Sharing Health Data: The Why, the Will, and the Way Forward.

Curated on Posted on by Stefaan Verhulst

Book edited by Grossmann C, Chua PS, Ahmed M, et al. : “Sharing health data and information1 across stakeholder groups is the bedrock of a learning health system. As data and information are increasingly combined across various sources, their generative value to transform health, health care, and health equity increases significantly. Facilitating this potential is an escalating surge of digital technologies (i.e., cloud computing, broadband and wireless solutions, digital health technologies, and application programming interfaces [APIs]) that, with each successive generation, not only enhance data sharing, but also improve in their ability to preserve privacy and identify and mitigate cybersecurity risks. These technological advances, coupled with notable policy developments, new interoperability standards (particularly the Fast Healthcare Interoperability Resources [FHIR] standard), and the launch of innovative payment models within the last decade, have resulted in a greater recognition of the value of health data sharing among patients, providers, and researchers. Consequently, a number of data sharing collaborations are emerging across the health care ecosystem.

Unquestionably, the COVID-19 pandemic has had a catalytic effect on this trend. The criticality of swift data exchange became evident at the outset of the pandemic, when the scientific community sought answers about the novel SARS-CoV-2 virus and emerging disease. Then, as the crisis intensified, data sharing graduated from a research imperative to a societal one, with a clear need to urgently share and link data across multiple sectors and industries to curb the effects of the pandemic and prevent the next one.

In spite of these evolving attitudes toward data sharing and the ubiquity of data-sharing partnerships, barriers persist. The practice of health data sharing occurs unevenly, prominent in certain stakeholder communities while absent in others. A stark contrast is observed between the volume, speed, and frequency with which health data is aggregated and linked—oftentimes with non-traditional forms of health data—for marketing purposes, and the continuing challenges patients experience in contributing data to their own health records. In addition, there are varying levels of data sharing. Not all types of data are shared in the same manner and at the same level of granularity, creating a patchwork of information. As highlighted by the gaps observed in the haphazard and often inadequate sharing of race and ethnicity data during the pandemic, the consequences can be severe—impacting the allocation of much-needed resources and attention to marginalized communities. Therefore, it is important to recognize the value of data sharing in which stakeholder participation is equitable and comprehensive— not only for achieving a future ideal state in health care, but also for redressing long-standing inequities…(More)”

Who Wrote This? How AI and the Lure of Efficiency Threaten Human Writing

Curated on Posted on by Stefaan Verhulst

Book by Naomi S. Baron: “Would you read this book if a computer wrote it? Would you even know? And why would it matter?

Today’s eerily impressive artificial intelligence writing tools present us with a crucial challenge: As writers, do we unthinkingly adopt AI’s time-saving advantages or do we stop to weigh what we gain and lose when heeding its siren call? To understand how AI is redefining what it means to write and think, linguist and educator Naomi S. Baron leads us on a journey connecting the dots between human literacy and today’s technology. From nineteenth-century lessons in composition, to mathematician Alan Turing’s work creating a machine for deciphering war-time messages, to contemporary engines like ChatGPT, Baron gives readers a spirited overview of the emergence of both literacy and AI, and a glimpse of their possible future. As the technology becomes increasingly sophisticated and fluent, it’s tempting to take the easy way out and let AI do the work for us. Baron cautions that such efficiency isn’t always in our interest. As AI plies us with suggestions or full-blown text, we risk losing not just our technical skills but the power of writing as a springboard for personal reflection and unique expression.

Funny, informed, and conversational, Who Wrote This? urges us as individuals and as communities to make conscious choices about the extent to which we collaborate with AI. The technology is here to stay. Baron shows us how to work with AI and how to spot where it risks diminishing the valuable cognitive and social benefits of being literate…(More)”.

Computing the Climate: How We Know What We Know About Climate Change

Curated on Posted on by Stefaan Verhulst

Book by Steve M. Easterbrook: “How do we know that climate change is an emergency? How did the scientific community reach this conclusion all but unanimously, and what tools did they use to do it? This book tells the story of climate models, tracing their history from nineteenth-century calculations on the effects of greenhouse gases, to modern Earth system models that integrate the atmosphere, the oceans, and the land using the full resources of today’s most powerful supercomputers. Drawing on the author’s extensive visits to the world’s top climate research labs, this accessible, non-technical book shows how computer models help to build a more complete picture of Earth’s climate system. ‘Computing the Climate’ is ideal for anyone who has wondered where the projections of future climate change come from – and why we should believe them…(More)”.

