Collection

Patients Take Control of Their Health Care Online

Curated on September 11, 2013August 3, 2018 by Stefaan Verhulst

MIT Technology Review: “Patients are collaborating for better health — and, just maybe, radically reduced health-care costs….Not long ago, Sean Ahrens managed flare-ups of his Crohn’s disease—abdominal pain, vomiting, diarrhea—by calling his doctor and waiting a month for an appointment, only to face an inconclusive array of possible prescriptions. Today, he can call on 4,210 fellow patients in 66 countries who collaborate online to learn which treatments—drugs, diets, acupuncture, meditation, even do-it-yourself infusions of intestinal parasites —bring the most relief.
The online community Ahrens created and launched two years ago, Crohnology.com, is one of the most closely watched experiments in digital health. It lets patients with Crohn’s, colitis, and other inflammatory bowel conditions track symptoms, trade information on different diets and remedies, and generally care for themselves.
The site is at the vanguard of the growing “e-patient” movement that is letting patients take control over their health decisions—and behavior—in ways that could fundamentally change the economics of health care. Investors are particularly interested in the role “peer-to-peer” social networks could play in the $3 trillion U.S. health-care market.

“Patients sharing data about how they feel, the type of treatments they’re using, and how well they’re working is a new behavior,” says Malay Gandhi, chief strategy officer of Rock Health, a San Francisco incubator for health-care startups that invested in Crohnology.com. “If you can get consumers to engage in their health for 15 to 30 minutes a day, there’s the largest opportunity in digital health care.”
Experts say when patients learn from each other, they tend to get fewer tests, make fewer doctors’ visits, and also demand better treatment. “It can lead to better quality, which in many cases will be way more affordable,” says Bob Kocher, an oncologist and former adviser to the Obama administration on health policy.”

Frontiers in Massive Data Analysis

Curated on September 11, 2013August 3, 2018 by Stefaan Verhulst

New report from the National Academy of Sciences: “Data mining of massive data sets is transforming the way we think about crisis response, marketing, entertainment, cybersecurity and national intelligence. Collections of documents, images, videos, and networks are being thought of not merely as bit strings to be stored, indexed, and retrieved, but as potential sources of discovery and knowledge, requiring sophisticated analysis techniques that go far beyond classical indexing and keyword counting, aiming to find relational and semantic interpretations of the phenomena underlying the data.
Frontiers in Massive Data Analysis examines the frontier of analyzing massive amounts of data, whether in a static database or streaming through a system. Data at that scale–terabytes and petabytes–is increasingly common in science (e.g., particle physics, remote sensing, genomics), Internet commerce, business analytics, national security, communications, and elsewhere. The tools that work to infer knowledge from data at smaller scales do not necessarily work, or work well, at such massive scale. New tools, skills, and approaches are necessary, and this report identifies many of them, plus promising research directions to explore. Frontiers in Massive Data Analysis discusses pitfalls in trying to infer knowledge from massive data, and it characterizes seven major classes of computation that are common in the analysis of massive data. Overall, this report illustrates the cross-disciplinary knowledge–from computer science, statistics, machine learning, and application disciplines–that must be brought to bear to make useful inferences from massive data.”

How to make a city great

Curated on September 11, 2013August 3, 2018 by Stefaan Verhulst

New video and report by McKinsey: “What makes a great city? It is a pressing question because by 2030, 5 billion people—60 percent of the world’s population—will live in cities, compared with 3.6 billion today, turbocharging the world’s economic growth. Leaders in developing nations must cope with urbanization on an unprecedented scale, while those in developed ones wrestle with aging infrastructures and stretched budgets. All are fighting to secure or maintain the competitiveness of their cities and the livelihoods of the people who live in them. And all are aware of the environmental legacy they will leave if they fail to find more sustainable, resource-efficient ways of managing these cities.

