Paper by Cristina Legido-Quigley et al: “Contemporary healthcare is undergoing a transition, shifting from a population-based approach to personalized medicine on an individual level. In October 2023, the European Partnership for Personalized Medicine was officially launched to communicate the benefits of this approach to citizens and healthcare systems in member countries. The main debate revolves around the inconsistency in regulatory changes within personal data access and its potential commercialization. Moreover, the lack of unified consensus within European Union (EU) countries is leading to problems with data sharing to progress personalized medicine. Here we discuss the integration of biological data with personal information on a European scale for the advancement of personalized medicine, raising legal considerations of data protection under the EU General Data Protection Regulation (GDPR)…(More)”.
Governance of Indigenous data in open earth systems science
Paper by Lydia Jennings et al: “In the age of big data and open science, what processes are needed to follow open science protocols while upholding Indigenous Peoples’ rights? The Earth Data Relations Working Group (EDRWG), convened to address this question and envision a research landscape that acknowledges the legacy of extractive practices and embraces new norms across Earth science institutions and open science research. Using the National Ecological Observatory Network (NEON) as an example, the EDRWG recommends actions, applicable across all phases of the data lifecycle, that recognize the sovereign rights of Indigenous Peoples and support better research across all Earth Sciences…(More)”
Facing & mitigating common challenges when working with real-world data: The Data Learning Paradigm
Paper by Jake Lever et al: “The rapid growth of data-driven applications is ubiquitous across virtually all scientific domains, and has led to an increasing demand for effective methods to handle data deficiencies and mitigate the effects of imperfect data. This paper presents a guide for researchers encountering real-world data-driven applications, and the respective challenges associated with this. This article proposes the concept of the Data Learning Paradigm, combining the principles of machine learning, data science and data assimilation to tackle real-world challenges in data-driven applications. Models are a product of the data upon which they are trained, and no data collected from real world scenarios is perfect due to natural limitations of sensing and collection. Thus, computational modelling of real world systems is intrinsically limited by the various deficiencies encountered in real data. The Data Learning Paradigm aims to leverage the strengths of data improvement to enhance the accuracy, reliability, and interpretability of data-driven models. We outline a range of methods which are currently being implemented in the field of Data Learning involving machine learning and data science methods, and discuss how these mitigate the various problems associated with data-driven models, illustrating improved results in a multitude of real world applications. We highlight examples where these methods have led to significant advancements in fields such as environmental monitoring, planetary exploration, healthcare analytics, linguistic analysis, social networks, and smart manufacturing. We offer a guide to how these methods may be implemented to deal with general types of limitations in data, alongside their current and potential applications…(More)”.
Sortition: Past and Present
Introduction to the Journal of Sortition: “Since ancient times sortition (random selection by lot) has been used both to distribute political office and as a general prophylactic against factionalism and corruption in societies as diverse as classical-era Athens and the Most Serene Republic of Venice. Lotteries have also been employed for the allocation of scarce goods such as social housing and school places to eliminate bias and ensure just distribution, along with drawing lots in circumstances where unpopular tasks or tragic choices are involved (as some situations are beyond rational human decision-making). More recently, developments in public opinion polling using random sampling have led to the proliferation of citizens’ assemblies selected by lot. Some activists have even proposed such bodies as an alternative to elected representatives. The Journal of Sortition benefits from an editorial board with a wide range of expertise and perspectives in this area. In this introduction to the first issue, we have invited our editors to explain why they are interested in sortition, and to outline the benefits (and pitfalls) of the recent explosion of interest in the topic…(More)”.
Digitalizing sewage: The politics of producing, sharing, and operationalizing data from wastewater-based surveillance
Paper by Josie Wittmer, Carolyn Prouse, and Mohammed Rafi Arefin: “Expanded during the COVID-19 pandemic, Wastewater-Based Surveillance (WBS) is now heralded by scientists and policy makers alike as the future of monitoring and governing urban health. The expansion of WBS reflects larger neoliberal governance trends whereby digitalizing states increasingly rely on producing big data as a ‘best practice’ to surveil various aspects of everyday life. With a focus on three South Asian cities, our paper investigates the transnational pathways through which WBS data is produced, made known, and operationalized in ‘evidence-based’ decision-making in a time of crisis. We argue that in South Asia, wastewater surveillance data is actively produced through fragile but power-laden networks of transnational and local knowledge, funding, and practices. Using mixed qualitative methods, we found these networks produced artifacts like dashboards to communicate data to the public in ways that enabled claims to objectivity, ethical interventions, and transparency. Interrogating these representations, we demonstrate how these artifacts open up messy spaces of translation that trouble linear notions of objective data informing accountable, transparent, and evidence-based decision-making for diverse urban actors. By thinking through the production of precarious biosurveillance infrastructures, we respond to calls for more robust ethical and legal frameworks for the field and suggest that the fragility of WBS infrastructures has important implications for the long-term trajectories of urban public health governance in the global South…(More)”
Theorizing the functions and patterns of agency in the policymaking process
Paper by Giliberto Capano, et al: “Theories of the policy process understand the dynamics of policymaking as the result of the interaction of structural and agency variables. While these theories tend to conceptualize structural variables in a careful manner, agency (i.e. the actions of individual agents, like policy entrepreneurs, policy leaders, policy brokers, and policy experts) is left as a residual piece in the puzzle of the causality of change and stability. This treatment of agency leaves room for conceptual overlaps, analytical confusion and empirical shortcomings that can complicate the life of the empirical researcher and, most importantly, hinder the ability of theories of the policy process to fully address the drivers of variation in policy dynamics. Drawing on Merton’s concept of function, this article presents a novel theorization of agency in the policy process. We start from the assumption that agency functions are a necessary component through which policy dynamics evolve. We then theorise that agency can fulfil four main functions – steering, innovation, intermediation and intelligence – that need to be performed, by individual agents, in any policy process through four patterns of action – leadership, entrepreneurship, brokerage and knowledge accumulation – and we provide a roadmap for operationalising and measuring these concepts. We then demonstrate what can be achieved in terms of analytical clarity and potential theoretical leverage by applying this novel conceptualisation to two major policy process theories: the Multiple Streams Framework (MSF) and the Advocacy Coalition Framework (ACF)…(More)”.
