The ‘who’ and ‘what’ of #diabetes on Twitter


Mariano Beguerisse-Díaz, Amy K. McLennan, Guillermo Garduño-Hernández, Mauricio Barahona, and Stanley J. Ulijaszek at arXiv: “Social media are being increasingly used for health promotion. Yet the landscape of users and messages in such public fora is not well understood. So far, studies have typically focused either on people suffering from a disease, or on agencies that address it, but have not looked more broadly at all the participants in the debate and discussions. We study the conversation about diabetes on Twitter through the systematic analysis of a large collection of tweets containing the term ‘diabetes’, as well as the interactions between their authors. We address three questions: (1) what themes arise in these messages?; (2) who talks about diabetes and in what capacity?; and (3) which type of users contribute to which themes? To answer these questions, we employ a mixed-methods approach, using techniques from anthropology, network science and information retrieval. We find that diabetes-related tweets fall within broad thematic groups: health information, news, social interaction, and commercial. Humorous messages and messages with references to popular culture appear constantly over time, more than any other type of tweet in this corpus. Top ‘authorities’ are found consistently across time and comprise bloggers, advocacy groups and NGOs related to diabetes, as well as stockmarket-listed companies with no specific diabetes expertise. These authorities fall into seven interest communities in their Twitter follower network. In contrast, the landscape of ‘hubs’ is diffuse and fluid over time. We discuss the implications of our findings for public health professionals and policy makers. Our methods are generally applicable to investigations where similar data are available….(More)”

Countries with strong public service media have less rightwing extremism


Tara Conlan in The Guardian: “Countries that have popular, well-funded public service broadcasters encounter less rightwing extremism and corruption and have more press freedom, a report from the European Broadcasting Union has found.

For the first time, an analysis has been done of the contribution of public service media, such as the BBC, to democracy and society.

Following Brexit and the rise in rightwing extremism across Europe, the report shows the impact strong publicly funded television and radio has had on voter turnout, control of corruption and press freedom.

The EBU, which founded Eurovision, carried out the study across 25 countries after noticing that the more well-funded a country’s public service outlets were, the less likely the nation was to endure extremism.

The report says that in “countries where public service media funding … is higher there tends to be more press freedom” and where they have a higher market share “there also tends to be a higher voter turnout”. It also says there is a strong correlation between how much of a country’s market its public service broadcaster has and the “demand for rightwing extremism” and “control of corruption”.

“These correlations are especially interesting given the current public debates about low participation in elections, corruption and the rise of far right politics across Europe,” said EBU head of media intelligence service Roberto Suárez Candel, who conducted the research….(More)”

See also:  PSM Correlations Report  and Trust in Media 2016

The Four-Dimensional Human


Book by Laurence Scott: “You are a four-dimensional human.

Each of us exists in three-dimensional, physical space. But, as a constellation of everyday digital phenomena rewires our lives, we are increasingly coaxed from the containment of our predigital selves into a wonderful and eerie fourth dimension, a world of ceaseless communication, instant information, and global connection.

Our portals to this new world have been wedged open, and the silhouette of a figure is slowly taking shape. But what does it feel like to be four-dimensional? How do digital technologies influence the rhythms of our thoughts, the style and tilt of our consciousness? What new sensitivities and sensibilities are emerging with our exposure to the delights, sorrows, and anxieties of a networked world? And how do we live in public with these recoded private lives?

Laurence Scott—hailed as a “New Generation Thinker” by the Arts and Humanities Research Council and the BBC—shows how this four-dimensional life is dramatically changing us by redefining our social lives and extending the limits of our presence in the world. Blending tech-philosophy with insights on everything from Seinfeld to the fall of Gaddafi, Scott stands with a rising generation of social critics hoping to understand our new reality. His virtuosic debut is a revelatory and original exploration of life in the digital age….(More)”

How Big Data Analytics is Changing Legal Ethics


Renee Knake at Bloomberg Law: “Big data analytics are changing how lawyers find clients, conduct legal research and discovery, draft contracts and court papers, manage billing and performance, predict the outcome of a matter, select juries, and more. Ninety percent of corporate legal departments, law firms, and government lawyers note that data analytics are applied in their organizations, albeit in limited ways, according to a 2015 survey. The Legal Services Corporation, the largest funder of civil legal aid for low-income individuals in the United States, recommended in 2012 that all states collect and assess data on case progress/outcomes to improve the delivery of legal services. Lawyers across all sectors of the market increasingly recognize how big data tools can enhance their work.

