Visual Rulemaking


New York University Law Review Paper by Elizabeth G. Porter and Kathryn A. Watts: “Federal rulemaking has traditionally been understood as a text-bound, technocratic process. However, as this Article is the first to uncover, rulemaking stakeholders — including agencies, the President and members of the public — are now deploying politically tinged visuals to push their agendas at every stage of high-stakes, often virulently controversial, rulemakings. Rarely do these visual contributions appear in the official rulemaking record, which remains defined by dense text, lengthy cost-benefit analyses, and expert reports. Perhaps as a result, scholars have overlooked the phenomenon we identify here: the emergence of a visual rulemaking universe that is splashing images, GIFs, and videos across social media channels. While this new universe, which we call “visual rulemaking,” might appear to be wholly distinct from the textual rulemaking universe on which administrative law has long focused, the two are not in fact distinct. Visual politics are seeping into the technocracy.

This Article argues that visual rulemaking is a good thing. It furthers fundamental regulatory values, including transparency and political accountability. It may also facilitate participation by more diverse stakeholders — not merely regulatory insiders who are well-equipped to navigate dense text. Yet we recognize that visual rulemaking poses risks. Visual appeals may undermine the expert-driven foundation of the regulatory state, and some uses may threaten or outright violate key legal doctrines, including the Administrative Procedure Act and longstanding prohibitions on agency lobbying and propaganda. Nonetheless, we conclude that administrative law theory and doctrine ultimately can and should welcome this robust new visual rulemaking culture….(More)”

Why we no longer trust the experts


Gillian Tett in the Financial Times: “Last week, I decided to take a gaggle of kids for an end-of-school-year lunch in a New York neighbourhood that I did not know well. I duly began looking for a suitable restaurant. A decade ago, I would have done that by turning to a restaurant guide. In the world I grew up in, it was normal to seek advice from the “experts”.

But in Manhattan last week, it did not occur to me to consult Fodor’s. Instead, I typed what I needed into my cellphone, scrolled through a long list of online restaurant recommendations, including comments from people who had eaten in them — and picked one.

Yes, it was a leap of faith; those restaurant reviews might have been fake. But there were enough voices for me to feel able to trust the wisdom of the cyber crowds — and, as it happened, our lunch choice was very good.

This is a trivial example of a much bigger change that is under way, and one that has some thought-provoking implications in the wake of the Brexit vote. Before the referendum, British citizens were subjected to a blitz of advice about the potential costs of Brexit from “experts”: economists, central bankers, the International Monetary Fund and world leaders, among others. Indeed, the central strategy of the government (and other “Remainers”) appeared to revolve around wheeling out these experts, with their solemn speeches and statistics….

I suspect that it indicates something else: that citizens of the cyber world no longer have much faith in anything that experts say, not just in the political sphere but in numerous others too. At a time when we increasingly rely on crowd-sourced advice rather than official experts to choose a restaurant, healthcare and holidays, it seems strange to expect voters to listen to official experts when it comes to politics.

In our everyday lives, we are moving from a system based around vertical axes of trust, where we trust people who seem to have more authority than we do, to one predicated on horizontal axes of trust: we take advice from our peer group.

You can see this clearly if you look at the surveys conducted by groups such as the Pew Research Center. These show that faith in institutions such as the government, big business and the media has crumbled in recent years; indeed, almost the only institution in the US that has bucked the trend is the military.

What is even more interesting to look at, however, are the areas where trust remains high. In an annual survey conducted by the Edelman public relations firm, people in 20 countries are asked who they trust. They show rising confidence in the “a person like me” category, and surprisingly high trust in digital technology. We live in a world where we increasingly trust our Facebook friends and the Twitter crowd more than we do the IMF or the prime minister.

In some senses, this is good news. Relying on horizontal axes of trust should mean more democracy and empowerment for ordinary citizens. But the problem of this new world is that people can fall prey to social fads and tribalism — or groupthink…..

Either way, nobody is going to put this genie back into the bottle. So we all need to think about what creates the bonds of “trust” in today’s world. And recognise that the 20th-century model of politics, with its reverence for experts and fixed parties, may eventually seem as outdated as restaurant guides. We live in volatile time…(More)”

Post, Mine, Repeat: Social Media Data Mining Becomes Ordinary


Book by Helen Kennedy that “…argues that as social media data mining becomes more and more ordinary, as we post, mine and repeat, new data relations emerge. These new data relations are characterised by a widespread desire for numbers and the troubling consequences of this desire, and also by the possibility of doing good with data and resisting data power, by new and old concerns, and by instability and contradiction. Drawing on action research with public sector organisations, interviews with commercial social insights companies and their clients, focus groups with social media users and other research, Kennedy provides a fascinating and detailed account of living with social media data mining inside the organisations that make up the fabric of everyday life….(More)”

Social Networks and Protest Participation: Evidence from 93 Million Twitter Users


Paper by Jennifer Larson et al for Political Networks Workshops & Conference 2016: “Pinning down the role of social ties in the decision to protest has been notoriously elusive, largely due to data limitations. The era of social media and its global use by protesters offers an unprecedented opportunity to observe real-time social ties and online behavior, though often without an attendant measure of real-world behavior. We collect data on Twitter activity during the 2015 Charlie Hebdo protests in Paris which, unusually, record both real-world protest attendance and high-resolution network structure. We specify a theory of participation in which an individual’s decision depends on her exposure to others’ intentions, and network position determines exposure. Our findings are strong and consistent with this theory, showing that, relative to comparable Twitter users, protesters are significantly more connected to one another via direct, indirect, triadic, and reciprocated ties. These results offer the first large-scale empirical support for the claim that social network structure influences protest participation….(More)’

What Can Civic Tech Learn From Social Movements?


