Understanding how to build a social licence for using novel linked datasets for planning and research in Kent, Surrey and Sussex: results of deliberative focus groups.

Curated on Posted on by Stefaan Verhulst

Paper by Elizabeth Ford et al: “Digital programmes in the newly created NHS integrated care boards (ICBs) in the United Kingdom mean that curation and linkage of anonymised patient data is underway in many areas for the first time. In Kent, Surrey and Sussex (KSS), in Southeast England, public health teams want to use these datasets to answer strategic population health questions, but public expectations around use of patient data are unknown….We aimed to engage with citizens of KSS to gather their views and expectations of data linkage and re-use, through deliberative discussions…
We held five 3-hour deliberative focus groups with 79 citizens of KSS, presenting information about potential uses of data, safeguards, and mechanisms for public involvement in governance and decision making about datasets. After each presentation, participants discussed their views in facilitated small groups which were recorded, transcribed and analysed thematically…
The focus groups generated 15 themes representing participants’ views on the benefits, risks and values for safeguarding linked data. Participants largely supported use of patient data to improve health service efficiency and resource management, preventative services and out of hospital care, joined-up services and information flows. Most participants expressed concerns about data accuracy, breaches and hacking, and worried about commercial use of data. They suggested that transparency of data usage through audit trails and clear information about accountability, ensuring data re-use does not perpetuate stigma and discrimination, ongoing, inclusive and valued involvement of the public in dataset decision-making, and a commitment to building trust, would meet their expectations for responsible data use…
Participants were largely favourable about the proposed uses of patient linked datasets but expected a commitment to transparency and public involvement. Findings were mapped to previous tenets of social license and can be used to inform ICB digital programme teams on how to proceed with use of linked datasets in a trustworthy and socially acceptable way…(More)”.

Citizen Participation and Knowledge Support in Urban Public Energy Transition—A Quadruple Helix Perspective

Curated on Posted on by Stefaan Verhulst

Paper by Peter Nijkamp et al: “Climate change, energy transition needs and the current energy crisis have prompted cities to implement far-reaching changes in public energy supply. The present paper seeks to map out the conditions for sustainable energy provision and use, with a particular view to the role of citizens in a quadruple helix context. Citizen participation is often seen as a sine qua non for a successful local or district energy policy in an urban area but needs due scientific and digital support based on evidence-based knowledge (using proper user-oriented techniques such as Q-analysis). The paper sets out to explore the citizen engagement and knowledge base for drastic energy transitions in the city based on the newly developed “diabolo” model, in which in particular digital tools (e.g., dashboards, digital twins) are proposed as useful tools for the interface between citizens and municipal policy. The approach adopted in this paper is empirically illustrated for local energy policy in the city of Rotterdam…(More)”.

Social media is too important to be so opaque with its data

Curated on Posted on by Stefaan Verhulst

Article by Alex González Ormerod: “Over 50 people were killed by the police during demonstrations in Peru. Brazil is reeling from a coup attempt in its capital city. The residents of Culiacán, a city in northern Mexico, still cower in their houses after the army swooped in to arrest a cartel kingpin. Countries across Latin America have kicked off the year with turmoil. 

It is almost a truism to say that the common factor in these events has been the role of social media. Far-right radicals in Brazil were seen to be openly organizing and spreading fake news about electoral fraud on Twitter. Peruvians used TikTok to bear witness to police brutality, preserving it for posterity.

Dealing with the aftermath of the crises, in Culiacán, Sinaloans shared crucial info as to where roadblocks continued to burn, and warned about shootouts in certain neighborhoods. Brazilians opened up Instagram and other social channels to compile photos and other evidence that might help the police bring the Brasília rioters to justice.

These events could be said to have happened online as much as they did offline, yet we know next to nothing about the inner workings of the platforms they occurred on.