To understand the core processes and benchmarks that can transform cities into superior places to live and work, McKinsey developed and analyzed a comprehensive database of urban economic, social, and environmental performance indicators. The research included interviewing 30 mayors and other leaders in city governments on four continents and synthesizing the findings from more than 80 case studies that sought to understand what city leaders did to improve processes and services from urban planning to financial management and social housing.
The result is How to make a city great (PDF–2.1MB), a new report arguing that leaders who make important strides in improving their cities do three things really well:

They achieve smart growth. …
They do more with less. Great cities secure all revenues due, explore investment partnerships, embrace technology, make organizational changes that eliminate overlapping roles, and manage expenses. Successful city leaders have also learned that, if designed and executed well, private–public partnerships can be an essential element of smart growth, delivering lower-cost, higher-quality infrastructure and services.
They win support for change. Change is not easy, and its momentum can even attract opposition. Successful city leaders build a high-performing team of civil servants, create a working environment where all employees are accountable for their actions, and take every opportunity to forge a stakeholder consensus with the local population and business community. They take steps to recruit and retain top talent, emphasize collaboration, and train civil servants in the use of technology.”

Understanding the impact of releasing and re-using open government data

Curated on September 10, 2013August 3, 2018 by Stefaan Verhulst

New Report by the European Public Sector Information Platform: “While there has been a proliferation of open data portals and data re-using tools and applications of tremendous speed in the last decade, research and understanding about the impact of opening up public sector information and open government data (OGD hereinafter) has been lacking behind.
Until now, there have been some research efforts to structure the concept of the impact of OGD suggesting various theories of change, their measuring methodologies or in some cases, concrete calculations as to what financial benefits opening government data brings on a table. For instance, the European Commission conducted a study on pricing of public sector information, which attempted evaluating direct and indirect economic impact of opening public data and identified key indicators to monitor the effects of open data portals. Also, Open Data Research Network issued a background report in April 2012 suggesting a general framework of key indicators to measure the impact of open data initiatives both on a provision and re-use stages.
Building on the research efforts up to date, this report will reflect upon the main types of impacts OGD may have and will also present key measuring frameworks to observe the change OGD initiatives may bring about.”

Open data for accountable governance: Is data literacy the key to citizen engagement?

Curated on September 9, 2013May 29, 2019 by Stefaan Verhulst

Camilla Monckton at UNDP’s Voices of Eurasia blog: “How can technology connect citizens with governments, and how can we foster, harness, and sustain the citizen engagement that is so essential to anti-corruption efforts?
UNDP has worked on a number of projects that use technology to make it easier for citizens to report corruption to authorities:

Serbia’s SMS corruption reporting in the health sector
Montenegro’s ‘be responsible app’
Kosovo’s online corruption reporting site kallxo.com

These projects are showing some promising results, and provide insights into how a more participatory, interactive government could develop.
At the heart of the projects is the ability to use citizen generated data to identify and report problems for governments to address….

Wanted: Citizen experts

As Kenneth Cukier, The Economist’s Data Editor, has discussed, data literacy will become the new computer literacy. Big data is still nascent and it is impossible to predict exactly how it will affect society as a whole. What we do know is that it is here to stay and data literacy will be integral to our lives.
It is essential that we understand how to interact with big data and the possibilities it holds.
Data literacy needs to be integrated into the education system. Educating non-experts to analyze data is critical to enabling broad participation in this new data age.
As technology advances, key government functions become automated, and government data sharing increases, newer ways for citizens to engage will multiply.
Technology changes rapidly, but the human mind and societal habits cannot. After years of closed government and bureaucratic inefficiency, adaptation of a new approach to governance will take time and education.
We need to bring up a generation that sees being involved in government decisions as normal, and that views participatory government as a right, not an ‘innovative’ service extended by governments.

What now?