Stacy Donohue at Omidyar Network: “…In order to spur creative thinking about how the civic tech sector could be accelerated and expanded, we looked to Purpose, a public benefit corporation that works with NGOs, philanthropies, and brands on movement building strategies. We wanted to explore what we might learn from taking the work that Purpose has done mapping the progress of of 21st century social movements and applying its methodology to civic tech.

So why consider viewing civic tech using the lens of 21st century movements? Movements are engines of change in society that enable citizens to create new and better paths to engage with government and to seek recourse on issues that matter to millions of people.  At first glance, civic tech doesn’t appear to be a movement in the purest sense of the term, but on closer inspection, it does share some fundamental characteristics. Like a movement, civic tech is mission driven, is focused on making change that benefits the public, and in most cases enables better public input into decision making.

We believe that better understanding the essential components of movements, and observing the ways in which civic tech does or does not behave like one, can yield insights on how we as a civic tech community can collectively drive the sector forward….

report Engines of Change: What Civic Tech Can Learn From Social Movements….provides a lot of rich insight and detail which we invite everyone to explore.  Meanwhile, we have summarized five key findings:

  1. Grassroots activity is expanding across the US – Activity is no longer centralized around San Francisco and New York; it’s rapidly growing and spreading across the US – in fact, there was an 81% increase in the number of cities hosting civic tech MeetUps from 2013 to 2015, and 45 of 50 states had at least one MeetUp on civic tech in 2015.
  2. Talk is turning to action – We are walking the talk. One way we can see this is that growth in civic tech Twitter discussion is highly correlated with the growth in GitHub contributions to civic tech projects and related Meetup events. Between 2013-2015, over 8,500 people contributed code to GitHub civic tech projects and there were over 76,000 MeetUps for civic tech events. 
  3. There is an engaged core, but it is very small in number – As with most social movements, civic tech has a definite core of highly engaged evangelists, advocates and entrepreneurs that are driving conversations, activity, and events and this is growing. The number of Meetup groups holding multiple events a quarter grew by 136% between 2013 to 2015. And likewise there was a 60% growth in Engaged Tweeters in during this time period.  However, this level of activity is dwarfed by other movements such as climate action.
  4. Civic tech is growing but still lacking scale – There are many positive indications of growth in civic tech; for example, the combination of nonprofit and for-profit funding to the sector increased by almost 120% over the period.  But while growth compares favorably to other movements, again the scale just isn’t there.
  5. Common themes, but no shared vision or identity – Purpose examined the extent to which civic tech exhibits and articulates a shared vision or identity around which members of a movement can rally. What they found is that many fewer people are discussing the same shared set of themes. Two themes – Open Data and Government Transparency – are resonating and gaining traction across the sector and could therefore form the basis of common identity for civic tech.

While each of these insights is important in its own right and requires action to move the sector forward, the main thing that strikes us is the need for a coherent and clearly articulated vision and sense of shared identity for civic tech…

Read the full report: Engines of Change: What Civic Tech Can Learn From Social Movements

Explore the data tool here….(More)”

Evolving the IRB: Building Robust Review for Industry Research


Molly Jackman & Lauri Kanerva at Wash. & Lee L. Rev. Online : “Increasingly, companies are conducting research so that they can make informed decisions about what products to build and what features to change.These data-driven insights enable companies to make responsible decisions that will improve peoples’ experiences with their products. Importantly, companies must also be responsible in how they conduct research. Existing ethical guidelines for research do not always robustly address the considerations that industry researchers face. For this reason, companies should develop principles and practices around research that are appropriate to the environments in which they operate,taking into account the values set out in law and ethics. This paper describes the research review process designed and implemented at Facebook, including the training employees receive, and the steps involved in evaluating proposed research. We emphasize that there is no one-size-fits-all model of research review that can be applied across companies, and that processes should be designed to fit the contexts in which the research is taking place. However, we hope that general principles can be extracted from Facebook’s process that will inform other companies as they develop frameworks for research review that serve their needs….(More)”.

Are we too obsessed with data?


Lauren Woodman of Nethope:” Data: Everyone’s talking about it, everyone wants more of it….

Still, I’d posit that we’re too obsessed with data. Not just us in the humanitarian space, of course, but everyone. How many likes did that Facebook post get? How many airline miles did I fly last year? How many hours of sleep did I get last week?…

The problem is that data by itself isn’t that helpful: information is.

We need to develop a new obsession, around making sure that data is actionable, that it is relevant in the context in which we work, and on making sure that we’re using the data as effectively as we are collecting it.