A growing literature advocates for businesses and governmental bodies to adopt data ethics policies, and many have done so. It is not uncommon to find data-use policies prominently displayed on company or government websites, or required a part of a click-through consent before gaining access to a mobile app or webpage. Data ethics guidelines can help avoid controversies, especially when analytics are used in potentially manipulative or exploitive ways. Consider, for example, Target’s data analytics that uncovered a teen’s pregnancy before her father did, or Orbitz’s data analytics offered pricier hotels to Mac users. These are just two of numerous examples in recent years where companies faced criticism for how they used data analytics.

While some law firms and legal services organizations follow data-use policies or codes of conduct, many do not. Perhaps this is because the legal profession was not transformed as early or rapidly as other industries, or because until now, big data in legal was largely limited to e-discovery, where the data use is confined to the litigation and is subject to judicial oversight. Another reason may be that lawyers believe their rules of professional conduct provide sufficient guidance and protection. Unlike other industries, lawyers are governed by a special code of ethical obligations to clients, the justice system, and the public. In most states, this code is based in part upon the American Bar Association (ABA) Model Rules of Professional Conduct, though rules often vary from jurisdiction to jurisdiction. Several of the Model Rules are relevant to big data use. That said, the Model Rules are insufficient for addressing a number of fundamental ethical concerns.

At the moment, legal ethics for big data analytics is at best an incomplete mix of professional conduct rules and informal policies adopted by some, but not all law practices. Given the increasing prevalence of data analytics in legal services, lawyers and law students should be familiar not only with the relevant professional conduct rules, but also the ethical questions left unanswered. Listed below is a brief summary of both, followed by a proposed legal ethics agenda for data analytics. …

Questions Unanswered by Lawyer Ethics Rules 

Access/Ownership. Who owns the original data — the individual source or the holder of the pooled information? Who owns the insights drawn from its analysis? Who should receive access to the data compilation and the results?

Anonymity/Identity. Should all personally identifiable or sensitive information be removed from the data? What protections are necessary to respect individual autonomy? How should individuals be able to control and shape their electronic identity?

Consent. Should individuals affirmatively consent to use of their personal data? Or is it sufficient to provide notice, perhaps with an opt-out provision?

Privacy/Security. Should privacy be protected beyond the professional obligation of client confidentiality? How should data be secured? The ABA called upon private and public sector lawyers to implement cyber-security policies, including data use, in a 2012resolution and produced a cyber-security handbook in 2013.

Process. How involved should lawyers be in the process of data collection and analysis? In the context of e-discovery, for example, a lawyer is expected to understand how documents are collected, produced, and preserved, or to work with a specialist. Should a similar level of knowledge be required for all forms of data analytics use?

Purpose. Why was the data first collected from individuals? What is the purpose for the current use? Is there a significant divergence between the original and secondary purposes? If so, is it necessary for the individuals to consent to the secondary purpose? How will unintended consequences be addressed?

Source. What is the source of the data? Did the lawyer collect it directly from clients, or is the lawyer relying upon a third-party source? Client-based data is, of course, subject to the lawyer’s professional conduct rules. Data from any source should be trustworthy, reasonable, timely, complete, and verifiable….(More)”

Why Zika, Malaria and Ebola should fear analytics


Frédéric Pivetta at Real Impact Analytics:Big data is a hot business topic. It turns out to be an equally hot topic for the non profit sector now that we know the vital role analytics can play in addressing public health issues and reaching sustainable development goals.

Big players like IBM just announced they will help fight Zika by analyzing social media, transportation and weather data, among other indicators. Telecom data takes it further by helping to predict the spread of disease, identifying isolated and fragile communities and prioritizing the actions of aid workers.