In the meantime, while data literacy lies in the hands of a few, we must continue to connect those who have the technological skills with citizen experts seeking to change their communities for the better – as has been done in many a Social Innovation Camps recently (in Montenegro, Ukraine and Armenia at Mardamej and Mardamej Relaoded and across the region at Hurilab).
The social innovation camp and hackathon models are an increasingly debated topic (covered by Susannah Vila, David Eaves, Alex Howard and Clay Johnson).
On the whole, evaluations are leading to newer models that focus on greater integration of mentorship to increase sustainability – which I readily support. However, I do have one comment:
Social innovation camps are often criticized for a lack of sustainability – a claim based on the limited number of apps that go beyond the prototype phase. I find a certain sense of irony in this, for isn’t this what innovation is about: Opening oneself up to the risk of failure in the hope of striking something great?
In the words of Vinod Khosla:

“No failure means no risk, which means nothing new.”

As more data is released, the opportunity for new apps and new ways for citizen interaction will multiply and, who knows, someone might come along and transform government just as TripAdvisor transformed the travel industry.”

Coase’s theories predicted Internet’s impact on how business is done

Curated on September 9, 2013August 3, 2018 by Stefaan Verhulst

Don Tapscott in The Globe and Mail: “Renowned economist Ronald Coase died last week at the age of 102. Among his many achievements, Mr. Coase was awarded the 1991 Nobel Prize in Economics, largely for his inspiring 1937 paper The Nature of the Firm. The Nobel committee applauded the academic for his “discovery and clarification of the significance of transaction costs … for the institutional structure and functioning of the economy.”
Mr. Coase’s enduring legacy may well be that 60 years later, his paper and theories help us understand the Internet’s impact on business, the economy and all our institutions… Mr. Coase wondered why there was no market within the firm. Why is it unprofitable to have each worker, each step in the production process, become an independent buyer and seller? Why doesn’t the draftsperson auction their services to the engineer? Why is it that the engineer does not sell designs to the highest bidder? Mr. Coase argued that preventing this from happening created marketplace friction.
Mr. Coase argued that this friction gave rise to transaction costs – or to put it more broadly, collaboration or relationship costs. There are three types of these relationship costs. First are search costs, such as the hunt for appropriate suppliers. Second are contractual costs, including price and contract negotiations. Third are the co-ordination costs of meshing the different products and processes.
The upshot is that most vertically integrated corporations found it cheaper and simpler to perform most functions in-house, rather than incurring the cost, hassle and risk of constant transactions with outside partners….This is no longer the case. Many behemoths have lost market share to more supple competitors. Digital technologies slash transaction and collaboration costs. Smart companies are making their boundaries porous, using the Internet to harness knowledge, resources and capabilities outside the company. Everywhere,leading firms set a context for innovation and then invite their customers, partners and other third parties to co-create their products and services.
Today’s economic engines are Internet-based clusters of businesses. While each company retains its identity, companies function together, creating more wealth than they could ever hope to create individually. Where corporations were once gigantic, new business ecosystems tend toward the amorphous.
Procter & Gamble now gets 60 per cent of its innovation from outside corporate walls. Boeing has built a massive ecosystem to design and manufacture jumbo jets. China’s motorcycle industry, which consists of dozens of companies collaborating with no single company pulling the strings, now comprises 40 per cent of global motorcycle production.
Looked at one way, Amazon.com is a website with many employees that ships books. Looked at another way, however, Amazon is a vast ecosystem that includes authors, publishers, customers who write reviews for the site, delivery companies like UPS, and tens of thousands of affiliates that market products and arrange fulfilment through the Amazon network. Hundreds of thousands of people are involved in Amazon’s viral marketing network.
This is leading to the biggest change to the corporation in a century and altering how we orchestrate capability to innovate, create goods and services and engage with the world. From now on, the ecosystem itself, not the corporation per se, should serve as the point of departure for every business strategist seeking to understand the new economy – and for every manager, entrepreneur and investor seeking to prosper in it.
Nor does the Internet tonic apply only to corporations. The Web is dropping transaction costs everywhere – enabling networked approaches to almost every institution in society, from government, media, science and health care to our energy grid, transportation systems and institutions for global problem solving.
Governments can change from being vertically integrated, industrial-age bureaucracies to become networks. By releasing their treasures of raw data, governments can now become platforms upon which companies, NGOs, academics, foundations, individuals and other government agencies can collaborate to create public value…”