In my talk at ICT4D, I referenced the example of 7-Eleven in Japan. In the 1970s, 7-Eleven in Japan became independent from its parent, Southland Corporation. The CEO had to build a viable business in a tough economy. Every month, each store manager would receive reams of data, but it wasn’t effective until the CEO stripped out the noise and provided just four critical data points that had the greatest relevance to drive the local purchasing that each store was empowered to do on their own.

Those points – what sold the day before, what sold the same day a year ago, what sold the last time the weather was the same, and what other stores sold the day before – were transformative. Within a year, 7-Eleven had turned a corner, and for 30 years, remained the most profitable retailer in Japan. It wasn’t about the Big Data; it was figuring out what data was relevant, actionable and empowered local managers to make nimble decisions.

For our sector to get there, we need to do the front-end work that transforms our data into information that we can use. That, after all, is where the magic happens.

A few examples provide more clarity as to why this is so critical.

We know that adaptive decision-making requires access to real-time data. By knowing what is happening in real-time, or near-real-time, we can adjust our approaches and interventions to be most impactful. But to do so, our data has to be accessible to those that are empowered to make decisions. To achieve that, we have to make investments in training, infrastructure, and capacity-building at the organizational level.  But in the nonprofit sector, such investments are rarely supported by donors and beyond the limited unrestricted funding available to most most organizations. As a result, the sector has, so far, been able to take only limited steps towards effective data usage, hampering our ability to transform the massive amounts of data we have into useful information.

Another big question about data, and particularly in the humanitarian space, is whether it should be open, closed or somewhere in between. Privacy is certainly paramount, and for types of data, the need for close protection is very clear. For many other data, however, the rules are far less clear. Every country has its own rules about how data can and cannot be used or shared, and more work is needed to provide clarity and predictability so that appropriate data-sharing can evolve.

And perhaps more importantly, we need to think about not just the data, but the use cases.  Most of us would agree, for example, that sharing information during a crisis situation can be hugely beneficial to the people and the communities we serve – but in a world where rules are unclear, that ambiguity limits what we can do with the data we have. Here again, the context in which data will be used is critically important.

Finally, all of in the sector have to realize that the journey to transforming data into information is one we’re on together. We have to be willing to give and take. Having data is great; sharing information is better. Sometimes, we have to co-create that basis to ensure we all benefit….(More)”

Revealing Cultural Ecosystem Services through Instagram Images


Paper by Paulina Guerrero, Maja Steen Møller, Anton Stahl Olafsson, and Bernhard Snizek on “The Potential of Social Media Volunteered Geographic Information for Urban Green Infrastructure Planning and Governance”: “With the prevalence of smartphones, new ways of engaging citizens and stakeholders in urban planning and governance are emerging. The technologies in smartphones allow citizens to act as sensors of their environment, producing and sharing rich spatial data useful for new types of collaborative governance set-ups. Data derived from Volunteered Geographic Information (VGI) can support accessible, transparent, democratic, inclusive, and locally-based governance situations of interest to planners, citizens, politicians, and scientists. However, there are still uncertainties about how to actually conduct this in practice. This study explores how social media VGI can be used to document spatial tendencies regarding citizens’ uses and perceptions of urban nature with relevance for urban green space governance. Via the hashtag #sharingcph, created by the City of Copenhagen in 2014, VGI data consisting of geo-referenced images were collected from Instagram, categorised according to their content and analysed according to their spatial distribution patterns. The results show specific spatial distributions of the images and main hotspots. Many possibilities and much potential of using VGI for generating, sharing, visualising and communicating knowledge about citizens’ spatial uses and preferences exist, but as a tool to support scientific and democratic interaction, VGI data is challenged by practical, technical and ethical concerns. More research is needed in order to better understand the usefulness and application of this rich data source to governance….(More)”

Selected Readings on Data Collaboratives


By Neil Britto, David Sangokoya, Iryna Susha, Stefaan Verhulst and Andrew Young

The Living Library’s Selected Readings series seeks to build a knowledge base on innovative approaches for improving the effectiveness and legitimacy of governance. This curated and annotated collection of recommended works on the topic of data collaboratives was originally published in 2017.

The term data collaborative refers to a new form of collaboration, beyond the public-private partnership model, in which participants from different sectors (including private companies, research institutions, and government agencies ) can exchange data to help solve public problems. Several of society’s greatest challenges — from addressing climate change to public health to job creation to improving the lives of children — require greater access to data, more collaboration between public – and private-sector entities, and an increased ability to analyze datasets. In the coming months and years, data collaboratives will be essential vehicles for harnessing the vast stores of privately held data toward the public good.

Selected Reading List (in alphabetical order)

Annotated Selected Readings List (in alphabetical order)

Agaba, G., Akindès, F., Bengtsson, L., Cowls, J., Ganesh, M., Hoffman, N., . . . Meissner, F. “Big Data and Positive Social Change in the Developing World: A White Paper for Practitioners and Researchers.” 2014. http://bit.ly/25RRC6N.

