to create positive public-sector outcomes around the world….(More)”.