The power of telecom data

Human mobility contributes significantly to epidemic transmission into new regions. However, there are gaps in understanding human mobility due to the limited and often outdated data available from travel records. In some countries, these are collected by health officials in the hospitals or in occasional surveys.

Telecom data, constantly updated and covering a large portion of the population, is rich in terms of mobility insights. But there are other benefits:

  • it’s recorded automatically (in the Call Detail Records, or CDRs), so that we avoid data collection and response bias.
  • it contains localization and time information, which is great for understanding human mobility.
  • it contains info on connectivity between people, which helps understanding social networks.
  • it contains info on phone spending, which allows tracking of socio-economic indicators.

Aggregated and anonymized, mobile telecom data fills the public data gap without questioning privacy issues. Mixing it with other public data sources results in a very precise and reliable view on human mobility patterns, which is key for preventing epidemic spreads.

Using telecom data to map epidemic risk flows

So how does it work? As in any other big data application, the challenge is to build the right predictive model, allowing decision-makers to take the most appropriate actions. In the case of epidemic transmission, the methodology typically includes five steps :

  • Identify mobility patterns relevant for each particular disease. For example, short-term trips for fast-spreading diseases like Ebola. Or overnight trips for diseases like Malaria, as it spreads by mosquitoes that are active only at night. Such patterns can be deduced from the CDRs: we can actually find the home location of each user by looking at the most active night tower, and then tracking calls to identify short or long-term trips. Aggregating data per origin-destination pairs is useful as we look at intercity or interregional transmission flows. And it protects the privacy of individuals, as no one can be singled out from the aggregated data.
  • Get data on epidemic incidence, typically from local organisations like national healthcare systems or, in case of emergency, from NGOs or dedicated emergency teams. This data should be aggregated on the same level of granularity than CDRs.
  • Knowing how many travelers go from one place to another, for how long, and the disease incidence at origin and destination, build an epidemiological model that can account for the way and speed of transmission of the particular disease.
  • With an import/export scoring model, map epidemic risk flows and flag areas that are at risk of becoming the new hotspots because of human travel.
  • On that base, prioritize and monitor public health measures, focusing on restraining mobility to and from hotspots. Mapping risk also allows launching prevention campaigns at the right places and setting up the necessary infrastructure on time. Eventually, the tool reduces public health risks and helps stem the epidemic.

That kind of application works in a variety of epidemiological contexts, including Zika, Ebola, Malaria, Influenza or Tuberculosis. No doubt the global boom of mobile data will proof extraordinarily helpful in fighting these fierce enemies….(More)”

Effect of Government Data Openness on a Knowledge-based Economy


Jae-Nam LeeJuyeon Ham and Byounggu Choi at Procedia Computer Science: “Many governments have recently begun to adopt the concept of open innovation. However, studies on the openness of government data and its effect on the global competitiveness have not received much attention. Therefore, this study aims to investigate the effects of government data openness on a knowledge-based economy at the government level. The proposed model was analyzed using secondary data collected from three different reports. The findings indicate that government data openness positively affects the formation of knowledge bases in a country and that the level of knowledge base of a country positively affects the global competitiveness of a country….(More)”

 

Taking a More Sophisticated Look at Human Beings


Nathan Collins at Pacific Standard: “Are people fundamentally selfish, or are they cooperators? Actually, it’s kind of an odd question—after all, why are those the only options? The answer is that those options are derived in large part from philosophy and classical economic theory, rather than data. In a new paper, researchers have flipped the script, using observations of simple social situations to show that optimism, pessimism, envy, and trust, rather than selfishness and sacrifice, are the basic ingredients of our behavior.

That conclusion advances wider “efforts toward the identification of basic behavioral phenotypes,” or categories of behavior, and the results could be usefully applied in social science, policy, and business, Julia Poncela-Casasnovas and her colleagues write in Science Advances.