The Coming Wave

Curated on Posted on by Stefaan Verhulst

Book by Mustafa Suleyman and Michael Bhaskar: “Soon you will live surrounded by AIs. They will organise your life, operate your business, and run core government services. You will live in a world of DNA printers and quantum computers, engineered pathogens and autonomous weapons, robot assistants and abundant energy.

None of us are prepared.

As co-founder of the pioneering AI company DeepMind, part of Google, Mustafa Suleyman has been at the centre of this revolution. The coming decade, he argues, will be defined by this wave of powerful, fast-proliferating new technologies.

In The Coming Wave, Suleyman shows how these forces will create immense prosperity but also threaten the nation-state, the foundation of global order. As our fragile governments sleepwalk into disaster, we face an existential dilemma: unprecedented harms on one side and the threat of overbearing surveillance on the other…(More)”.

Data Is Everybody’s Business

Curated on Posted on by Stefaan Verhulst

Book by Barbara H. Wixom, Cynthia M. Beath and Leslie Owens: “Most organizations view data monetization—converting data into money—too narrowly: as merely selling data sets. But data monetization is a core business activity for both commercial and noncommercial organizations, and, within organizations, it’s critical to have wide-ranging support for this pursuit. In Data Is Everybody’s Business, the authors offer a clear and engaging way for people across the entire organization to understand data monetization and make it happen. The authors identify three viable ways to convert data into money—improving work with data, wrapping products with data, and selling information offerings—and explain when to pursue each and how to succeed…(More)”.

On Disinformation: How to Fight for Truth and Protect Democracy

Curated on Posted on by Stefaan Verhulst

Book by Lee McIntyre: “The effort to destroy facts and make America ungovernable didn’t come out of nowhere. It is the culmination of seventy years of strategic denialism. In On Disinformation, Lee McIntyre shows how the war on facts began, and how ordinary citizens can fight back against the scourge of disinformation that is now threatening the very fabric of our society. Drawing on his twenty years of experience as a scholar of science denial, McIntyre explains how autocrats wield disinformation to manipulate a populace and deny obvious realities, why the best way to combat disinformation is to disrupt its spread, and most importantly, how we can win the war on truth.

McIntyre takes readers through the history of strategic denialism to show how we arrived at this precarious political moment and identifies the creators, amplifiers, and believers of disinformation. Along the way, he also demonstrates how today’s “reality denial” follows the same flawed blueprint of the “five steps of science denial” used by climate deniers and anti-vaxxers; shows how Trump has emulated disinformation tactics created by Russian and Soviet intelligence dating back to the 1920s; provides interviews with leading experts on information warfare, counterterrorism, and political extremism; and spells out the need for algorithmic transparency from Facebook, Twitter, and YouTube. On Disinformation lays out ten everyday practical steps that we can take as ordinary citizens—from resisting polarization to pressuring our Congresspeople to regulate social media—as well as the important steps our government (if we elect the right leaders) must take.

Compact, easy-to-read (and then pass on to a friend), and never more urgent, On Disinformation does nothing less than empower us with the tools and knowledge needed to save our republic from autocracy before it is too late…(More)”.

Digital Empires: The Global Battle to Regulate Technology

Curated on Posted on by Stefaan Verhulst

Book by Anu Bradford: “The global battle among the three dominant digital powers—the United States, China, and the European Union—is intensifying. All three regimes are racing to regulate tech companies, with each advancing a competing vision for the digital economy while attempting to expand its sphere of influence in the digital world. In Digital Empires, her provocative follow-up to The Brussels Effect, Anu Bradford explores a rivalry that will shape the world in the decades to come.

Across the globe, people dependent on digital technologies have become increasingly alarmed that their rapid adoption and transformation have ushered in an exceedingly concentrated economy where a few powerful companies control vast economic wealth and political power, undermine data privacy, and widen the gap between economic winners and losers. In response, world leaders are variously embracing the idea of reining in the most dominant tech companies. Bradford examines three competing regulatory approaches—the American market-driven model, the Chinese state-driven model, and the European rights-driven regulatory model—and discusses how governments and tech companies navigate the inevitable conflicts that arise when these regulatory approaches collide in the international domain. Which digital empire will prevail in the contest for global influence remains an open question, yet their contrasting strategies are increasingly clear.