People covering these platforms face a common refrain: After reaching out for basic social media data, they will often get a reply saying, “Unfortunately we do not have the information you need at this time.” (This particular quote came from Alberto de Golin, a PR agency representative for TikTok Mexico)…(More)”

Why Europe must embrace participatory policymaking

Curated on Posted on by Stefaan Verhulst

Article by Alberto Alemanno, Claire Davenport, and Laura Batalla: “Today, Europe faces many threats – from economic uncertainty and war on its eastern borders to the rise of illiberal democracies and popular reactionary politicians.

As Europe recovers from the pandemic and grapples with economic and social unrest, it is at an inflection point; it can either create new spaces to build trust and a sense of shared purpose between citizens and governments, or it can continue to let its democratic institutions erode and distrust grow. 

The scale of such problems requires novel problem-solving and new perspectives, including those from civil society and citizens. Increased opportunities for citizens to engage with policymakers can lend legitimacy and accountability to traditionally ‘opaque’ policymaking processes. The future of the bloc hinges on its ability to not only sustain democratic institutions but to do so with buy-in from constituents.

Yet policymaking in the EU is often understood as a technocratic process that the public finds difficult, if not impossible, to navigate. The Spring 2022 Eurobarometer found that just 53% of respondents believed their voice counts in the EU. The issue is compounded by a lack of political literacy coupled with a dearth of channels for participation or co-creation. 

In parallel, there is a strong desire from citizens to make their voices heard. A January 2022 Special Eurobarometer on the Future of Europe found that 90% of respondents agreed that EU citizens’ voices should be taken more into account during decision-making. The Russian war in Ukraine has strengthened public support for the EU as a whole. According to the Spring 2022 Eurobarometer, 65% of Europeans view EU membership as a good thing. 

This is not to say that the EU has no existing models for citizen engagement. The European Citizens Initiative – a mechanism for petitioning the Commission to propose new laws – is one example of existing infrastructure. There is also an opportunity to build on the success of The Conference on the Future of Europe, a gathering held this past spring that gave citizens the opportunity to contribute policy recommendations and justifications alongside traditional EU policymakers…(More)”

Report on the Future of Conferences

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Arxiv Report by Steven Fraser and Dennis Mancl: “In 2020, virtual conferences became almost the only alternative to cancellation. Now that the pandemic is subsiding, the pros and cons of virtual conferences need to be reevaluated. In this report, we scrutinize the dynamics and economics of conferences and highlight the history of successful virtual meetings in industry. We also report on the attitudes of conference attendees from an informal survey we ran in spring 2022…(More).

The Protection and Promotion of Civic Space

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OECD Report: “The past decade has seen increasing international recognition of civic space as a cornerstone of functioning democracies, alongside efforts to promote and protect it. Countries that foster civic space are better placed to reap the many benefits of higher levels of citizen engagement, strengthened transparency and accountability, and empowered citizens and civil society. In the longer term, a vibrant civic space can help to improve government effectiveness and responsiveness, contribute to more citizen-centred policies, and boost social cohesion. This first OECD comparative report on civic space offers a baseline of data from 33 OECD Members and 19 non-Members and a nuanced overview of the different dimensions of civic space, with a focus on civic freedoms, media freedoms, civic space in the digital age, and the enabling environment for civil society. It provides an exhaustive review of legal frameworks, policies, strategies, and institutional arrangements, in addition to implementation gaps, trends and good practices. The analysis is complemented by a review of international standards and guidance, in addition to data and analysis from civil society and other stakeholders…(More)”.

All Eyes on Them: A Field Experiment on Citizen Oversight and Electoral Integrity

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Paper by Natalia Garbiras-Díaz and Mateo Montenegro: “Can information and communication technologies help citizens monitor their elections? We analyze a large-scale field experiment designed to answer this question in Colombia. We leveraged Facebook advertisements sent to over 4 million potential voters to encourage citizen reporting of electoral irregularities. We also cross-randomized whether candidates were informed about the campaign in a subset of municipalities. Total reports, and evidence-backed ones, experienced a large increase. Across a wide array of measures, electoral irregularities decreased. Finally, the reporting campaign reduced the vote share of candidates dependent on irregularities. This light-touch intervention is more cost-effective than monitoring efforts traditionally used by policymakers…(More)”.