  • This white paper, produced by “a group of activists, researchers and data experts” explores the potential of big data to improve development outcomes and spur positive social change in low- and middle-income countries. Using examples, the authors discuss four areas in which the use of big data can impact development efforts:
    • Advocating and facilitating by “opening[ing] up new public spaces for discussion and awareness building;
    • Describing and predicting through the detection of “new correlations and the surfac[ing] of new questions;
    • Facilitating information exchange through “multiple feedback loops which feed into both research and action,” and
    • Promoting accountability and transparency, especially as a byproduct of crowdsourcing efforts aimed at “aggregat[ing] and analyz[ing] information in real time.
  • The authors argue that in order to maximize the potential of big data’s use in development, “there is a case to be made for building a data commons for private/public data, and for setting up new and more appropriate ethical guidelines.”
  • They also identify a number of challenges, especially when leveraging data made accessible from a number of sources, including private sector entities, such as:
    • Lack of general data literacy;
    • Lack of open learning environments and repositories;
    • Lack of resources, capacity and access;
    • Challenges of sensitivity and risk perception with regard to using data;
    • Storage and computing capacity; and
    • Externally validating data sources for comparison and verification.

Ansell, C. and Gash, A. “Collaborative Governance in Theory and Practice.” Journal of Public Administration Research and  Theory 18 (4), 2008. http://bit.ly/1RZgsI5.

  • This article describes collaborative arrangements that include public and private organizations working together and proposes a model for understanding an emergent form of public-private interaction informed by 137 diverse cases of collaborative governance.
  • The article suggests factors significant to successful partnering processes and outcomes include:
    • Shared understanding of challenges,
    • Trust building processes,
    • The importance of recognizing seemingly modest progress, and
    • Strong indicators of commitment to the partnership’s aspirations and process.
  • The authors provide a ‘’contingency theory model’’ that specifies relationships between different variables that influence outcomes of collaborative governance initiatives. Three “core contingencies’’ for successful collaborative governance initiatives identified by the authors are:
    • Time (e.g., decision making time afforded to the collaboration);
    • Interdependence (e.g., a high degree of interdependence can mitigate negative effects of low trust); and
    • Trust (e.g. a higher level of trust indicates a higher probability of success).

Ballivian A, Hoffman W. “Public-Private Partnerships for Data: Issues Paper for Data Revolution Consultation.” World Bank, 2015. Available from: http://bit.ly/1ENvmRJ

  • This World Bank report provides a background document on forming public-prviate partnerships for data with the private sector in order to inform the UN’s Independent Expert Advisory Group (IEAG) on sustaining a “data revolution” in sustainable development.
  • The report highlights the critical position of private companies within the data value chain and reflects on key elements of a sustainable data PPP: “common objectives across all impacted stakeholders, alignment of incentives, and sharing of risks.” In addition, the report describes the risks and incentives of public and private actors, and the principles needed to “build[ing] the legal, cultural, technological and economic infrastructures to enable the balancing of competing interests.” These principles include understanding; experimentation; adaptability; balance; persuasion and compulsion; risk management; and governance.
  • Examples of data collaboratives cited in the report include HP Earth Insights, Orange Data for Development Challenges, Amazon Web Services, IBM Smart Cities Initiative, and the Governance Lab’s Open Data 500.

Brack, Matthew, and Tito Castillo. “Data Sharing for Public Health: Key Lessons from Other Sectors.” Chatham House, Centre on Global Health Security. April 2015. Available from: http://bit.ly/1DHFGVl

  • The Chatham House report provides an overview on public health surveillance data sharing, highlighting the benefits and challenges of shared health data and the complexity in adapting technical solutions from other sectors for public health.
  • The report describes data sharing processes from several perspectives, including in-depth case studies of actual data sharing in practice at the individual, organizational and sector levels. Among the key lessons for public health data sharing, the report strongly highlights the need to harness momentum for action and maintain collaborative engagement: “Successful data sharing communities are highly collaborative. Collaboration holds the key to producing and abiding by community standards, and building and maintaining productive networks, and is by definition the essence of data sharing itself. Time should be invested in establishing and sustaining collaboration with all stakeholders concerned with public health surveillance data sharing.”
  • Examples of data collaboratives include H3Africa (a collaboration between NIH and Wellcome Trust) and NHS England’s care.data programme.

de Montjoye, Yves-Alexandre, Jake Kendall, and Cameron F. Kerry. “Enabling Humanitarian Use of Mobile Phone Data.” The Brookings Institution, Issues in Technology Innovation. November 2014. Available from: http://brook.gs/1JxVpxp

  • Using Ebola as a case study, the authors describe the value of using private telecom data for uncovering “valuable insights into understanding the spread of infectious diseases as well as strategies into micro-target outreach and driving update of health-seeking behavior.”
  • The authors highlight the absence of a common legal and standards framework for “sharing mobile phone data in privacy-conscientious ways” and recommend “engaging companies, NGOs, researchers, privacy experts, and governments to agree on a set of best practices for new privacy-conscientious metadata sharing models.”

Eckartz, Silja M., Hofman, Wout J., Van Veenstra, Anne Fleur. “A decision model for data sharing.” Vol. 8653 LNCS. Lecture Notes in Computer Science (including subseries Lecture Notes in Artificial Intelligence and Lecture Notes in Bioinformatics). 2014. http://bit.ly/21cGWfw.