Behaviour-based dependency networks between places shape urban economic resilience
Paper by Takahiro Yabe et al: “Disruptions, such as closures of businesses during pandemics, not only affect businesses and amenities directly but also influence how people move, spreading the impact to other businesses and increasing the overall economic shock. However, it is unclear how much businesses depend on each other during disruptions. Leveraging human mobility data and same-day visits in five US cities, we quantify dependencies between points of interest encompassing businesses, stores and amenities. We find that dependency networks computed from human mobility exhibit significantly higher rates of long-distance connections and biases towards specific pairs of point-of-interest categories. We show that using behaviour-based dependency relationships improves the predictability of business resilience during shocks by around 40% compared with distance-based models, and that neglecting behaviour-based dependencies can lead to underestimation of the spatial cascades of disruptions. Our findings underscore the importance of measuring complex relationships in patterns of human mobility to foster urban economic resilience to shocks…(More)”.
Big brother: the effects of surveillance on fundamental aspects of social vision
Paper by Kiley Seymour et al: “Despite the dramatic rise of surveillance in our societies, only limited research has examined its effects on humans. While most research has focused on voluntary behaviour, no study has examined the effects of surveillance on more fundamental and automatic aspects of human perceptual awareness and cognition. Here, we show that being watched on CCTV markedly impacts a hardwired and involuntary function of human sensory perception—the ability to consciously detect faces. Using the method of continuous flash suppression (CFS), we show that when people are surveilled (N = 24), they are quicker than controls (N = 30) to detect faces. An independent control experiment (N = 42) ruled out an explanation based on demand characteristics and social desirability biases. These findings show that being watched impacts not only consciously controlled behaviours but also unconscious, involuntary visual processing. Our results have implications concerning the impacts of surveillance on basic human cognition as well as public mental health…(More)”.
Data solidarity: Operationalising public value through a digital tool
Paper by Seliem El-Sayed, Ilona Kickbusch & Barbara Prainsack: “Most data governance frameworks are designed to protect the individuals from whom data originates. However, the impacts of digital practices extend to a broader population and are embedded in significant power asymmetries within and across nations. Further, inequities in digital societies impact everyone, not just those directly involved. Addressing these challenges requires an approach which moves beyond individual data control and is grounded in the values of equity and a just contribution of benefits and risks from data use. Solidarity-based data governance (in short: data solidarity), suggests prioritising data uses over data type and proposes that data uses that generate public value should be actively facilitated, those that generate significant risks and harms should be prohibited or strictly regulated, and those that generate private benefits with little or no public value should be ‘taxed’ so that profits generated by corporate data users are reinvested in the public domain. In the context of global health data governance, the public value generated by data use is crucial. This contribution clarifies the meaning, importance, and potential of public value within data solidarity and outlines methods for its operationalisation through the PLUTO tool, specifically designed to assess the public value of data uses…(More)”.
The AI tool that can interpret any spreadsheet instantly
Article by Duncan C. McElfresh: “Say you run a hospital and you want to estimate which patients have the highest risk of deterioration so that your staff can prioritize their care1. You create a spreadsheet in which there is a row for each patient, and columns for relevant attributes, such as age or blood-oxygen level. The final column records whether the person deteriorated during their stay. You can then fit a mathematical model to these data to estimate an incoming patient’s deterioration risk. This is a classic example of tabular machine learning, a technique that uses tables of data to make inferences. This usually involves developing — and training — a bespoke model for each task. Writing in Nature, Hollmann et al.report a model that can perform tabular machine learning on any data set without being trained specifically to do so.
Tabular machine learning shares a rich history with statistics and data science. Its methods are foundational to modern artificial intelligence (AI) systems, including large language models (LLMs), and its influence cannot be overstated. Indeed, many online experiences are shaped by tabular machine-learning models, which recommend products, generate advertisements and moderate social-media content3. Essential industries such as healthcare and finance are also steadily, if cautiously, moving towards increasing their use of AI.
Despite the field’s maturity, Hollmann and colleagues’ advance could be revolutionary. The authors’ contribution is known as a foundation model, which is a general-purpose model that can be used in a range of settings. You might already have encountered foundation models, perhaps unknowingly, through AI tools, such as ChatGPT and Stable Diffusion. These models enable a single tool to offer varied capabilities, including text translation and image generation. So what does a foundation model for tabular machine learning look like?
Let’s return to the hospital example. With spreadsheet in hand, you choose a machine-learning model (such as a neural network) and train the model with your data, using an algorithm that adjusts the model’s parameters to optimize its predictive performance (Fig. 1a). Typically, you would train several such models before selecting one to use — a labour-intensive process that requires considerable time and expertise. And of course, this process must be repeated for each unique task.
