Paper by Mark Ryan, Can Atik, Kelly Rijswijk, Marc-Jeroen Bogaardt, Eva Maes & Ella Deroo: “n 2018, the EU Code of Conduct of Agricultural Data Sharing by Contractual Agreement (EUCC) was published. This voluntary initiative is considered a basis for rights and responsibilities for data sharing in the agri-food sector, with a specific farmer orientation. While the involved industry associations agreed on its content, there are limited insights into how and to what extent the EUCC has been received and implemented within the sector. In 2024, the Data Act was introduced, a horizontal legal framework that aims to enforce specific legal requirements for data sharing across sectors. Yet, it remains to be seen if it will be the ultimate solution for the agricultural sector, as some significant agricultural data access issues remain. It is thus essential to determine if the EUCC may still play a significant role to address sector-specific issues in line with the horizontal rules of the Data Act. During six workshops across Europe with 89 stakeholders, we identified how the EUCC has been (1) received by stakeholders, (2) implemented, and (3) its future use (particularly in response to the Data Act). Based on the workshop results and continued engagements with researchers and stakeholders, we conclude that the EUCC is still an important document for the agricultural sector but should be updated in response to the content of the Data Act. Hence we propose the following improvements to the EUCC: 1. Provide clear, practical examples for applying the EUCC combined with the Data Act; 2. Generate model contractual terms based on the EUCC provisions; 3. Clarify GDPR-centric concepts like anonymisation and pseudonymisation in the agricultural data-sharing setting; 4. Develop a functional enforcement and implementation framework; and 5. Play a role in increasing interoperability and trust among stakeholders…(More)”
It’s time we put agency into Behavioural Public Policy
Article by Sanchayan Banerjee et al: “Promoting agency – people’s ability to form intentions and to act on them freely – must become a primary objective for Behavioural Public Policy (BPP). Contemporary BPPs do not directly pursue this objective, which is problematic for many reasons. From an ethical perspective, goals like personal autonomy and individual freedom cannot be realised without nurturing citizens’ agency. From an efficacy standpoint, BPPs that override agency – for example, by activating automatic psychological processes – leave citizens ‘in the dark’, incapable of internalising and owning the process of behaviour change. This may contribute to non-persistent treatment effects, compensatory negative spillovers or psychological reactance and backfiring effects. In this paper, we argue agency-enhancing BPPs can alleviate these ethical and efficacy limitations to longer-lasting and meaningful behaviour change. We set out philosophical arguments to help us understand and conceptualise agency. Then, we review three alternative agency-enhancing behavioural frameworks: (1) boosts to enhance people’s competences to make better decisions; (2) debiasing to encourage people to reduce the tendency for automatic, impulsive responses; and (3) nudge+ to enable citizens to think alongside nudges and evaluate them transparently. Using a multi-dimensional framework, we highlight differences in their workings, which offer comparative insights and complementarities in their use. We discuss limitations of agency-enhancing BPPs and map out future research directions…(More)”.
The Complexities of Differential Privacy for Survey Data
Paper by Jörg Drechsler & James Bailie: “The concept of differential privacy (DP) has gained substantial attention in recent years, most notably since the U.S. Census Bureau announced the adoption of the concept for its 2020 Decennial Census. However, despite its attractive theoretical properties, implementing DP in practice remains challenging, especially when it comes to survey data. In this paper we present some results from an ongoing project funded by the U.S. Census Bureau that is exploring the possibilities and limitations of DP for survey data. Specifically, we identify five aspects that need to be considered when adopting DP in the survey context: the multi-staged nature of data production; the limited privacy amplification from complex sampling designs; the implications of survey-weighted estimates; the weighting adjustments for nonresponse and other data deficiencies, and the imputation of missing values. We summarize the project’s key findings with respect to each of these aspects and also discuss some of the challenges that still need to be addressed before DP could become the new data protection standard at statistical agencies…(More)”.
Artificial Intelligence for the Internal Democracy of Political Parties
Paper by Claudio Novelli et al: “The article argues that AI can enhance the measurement and implementation of democratic processes within political parties, known as Intra-Party Democracy (IPD). It identifies the limitations of traditional methods for measuring IPD, which often rely on formal parameters, self-reported data, and tools like surveys. Such limitations lead to partial data collection, rare updates, and significant resource demands. To address these issues, the article suggests that specific data management and Machine Learning techniques, such as natural language processing and sentiment analysis, can improve the measurement and practice of IPD…(More)”.
Toward a citizen science framework for public policy evaluation
Paper by Giovanni Esposito et al: “This study pioneers the use of citizen science in evaluating Freedom of Information laws, with a focus on Belgium, where since its 1994 enactment, Freedom of Information’s effectiveness has remained largely unexamined. Utilizing participatory methods, it engages citizens in assessing transparency policies, significantly contributing to public policy evaluation methodology. The research identifies regional differences in Freedom of Information implementation across Belgian municipalities, highlighting that larger municipalities handle requests more effectively, while administrations generally show reluctance to respond to requests from perceived knowledgeable individuals. This phenomenon reflects a broader European caution toward well-informed requesters. By integrating citizen science, this study not only advances our understanding of Freedom of Information law effectiveness in Belgium but also advocates for a more inclusive, collaborative approach to policy evaluation. It addresses the gap in researchers’ experience with citizen science, showcasing its vast potential to enhance participatory governance and policy evaluation…(More)”.