  • This paper proposes a decision model for data sharing of public and private data based on literature review and three case studies in the logistics sector.
  • The authors identify five categories of the barriers to data sharing and offer a decision model for identifying potential interventions to overcome each barrier:
    • Ownership. Possible interventions likely require improving trust among those who own the data through, for example, involvement and support from higher management
    • Privacy. Interventions include “anonymization by filtering of sensitive information and aggregation of data,” and access control mechanisms built around identity management and regulated access.  
    • Economic. Interventions include a model where data is shared only with a few trusted organizations, and yield management mechanisms to ensure negative financial consequences are avoided.
    • Data quality. Interventions include identifying additional data sources that could improve the completeness of datasets, and efforts to improve metadata.
    • Technical. Interventions include making data available in structured formats and publishing data according to widely agreed upon data standards.

Hoffman, Sharona and Podgurski, Andy. “The Use and Misuse of Biomedical Data: Is Bigger Really Better?” American Journal of Law & Medicine 497, 2013. http://bit.ly/1syMS7J.

  • This journal articles explores the benefits and, in particular, the risks related to large-scale biomedical databases bringing together health information from a diversity of sources across sectors. Some data collaboratives examined in the piece include:
    • MedMining – a company that extracts EHR data, de-identifies it, and offers it to researchers. The data sets that MedMining delivers to its customers include ‘lab results, vital signs, medications, procedures, diagnoses, lifestyle data, and detailed costs’ from inpatient and outpatient facilities.
    • Explorys has formed a large healthcare database derived from financial, administrative, and medical records. It has partnered with major healthcare organizations such as the Cleveland Clinic Foundation and Summa Health System to aggregate and standardize health information from ten million patients and over thirty billion clinical events.
  • Hoffman and Podgurski note that biomedical databases populated have many potential uses, with those likely to benefit including: “researchers, regulators, public health officials, commercial entities, lawyers,” as well as “healthcare providers who conduct quality assessment and improvement activities,” regulatory monitoring entities like the FDA, and “litigants in tort cases to develop evidence concerning causation and harm.”
  • They argue, however, that risks arise based on:
    • The data contained in biomedical databases is surprisingly likely to be incorrect or incomplete;
    • Systemic biases, arising from both the nature of the data and the preconceptions of investigators are serious threats the validity of research results, especially in answering causal questions;
  • Data mining of biomedical databases makes it easier for individuals with political, social, or economic agendas to generate ostensibly scientific but misleading research findings for the purpose of manipulating public opinion and swaying policymakers.

Krumholz, Harlan M., et al. “Sea Change in Open Science and Data Sharing Leadership by Industry.” Circulation: Cardiovascular Quality and Outcomes 7.4. 2014. 499-504. http://1.usa.gov/1J6q7KJ

  • This article provides a comprehensive overview of industry-led efforts and cross-sector collaborations in data sharing by pharmaceutical companies to inform clinical practice.
  • The article details the types of data being shared and the early activities of GlaxoSmithKline (“in coordination with other companies such as Roche and ViiV”); Medtronic and the Yale University Open Data Access Project; and Janssen Pharmaceuticals (Johnson & Johnson). The article also describes the range of involvement in data sharing among pharmaceutical companies including Pfizer, Novartis, Bayer, AbbVie, Eli Llly, AstraZeneca, and Bristol-Myers Squibb.

Mann, Gideon. “Private Data and the Public Good.” Medium. May 17, 2016. http://bit.ly/1OgOY68.

    • This Medium post from Gideon Mann, the Head of Data Science at Bloomberg, shares his prepared remarks given at a lecture at the City College of New York. Mann argues for the potential benefits of increasing access to private sector data, both to improve research and academic inquiry and also to help solve practical, real-world problems. He also describes a number of initiatives underway at Bloomberg along these lines.    
  • Mann argues that data generated at private companies “could enable amazing discoveries and research,” but is often inaccessible to those who could put it to those uses. Beyond research, he notes that corporate data could, for instance, benefit:
      • Public health – including suicide prevention, addiction counseling and mental health monitoring.
    • Legal and ethical questions – especially as they relate to “the role algorithms have in decisions about our lives,” such as credit checks and resume screening.
  • Mann recognizes the privacy challenges inherent in private sector data sharing, but argues that it is a common misconception that the only two choices are “complete privacy or complete disclosure.” He believes that flexible frameworks for differential privacy could open up new opportunities for responsibly leveraging data collaboratives.

Pastor Escuredo, D., Morales-Guzmán, A. et al, “Flooding through the Lens of Mobile Phone Activity.” IEEE Global Humanitarian Technology Conference, GHTC 2014. Available from: http://bit.ly/1OzK2bK

  • This report describes the impact of using mobile data in order to understand the impact of disasters and improve disaster management. The report was conducted in the Mexican state of Tabasco in 2009 as a multidisciplinary, multi-stakeholder consortium involving the UN World Food Programme (WFP), Telefonica Research, Technical University of Madrid (UPM), Digital Strategy Coordination Office of the President of Mexico, and UN Global Pulse.
  • Telefonica Research, a division of the major Latin American telecommunications company, provided call detail records covering flood-affected areas for nine months. This data was combined with “remote sensing data (satellite images), rainfall data, census and civil protection data.” The results of the data demonstrated that “analysing mobile activity during floods could be used to potentially locate damaged areas, efficiently assess needs and allocate resources (for example, sending supplies to affected areas).”
  • In addition to the results, the study highlighted “the value of a public-private partnership on using mobile data to accurately indicate flooding impacts in Tabasco, thus improving early warning and crisis management.”