Classical economic theory has something of a bad reputation these days, and not without reason. For one thing, most economic theory assumes people are rational, in the sense that they are strategic and maximize their payoffs in all that they do. The list of objections to that approach is long and well-documented, but there’s a counter objection—amid a slew of objections and anecdotes, there’s little in the way of a cohesive alternative theory.

Optimism, pessimism, envy, and trust are the basic ingredients of our behavior.

Poncela-Casasnovas and her colleagues’ experiments are, they hope, a step toward such a theory. Their idea was to put ordinary people in simple social situations with economic tradeoffs, observe how those people act, and then construct a data-driven classification of their behavior…. Using standard statistical methods, the researchers identified four such player types: optimists (20 percent), who always go for the highest payoff, hoping the other player will coordinate to achieve that goal; pessimists (30 percent), who act according to the opposite assumption; the envious (21 percent), who try to score more points than their partners; and the trustful (17 percent), who always cooperate. The remaining 12 percent appeared to make their choices completely at random.

Those results don’t yet add up to anything like a theory of human behavior, but they do “open the door to making relevant advances in a number of directions,” the authors write. In particular, the researchers hope their results will help explain behavior in other simple games, and aid those hoping to understand how people may respond to new policy initiatives….(More)”

An investigation of unpaid crowdsourcing


Chapter by Ria Mae Borromeo and Motomichi Toyama in Human-centric Computing and Information Sciences: “The continual advancement of internet technologies has led to the evolution of how individuals and organizations operate. For example, through the internet, we can now tap a remote workforce to help us accomplish certain tasks, a phenomenon called crowdsourcing. Crowdsourcing is an approach that relies on people to perform activities that are costly or time-consuming using traditional methods. Depending on the incentive given to the crowd workers, crowdsourcing can be classified as paid or unpaid. In paid crowdsourcing, the workers are incentivized financially, enabling the formation of a robust workforce, which allows fast completion of tasks. Consequently, in unpaid crowdsourcing, the lack of financial incentive potentially leads to an unpredictable workforce and indeterminable task completion time. However, since payment to workers is not necessary, it can be an economical alternative for individuals and organizations who are more concerned about the budget than the task turnaround time. In this study, we explore unpaid crowdsourcing by reviewing crowdsourcing applications where the crowd comes from a pool of volunteers. We also evaluate its performance in sentiment analysis and data extraction projects. Our findings suggest that for such tasks, unpaid crowdsourcing completes slower but yields results of similar or higher quality compared to its paid counterpart…(More)”

 

The Ethics of Biomedical Big Data


Book edited by Mittelstadt, Brent Daniel, and Floridi, Luciano: “This book presents cutting edge research on the new ethical challenges posed by biomedical Big Data technologies and practices. ‘Biomedical Big Data’ refers to the analysis of aggregated, very large datasets to improve medical knowledge and clinical care. The book describes the ethical problems posed by aggregation of biomedical datasets and re-use/re-purposing of data, in areas such as privacy, consent, professionalism, power relationships, and ethical governance of Big Data platforms. Approaches and methods are discussed that can be used to address these problems to achieve the appropriate balance between the social goods of biomedical Big Data research and the safety and privacy of individuals. Seventeen original contributions analyse the ethical, social and related policy implications of the analysis and curation of biomedical Big Data, written by leading experts in the areas of biomedical research, medical and technology ethics, privacy, governance and data protection. The book advances our understanding of the ethical conundrums posed by biomedical Big Data, and shows how practitioners and policy-makers can address these issues going forward….(More)”

Exploring Online Engagement in Public Policy Consultation: The Crowd or the Few?


Helen K. Liu in Australian Journal of Public Administration: “Governments are increasingly adopting online platforms to engage the public and allow a broad and diverse group of citizens to participate in the planning of government policies. To understand the role of crowds in the online public policy process, we analyse participant contributions over time in two crowd-based policy processes, the Future Melbourne wiki and the Open Government Dialogue. Although past evaluations have shown the significance of public consultations by expanding the engaged population within a short period of time, our empirical case studies suggest that a small number of participants contribute a disproportionate share of ideas and opinions. We discuss the implications of our initial examination for the future design of engagement platforms….(More)”