Virtual Public Involvement: Lessons from the COVID-19 Pandemic

Curated on Posted on by Stefaan Verhulst

Report by the National Academies: “During the COVID-19 pandemic, transportation agencies’ most used public-engagement tools were virtual public meetings, social media, dedicated project websites or webpages, email blasts, and electronic surveys. As the pandemic subsides, virtual and hybrid models continue to provide opportunities and challenges.

The TRB National Cooperative Highway Research Program’s NCHRP Web-Only Document 349: Virtual Public Involvement: Lessons from the COVID-19 Pandemic discusses gaps that need to be addressed so that transportation agencies can better use virtual tools and techniques to facilitate two-way communication with the public…(More)”.

A catalyst for community-wide action on sustainable development

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Article by Communities around the world are increasingly recognizing that breaking down silos and leveraging shared resources and interdependencies across economic, social, and environmental issues can help accelerate progress on multiple issues simultaneously. As a framework for organizing local development priorities, the world’s 17 Sustainable Development Goals (SDGs) uniquely combine a need for broad technical expertise with an opportunity to synergize across domains—all while adhering to the principle of leaving no one behind. For local leaders attempting to tackle intersecting issues using the SDGs, one underpinning question is how to support new forms of collaboration to maximize impact and progress?

In early May, over 100 people across the East Central Florida (ECF) region in the U.S. participated in “Partnership for the Goals: Creating a Resilient and Thriving Community,” a two-day multi-stakeholder convening spearheaded by a team of local leaders from the East Central Florida Regional Resilience Collaborative (ECFR2C), the Central Florida Foundation, the City of Orlando, Florida for Good, Orange County, and the University of Central Florida. The convening grew out of a multi-year resilience planning process that leveraged the SDGs as a framework for tackling local economic, social, and environmental priorities all at once.

To move from community-wide planning to community-wide action, the organizers experimented with a 17 Rooms process—a new approach to accelerating collaborative action for the SDGs pioneered by the Center for Sustainable Development at Brookings and The Rockefeller Foundation. We collaborated with the ECF local organizing team and, in the process, spotted a range of more broadly relevant insights that we describe here…(More)”.

Learnings on the Importance of Youth Engagement

Curated on Posted on by Stefaan Verhulst

Blog by  Anna Ibru and Dane Gambrell at The GovLab: “…In recent years, public institutions around the world are piloting new youth engagement initiatives like Creamos that tap the expertise and experiences of young people to develop projects, programs, and policies and address complex social challenges within communities. 

To learn from and scale best practices from international models of youth engagement, The GovLab has develop case studies about three path breaking initiatives: Nuortenbudjetti, Helsinki’s participatory budgeting initiative for youth; Forum Jove BCN, Barcelona’s youth led citizens’ assembly; and Creamos, an open innovation and coaching program for young social innovators in Chile. For government decision makers and institutions who are looking to engage and empower young people to get involved in their communities, develop real-world solutions, and strengthen democracy, these examples describe these initiatives and their outcomes along with guidance on how to design and replicate such projects in your community. Young people are still a widely untapped resource who are too-often left out in policy and program design. The United Nations affirms that it is impossible to meet the UN SDGs by 2030 without active participation of the 1.8 billion youth in the world. Government decision makers and institutions must capitalize on the opportunity to engage and empower young people. The successes of Nuortenbudjetti, Forum Jove BCN, and Creamos provide a roadmap for policymakers looking to engage in this space….(More)” See also:  Nuortenbudjetti: Helsinki’s Youth Budget; Creamos: Co-creating youth-led social innovation projects in Chile and Forum Jove BCN: Barcelona’s Youth Forum.

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