* Perkmann, M. and Schildt, H. “Open data partnerships between firms and universities: The role of boundary organizations.” Research Policy, 44(5), 2015. http://bit.ly/25RRJ2c

  • This paper discusses the concept of a “boundary organization” in relation to industry-academic partnerships driven by data. Boundary organizations perform mediated revealing, allowing firms to disclose their research problems to a broad audience of innovators and simultaneously minimize the risk that this information would be adversely used by competitors.
  • The authors identify two especially important challenges for private firms to enter open data or participate in data collaboratives with the academic research community that could be addressed through more involvement from boundary organizations:
    • First is a challenge of maintaining competitive advantage. The authors note that, “the more a firm attempts to align the efforts in an open data research programme with its R&D priorities, the more it will have to reveal about the problems it is addressing within its proprietary R&D.”
    • Second, involves the misalignment of incentives between the private and academic field. Perkmann and Schildt argue that, a firm seeking to build collaborations around its opened data “will have to provide suitable incentives that are aligned with academic scientists’ desire to be rewarded for their work within their respective communities.”

Robin, N., Klein, T., & Jütting, J. “Public-Private Partnerships for Statistics: Lessons Learned, Future Steps.” OECD. 2016. http://bit.ly/24FLYlD.

  • This working paper acknowledges the growing body of work on how different types of data (e.g, telecom data, social media, sensors and geospatial data, etc.) can address data gaps relevant to National Statistical Offices (NSOs).
  • Four models of public-private interaction for statistics are describe: in-house production of statistics by a data-provider for a national statistics office (NSO), transfer of data-sets to NSOs from private entities, transfer of data to a third party provider to manage the NSO and private entity data, and the outsourcing of NSO functions.
  • The paper highlights challenges to public-private partnerships involving data (e.g., technical challenges, data confidentiality, risks, limited incentives for participation), suggests deliberate and highly structured approaches to public-private partnerships involving data require enforceable contracts, emphasizes the trade-off between data specificity and accessibility of such data, and the importance of pricing mechanisms that reflect the capacity and capability of national statistic offices.
  • Case studies referenced in the paper include:
    • A mobile network operator’s (MNO Telefonica) in house analysis of call detail records;
    • A third-party data provider and steward of travel statistics (Positium);
    • The Data for Development (D4D) challenge organized by MNO Orange; and
    • Statistics Netherlands use of social media to predict consumer confidence.

Stuart, Elizabeth, Samman, Emma, Avis, William, Berliner, Tom. “The data revolution: finding the missing millions.” Overseas Development Institute, 2015. Available from: http://bit.ly/1bPKOjw

  • The authors of this report highlight the need for good quality, relevant, accessible and timely data for governments to extend services into underrepresented communities and implement policies towards a sustainable “data revolution.”
  • The solutions focused on this recent report from the Overseas Development Institute focus on capacity-building activities of national statistical offices (NSOs), alternative sources of data (including shared corporate data) to address gaps, and building strong data management systems.

Taylor, L., & Schroeder, R. “Is bigger better? The emergence of big data as a tool for international development policy.” GeoJournal, 80(4). 2015. 503-518. http://bit.ly/1RZgSy4.

  • This journal article describes how privately held data – namely “digital traces” of consumer activity – “are becoming seen by policymakers and researchers as a potential solution to the lack of reliable statistical data on lower-income countries.
  • They focus especially on three categories of data collaborative use cases:
    • Mobile data as a predictive tool for issues such as human mobility and economic activity;
    • Use of mobile data to inform humanitarian response to crises; and
    • Use of born-digital web data as a tool for predicting economic trends, and the implications these have for LMICs.
  • They note, however, that a number of challenges and drawbacks exist for these types of use cases, including:
    • Access to private data sources often must be negotiated or bought, “which potentially means substituting negotiations with corporations for those with national statistical offices;”
    • The meaning of such data is not always simple or stable, and local knowledge is needed to understand how people are using the technologies in question
    • Bias in proprietary data can be hard to understand and quantify;
    • Lack of privacy frameworks; and
    • Power asymmetries, wherein “LMIC citizens are unwittingly placed in a panopticon staffed by international researchers, with no way out and no legal recourse.”

van Panhuis, Willem G., Proma Paul, Claudia Emerson, John Grefenstette, Richard Wilder, Abraham J. Herbst, David Heymann, and Donald S. Burke. “A systematic review of barriers to data sharing in public health.” BMC public health 14, no. 1 (2014): 1144. Available from: http://bit.ly/1JOBruO

  • The authors of this report provide a “systematic literature of potential barriers to public health data sharing.” These twenty potential barriers are classified in six categories: “technical, motivational, economic, political, legal and ethical.” In this taxonomy, “the first three categories are deeply rooted in well-known challenges of health information systems for which structural solutions have yet to be found; the last three have solutions that lie in an international dialogue aimed at generating consensus on policies and instruments for data sharing.”
  • The authors suggest the need for a “systematic framework of barriers to data sharing in public health” in order to accelerate access and use of data for public good.