Digital societies are at an inflection point. In the midst of these unfolding regulatory battles, governments, tech companies, and digital citizens are making important choices that will shape the future ethos of the digital society. Digital Empires lays bare the choices we face as societies and individuals, explains the forces that shape those choices, and illuminates the immense stakes involved for everyone who uses digital technologies….(More)”

The Age of Prediction: Algorithms, AI, and the Shifting Shadows of Risk

Curated on Posted on by Stefaan Verhulst

Book by Igor Tulchinsky and Christopher E. Mason: “… about two powerful, and symbiotic, trends: the rapid development and use of artificial intelligence and big data to enhance prediction, as well as the often paradoxical effects of these better predictions on our understanding of risk and the ways we live. Beginning with dramatic advances in quantitative investing and precision medicine, this book explores how predictive technology is quietly reshaping our world in fundamental ways, from crime fighting and warfare to monitoring individual health and elections.

As prediction grows more robust, it also alters the nature of the accompanying risk, setting up unintended and unexpected consequences. The Age of Prediction details how predictive certainties can bring about complacency or even an increase in risks—genomic analysis might lead to unhealthier lifestyles or a GPS might encourage less attentive driving. With greater predictability also comes a degree of mystery, and the authors ask how narrower risks might affect markets, insurance, or risk tolerance generally. Can we ever reduce risk to zero? Should we even try? This book lays an intriguing groundwork for answering these fundamental questions and maps out the latest tools and technologies that power these projections into the future, sometimes using novel, cross-disciplinary tools to map out cancer growth, people’s medical risks, and stock dynamics…(More)”.

The Design of Digital Democracy

Curated on Posted on by Stefaan Verhulst

Book by Gianluca Sgueo: “Ever-stronger ties between technology, entertainment and design are transforming our relationship with democratic decision-making. When we are online, or when we use digital products and services, we tend to focus more on certain factors like speed of service and user-friendliness, and to overlook the costs – both for ourselves and others. As a result, a widening gap separates our expectations of everything related to digitalization – including government – and the actual practice of democratic governance. Democratic regulators, unable to meet citizens’ demands for tangible, fast and gratifying returns, are seeing the poorest results ever recorded in terms of interest, engagement and retention, despite using the most cutting-edge technologies.

This book explores various aspects of the relationship between democracy, technology and entertainment. These include, on the one hand, the role that digital technology has in strengthening our collective intelligence, nurturing empathic relations between citizens and democratic institutions, and supporting processes of political aggregation, deliberation and collaboration. On the other hand, they comprise the challenges accompanying digital technology for representation, transparency and inclusivity in democratic decision-making.

The book’s main argument is that digital democratic spaces should be redesigned to narrow the gap between the expectations and outcomes of democratic decision-making. It suggests abandoning the notion of digital participatory rights as being fast and easy to enjoy. It also refutes the notion that digital democratic decision-making can only be effective when it delivers rapid and successful responses to the issues of the day, regardless of their complexity.

Ultimately, the success or failure of digital democracy will depend on the ability of public regulators to design digital public spaces with a commitment to complexity, so as to make them appealing, but also effective at engaging citizens…(More)”.

The Legal Singularity

Curated on Posted on by Stefaan Verhulst

Book by Abdi Aidid and Benjamin Alarie: “…argue that the proliferation of artificial intelligence–enabled technology – and specifically the advent of legal prediction – is on the verge of radically reconfiguring the law, our institutions, and our society for the better.

Revealing the ways in which our legal institutions underperform and are expensive to administer, the book highlights the negative social consequences associated with our legal status quo. Given the infirmities of the current state of the law and our legal institutions, the silver lining is that there is ample room for improvement. With concerted action, technology can help us to ameliorate the problems of the law and improve our legal institutions. Inspired in part by the concept of the “technological singularity,” The Legal Singularity presents a future state in which technology facilitates the functional “completeness” of law, where the law is at once extraordinarily more complex in its specification than it is today, and yet operationally, the law is vastly more knowable, fairer, and clearer for its subjects. Aidid and Alarie describe the changes that will culminate in the legal singularity and explore the implications for the law and its institutions…(More)”.