Open Government in a Digital Age

Curated on September 8, 2013August 3, 2018 by Stefaan Verhulst

An essay by Jonathan Reichental (Chief Information Officer of the City of Palo Alto) and Sheila Tucker (Assistant to the City Manager) that summarizes work done at the City that resulted in the Thomas H. Muehlenback Award for Excellent in Local Government: “Government is in a period of extraordinary change. Demographics are shifting. Fiscal constraints continue to challenge service delivery. Communities are becoming more disconnected with one another and their governments, and participation in civic affairs is rapidly declining. Adding to the complexities, technology is rapidly changing the way cities provide services, and conduct outreach and civic engagement. Citizens increasingly expect to engage with their government in much the same way they pay bills online or find directions using their smartphone where communication is interactive and instantaneous. The role of government of course is more complicated than simply improving transactions.
To help navigate these challenges, the City of Palo Alto has focused its effort on new ways of thinking and acting by leveraging our demographic base, wealth of intellectual talent and entrepreneurial spirit to engage our community in innovative problem solving. The City’s historic advantages in innovative leadership create a compelling context to push the possibilities of technology to solve civic challenges.
This case study examines how Palo Alto is positioning itself to maximize the use of technology to build a leading Digital City and make local government more inclusive, transparent and engage a broader base of its community in civic affairs….”

Political Scientists Acknowledge Need to Make Stronger Case for Their Field

Curated on September 6, 2013August 15, 2018 by Stefaan Verhulst

Beth McMurtrie in The Chronicle of Higher Education: “Back in March, Congress limited federal support for political-science research by the National Science Foundation to projects that promote national security or American economic interests. That decision was a victory for Sen. Tom Coburn, a Republican from Oklahoma who has long aimed to eliminate all NSF grants for political science, arguing that unlike the hard sciences it rarely produces concrete benefits to society.
Congress’s action has led to soul searching within the discipline about how effective academics have been in conveying the value of their work to the public. It has also revived a longstanding debate among political scientists about the shift toward more statistically sophisticated, mathematically esoteric research, and its usefulness outside of academe. Those discussions were out front at the annual conference of the American Political Science Association, held here last week.
Rogers M. Smith, a political-science professor at the University of Pennsylvania, was one of 13 members of a panel that discussed the controversy over NSF money for political-science studies. He put the problem bluntly: “We need to make a better case for ourselves.”
Few on the panel, in fact, seemed to think that political science had done a good job on that front. The association has created a task force—led by Arthur Lupia, a political-science professor at the University of Michigan at Ann Arbor—to improve public perceptions of political science’s value. He said his colleagues could learn from organizations like the American Association for the Advancement of Science, which holds special sessions for the news media at its annual conference to explain the work of its members to the public.”

Fighting for Reliable Evidence

Curated on September 6, 2013November 1, 2018 by Stefaan Verhulst

New book by Judy Gueron and Howard Rolston: “Once primarily used in medical clinical trials, random assignment experimentation is now accepted among social scientists across a broad range of disciplines. The technique has been used in social experiments to evaluate a variety of programs, from microfinance and welfare reform to housing vouchers and teaching methods. How did randomized experiments move beyond medicine and into the social sciences, and can they be used effectively to evaluate complex social problems? Fighting for Reliable Evidence provides an absorbing historical account of the characters and controversies that have propelled the wider use of random assignment in social policy research over the past forty years.
Drawing from their extensive experience evaluating welfare reform programs, noted scholar practitioners Judith M. Gueron and Howard Rolston portray randomized experiments as a vital research tool to assess the impact of social policy. In a random assignment experiment, participants are sorted into either a treatment group that participates in a particular program, or a control group that does not. Because the groups are randomly selected, they do not differ from one another systematically. Therefore any subsequent differences between the groups can be attributed to the influence of the program or policy. The theory is elegant and persuasive, but many scholars worry that such an experiment is too difficult or expensive to implement in the real world. Can a control group be truly insulated from the treatment policy? Would staffers comply with the random allocation of participants? Would the findings matter?”