Verhulst, Stefaan and Sangokoya, David. “Mapping the Next Frontier of Open Data: Corporate Data Sharing.” In: Gasser, Urs and Zittrain, Jonathan and Faris, Robert and Heacock Jones, Rebekah, “Internet Monitor 2014: Reflections on the Digital World: Platforms, Policy, Privacy, and Public Discourse (December 15, 2014).” Berkman Center Research Publication No. 2014-17. http://bit.ly/1GC12a2

  • This essay describe a taxonomy of current corporate data sharing practices for public good: research partnerships; prizes and challenges; trusted intermediaries; application programming interfaces (APIs); intelligence products; and corporate data cooperatives or pooling.
  • Examples of data collaboratives include: Yelp Dataset Challenge, the Digital Ecologies Research Partnerhsip, BBVA Innova Challenge, Telecom Italia’s Big Data Challenge, NIH’s Accelerating Medicines Partnership and the White House’s Climate Data Partnerships.
  • The authors highlight important questions to consider towards a more comprehensive mapping of these activities.

Verhulst, Stefaan and Sangokoya, David, 2015. “Data Collaboratives: Exchanging Data to Improve People’s Lives.” Medium. Available from: http://bit.ly/1JOBDdy

  • The essay refers to data collaboratives as a new form of collaboration involving participants from different sectors exchanging data to help solve public problems. These forms of collaborations can improve people’s lives through data-driven decision-making; information exchange and coordination; and shared standards and frameworks for multi-actor, multi-sector participation.
  • The essay cites four activities that are critical to accelerating data collaboratives: documenting value and measuring impact; matching public demand and corporate supply of data in a trusted way; training and convening data providers and users; experimenting and scaling existing initiatives.
  • Examples of data collaboratives include NIH’s Precision Medicine Initiative; the Mobile Data, Environmental Extremes and Population (MDEEP) Project; and Twitter-MIT’s Laboratory for Social Machines.

Verhulst, Stefaan, Susha, Iryna, Kostura, Alexander. “Data Collaboratives: matching Supply of (Corporate) Data to Solve Public Problems.” Medium. February 24, 2016. http://bit.ly/1ZEp2Sr.

  • This piece articulates a set of key lessons learned during a session at the International Data Responsibility Conference focused on identifying emerging practices, opportunities and challenges confronting data collaboratives.
  • The authors list a number of privately held data sources that could create positive public impacts if made more accessible in a collaborative manner, including:
    • Data for early warning systems to help mitigate the effects of natural disasters;
    • Data to help understand human behavior as it relates to nutrition and livelihoods in developing countries;
    • Data to monitor compliance with weapons treaties;
    • Data to more accurately measure progress related to the UN Sustainable Development Goals.
  • To the end of identifying and expanding on emerging practice in the space, the authors describe a number of current data collaborative experiments, including:
    • Trusted Intermediaries: Statistics Netherlands partnered with Vodafone to analyze mobile call data records in order to better understand mobility patterns and inform urban planning.
    • Prizes and Challenges: Orange Telecom, which has been a leader in this type of Data Collaboration, provided several examples of the company’s initiatives, such as the use of call data records to track the spread of malaria as well as their experience with Challenge 4 Development.
    • Research partnerships: The Data for Climate Action project is an ongoing large-scale initiative incentivizing companies to share their data to help researchers answer particular scientific questions related to climate change and adaptation.
    • Sharing intelligence products: JPMorgan Chase shares macro economic insights they gained leveraging their data through the newly established JPMorgan Chase Institute.
  • In order to capitalize on the opportunities provided by data collaboratives, a number of needs were identified:
    • A responsible data framework;
    • Increased insight into different business models that may facilitate the sharing of data;
    • Capacity to tap into the potential value of data;
    • Transparent stock of available data supply; and
    • Mapping emerging practices and models of sharing.

Vogel, N., Theisen, C., Leidig, J. P., Scripps, J., Graham, D. H., & Wolffe, G. “Mining mobile datasets to enable the fine-grained stochastic simulation of Ebola diffusion.” Paper presented at the Procedia Computer Science. 2015. http://bit.ly/1TZDroF.

  • The paper presents a research study conducted on the basis of the mobile calls records shared with researchers in the framework of the Data for Development Challenge by the mobile operator Orange.
  • The study discusses the data analysis approach in relation to developing a situation of Ebola diffusion built around “the interactions of multi-scale models, including viral loads (at the cellular level), disease progression (at the individual person level), disease propagation (at the workplace and family level), societal changes in migration and travel movements (at the population level), and mitigating interventions (at the abstract government policy level).”
  • The authors argue that the use of their population, mobility, and simulation models provide more accurate simulation details in comparison to high-level analytical predictions and that the D4D mobile datasets provide high-resolution information useful for modeling developing regions and hard to reach locations.

Welle Donker, F., van Loenen, B., & Bregt, A. K. “Open Data and Beyond.” ISPRS International Journal of Geo-Information, 5(4). 2016. http://bit.ly/22YtugY.