Private sector trust in data sharing: enablers in the European Union
Paper by Jaime Bernal: “Enabling private sector trust stands as a critical policy challenge for the success of the EU Data Governance Act and Data Act in promoting data sharing to address societal challenges. This paper attributes the widespread trust deficit to the unmanageable uncertainty that arises from businesses’ limited usage control to protect their interests in the face of unacceptable perceived risks. For example, a firm may hesitate to share its data with others in case it is leaked and falls into the hands of business competitors. To illustrate this impasse, competition, privacy, and reputational risks are introduced, respectively, in the context of three suboptimal approaches to data sharing: data marketplaces, data collaboratives, and data philanthropy. The paper proceeds by analyzing seven trust-enabling mechanisms comprised of technological, legal, and organizational elements to balance trust, risk, and control and assessing their capacity to operate in a fair, equitable, and transparent manner. Finally, the paper examines the regulatory context in the EU and the advantages and limitations of voluntary and mandatory data sharing, concluding that an approach that effectively balances the two should be pursued…(More)”.
Collaboration in Healthcare: Implications of Data Sharing for Secondary Use in the European Union
Paper by Fanni Kertesz: “The European healthcare sector is transforming toward patient-centred and value-based healthcare delivery. The European Health Data Space (EHDS) Regulation aims to unlock the potential of health data by establishing a single market for its primary and secondary use. This paper examines the legal challenges associated with the secondary use of health data within the EHDS and offers recommendations for improvement. Key issues include the compatibility between the EHDS and the General Data Protection Regulation (GDPR), barriers to cross-border data sharing, and intellectual property concerns. Resolving these challenges is essential for realising the full potential of health data and advancing healthcare research and innovation within the EU…(More)”.
Geographies of missing data: Spatializing counterdata production against feminicide
Paper by Catherine D’Ignazio et al: “Feminicide is the gender-related killing of cisgender and transgender women and girls. It reflects patriarchal and racialized systems of oppression and reveals how territories and socio-economic landscapes configure everyday gender-related violence. In recent decades, many grassroots data production initiatives have emerged with the aim of monitoring this extreme but invisibilized phenomenon. We bridge scholarship in feminist and information geographies with data feminism to examine the ways in which space, broadly defined, shapes the counterdata production strategies of feminicide data activists. Drawing on a qualitative study of 33 monitoring efforts led by civil society organizations across 15 countries, primarily in Latin America, we provide a conceptual framework for examining the spatial dimensions of data activism. We show how there are striking transnational patterns related to where feminicide goes unrecorded, resulting in geographies of missing data. In response to these omissions, activists deploy multiple spatialized strategies to make these geographies visible, to situate and contextualize each case of feminicide, to reclaim databases as spaces for memory and witnessing, and to build transnational networks of solidarity. In this sense, we argue that data activism about feminicide constitutes a space of resistance and resignification of everyday forms of gender-related violence…(More)”.
DAOs of Collective Intelligence? Unraveling the Complexity of Blockchain Governance in Decentralized Autonomous Organizations
Paper by Mark C. Ballandies, Dino Carpentras, and Evangelos Pournaras: “Decentralized autonomous organizations (DAOs) have transformed organizational structures by shifting from traditional hierarchical control to decentralized approaches, leveraging blockchain and cryptoeconomics. Despite managing significant funds and building global networks, DAOs face challenges like declining participation, increasing centralization, and inabilities to adapt to changing environments, which stifle innovation. This paper explores DAOs as complex systems and applies complexity science to explain their inefficiencies. In particular, we discuss DAO challenges, their complex nature, and introduce the self-organization mechanisms of collective intelligence, digital democracy, and adaptation. By applying these mechansims to improve DAO design and construction, a practical design framework for DAOs is created. This contribution lays a foundation for future research at the intersection of complexity science and DAOs…(More)”.
Using internet search data as part of medical research
Blog by Susan Thomas and Matthew Thompson: “…In the UK, almost 50 million health-related searches are made using Google per year. Globally there are 100s of millions of health-related searches every day. And, of course, people are doing these searches in real-time, looking for answers to their concerns in the moment. It’s also possible that, even if people aren’t noticing and searching about changes to their health, their behaviour is changing. Maybe they are searching more at night because they are having difficulty sleeping or maybe they are spending more (or less) time online. Maybe an individual’s search history could actually be really useful for researchers. This realisation has led medical researchers to start to explore whether individuals’ online search activity could help provide those subtle, almost unnoticeable signals that point to the beginning of a serious illness.
Our recent review found 23 studies have been published so far that have done exactly this. These studies suggest that online search activity among people later diagnosed with a variety of conditions ranging from pancreatic cancer and stroke to mood disorders, was different to people who did not have one of these conditions.
One of these studies was published by researchers at Imperial College London, who used online search activity to identify signals of women with gynaecological malignancies. They found that women with malignant (e.g. ovarian cancer) and benign conditions had different search patterns, up to two months prior to a GP referral.
Pause for a moment, and think about what this could mean. Ovarian cancer is one of the most devastating cancers women get. It’s desperately hard to detect early – and yet there are signals of this cancer visible in women’s internet searches months before diagnosis?…(More)”.