  • This research has developed a monitoring framework to assess the effects of open (private) data using a case study of a Dutch energy network administrator Liander.
  • Focusing on the potential impacts of open private energy data – beyond ‘smart disclosure’ where citizens are given information only about their own energy usage – the authors identify three attainable strategic goals:
    • Continuously optimize performance on services, security of supply, and costs;
    • Improve management of energy flows and insight into energy consumption;
    • Help customers save energy and switch over to renewable energy sources.
  • The authors propose a seven-step framework for assessing the impacts of Liander data, in particular, and open private data more generally:
    • Develop a performance framework to describe what the program is about, description of the organization’s mission and strategic goals;
    • Identify the most important elements, or key performance areas which are most critical to understanding and assessing your program’s success;
    • Select the most appropriate performance measures;
    • Determine the gaps between what information you need and what is available;
    • Develop and implement a measurement strategy to address the gaps;
    • Develop a performance report which highlights what you have accomplished and what you have learned;
    • Learn from your experiences and refine your approach as required.
  • While the authors note that the true impacts of this open private data will likely not come into view in the short term, they argue that, “Liander has successfully demonstrated that private energy companies can release open data, and has successfully championed the other Dutch network administrators to follow suit.”

World Economic Forum, 2015. “Data-driven development: pathways for progress.” Geneva: World Economic Forum. http://bit.ly/1JOBS8u

  • This report captures an overview of the existing data deficit and the value and impact of big data for sustainable development.
  • The authors of the report focus on four main priorities towards a sustainable data revolution: commercial incentives and trusted agreements with public- and private-sector actors; the development of shared policy frameworks, legal protections and impact assessments; capacity building activities at the institutional, community, local and individual level; and lastly, recognizing individuals as both produces and consumers of data.

Refugees and the Technology of Exile


David Lepeska in Wilson Quaterly: “While working for a Turkish tech firm, Akil learned how to program for mobile phones, and decided to make a smartphone app to help Syrians get all the information they need to build new lives in Turkey. In early 2014, he and a friend launched Gherbtna, named for an Arabic word referring to the loneliness of foreign exile….

About one-tenth of the 2.7 million Syrians in Turkey live in refugee camps. The rest fend for themselves, mostly in big cities. Now that they look set to stay in Turkey for some time, their need to settle and build stable, secure lives is much more acute. This may explain why downloads of Gherbtna more than doubled in the past six months. “We started this project to help people, and when we have reached all Syrian refugees, to help them find jobs, housing, whatever they need to build a new life in Turkey, then we have achieved our goal,” said Akil. “Our ultimate dream for Gherbtna is to reach all refugees around the world, and help them.”

Humanity is currently facing its greatest refugee crisis since World War II, with more than 60 million people forced from their homes. Much has been written about their use of technology — how Google Maps, WhatsApp, Facebook, and other tools have proven invaluable to the displaced and desperate. But helping refugees find their way, connect with family, or read the latest updates about route closings is one thing. Enabling them to grasp minute legal details, find worthwhile jobs and housing, enroll their children in school, and register for visas and benefits when they don’t understand the local tongue is another.

Due to its interpretation of the 1951 Geneva Convention on refugees, Ankara does not categorize Syrians in Turkey as refugees, nor does it accord them the pursuant rights and advantages. Instead, it has given them the unusual legal status of temporary guests, which means that they cannot apply for asylum and that Turkey can send them back to their countries of origin whenever it likes. What’s more, the laws and processes that apply to Syrians have been less than transparent and have changed several times. Despite all this — or perhaps because of it — government outreach has been minimal. Turkey has spent some $10 billion on refugees, and it distributes Arabic-language brochures at refugee camps and in areas with many Syrian residents. Yet it has created no Arabic-language website, app, or other online tool to communicate the relevant laws, permits, and legal changes to Syrians and other refugees.

Independent apps targeting these hurdles have begun to proliferate. Gherbtna’s main competitor in Turkey is the recently launched Alfanus (“Lantern” in Arabic), which its Syrian creators call an “Arab’s Guide to Turkey.” Last year, Souktel, a Palestinian mobile solutions firm, partnered with the international arm of the American Bar Association to launch a text-message service that provides legal information to Arabic speakers in Turkey. Norway is running a competition to develop a game-based learning app to educate Syrian refugee children. German programmers created Germany Says Welcome and the similar Welcome App Dresden. And Akil’s tech firm, Namaa Solutions, recently launched Tarjemly Live, a live translation app for English, Arabic, and Turkish.

But the extent to which these technologies have succeeded — have actually helped Syrians adjust and build new lives in Turkey, in particular — is in doubt. Take Gherbtna. The app has nine tools, including Video, Laws, Alerts, Find a Job, and “Ask me.” It offers restaurant and job listings; advice on getting a residence permit, opening a bank account, or launching a business; and much more. Like Souktel, Gherbtna has partnered with the American Bar Association to provide translations of Turkish laws. The app has been downloaded about 50,000 times, or by about 5 percent of Syrians in Turkey. (It is safe to assume, however, that a sizable percentage of refugees do not have smartphones.) Yet among two dozen Gherbtna users recently interviewed in Gaziantep and Istanbul — two Turkish cities with the most dense concentration of Syrians — most found it lacking. Many appreciate Gherbtna’s one-stop-shop appeal, but find little cause to keep using it. ”…(More)”